Omg...i Might Be On To Something

[dlp252]

Accckkkkk!! Digestive issues have died down and I'm doing pretty good, but in the last 10 minutes I've developed a splitting headache! Sheesh, will it never end.

How wonderful, I think you must have a lovely voice. I've been meaning to congratulate you about it but I tend to dingo all things connected to singing. I was the kid who they wouldn't even let lip sync in the choir. It seems they knew back then I had a hard time keeping silent.

Excellent suggestion, thanks.

Thank you!

Any opinions anyone.

Rachel, Donna. Would it be beneficial to have Seth tested by ART or Bioset (with computer)? I'd hate to go through with my teeth if per chance he already has problems with pathways etc. He may be able to handle what he's getting through breastmilk but not be able to handle a large hit with amalgam removal. I was hoping to bone up on chlorella and then also use some charcoal at removal time to help with the uptake of mercury. He doesn't do well with salmon either and I think it's the low level of mercury in that as well.

Well, the thing with ART is that it CAN tell you what the most pressing issue is, but it's what's pressing at the time you are tested. That can change from week to week, month to month or maybe even daily. Still it was beneficial to me because I was totally going in a different direction. Saying that though, I have no idea if what my first ART session found is still the same. The guy who does ART for me suggests retesting every two to three months.

And BioSET...well, that's really a long process as you can see with those of us going through it. I see a lot of children at BioSET on Saturdays, but have only seen two infants and maybe one or two toddlers...the rest are at least 4-5. Still, my doctor is really concerned about my pathways and wants to make sure they are opened before doing any treatment for anything. Maybe I'll ask at BioSET tomorrow about infants.

Andrea, I vote for the amalgam removal when you are finished breastfeeding.

Kids are very resilient, and except for T's current issues, it seems they're doing pretty well.

After having my health deteriorate as I got older, and Rinne has said the same thing, I would be more concerned about you getting your issues treated first.

Also, ART seems to be more ongoing, whereas amalgam removal is done when it's done.

Yeah.

I didn't think you went through menopause after a hysterectomy. Not that I know anything, that was just my assumption.

Nope didn't go through it...they left my ovaries and sometimes even then that will sort of force menopause, but not in my case apparently...they tested me for it because I was having menopausal symptoms, like night sweats.

Hee hee......Donna you must have a pretty voice or they wouldn't ask you to sing a solo.

Nah, they just believe in making a joyful noise here.

[chrissy]

hey all, i have been sobbing since i went to see the neurologist on tuesday. i never got the chance to ask him about testing for lyme disease. heck, i'm not sure if he even recognized me as a human being. i brought a whole list of my symptoms in and mabey got to half of them---and that was with me trying to throw in a few words that he basically ignored. he decided that i was addicted to pain killers and that i have restleg leg syndrome---once he'd made his mind up about that, i don't think he listened to another thing i said. he gave me samples of mirapex for RLS and didn't tell me how to go off pain meds---he said that some people taper off but that usually doesn't work, and that some people go cold turkey. i was so upset about being told i was addicted that i went home and didn't take my pain meds or muscle relaxer and i didn't take my ambien either because i didn't know if it would mix with the mirapex. this ended up being the most hellish night i have experienced in a long time!! the pharmacist has since assured me that they know the people who have problems with drugs and that i am not one of them. she also told me that you are not supposed to go off pain meds cold turkey. why would this man give me such bad medical advice and why would he make an assumption about me like that? he said this before he asked how much i was taking. he didn't ask how much pain i had, or whether or not i was able to function very well---or even if i could have sex with my husband without pain!! also, i know what RLS is, because i have had it periodically over the years----but not enough to be an issue. this pain is not RLS---however, he seems to have succeeded in CAUSING some RLS problems by giving me the mirapex. i feel like i am back to square one---actually, i feel like this appt. did me more harm than good----is this guy's assumption going to follow me for the rest of my life?

[CarlaB]

Christine, boy, do we all know how you feel! I've never trusted doctors, I decided when I was 5 that they didn't know what they were doing! LOL I've never had one diagnose me for anything that explained my health concerns, so I didn't go to one until I wanted to be tested for celiac disease.

I never felt as good as I did when I went to my LLMD. He totally validated every one of my concerns. The nurse practitioner spent TWO HOURS talking to me about all my symptoms. They tested me for everything -- cortisol, thyroid, heavy metals, Lyme, coinfections, etc. I was seen for three hours total ... 30 minutes of it by my LLMD himself.

Our daughter has some health issues, so we took her there. They took 13 vials of blood to test her for everything that might be wrong.

I know that Donna and Rachel have had similar experiences with their LLMD's. I believe Laura has, too. You might want to set an appt. with one ... they will diagnose you based on your symptoms. They don't just diagnose everyone who walks in the door with Lyme Disease.

You've given enough of your money to these quacks with a medical license.

[NoGluGirl]

If you are interested, I can post my simple castor oil treatment. It's easier than messing with the flannel soaked in castor oil. Yes, you can do it yourself. That's the beauty of it.

Yeah, I think I can, but I probably shouldn't . It's the sugar that really gets me.

Haalllooooooooo to you too! Are you really far away? I think you're halfway across the country from me!

It's this cool massage you do on your abdomen that helps your reproductive organs. An American woman named Rosita Arvigo learned it from a Mayan shaman named Don Elijio. Here's the link to read more about it:

Open Original Shared Link

Rosita came to Boulder, and gave a workshop on Maya abdominal massage. She was awesome! I learned so much about my uterus that a doctor would never teach me. I started doing it when I found out my fibroids were huge! Her workshop pretty much convinced me that I wasn't going to let someone totally cut me open. I ended up having laparoscopic surgery last year, which is a lot less invasive than the abdominal surgery I was first recommended.

I guess I'm a Lymie-limbo. I was talking with a guy at work the other day. We were talking about weird diseases we are exposed to working outside, like West Nile Virus. How come no one talks about WNV around here? It was a big deal in Colorado a few years ago. Anyhoo, he says to me, "you know what I really worry about? Lyme disease". I say, yeah, I'm sure I must have it, after all the ticks I've been exposed to. I used to live in upstate New York, which is one of the Lyme centrals. If I have it, I don't think it's a huge issue for me. I found someone around here who does ART. I'm thinking of going cuz I don't feel like plunking down a huge sum of money to get more tests done on me that my insurance doesn't cover unless I know what to look for. I'm kind of ambivalent about it though because besides being a little tired, I feel pretty good these days.

Oh, I tested like 10 on that sensitivity test . I thought the questions were pretty arbitary and that just because I didn't test higher didn't mean I wasn't sensitive! Andrea, I could relate to your daughter. Whenever I have lint balls in my socks, it drives me crazy. I once read that's an ADD thing. So, I can understand if tight clothes would bother your daughter. I think ADD symptoms can be caused by a variety of things, including head injuries, toxicities, and even nutritional deficiencies, like a lack of B12.

Claire

Dear Claire,

Thank you so much for the info! I think this will really help! The castor oil pack is something I would like to know more about as well. It is worth the effort! I am having a lot of problems.

Sincerely,

Jin

[dlp252]

Hi Chrissy! Yes, my lyme doctor, also took lots of blood (7 vials for me) and tested for all sorts of things...not just lyme. He found lots of things too, lol. Mold toxicity, vitamine/mineral/elements imbalances...and lyme.

I completely understand what you're saying about your frustration...it's just ridiculous...one of my major complaints, and I think the reason that it is so hard to diagnose people like us is that the doctors NEVER listen to the whole list of symptoms...they always stopped me after about the first 10 and asked what my MAJOR complaints were. Well, when that happens they are just treating the symptoms and not the cause because they don't have the whole picture!

My lyme doctor spend at least 1 full hour with me on my first visit...then I had my blood drawn and spent more time with the nurses. My second visit was also 1 hour and that was to go over all the results. He really, really listened to me which was just so very refreshing. My next visit is a follow-up and that's a 30 minute appointment...it still astonishes me that he actually spends the whole alloted time with me. Amazing!

[NoGluGirl]

Rachel, I ventured out of Rachelville to visit the thread we shall not speak of and I would only like to say it made me very grateful for you and this thread.

Thanks for the link Claire and I agree with you about the ADD and there being different causes.

I think Vitamin B and D deficiencies have an enormous impact on people's health, of course the question is what caused the deficiencies in the first place and how to remedy that but in the interim supplements make a huge difference.

I know that by the time I found out my B 12 was in the critically low stage I was having neurological problems and emotionally I had no patience at all, I could go from relative sanity to the feeling I was losing my mind over minor things in seconds. My poor sweetie.

Getting our B levels checked is no big deal and standard doctors do it when you have a physical, if you have had a physical in the last year you should be able to find out what they are. On the sheet my doctor had it said the acceptable range was from about 178 to 788 and mine was 226. 226 is not acceptable, anything under 500 is low. The first time I had a B 12 shot I bounced out of the doctor's office, I had energy and I felt happy. All those nerve endings that felt strung out suddenly relaxed.

I think it is becoming clearer from this thread that people can have Lyme and cope with the Lyme but not with it's nasty friends like mercury and candida. I know I feel I am in that category although recently with my night sweats I am thinking F Babs is looking for a fight too.

Susan, I hope Tika will be okay.

I had a long day doing a food handling course. I'm pretty sure I passed, I'll be very embarrassed, not inbareassed since I will have clothes on, if I don't pass.

Jin, have you had a chance to check out the Lyme Strategies site?

Dear Rinne,

I am glad you will not be inbareassed if you have difficulty with the course! I have not gotten to see the Lyme Strategies site yet. I could not remember the name! Lyme brain I suppose is the trouble! I am writing it down this time!

Sincerely,

Jin

[NoGluGirl]

It can get confusing--for a while there I was just reading but not posting much. I'm glad that everyone is figuring things out, though--and don't feel alone in getting confused sometimes.

And with all of us spread out all over, it would be a logistical nightmare! Still, it would be nice....

Actually, that's a great idea!

When it's feasible, I've found covering my mattress and pillows in an allergy-proof cover helps greatly.

So was Donna

I'm glad to hear you're better than yesterday

Dear Patti,

I think that the allergy covers might help some. The thing is, the dust is all over our house! You see, we live out in the county. Corn fields are not far from here. The wind tends to blow the dust in from them, you know? We could dust very thoroughly, then the next day, already have dust piled up again! We were using an air purifier for a while, and that seemed to help. We need to get new filters. They seemed to work pretty well.

Sincerely,

Jin

[NoGluGirl]

Donna, the stage fright cure is in those blue and white tubes by Boiron. It's called Gelsemium Sempervirens. It works. I start taking it the day before. I was taking it during a convention that I was leading with another person ... he wanted to know why I was so calm! I showed him what I was taking. We both had to give talks ... I can't believe I did it ... it was when I was at my lowest weight (which I'm at again), and was feeling bad ... I think I still had energy though, I must have.

I had started the gluten-free diet. Food was part of the convention, so they brought mine up separately ... mine was prepared in the restaurant. This guy had all kinds of health issues, so we talked about them. Ends up his dad is a celiac. Now he eats gluten-free and never went through the testing.

One night the head of a religious order in this country was dining with about 12 of us. They brought everyone a dessert, and mine was always different, but similar. This particular night they brought me a PLATTER of fruit! It looked like it was for the whole table until they set it in front of me! The priest looked over, I just said, "I'm allergic to wheat." Then the conversation continued. I shared.

Rinne, I agree with you on gluten. I think it's difficult to digest, and as Rachel's scientificness has shown us, it's loaded with toxins -- mold, pesticides, etc. I think everyone should avoid it, but some don't need to avoid it entirely. I certainly don't think our diet should be as dependent on it as it is.

Dear Carla,

I agree that grains often are a bad choice of nutrition. It is very frightening how dangerous they are. I wonder something. Do you think that grains such as wheat absorb more toxins from the pesticides than other foods? Do vegetables and fruits contain lower levels of toxins, or higher levels? This would be interesting to see about.

Sincerely,

Jin

[Rachel--24]

Ok by the way you guys are all gonna think i am a freak but even though I can't take it right now When i did I really did not mind the taste of chlorella- I kind of liked it. I know I am a weirdo

OMG...I totally liked the taste of it when I started it...and of course I racheled the heck out of it until I threw up 3x after my sauna.

Since then I dont even wanna look at it...just thinking about it makes me naseaus and I think its the grossest stuff ever!!

What do you think happened??

And, to add to the ensemble, be sure you duct tape where the pants are tucked into the socks, and be sure ALL your hair is in a tightfitting hat.

Yeah...100% nerdliness.

Rinne, I think you're right. I lived for years and years with this and had only minor symptoms. After having my amalgams out, I had minimal symptoms for over 10 years. It was definately something that my immune system was handling on its own.

Rinne...I agree too. If it werent for the mercury/candida.....I'm pretty sure I'd be feeling pretty good and still eating what I want....lots of Big-Macs.

The other thing is the Rinne bars I know I am eating too many of them and I know the sugar is feeding the candida and I wonder if the candida could be connected to the night sweats.

Oh NO!! Not the Rinne Bars!

I do think this is a good possibility. I used to get drenching night sweats until I changed my diet. I dont get them anymore so for me I dont think Babs was the cause. If I wake up with wet clothes nowadays....its always because I'm eating things I know I shouldnt be eating. Sugars or high carbs. If I continue to do it I'll end up with numbness, tingling and burning but I pretty much recognize the problem and fix it before it gets to that point.

What is health? What is illness? How is it that we move from one to the other? Could it be that it is not so much that our health fails and we become ill but that our bodies are overwhelmed with toxins and start to fail because we have asked too much of them?

Exactly. This is exactly what I believe....and so when you detox and when your body is able to function to its full capacity again...you will be healthy again.

I feel that here in Rachelville, our "bitter-free zone" we experience happiness in the midst of our misery and that supports our healing.

Yup...I know its helped me tremendously. I think I would be alot sicker with depression and worries if it were not for everyone here.

Rinne, I agree with you on gluten. I think it's difficult to digest, and as Rachel's scientificness has shown us, it's loaded with toxins -- mold, pesticides, etc.

Yeah...same with dairy. No wonder why my Dr. tells everyone to NOT eat wheat or dairy while we are trying to recover. Its bad, bad, bad.

But when I get better....I will have a Big Mac.

OK--as I was going about my mundane daily chores, I thought of a name for Andrea and me-------Lyme-ettes! I know, I really need to get a life

Patti...you crack me up! I love that...you guys are the Lyme-ettes.

Donna, the Questran is by prescription. Apparently it's a common one for those with Lyme. I need to read more about it.

Carla, do a search on Questran on LymeNet. Thats how I learned about it. It does what charcoal does....some people do better with charcoal and some prefer Questran. When I searched charcoal...I found out alot about both so I'm sure a search on Questran would bring up alot more.

[Mango04]

Do you think that grains such as wheat absorb more toxins from the pesticides than other foods?

I've read that conventional pasta is the most pesticide filled food, so probably. You can google "organic dirty dozen" to see various lists of the most toxic fruits and veggies.

[Rachel--24]

Rinne- I CAN"T believe you don't know what pipcs are You've NEVER heard of them? Where have you been living? :lol: :lol:

ROFL...

Bev...when I was reading this I was thinking "Well I must be really dumb cuz I've never heard of them either??"

Yes yes yes-please! Thank you for posting the info on Mayan abdominal massage too. I had heard of it before for fertility. It sounds very cool. Thanks Claire!

I'm doing castor oil packs but I do it the hard way. I make the pack and keep it in the fridge. I bought everything for my pack at WF.

Rachel, Donna. Would it be beneficial to have Seth tested by ART or Bioset (with computer)?

Personally, I dont think its too necessary at this point....also he's still really young. I dont know what other problems that he could have besides the mercury...which you already pretty much know. I think you can address all that after you're done breast feeding.

By taking the chlorella you could be stirring up some mercury and it could be getting detoxed through the breast milk. I dont really know though...if he hasnt been having the excema at all until you started on the chlorella..I'm thinking that could be why.

hey all, i have been sobbing since i went to see the neurologist on tuesday. i never got the chance to ask him about testing for lyme disease. heck, i'm not sure if he even recognized me as a human being.

Chrissy....I've been there too. I cried alot after all my Dr. appts for the first 3 years. Alot of the Dr.'s treated me like garbage and didnt care to really try to figure out what was wrong. I was totally normal before this and its not like all of a sudden I became this neurotic hypochondriach. I was REALLY sick!!

I was really angry with Dr.'s for awhile.

My Dr.'s are great now. I actually have two LLMD's.....one who is an M.D. and the other is an N.D. They are both wonderful and the entire staff at my Dr.'s office is so great. Its a whole different world for me now and I have answers on top of it! I actually LOVE going to the Dr.'s now. I cant wait for my appt.'s.

I agree with saying you should see a reputable LLMD. I dont think anyone here (who has an LLMD) has been disappointed with their care. You dont want ALL the focus to be on Lyme...a good LLMD will do lots of testing for all sorts of issues.

Oh yeah...me and Donna have the same Dr.

[Mango04]

ROFL...

Bev...when I was reading this I was thinking "Well I must be really dumb cuz I've never heard of them either??"

When I read Bev's post I thought pipcs must be some sort of flower or something

[jerseyangel]

Jin,

The allergen covers protect against dust mites--my allergist strongly suggested them for me because I tested highly allergic to them. They live in the mattress, pillows and carpet around the bed and it's their waste that we're actually allergic to.

There are literally millons of them in any given situation--they feed off of the skin cells that we shed daily.

The covers are no protection against pollen ar any other particles in the air. For someone with a severe dust mite allergy, they are very effective, given the amount of time we spend in bed.

[NoGluGirl]

hey all, i have been sobbing since i went to see the neurologist on tuesday. i never got the chance to ask him about testing for lyme disease. heck, i'm not sure if he even recognized me as a human being. i brought a whole list of my symptoms in and mabey got to half of them---and that was with me trying to throw in a few words that he basically ignored. he decided that i was addicted to pain killers and that i have restleg leg syndrome---once he'd made his mind up about that, i don't think he listened to another thing i said. he gave me samples of mirapex for RLS and didn't tell me how to go off pain meds---he said that some people taper off but that usually doesn't work, and that some people go cold turkey. i was so upset about being told i was addicted that i went home and didn't take my pain meds or muscle relaxer and i didn't take my ambien either because i didn't know if it would mix with the mirapex. this ended up being the most hellish night i have experienced in a long time!! the pharmacist has since assured me that they know the people who have problems with drugs and that i am not one of them. she also told me that you are not supposed to go off pain meds cold turkey. why would this man give me such bad medical advice and why would he make an assumption about me like that? he said this before he asked how much i was taking. he didn't ask how much pain i had, or whether or not i was able to function very well---or even if i could have sex with my husband without pain!! also, i know what RLS is, because i have had it periodically over the years----but not enough to be an issue. this pain is not RLS---however, he seems to have succeeded in CAUSING some RLS problems by giving me the mirapex. i feel like i am back to square one---actually, i feel like this appt. did me more harm than good----is this guy's assumption going to follow me for the rest of my life?

Dear Chrissy,

The sad truth of the matter is doctors are just morons in labcoats with a God complex. I have had many terrible experiences as well. I was accused of being crazy, anorexic, and called everything but human. Finally, I wised up and realized my intuition never steers me wrong, and to quit listening to everyone else around me. What does you body tell you? You know you are in pain, you know something is bad wrong, and you know you are going to have to take matters into your own hands.

When one doctor writes something like this about you, all of the others believe it, just because it was written by another doctor! Now, how stupid is that? It never occurs to these geniuses that any of them could be wrong. I had a whole team working on me when I was hospitalized six years ago, and everyone missed Celiac and gallbladder disease! The team leader was head of Hepatology and Gastroenterology! The gallbladder is part of the hepatobialary system! He should not have missed that!

Your pharmacist has a brain, thank God! They know more about the drugs than the doctors, too.

I have had doctors prescribe things they should have known I was allergic to! I could swear they do not even look at the chart! I am thinking, what am I paying this idiot for?

Meanwhile, you should find another doctor. This one certainly is not worth the powder to blow him up! There could be an LLMD right near you. LymeNet and some other sites can help you find a doctor who could treat you and would be willing to test you. The PCP that wrote down all of that mental crap on me ruined my life. These people get away with destroying people's lives. Incidentally, she is the same intellect that missed the gallstone in the very first test I had run! You are not alone in this. Many of us have been down this path. We will help you in any way we can!

Sincerely,

NoGluGirl

[jerseyangel]

Chrissy,

I'm so sorry for the way that ignorant doctor treated you. There is absolutely no excuse for that.

I've had my share of the same type whose eyes glaze over after my second sentence. I know they're not listening anymore, and think--well, another appointment where I learn nothing. Meanwhile, I'm getting sicker, and they're not taking it seriously.

I have a new set of doctors now, and for the most part, I'm happy with them. I do my homework and ask questions over the phone before making an appointment. It's not foolproof, but I get a pretty good idea at least of who I DON"T want to see.

Please feel better

[NoGluGirl]

Jin,

The allergen covers protect against dust mites--my allergist strongly suggested them for me because I tested highly allergic to them. They live in the mattress, pillows and carpet around the bed and it's their waste that we're actually allergic to.

There are literally millons of them in any given situation--they feed off of the skin cells that we shed daily.

The covers are no protection against pollen ar any other particles in the air. For someone with a severe dust mite allergy, they are very effective, given the amount of time we spend in bed.

Dear Patti,

The Lymettes are great! I love it! That will be awesome! Raise awareness through music! The only trouble is deciding between a parade with a float, or other stuff!

The allergen covers are worth using. I need to try and keep my room as allergen free as possible. The trouble is the dog. I am even allergic to him! He sneaks in there sometimes, because my door does not shut. We had a quake some years back, and it messed up the alignment of the door and my window. My window is always sliding down as well. I sleep on the sofa a lot for this reason, because it gets too hot in my room.

Dear Donna,

I know you will do great when it comes time for your solo! I love to sing, but have terrible stage fright as well! One of the girls in the neighborhood said I should be on American Idol! I would never be able to do that show. Simon is too mean! He would insult me once, and I would have a nervous breakdown!

Dear Susan,

I am sorry to hear about Tika. I hope she recovers soon! Poor dingo! Hey, do you remember that Seinfeld episode? They are at a party, and Elaine wants this seat where someone is at, so she leans over and says "My dingo ate your baby!" That was hilarious!

Dear Bev,

I have done stuff like what you did, too! I put things in the wrong place, and wonder why I did it. Or how about when you go into a room and cannot remember why? I swear I am going completely stupid some days. It worries me. You think you are going crazy!

Sincerely,

Jin

[CarlaB]

Carla, do a search on Questran on LymeNet. Thats how I learned about it. It does what charcoal does....some people do better with charcoal and some prefer Questran. When I searched charcoal...I found out alot about both so I'm sure a search on Questran would bring up alot more.

Thanks. They have me on the Questran to stop the d. I was having it pretty much all the time, and Questran can cause constipation as it absorbs toxins. The charcoal never got rid of the d, so I guess the Questran works better for me. I'm not constipated either ... more normal now.

[DingoGirl]

And, to add to the ensemble, be sure you duct tape where the pants are tucked into the socks, and be sure ALL your hair is in a tightfitting hat.

what a hottie!

I haven't had the night sweats in a while, and they've come back in the last week. I thought it was because it's been warmer, but it's not THAT warm. Last night I didn't sleep well cuz I'd have to throw the covers off, then I'd get cold, then have to throw the covers off.

oh dear.....I have night sweats ALL the time - - - just soak the bed. I don't know what it is - - periods are still regular, slight variations but not huge.....I don't know WHAT it is.

I'm kind of thinking of myself like my dog, she is a Border Collie/Blue Heeler cross and she will herd anything that moves. When we had our farm we bought her sheep to herd and was that ever funny, we'd look out the window and all three of them would be eating grass together. Every once in a while when she was just too bossy to bear, the mother sheep would give her a good head butt.

I feel like I am herding my "illnesses", bringing them in closer where I have more control over them.

Rinne has a dingo!!! (well, heelers are descendants of dingos, anyway).....oh, I would LOVE yoru dog.....and my doggies would love your dog.....and BTW that is such a charming story, the bucolic, grass-munching session interrupted by the sheep's headbutt....

Claire - West Nile??? OMG, that is quite serious, is it not? What kind of work to you do?

Stinker...... she is falling all over and wobbling so. Cocks her head at this crazy angle - that is part of it. Got her blood work back - many numbers are quite off, so I must decide what to do next (thyroid meds, whatever).

The funny thing is, Annie, my love dog, is SO sensitive to human pain and suffering. There has not been a single moment when I have cried in the last four years that she has not been holding my hand, licking my face, or spooning with me. She reacts this way to ANY human she senses has tension or stress or grief. Um, but she just runs and KNOCKS OVER Tika all the time, in T's frail condition. Such a dingbat! (too many emoticons or would insert one here)

Rinne- I CAN"T believe you don't know what pipcs are You've NEVER heard of them? Where have you been living? It was my Lymey brain trying to spell pics (photos) but yesterday was so bad, I put the iced tea in the pantry instead of the fridge and didn't find it for over an hour!! Oy!

I'm with Patti, one of our Lymettes, and I got it right away too.

The theme song of Rachelville is from the West Side Story. Don't think I know the tune but that must be the lymettes theme song.

......"theeeeeeeeeere's aaaaaaaaa plaaaaaaaaaaaaaaace for us..............a tiiiiiiiiiiiiiime and plaaaaaaaaaaaaaace for ussssssssssssssss.............."

Donna - - the solo - - ohmygosh I'd be terrified! and I sing all the time....but you have got to have a really strong voice and range for solo, so you MUST be good!

Laura - - thanks for clearing things up for me....I think I have a better understanding now.

Chrissy - - your doctor is HEINOUS!!! I am so sorry you went through that, and DUH, that eejit should have told you to decrease gradually - - of course, he should have done a lot of things.....

so sorry you had such a rough night. The exact thing would happen to me under same conditions, for sure.

I've read that conventional pasta is the most pesticide filled food, so probably. You can google "organic dirty dozen" to see various lists of the most toxic fruits and veggies.

thanks for the link, Meredith.

When I read Bev's post I thought pipcs must be some sort of flower or something

Dear Susan,

I am sorry to hear about Tika. I hope she recovers soon! Poor dingo! Hey, do you remember that Seinfeld episode? They are at a party, and Elaine wants this seat where someone is at, so she leans over and says "My dingo ate your baby!" That was hilarious!

Dear Bev,

I have done stuff like what you did, too! I put things in the wrong place, and wonder why I did it. Or how about when you go into a room and cannot remember why? I swear I am going completely stupid some days. It worries me. You think you are going crazy!

Sincerely,

Jin

Jin - - not only do I remember the episode, I have been known to QUOTE that many times, whilst patting the top of my head (that was the signal to be rescued, remember? ) ha ha !

[jerseyangel]

I had no idea we had a song

Ladies, I'm having an occurance of something and I'd like your opinions please....I have what look to be mosquito bites (but they're not) appearing in different locations today. I noticed the first one on my wrist, then--neck, upper side, top of foot and front of upper arm. They itch--but not horribly.

I'm kinda worried--

The only new thing I've eaten is the No-Trail Mix from Enjoy Life. It's free of all common allergens--but it has seeds and dried fruits--things I don't normally eat. I ate some yesterday, too.

I feel a little itchy all over (which could be nerves), but otherwise ok.

Does this sound food related or like something else?

[Mtndog]

OMG now I am ROTFLMAO because you all thought pipcs were something. we might have to make them something. HMMMM...what WOULD a Pipc look like. Must think about this.

Chrissy- I am SO sorry about your neuro. LAME! My first appt with my LLMD was 2 1/2 hours. He gave me a 5 page write-up just from that! My next appt to go over my results is 1 1/2 hours. These docs DO NOT kid around. Just wanted to say HUG :wub:

Oh and I have a GI that DOES listen to me. Stereotypes and all, I MUCH prefer female doctors. They actually listen and don't seem to have such a god-complex. Not true across the board but this has been my experience. All my docs, except Dr Lyme, are female.

Donna- I want to hear you sing...........................I've always wanted to sing!

OK- two goals for the near future:

1. Write lyrics to a theme song for rachelville

2. new avatar of me dressed the way I'm SUPPOSED to dress this summer I was just walking through my backyard singing "Tick tick tick tick".

What am I going to do...REALLY? I love being outside and I live in Lyme Central. Actually, knowing me, I have probably been infected more than once. I think one time was when I got into a brawl with a rat in Lyme CT. She was drunk and trying to steal my date so I gave her some whooparse. She bit me AND stole my date. BIACH.

OMG- I think I am giddy. I'm cracking myself up which is pretty rare.

[CarlaB]

Don't know, Patti, could they be spider bites? Hives?

[Mtndog]

Patti- Were you in the sun today? I have a VERY STRANGE rash on my left thigh that I sometimes get in the sun. Hmmm...also what are those little east coast annoying bugs we have- gnats? My dad called them tsetse flies when we were little so that's what I always called them (uhm-tsetse flies (sp?) are african). My dad's cure for all bug related bites was cold cream and baking soda. Worked like a charm. Keep us posted.

Susie- I meant to say give tika a hug and a kiss for me. I know she'll be OK but sending her LOTS of love anyway. :wub: :wub:

[Judyin Philly]

Ladies, I'm having an occurance of something and I'd like your opinions please....I have what look to be mosquito bites (but they're not) appearing in different locations today. I noticed the first one on my wrist, then--neck, upper side, top of foot and front of upper arm. They itch--but not horribly.

BEV SAID---------My dad called them tsetse flies when we were little so that's what I always called them (uhm-tsetse flies (sp?) are african). My dad's cure for all bug related bites was cold cream and baking soda. Worked like a charm. Keep us posted.

PATTI--

OMG I WONDER IT THEY ARE WHAT WE CALL THEN IN OHIO......JIGGERS............?????

MY DAD WOULD GET IN OUR YARD ALL THE TIME.

NO ONE ELSE BUT DAD.

YOU WERE WORKING IN THE YARD TODAY RIGHT...HUM..........

GOOD LUCK

HAVE TO GET DINNER WILL POST LATER TONIGHT

LOVE AND HUGS TO YOU ALL

[AndreaB]

hey all, i have been sobbing since i went to see the neurologist on tuesday. i never got the chance to ask him about testing for lyme disease.

Chrissy,

I'm so sorry. Everyone who's very ill seems to have had a great problem with doctors who won't listen. Could you look up a good LLMD? Aren't you in California? Maybe Rachel or Donna have doctors in that state. I don't know if you are anywhere near them or not.

oh dear.....I have night sweats ALL the time - - - just soak the bed. I don't know what it is - - periods are still regular, slight variations but not huge.....I don't know WHAT it is.

Maybe you have babs. Lyme or co-infections isn't totally out of the realm for you as you have been a very outdoorsy person.

......"theeeeeeeeeere's aaaaaaaaa plaaaaaaaaaaaaaaace for us..............a tiiiiiiiiiiiiiime and plaaaaaaaaaaaaaace for ussssssssssssssss.............."

Great job!

I had no idea we had a song

Theme song: Somewhere (from Westside Story)

West Side Story - Somewhere Lyrics

A GIRL

There's a place for us,

Somewhere a place

for us.

Peace and quiet and open air

Wait for us

Somewhere.

There's a time for us,

Some

day a time for us,

Time together with time spare,

Time to learn, time to care,

Some day!

Somewhere.

We'll find a new way of living,

We'll find a way of forgiving

Somewhere . . .

There's a place for us,

A time and place for

us.

Hold my hand and we're halfway there.

Hold

my hand and I'll take you there

Somehow,

Some

day,

Somewhere!

Ladies, I'm having an occurance of something and I'd like your opinions please....I have what look to be mosquito bites (but they're not) appearing in different locations today. I noticed the first one on my wrist, then--neck, upper side, top of foot and front of upper arm. They itch--but not horribly.

Could be hives, which is an allergic reaction as far as I know.

I don't know though.

[NoGluGirl]

what a hottie!

oh dear.....I have night sweats ALL the time - - - just soak the bed. I don't know what it is - - periods are still regular, slight variations but not huge.....I don't know WHAT it is.

Rinne has a dingo!!! (well, heelers are descendants of dingos, anyway).....oh, I would LOVE yoru dog.....and my doggies would love your dog.....and BTW that is such a charming story, the bucolic, grass-munching session interrupted by the sheep's headbutt....

Claire - West Nile??? OMG, that is quite serious, is it not? What kind of work to you do?

Stinker...... she is falling all over and wobbling so. Cocks her head at this crazy angle - that is part of it. Got her blood work back - many numbers are quite off, so I must decide what to do next (thyroid meds, whatever).

The funny thing is, Annie, my love dog, is SO sensitive to human pain and suffering. There has not been a single moment when I have cried in the last four years that she has not been holding my hand, licking my face, or spooning with me. She reacts this way to ANY human she senses has tension or stress or grief. Um, but she just runs and KNOCKS OVER Tika all the time, in T's frail condition. Such a dingbat! (too many emoticons or would insert one here)

I'm with Patti, one of our Lymettes, and I got it right away too.

......"theeeeeeeeeere's aaaaaaaaa plaaaaaaaaaaaaaaace for us..............a tiiiiiiiiiiiiiime and plaaaaaaaaaaaaaace for ussssssssssssssss.............."

Donna - - the solo - - ohmygosh I'd be terrified! and I sing all the time....but you have got to have a really strong voice and range for solo, so you MUST be good!

Laura - - thanks for clearing things up for me....I think I have a better understanding now.

Chrissy - - your doctor is HEINOUS!!! I am so sorry you went through that, and DUH, that eejit should have told you to decrease gradually - - of course, he should have done a lot of things.....

so sorry you had such a rough night. The exact thing would happen to me under same conditions, for sure.

thanks for the link, Meredith.

Jin - - not only do I remember the episode, I have been known to QUOTE that many times, whilst patting the top of my head (that was the signal to be rescued, remember? ) ha ha !

Dear Susan,

I quote that all of the time, too! I forgot about the signal to be rescued! Now I remember!

That was so funny! It was a great episode!

I am sorry Stinker and Tika are having such a hard time. I hope the result come back soon. Annie sounds like a sweetie. Tasha Bear and Jasmine were our Standard and Mini Schnauzers I grew up with. They always knew when you were sad or sick, too. They were very in-tune with me. I miss them!

Sincerely,

Jin