Omg...i Might Be On To Something

[NoGluGirl]

Dear Rinne,

I wonder if maybe our local health food store has Salt/C. They can order in what they do not always have in stock, too. I think it is amazing something so simple could help Lyme! There is so much wrong, and I need to get it fixed. The Babs is likely the biggest trouble.

Dairy is something I can handle a little of. I can have a chocolate bar, but not pudding or yogurt. I assume it is a lactose issue. If it were casein, it all would still bother me. Cheese often has no lactose, so I tend to tolerate it as well alright. This is kind of an individual thing, as is the gluten intolerance. However, being Celiac, I prefer never to tempt fate on that one!

Dear Rachel,

I get my feelings hurt easily as well. Some people on the forum like drama. They must start a fight. I cannot understand why people do that. I like serene environments where people get along.

I am more of the peacemaker type. My brother is like that, always causing drama. He has even made up things about what people say to get arguments going between me and other relatives! Naturally, my mother blames it on his mental handicap. I told her, she is just making excuses!

There are a lot of handicapped people who do not cause drama. He knows very well what he is doing. It infuriates me. I just do not understand why people would want to cause discord and hatred toward others. It has gotten to the point I cannot stand for him to visit. All he does is make me angry or depress me.

It is scary what you found about the pans. I am freaked, now! I think those are the only ones I can afford. Is all non-stick Teflon coated? I know we have T-Fal, and now that it is older, I have been getting a bit dizzy from the odor coming off of the one little pan I have for myself. I got that way and a bit queasy from the smell of the baking sheet while it was in the oven, and it is not Teflon.

Dear Susan,

I hope they have ART or BioSet somewhere near here. I doubt it, though. Indiana is full of stupid people. We are literally the village idiot of the United States of America! If there are any practitioners in this state, they are probably far away, like in Indianapolis.

Dear Carla,

What you found about Questran is interesting. I had heard of the drug before. I am leary of any type of pill these days. My body does not normally like them. You just never know how badly your body will react.

I bet you caught the cold from the plane. The air does not fully circulate, leaving unclean air to breathe in. That is why Airborne is so popular. It is a favorite among travelers to avoid catching bugs.

Hopefully, you will recover quickly.

I am happy to say, since going gluten-free eight or so months ago, I have stopped catching colds so easily! I have been around some people who had them, but actually did not get sick. That is definitely great! Normally, I would catch a cold, then it would go into broncchitis. Then my asthma would mess me up.

Dear Mia,

I felt like poo for a while yesterday, too. It sucks! I just got really queasy yesterday afternoon. I think I might have waited too long to eat. I took my medication and got very drowsy. I took a nap after I ate something, then I had to wake up and go to my study group.

Dear Andrea,

Your schedule sounds as crazy as mine! Between school, trying to get a company going, and trying to clean up around here, there is not a lot of free time. I desperately need to find some balance.

I pretty much work up from the time I get up to the time I go to sleep. I spend most of my day cooking and obsessively cleaning due to the gluten issue, then the rest I am studying, doing dishes, caring for the dog, trying to get my company going, and everything else under the sun.

I second Mia's idea to get you a tropical island. We could all visit you and enjoy life for once. Gluten - free food, Rinne Bars, you name it. We could have it all! Our own private paradise. It will be just off of the coast of Rachelville!

Sincerely,

Jin

[Mango04]

I got a 22! I actually read her book The Highly Sensitive Person a long time ago and remember a lot of it resonating with me. Thanks Mango!

I scored 22 as well I really should read that book....

Thanks Mango.

I did the test for her and came up with 9.

Patti......14!

Ok, so now the next question. What makes a person highly sensitive and what do you do about it?

I didn't read through the site.....more a question I don't expect anyone to answer.

Maybe Talitha's not highly sensitive, but they way you described her sensitivities to clothing and her fears and such made me think maybe it was a fit for her. It isn't a disorder or anything...just interesting to learn about (if you are highly sensitive or if you live with someone who is ) Many highly sensitive people have food intolerances as well, so it all kind of relates. I just recently started learning about it and should really read up on it more.

There's a message board and more info about HSP attributes at www.sensitiveperson.com...

[AndreaB]

Andrea-

I felt like poo last night so I coulden;t post- but I am so sorry to hear you are having such a rough time.

Thanks Mia. We are doing better today.

Have you uped your diflucan? Has that made you feel worse. Do any of us here have your number? I know when Rachel "disappeared" for those two days last summer many of us exchanged numbers.

With as ill as some of you are I'd feel better if at least one person on this thread had another person's number. But that's just me and some people aren't comfortable sharing phone numbers.

I've noticed that other non-Lymies sometimes bring up Lyme, too. I think in some cases we'd be doing a person a disservice if we didn't bring it up.

I'm one of those. I am of the mind that I don't think it hurts to be aware of all the testing possibilities. I mean it could takes another number of years to be diagnosed with anything if a person isn't aware of all the possibilities.

The plane trip sounds horrid!

Hope you get over this quickly.

I think it's good for you, Rachel, to post outside this thread

I think it is too, as you can handle it. You have a lot of valuable information and your posts are always well thought out. I'm still amazed you can keep all the info straight with your brain fog.

It is scary what you found about the pans. I am freaked, now! I think those are the only ones I can afford. Is all non-stick Teflon coated? I know we have T-Fal, and now that it is older, I have been getting a bit dizzy from the odor coming off of the one little pan I have for myself. I got that way and a bit queasy from the smell of the baking sheet while it was in the oven, and it is not Teflon.

I believe all non stick has something that is not good in them. Sounds like it is time for you to get a new personal pan. Stainless steel isn't as easy to clean as nonstick but it is affordable.

Maybe Talitha's not highly sensitive, but they way you described her sensitivities to clothing and her fears and such made me think maybe it was a fit for her.

Thanks Mango. She wasn't like this as a baby (except for when I tried cloth diapers on her, that was a day long crying spree). I'm wondering if I can blame the vaccines (which still had mercury in them). I'll be more at peace once we can afford to get a metal challenge test and possible treatment for her.

[Mtndog]

Good morning (I think)- wel the results are in. Drum roll please:

I am positive for Lyme on both the IgG and the IgM!!!!!!!!!!!!!!!!!!!!!!!!!! Now please don't faint of shock. I decided to push the envelope and call today for the heck of it and yep- I've got it!

Don't know about co-infections yet (not sure which ones I was tested for) but they are putting me in the first available appt he has. Thank God- don't know whether to cry with relief or sadness or happiness or all three!

Thanks you guys- ALL of you- :wub: :wub: :wub: I would never have suspected this if it hadn't been for this thread. maybe I'll finally start getting somewhere....it's been 4 years!!!!!!!!!!!!!!!!!!!!!!!!

[CarlaB]

Thanks, Andrea. I'm running a fever of 100 degrees right now. It's pretty uncomfortable, but I know this hot temperature is not an environment the borrelia and babesia likes, so I'm not taking anything for it. I'm trying to muster up the strength to put on some shorts and a top and go lay out in the sun for a while ... the sun is so good for the immune system.

I also agree that all non-stick has bad stuff. Cast iron (not the enameled kind) is easy to clean and inexpensive.

Jin, I didn't catch any bugs going around for a couple years ... this is only the second time I've been sick (acutely, not counting the chronic illness) in a long time. It has to be good ... my immune system is trying to work on its own.

I think I'll have to skip my sauna today though ... I'm going to do a bit of research here in a minute, but I'm betting you're not supposed to sauna with a fever.

[CarlaB]

Bev, congrats on getting a clear answer finally! I know how good it feels! It's been four years for me, too.

It was no surprise, of course! It was this thread for me, too.

[Rachel--24]

I am positive for Lyme on both the IgG and the IgM!!!!!!!!!!!!!!!!!!!!!!!!!! Now please don't faint of shock.

Bev...Congrats!!!!

Its been a long time coming. Lots of hugs for you for all you've been through.

I dont blame you for calling for the results....I did the same. I was forcing the unwilling nurse to tell me.

Good that coinfection testing is already planned. The tests arent 100% so even if they're negative you could still have other infections. Its pretty much the norm but if they dont show up the Dr. may have to go by clinincal symptoms.

I'm glad that you were ready to look into this for yourself.....and I'm SUPER happy that you got an answer.

Oh...and I'm not really falling over with shock from the news.

[dlp252]

Yay BEV!!!!!!! So happy you are finally getting some answers!!!

I am so happy so many of us are finally getting those answers!!!

to all!!!

[jerseyangel]

Good morning (I think)- wel the results are in. Drum roll please:

I am positive for Lyme on both the IgG and the IgM!!!!!!!!!!!!!!!!!!!!!!!!!! Now please don't faint of shock. I decided to push the envelope and call today for the heck of it and yep- I've got it!

Don't know about co-infections yet (not sure which ones I was tested for) but they are putting me in the first available appt he has. Thank God- don't know whether to cry with relief or sadness or happiness or all three!

Thanks you guys- ALL of you- :wub: :wub: :wub: I would never have suspected this if it hadn't been for this thread. maybe I'll finally start getting somewhere....it's been 4 years!!!!!!!!!!!!!!!!!!!!!!!!

Gosh Bev--you too! But at least you know and can move forward.

I've been avoiding this, but I told myself that if Beverly is positive, then I'm getting tested. I have related to your symptoms continually for the last two years.

I just made an appointment for the 29th to see a DO in my area that told me that they would test using the Western Blot. I got the usual stuff over the phone about talking to the doctor first, but I'm taking this first step and then I'll go from there.

Thanks Bev, and I really am happy for you (you know what I mean )

[CarlaB]

Good for you, Patti! Be sure they use IGeneX to test you. I had to have the test kit sent to my house, then I took it to the doctor to do the test.

[Rachel--24]

I think that the person who jumped on you has really healed on the gluten-free diet. She has completely healed of many of the symptoms that many of us also have, but in our case, they've not gone away. I think she's very frustrated when someone suggests she's a 'lesser celiac' because her celiac tests came out negative. I know you didn't imply she was a 'lesser celiac' and neither have I, but I think she sometimes take it that way when we mention that our intolerance is likely from another disease/toxicity.

Carla...I agree with everything you wrote.

I know that she has gotten completely well on the diet alone and that her answer came from Enterolab. It doesnt make her a "lesser Celiac"....I dont know if she felt that way about what I was saying or not. I thought she was upset because she thinks I'm trying to turn people away from the diet by suggesting other things might be preventing healing??

I know shes a huge fan of Enterolab and I can see why....but if someones clearly not getting better after a long time gluten-free...they are obviously not having the same experience she had....which was a very quick and steady improvement with no real setbacks (other than when she eats gluten).

Unfortunately not everyone getting positive results back from Enterolab is going to experience that. ALOT of non-celiacs (and some Celiacs too) dont regain their health completely from the diet alone. Those of us on this thread only represent one tiny fraction of the people affected by other issues which have triggered Celiac or gluten intolerance.

I dont try to seperate people into categories of gluten intolerance....it is what it is. The point I was trying to make is that when you DONT get all the way better despite your best efforts on the diet and giving it a fair amount of time...then there *may* be more going on...not instead of the gluten intolerance...but in addition to the gluten intolerance.

As we know....some illnesses can lead to a gluten intolerance. I think some people are under the impression that only gluten can lead to a gluten intolerance....its just not true. If the GI tract is unhealthy and the gut is leaky....people can still be sick and still have reactions...even with gluten entirely out of the picture.

I think alot of people take their Enterolab results an an official diagnosis and so because of the amount of effort it takes to make sure you are completely gluten-free...you sort of lose sight of the bigger picture. Even if you're not getting better all of the attention is on gluten so there is always "hidden gluten" behind every reaction. This is what I did for the first few months...and I'm sure all of us have been there.

Since Enterolab isnt an official diagnosis and if the improvement isnt what one would expect....its entirely possible that not everything is caused by gluten in these cases....therefore I would not consider it the answer to everything....unless it truely is...meaning, resolution of all symptoms.

I think my posts (which I re-read) were clear as to what I was saying....so I dont really know how or why everything was taken so out of context.

I didnt imply ANY of the things she was upset about.

I got the feeling she thinks that I am only here to bring awareness to other illnesses and steer everyone away from gluten-free if they dont immediately get better.

[Mtndog]

Gosh Bev--you too! But at least you know and can move forward.

I've been avoiding this, but I told myself that if Beverly is positive, then I'm getting tested. I have related to your symptoms continually for the last two years.

I just made an appointment for the 29th to see a DO in my area that told me that they would test using the Western Blot. I got the usual stuff over the phone about talking to the doctor first, but I'm taking this first step and then I'll go from there.

Thanks Bev, and I really am happy for you (you know what I mean )

Patti- I feel like we are symptoms sisters.....as you cyber "niece" I must insist that you get tested! I'm SO glad you made the appt. :wub:

OMG- what is the world going to be like if we ALL get healthy? LOOK OUT!!!!!!!!!!

I did just find out that he didn't test me for co-infections yet because based on my initial consultation he didn't think I presented with the symptoms of any. But my appt got moved up to June 6th so we can talk then.

thank you all again!!!!!!!!!!! :wub:

[Judyin Philly]

BEV--CONGRATS ON ANSWERS...

I WROTE YOU ON D/S BUT CAME HERE FOR DETAILS.

YEP WAS WAITING FOR YOU

NOW PATTI

MY APT IS ON FRIDAY

GOING PREPARED (i PRAY)

SINCE THE LEG EVENT LAST WEEK TOOK SO MUCH OUT OF ME....PRAYING FOR SOME CLEARITY TO SAY WHAT NEEDS TO BE SAID SO HE LISTENS THIS TIME.

GOT A BOOK FROM CHIRO TODAY ON LYMES........READING UP AND WITH YOUR LIST BEV...I HOPE I CAN GET THE JOB DONE.

GOD IT WILL BE 2 YEARS JUNE 15TH.

SO HAPPY YOUR GETTING ANSWERS BEV.

LOVE YA

[CarlaB]

OMG- what is the world going to be like if we ALL get healthy? LOOK OUT!!!!!!!!!!

Ummm, I'm sure you meant WHEN!!!

Rachel, your posts were clear to me from my point of view, but when she read them, without seeing your body language in your communication, she interpreted them from her point of view. So even though you implied nothing of the sort, it was genuinely taken that way. That's why we should never get upset with others on the board ... it might just be our perception that is off because of the limited nature of the medium, she got upset because of her perception of what you said rather than what you actually said.

I thought you said it all quite well.

[AndreaB]

I am positive for Lyme on both the IgG and the IgM!!!!!!!!!!!!!!!!!!!!!!!!!!

Bev, I'm glad you've got an answer! Please post your numbers when you get them.

You will get better. Don't know if you've had amalgams or have to worry about mercury exposure, but this is a huge piece of the puzzle. Co-infections may very well be the last piece. You will regain your health!

I'm so glad you decided to pursue testing.

Rachel,

If you and Rinne and Robbin hadn't started talking about lyme last summer then how many on this thread would have been diagnosed so quickly.

Cast iron (not the enameled kind) is easy to clean and inexpensive.

We got rid of the iron skillets we had as they were used for gluten, cornbread (with wheat flour). I never used them for anything else. I know they can be very easy to use and I'm willing to learn. The instructions I had said to put oil all over them and put them in the oven. I don't remember the details.

I've been avoiding this, but I told myself that if Beverly is positive, then I'm getting tested. I have related to your symptoms continually for the last two years.

I just made an appointment for the 29th to see a DO in my area that told me that they would test using the Western Blot. I got the usual stuff over the phone about talking to the doctor first, but I'm taking this first step and then I'll go from there.

I'm glad you are getting tested to Patti. If nothing else it will just be one more thing to rule in or out. Please make sure you use Igenex. Maybe you could call and order the paperwork yourself. Just because they use Western Blot doesn't mean it's Igenex.

The 29th....is that next week 29th? Did you ask if they used Igenix?

[jerseyangel]

Thanks Bev and Carla.

I just called Mark and told him I made the appointment.. As you all know, he actually had Lyme last year!

Something just clicked when I read about Bev and I just pushed myself from the computer and went and made the call. As I have said before, it's probably a long shot, but I have to find out.

So, tomorrow I go to my GP to have a mole removed and get a prescription changed (stupid generics )....next week is the appt with the DO....and the week afer that is the breath test.

I feel like someone lit a fire under me!

And as soon as we're all healthy--look out world!!!

[jerseyangel]

Andrea,

No, I didn't ask them if they use IgeneX--I should have. She said that the doctor uses different labs depending on the situation.

I will ask him, though

[AndreaB]

I think alot of people take their Enterolab results an an official diagnosis

I used it as an early diagnosis since we all have celiac genes. I don't know if mercury or pregnancies tipped the scales to me reacting to gluten though.

MY APT IS ON FRIDAY

Judy,

They won't be able to do a blood draw on Friday. For Igenex it needs to be done earlier in the week, Mon-Wed I think. Did you order the Igenex paperwork?

[AndreaB]

Andrea,

No, I didn't ask them if they use IgeneX--I should have. She said that the doctor uses different labs depending on the situation.

I will ask him, though

I just worry about them not using Igenex. As you know, they are the reliable lab. I'd hate for them to use someone else and you not get the real results.

[rinne]

Hi Rinne,

I'm pretty good today--thanks for asking How about you? Life must be hectic for you these days with your business and all. When you have a chance, I'd love to hear what all is happening.

I can totally relate to "from normal to b****" in a few seconds! Gluten makes me an emotional mess--I go from annoyed and cranky--to anxious--and then to foggy and stupid. Bah!

I'm just busy doing all sorts of business related stuff, food handler's certificate, catering license, etc., some of it interesting, some of it very dull - I am definitely not an accounting type. Yesterday I attended a seminar on using an on-line interactive business plan and afterwards one of the guys in the office told me that last week he and two of his co-workers had started a gluten free diet. I gave him one of my business cards and told him that though I wasn't selling my treats yet I was offering samples. I've got half a dozen stores lined up that want to sell them, it is just putting all the pieces together. Thanks for asking.

.....

And you would be proud of me. I was orginally planning to go to the GIG conference and I really wanted to. But, I declined because of everything else going on-I know I need to rest. I said NO to something! Shocker!

....

I am.

I think that we have to admit we really need to take care of ourselves in order to actually take care of ourselves.

Rachel I really appreciate the clarity with which you express yourself on this thread and on other threads. I suspect that with the knowledge you have acquired through your illness you will go on to become an educator of some sort. I have no doubt that you will run into others who disagree with you and that you will handle those situations as gracefully as you have handled situations here.

Now I must catch up, I know I have fallen behind.

[dlp252]

Yeah, Enterolab...I used it to confirm what I already suspected...that I have a problem with gluten, but that wasn't the end of my problems for sure. I did see a lot of improvement, but the food issue just kept getting worse and worse and many of my symptoms didn't clear up. I think 1 year is plenty to wait.

I am so glad I decided to jump into this thread, lol. I would have NEVER in a million years suspected lyme, never. I also may not have ever connected mold, mercury or any of the other stuff to my issues had it not been for you girls!

When we are well, we shall eat cake. Chocolate, with thick heavy chocolate icing please! Perhaps with some crumbled up Bumble Bars on the top! And perhaps another layer of peanut butter. And there shall be milk!

No, I didn't ask them if they use IgeneX--I should have. She said that the doctor uses different labs depending on the situation.

Yeah, definitely make sure it's Igenix! My doctor used a bunch of different labs for all my bloodwork, but for Lyme it was Igenix. Western Blots can be done by all sorts of labs, but it really makes a difference in accuracy.

I am SOOOO happy you are going to be tested for this!!!!

[jerseyangel]

Donna--Thanks I know what you mean--not in a million years would I have thought--but then again, I've only known about Celiac and gluten for 2 years! And I will definately request IgeneX.

Rinne--I figured you were knee-deep in all sorts of business stuff. Still, it's exciting to think where you'll be with all of it a year from now.

Lucky co-workers getting Rinne Bar samples --great news on the stores you already have lined up.

[NoGluGirl]

Dear Andrea,

I do not think I can afford cast iron. I can afford an entire set of non-stick pans. I know how bad this stuff is. I know I cannot keep up what I am doing now. I am thoroughly exhausted spending half of my day cooking and cleaning.

I need to start making all of my meals in one day for several hours, then freeze or refrigerate them. I have a crockpot, a microwave veggie steamer (although I know the microwave is really unhealthy to use), and my brother gave me a Foreman Grill he only used for plain meat. He also cleaned it very well before giving it to me. I have a wok, but need to de-rust it and clean it thoroughly, then season it. I do not know if Brillo Pads are safe. I am calling on those today.

I need a new cookie sheet already. My best friend got me one for my birthday back in December, and I have already used it to the point it needs replaced. It is burned up! I do not have a pie pan, but do have a great cake pan. It probably is aluminum. I use those foil bags because they are convenient, and am aware that there are risks. I worry about aluminum poisoning a lot. I also need some new utensils. The wooden ones may have come into contact with gluten, and I am afraid to use them now.

Dear Carla,

As you said, it is quite easy to take things out of context when written. You do not have body language or facial expressions to judge by. That makes interpretation more difficult. Some people just like drama, though. I think those people need to get a life. It is hard to say what the woman thought Rachel meant.

Dear Rachel,

I agree that when the gluten-free diet is not enough, something else is going on. That is the only sensible idea. It is apparent that other causes of food allergies exist. Candida is a major one. That little fungus contributes to a lot of big sensitivities. Mercury poisoning is another problem - inducing substance. Lyme and Babesia are other instigators.

Dear Bev,

I am so happy for you! HUGS! How exciting that you finally have some answers! It is about time, huh?! Now you can start on your path to health! When we all get well, the world is in trouble!

Dear Judy,

Hi! Nice to see you again! We will be anxious to hear about your appointment. Hopefully, you will get some answers, too. Being sick is so frustrating, and not knowing what to do. Keep in touch!

Dear Patti,

YAY! We will be anxious to hear about your appointment, too! The IgeniX lab seems to be the best option. I would rather go with them and pay more to get an accurate test than go to a lab who does not know what they are testing for. There have been many false negatives for people who are actually sick with Celiac, Lyme, and all kinds of other illnesses. The sooner you find out, the sooner you can get well!

Dear Rinne,

Hey, that business card idea is great! I should try that as well! Maybe that will help get things rolling. I need all the help I can get. It is so frustrating when the ball is not rolling.

Sincerely,

Jin

[Mtndog]

When we are well, we shall eat cake. Chocolate, with thick heavy chocolate icing please! Perhaps with some crumbled up Bumble Bars on the top! And perhaps another layer of peanut butter. And there shall be milk!

I am SOOOO happy you are going to be tested for this!!!!

Yes carla- my bad- The key word is WHEN- When we are well I think my cake will have to still be gluten-free, but that's fine!!! I would like crumbled Reese's pb cups IN the cake, in the frosting and one on each prong of my TWO five-pronged forks !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

All I want for Christmas is 2 scoops of pb and Nutella

[rinne]

OMG, I get to say it again. LYME CLAN

Beverly, I am happy that you are getting some real answers.

Yep, them microwaves are bad, bad, bad.....

......

YOU DINGO'D IT!!!

as in, I dingo'd all of what I have just read in the last 15 minutes...ha ha!!

HEINOUS - - will come up wiht definition later. HARRUMPH!!!!

Waiting on the heinousity of heinous.

Andrea-

I felt like poo last night so I coulden;t post- but I am so sorry to hear you are having such a rough time. You have such a busy life I'm sure it must get really overwhelming. MY sister has two kids and while they are the best things that ever happened to her it is also a handful and they don't have food intolerances!!!!

I wish there was some way we on th eoh my god thread could pool together and send you to some exotic island for a rest!! you deserve it.

Yes, I wish that too.

I think I can eat traces of it without reacting...not sure what it's doing to my insides though...but I actually have to eat a decent quantity to get reactions. However, small amounts of it will build up...for instance, if I have a little piece of chocolate everyday...I seem to start getting symptoms by the end of the week. That's regular milk chocolate. If I eat large quantities, well, I react pretty quickly...within a day or two.

Thanks Donna.

.....

I think it's good for you, Rachel, to post outside this thread, don't let one person stop you. She is very valuable to this forum because she has gotten better on the gluten-free diet and tested negative for celiac. You and I are valuable because the gluten-free diet helps us, but our intolerance is likely from something else. Both types of people add to the forum, both types show that not all gluten intolerant people test positive for celiac disease and not all gluten intolerant people get completely better on the gluten-free diet.

.....

Well said Carla

Dear Rinne,

I wonder if maybe our local health food store has Salt/C. They can order in what they do not always have in stock, too. I think it is amazing something so simple could help Lyme! There is so much wrong, and I need to get it fixed. The Babs is likely the biggest trouble.

Hi jin, if you check out the Lyme Strategies site, just google it, the salt/C is just a mixture of salt and vitamin C taken thoughout the day. At the most and for a period of 8 weeks I took 2 teaspoons of salt and 1 to 1 1/2 teaspoons of vitamin C divided into four doses a day.

Good morning (I think)- wel the results are in. Drum roll please:

I am positive for Lyme on both the IgG and the IgM!!!!!!!!!!!!!!!!!!!!!!!!!! Now please don't faint of shock. I decided to push the envelope and call today for the heck of it and yep- I've got it!

Don't know about co-infections yet (not sure which ones I was tested for) but they are putting me in the first available appt he has. Thank God- don't know whether to cry with relief or sadness or happiness or all three!

Thanks you guys- ALL of you- ..... I would never have suspected this if it hadn't been for this thread. maybe I'll finally start getting somewhere....it's been 4 years!!!!!!!!!!!!!!!!!!!!!!!!

Just WOW all over again, and yet I am not surprised. How many of us are there?

Gosh Bev--you too! But at least you know and can move forward.

I've been avoiding this, but I told myself that if Beverly is positive, then I'm getting tested. I have related to your symptoms continually for the last two years.

I just made an appointment for the 29th to see a DO in my area that told me that they would test using the Western Blot. I got the usual stuff over the phone about talking to the doctor first, but I'm taking this first step and then I'll go from there.

Thanks Bev, and I really am happy for you (you know what I mean )

Yes, yes, yes.

BEV--CONGRATS ON ANSWERS...

I WROTE YOU ON D/S BUT CAME HERE FOR DETAILS.

YEP WAS WAITING FOR YOU

NOW PATTI

MY APT IS ON FRIDAY

GOING PREPARED (i PRAY)

SINCE THE LEG EVENT LAST WEEK TOOK SO MUCH OUT OF ME....PRAYING FOR SOME CLEARITY TO SAY WHAT NEEDS TO BE SAID SO HE LISTENS THIS TIME.

GOT A BOOK FROM CHIRO TODAY ON LYMES........READING UP AND WITH YOUR LIST BEV...I HOPE I CAN GET THE JOB DONE.

GOD IT WILL BE 2 YEARS JUNE 15TH.

SO HAPPY YOUR GETTING ANSWERS BEV.

LOVE YA

JUDY, SO GLAD YOU WILL BE SEEING SOMEONE, AND GLAD YOU STOPPED BY.

......

Lucky co-workers getting Rinne Bar samples --great news on the stores you already have lined up.

In my taifun world the Rinne bars will make a Rachelville retreat possible.