Omg...i Might Be On To Something

[Rachel--24]

Don't know who is more silly me or my wife. Me for going and buying the darn thing or her because she has those female heat flashes. So it has to run 24 / 7, I think she figures we are all having the hot flashes. Ok got to go out side now to thaw out.

Hilarious Grump!!

I can totally relate as I've been staying with my menopausal mom during the week. HEINOUS!!

I think she does think we are all experiencing these hot flashes....but when I mention that my face is feeling kind of numb and frozen...even with layers of clothes on....I get "the look".

So yeah...I just take a really hot bath, turn on my electric blanket and put another layer of clothes on.

I know it isn't always easy being the menopause-husband

or a menopause-daughter.

Especially one who is unnaturally cold....I might really be the same temp. as a Rinne Bar.

Patti....I'm glad you're getting over your reaction.

Bummer about having to wait 2 more weeks but it sounds like the Dr. is gonna be thorough with you....cant ask for more than that.

I'm glad everything went well!

Donna...I'm soooo envious.

Enjoy the rest of your day!

I'm off to do some errands...more catching up to do later...

Oh...I was kind of tired at work...seemed like the day was dragging...thought 3:00 would never come. So finally I leave...get home...turn on the computer. Its 2:15.

Ummm....I guess I left a little early.

Oh well...maybe they will think I actually came and left on time for once.

See what happens when I dont take my charcoal in the morning.

Oh...something really cool happened at work today. This is an update about that autistic boy that I kinda look out for at work. I'm still trying to learn how to communicate with him in ways he understands better. He's not low functioning at all...he's actually probably considered medium to high functioning but things can throw him off really easily....as I found out the other day when I said all the WRONG things.

Anyways today was better and I'll tell more after I get back from my errands.

[rinne]

Sometimes I start a post and by the time I post it I have missed pages.

......

It went fine. I like this doctor--very crisp, business-like demeanor--but I definately got the impression that he knows his stuff. Unfortunately, because of this allergic reaction, he dosen't want to do any bloodwork at all for 2 weeks till all this is out of my system. I made that appt today before I left.

He wants to do a full, fasting workup as well, so we'll see.

This is an allergic reaction, and he feels it is due to the generic med. I asked him why I was suddenly allergic to the active ingredient, and he told me that the active ingredient is not the same as the name brand--it's "close" but not the same. He was not terribly surprised that this happened.

....

I am so glad that you were able to figure this out so quickly, what a blessing this thread is and who was it who suggested the medication change?

Some one smack me. Silly me .....

I'd have to say a very sweet you, lucky wife.

Don't worry, once you get that first electric bill, you won't be nearly as cold anymore!!

Just a quick drive by...need to get back to my relaxation, lol.

......

Sounds lovely, you are an inspiration. I could use a massage.

Susie, if you are a broken toy then we are all broken but much richer for it, personally I've always preferred a little patina and I lost all illusions about perfection long ago. I love Leonard Cohen's line, "forget your perfect offering there is a crack in everything, that's how the light gets through."

Having said that, I have to agree with Andrea that you are perfectly lovable just the way you are.

[AndreaB]

Andrea, how is Talitha?

All is calm right now.....she's working on her new latch hook.

She must be feeling much better overall because she totally attacked her brother today. I am really hoping at least some of her anger/moodiness is metals related and will get better after chelation. Hoping we can get her tested this fall.

Oh, I canceled my dental appointment today. Didn't get to talk to the gal I normally talk to, but told the one who answered that I'd have to reschedule next year.

[CarlaB]

I'll have to find a reason to go to New York.

Maybe to see Dr. H? He has an herbal protocol.

When I was there, there was a lady who came in and said to the owner that she needed to talk to him ... he said, "Well, you'll need to make an appt.!" It's a little 10 table restaurant, so it was pretty funny. Anyway, I think she's a board member, but I can't remember her name so I can look up her picture. She has to be ... how else would she know about the Risotteria? I don't think she's a regular ... but I think she posted more a few months ago.

But, you can use the doctor excuse for the breadsticks, pizza, paninis, cheesecake, carrot cake (as much icing as cake -- PERFECT), tiramisu ... hmmm, what else? Oh, beer. Maybe you could sell them some Rinne Bars!!! Now you can even write off your trip!! Go in September, that's when my next appt. is.

I'm still feeling very crummy. My herx is due June 1st ... I know last week it was the cold, but this is seeming a little long ... I wonder if I should back off the amoxy for a while. She told me to ease into 4 pills 3 times daily ... 1 each time on day 1, 2 on day 2, and so on. I'm thinking about starting back at 1 until I feel better.

The amoxy goes after the same form as the Omnicef did. The Omnicef kicked my butt, too ... maybe this is just the hardest for me to take. What do you think ... should I wait till after my herx or back off? Could it still be the cold (I still have an excess of phlem).

That word always makes me laugh! Did you see The Prince and I? The prince is hiding out in Wisconsin ... he's applying for a job at a deli and tells all these languages he speaks at the job interview. The last language he says is "Flemish." The deli owner says, "You mean there's a country called Phlem?"

Yeah, I'm toxic ... it's causing me to feel a little intoxicated! So, I'm babbling!

Susan, my spiritual director told me once that I was weird! He asked if we moved back to the same house ... I said yes and he said the house was weird like me!! It's a 91 year old bungalow ... so it's not "normal." I said, "Great, how is that supposed to make me feel when my spiritual director tells me I'm weird?" He's a priest, btw. He said that it meant my personality had depth, it was a positive thing.

Next time I see him I'm in my car, a Mini Cooper. He tells me my car is weird like me!

So, Susan, I'll never be one to tell you that you aren't a misfit toy, because they are much more interesting, so I've never taken it as a negative comment!!

[AndreaB]

Oh...I was kind of tired at work...seemed like the day was dragging...thought 3:00 would never come. So finally I leave...get home...turn on the computer. Its 2:15.

Ummm....I guess I left a little early.

Oh well...maybe they will think I actually came and left on time for once.

See what happens when I dont take my charcoal in the morning.

Oops.

I'm still feeling very crummy. My herx is due June 1st ... I know last week it was the cold, but this is seeming a little long ... I wonder if I should back off the amoxy for a while. She told me to ease into 4 pills 3 times daily ... 1 each time on day 1, 2 on day 2, and so on. I'm thinking about starting back at 1 until I feel better.

The amoxy goes after the same form as the Omnicef did. The Omnicef kicked my butt, too ... maybe this is just the hardest for me to take. What do you think ... should I wait till after my herx or back off? Could it still be the cold (I still have an excess of phlem).

Carla,

I don't know. Herxes generally leave you feeling pretty bad and you already feel bad. It's pretty much up to you and how out of it you want to be during this herx cycle. Maybe you could go back to 2 pills for a bit, but on the other hand is this only like a month prescription where they'll switch to something else to go after a different form next month?

[Mtndog]

YOU'RE NOT A MISFIT TOY!!!!!!!

You a lovely person with a wonderful personality. Don't let anyone tell you otherwise, including yourself!

We love you and that's that!

Now, it's probably a good thing you didn't become a cop, but it probably would have been fun for you. You'd make a great neighbor though.

Oh, and yes, you could have lyme brain and I'd still love to see you tested. Lots of people are asymptomatic if you take into consideration the children that have autism that test positive for lyme.

If you're a misfit toy then I must be a Bumble (as in Bumbles Bounce from Rudolph the Red-Nosed Reindeer!).

And yes- I think you might have Lyme brain. When I listened to Hannah's story (my SIL's sister who recovered from Lyme) it was VERY scary as most of her symptoms were neuro- horrific panic attacks, hallucinations, she was diagnosed with a variety of psychiatric ailments first and put on enough barbituates to sedate a horse. She was lucky in that her LLMD was a former psychiatrist who had developed Lyme himself.

It makes me wonder about my first depression that seemed to come out of nowhere- it was the darkest pit I've ever been in. The only thing that saved me was somehow I knew that it wasn't "me". I had never had a depressive personality- sensitive yes- but generally optimistic and making the best of things. This depression that I had was unbelievable- I'd see a black crow and think it was a sign I was going to die. You know my story

That depression with crippling panic attacks came on after I lived on Cape Cod for the summer- a place rampant with ticks.

Carla- Yeah- you can rest easy!

Donna- OOOHHH...a massage. Yes please!

[Mtndog]

Anyone read this article? I haven't (just browsed) but it looks interesting:Open Original Shared Link

[CarlaB]

Andrea, they took me off Omnicef because of my sensitive GI tract. They tried to switch to Bicillin injections, but I won't do those ... I don't think the benefit is worth the cost of the bruise and the knot! So, they're using high dose Amoxy -- four pills three times daily. I was thinking about backing down to one pill three times daily until I felt better, then adding a second, and so on.

It's always when they go after this form of the bacteria that I start feeling worse ... I know it needs to be treated, but I haven't been functional for more than a week! Does it make sense that starting in a lower dose would cause me to be less toxic, then as the bacteria dies off I can add more? It makes sense to me, but I'm wondering if I'm making it to simple.

[AndreaB]

Anyone read this article? I haven't (just browsed) but it looks interesting:Open Original Shared Link

Got it bookmarked now. I've seen some stuff by these guys and I'm sure Rachel has because she's quoted from them I believe. Don't know that it was this article though.

[AndreaB]

It's always when they go after this form of the bacteria that I start feeling worse ... I know it needs to be treated, but I haven't been functional for more than a week! Does it make sense that starting in a lower dose would cause me to be less toxic, then as the bacteria dies off I can add more? It makes sense to me, but I'm wondering if I'm making it to simple.

It makes sense to me, especially with starting a herx soon that you would want to back off. Maybe it's just a bit more than you can handle right now at the current dose.

Of course your cold didn't help either and that can wipe some people out for awhile on its own.

[AndreaB]

Can you say NOT VERY HAPPY!!

The little guy got into a curio cabinet that is by the table and got one of my horses out. It is one that hadn't sold....now I can't sell it because it is scratched.

[CarlaB]

Oh, Andrea, I'm sorry, the lessons in detachment provided by our children are difficult, aren't they?

[dlp252]

FOTGET IT AND CHILL..........I'LL PUT SOME GREEN HERE FOR YA

Thank you for the lovely GREEN.

Oh...I was kind of tired at work...seemed like the day was dragging...thought 3:00 would never come. So finally I leave...get home...turn on the computer. Its 2:15.

Ummm....I guess I left a little early.

Oh well...maybe they will think I actually came and left on time for once.

See what happens when I dont take my charcoal in the morning.

If you're a misfit toy then I must be a Bumble (as in Bumbles Bounce from Rudolph the Red-Nosed Reindeer!).

Oh heck...got me all excited to hear how you are a Bumble BAR.

It's always when they go after this form of the bacteria that I start feeling worse ... I know it needs to be treated, but I haven't been functional for more than a week! Does it make sense that starting in a lower dose would cause me to be less toxic, then as the bacteria dies off I can add more? It makes sense to me, but I'm wondering if I'm making it to simple.

Gosh, I'd be tempted to try it, but I don't know how that would affect the picture overall.

The little guy got into a curio cabinet that is by the table and got one of my horses out. It is one that hadn't sold....now I can't sell it because it is scratched.

Maybe you can still sell it, just disclose that there is a scratch...SOMEONE might still want it. Although it may not be worth it if you can't get what you wanted for it...might be worth more just to keep.

[NoGluGirl]

Dear Rinne,

Yay! Now there is Rinne Foods, too! That would be so great! You could sell everywhere! This is so exciting! I know I will be one of the first in line!

Dear Bev and Susie,

Yeah! We can go storm chasing together! It would be a blast! The Great Plains are the best place to go, but heck, you could just hang out here for a month, and I am sure you will not be disappointed! We can hang out and eat Rinne Bars, and maybe Rinne Pizza? There is so much we could do!

Dear Patti,

I am glad to hear your rash is improving. It was also wonderful to hear your doctor's appointment went well! I think it is wise he is waiting to do bloodwork until the reaction is gone. That could cause some false positives. You definitely want the results to be accurate.

Dear Susie,

I am a misfit toy, too! I always have been! Why stop now? It is more important to be yourself! Just be happy about being you!

Stinker is improving! That is great! We have all been so worried about her! Antibiotics may do the job. Her balance sounds like it has been really messed up. Those inner ear infections can do that to people, too! My best friend has had I do not know how many! You said her Thyroid is slow, too. Tasha had trouble with her Thyroid as well. It seems quite common in dogs that are older.

I am kind of a vigilante, myself. I get so angry at pedophiles and rapists, I would like to touch them in a way they do not want. I would love to beat the guy that touched me to a bloody pulp! I hate him with every fiber of my being. He better hope to God I do not get to him first if he EVER touches a child! I warned him about this, too.

Dear Carla,

I would be terrified of that rapist, too! Especially if I had children as you do. These people are evil! They care nothing about others. Even worse, they try to make it like it is the victim's fault that they found them attractive. They also have stalker tendencies. These individuals should not be out in society.

As far as the herxes go, I am sorry to hear you are having such a difficult time. I think it might not hurt to back-off a bit with the meds. What you said made sense to me. I believe it could help a lot. Gradually increasing the amount of antibiotic should help your body adjust better and reduce the severity of the effects of bugs dying off.

I thought it was interesting you mentioned asking your angel for help finding a parking space. Have you ever read Dr. Doreen Virtue's Women's World excerpts? It talks about them. She even mentioned you can ask for help on simple matters such as that. These stories are so uplifting! Adam has egg on his face now that it worked!

Dear Bev,

I am glad you shared Hannah's story as well. It gives us hope. One day, maybe some of us could have a half-normal life again! Lyme is such a difficult disease to deal with. Knowing people can and do recover is very important. Also, thank you for the article. I bookmarked it.

Dear Donna,

It is so wonderful they were able to fit you in for a massage! That is great! I bet you feel better. I painted my toes today. Mom brought home a new Wet'n Wild pink sparkely polish. I really like it! It was only $2! Did you get to paint your toes?

Dear Grump,

I am laughing so hard at your post! My mother is going through menopause right now, too. She is not having an easy time with it, either. Neither are the rest of us! It is not fun for anyone! At least you are a good sport!

It was funny you mentioned Grump being your nickname. My best friend alway thought my grandfather looked like a "Frowny old Man." She asked about that a lot when we were kids. Poor Grandpa!

Dear Lisa,

I am so sorry to hear about your troubles. I can certainly relate. I seem to have some malabsorption still. I still poop out stuff that looks a lot like it did going in. At least now, Rachel has solved some of that mystery for the rest of us!

Dear Rachel,

I am so glad you told about the charcoal! I did not know it was not supposed to be taken with food, either! It is a good thing I did not take any! The package always says take with a meal. You would think they would be smart enough to know better!

Dear Judy,

It is nice to hear from you again! I hope things are going well. Is it just me, or is this new format more difficult to keep up with? The forum was actually easier to operate and read the other way. I know they are probably trying to save space, but this can be a big pain sometimes!

Dear Nikki,

I hope they pass those laws there, too! You guys have the right to know whether a pedophile or rapist is nearby. This is a serious public safety issue. Even in the U.S. it seems to be ignored a lot. It is incredibly frustrating.

Dear Andrea,

Talitha is feeling better, which is great news! The fact she feels better because she ka-bonged her brother is not so good, though! Maybe she needs another outlet? It is kind of funny at the same time, you have to admit. Hopefully, she will start to have more improvement soon.

That is awful about your horse! Maybe it will still sell. If someone bidded already, you could just ask them. That is the only thing I can think of. You should do alright!

Sincerely,

NoGluGirl

[DingoGirl]

YOU'RE NOT A MISFIT TOY!!!!!!!

You a lovely person with a wonderful personality. Don't let anyone tell you otherwise, including yourself!

We love you and that's that!

Now, it's probably a good thing you didn't become a cop, but it probably would have been fun for you. You'd make a great neighbor though.

Oh, and yes, you could have lyme brain and I'd still love to see you tested. Lots of people are asymptomatic if you take into consideration the children that have autism that test positive for lyme.

*sniff* thank you, dear andrea. I think I should have clarified - - I feel really misfit-ish in the area of employment/career. Oh wait - - then there's relationships with men also. Anywho, it's mostly been in the thinking impairment of my brain......you guys wouldn't even believe it if I told you, and the story's too long and horrific anyway.

but - can you imagine, as a 30-year-old woman on a temporary administrative job, my supervisor asks, will you please type a label for this file that says United Insurance?? Well.....due to abject panic, I was on my FOURTH night without sleep [and I do mean FOUR ENTIRE DAYS - - but my record is FIVE days without a single minute of sleep], that was a Thursday (I"d started on Monday), and I could no longer think at all, my heart was constantly almost twice its normal rate. So - - when that boss asked me to do that simple task - - I ran into the bathroom, wracked with quiet sobs - - thinking frantically, searching in a dizzying panic through the empty "hard drive" of my brain - - - wondering, does she want that in all caps? Or just the first letter of each word in caps? does the blue line go at the top of the label, or the bottom? and I went home for lunch, had to take STRAIGHT SHOTS of some orange liqeur I had at home - just to get through the afternoon (and I was pretty much a non-drinker at the time)...I called my almost fiance (he of course broke up with me later because of this issue and so many others that ruined me), who was a high-school counselor, with a master's in psychology....such a wonderful man, who came over that night and I just collapsed and sobbed - - and he gently said, you have a phobia, it seems, a panic disorder related to work.......

This started at my very first job at the age of 16, got worse and worse as the panic started even BEFORE every new job, and then thinking became impossible. I have a markedly high IQ - - and NO ONE ever diagnosed this auditory processing ability - - this scrambled thinking - - until about two years ago. They just thought I had panic disorder - - but never looked deeper. I have spent at least half of my life SUICIDAL over this problem, and it has eaten away decades of my life. Many people just think I am a terrible flake....but I have tried SO VERY HARD to succeed......

As I write this, it has brought me to tears. I know you ALL have suffered SO MUCH physical pain....but I have not - - it has all been mental.

Does any of this sound like Lyme brain? from what I"ve read - it doesn't really apply - - because I have known deep sadness since about the age of five, and since then, carried with me what feels like an internal scream (yes, I"ve had lots of therapy) - unlike Bev, whose depression came on very rapidly and deeply. I was virtually never sick as a child, except very mild chicken pox, strep throat in fifth grade, and that's about it. But something has always been very, very wrong.

ohhhhhhhhhhhhhh I am so sorry to go into all of this here. But I am finding myself unemployed again, and this job was supposed to be a success....and in a way it was - - just didn't end well. But, I could THINK for the first time in my life, at work, and PROCESS THINGS. That has everythign in the world to do with the removal of gluten, and the turnaround in severe anemia!

end of piteous rant.

********

PART DEUX (hi Rinne!!) (insert winky face)

Susie, if you are a broken toy then we are all broken but much richer for it, personally I've always preferred a little patina and I lost all illusions about perfection long ago. I love Leonard Cohen's line, "forget your perfect offering there is a crack in everything, that's how the light gets through."

Having said that, I have to agree with Andrea that you are perfectly lovable just the way you are.

Love you, darling. shall we meet in New York (Carla too, and everybody else) in September? We'll reserve the whole restaurant!

Love all of you.

Carla - if YOU are weird....then I am even beyond eccentric!!! I don't even think you're weird in the slightest, does that make me weird? and all the rest of us?

And yes- I think you might have Lyme brain. When I listened to Hannah's story (my SIL's sister who recovered from Lyme) it was VERY scary as most of her symptoms were neuro- horrific panic attacks, hallucinations, she was diagnosed with a variety of psychiatric ailments first and put on enough barbituates to sedate a horse. She was lucky in that her LLMD was a former psychiatrist who had developed Lyme himself.

This is astonishing. I must look into it more, I suppose. I have a dear friend, we have spent most of the summers of our youth and beyond in the same part of the Sierra, we have skiied together since we were 16, kayaked, canoed, hiked, eveyrthing - she is on 1,000 mg. of seroquel (a huge amount - - I am on 100) and she STILL cannot sleep - - gets crippling panic attacks and can't leave the house for days.....

The little guy got into a curio cabinet that is by the table and got one of my horses out. It is one that hadn't sold....now I can't sell it because it is scratched.

Andrea - someone will want the scratched horse, I do think......but yes, how upset you must be!

Well, I am exhausted from writing all of that......sorry - - will probably erase - - and I am exhausted from carrying myself around with me all of my life.......

[Rachel--24]

Anyone read this article? I haven't (just browsed) but it looks interesting:Open Original Shared Link

Bev...I'm familar with most of Dr. Klinghardt's articles. He's a very well known Dr. in the alternative world of medicine. He's one of the worlds leading experts on mercury detox. I've posted alot of stuff from him on that topic.

He is also well known for treating Lyme and Autism effectively using alternative methods. He developed ART...which I'm using to guide me through treatment. I think there might be some info. about ART in the article you posted.

Him and Dr. Derksen found that 100% of the autistic kids they tested were positive for Lyme. If you look at the Dr. Klinghardt/Dr. Derksen protocol for autism you will see some of the stuff I'm currently doing.

Open Original Shared Link

Under general detox I'm just doing epsom salt/baking soda baths...this is just something I started doing on my own. It wasnt mentioned in my treatment plan or anything.

For heavy metals I'm on NDF and multi-minerals. I'm not tolerating chlorella very well right now so not taking it. Eventually I will be on one of the pharmacueticul drugs for metal detox...probably DMPS...but thats still a ways away.

For the liver she didnt put me on anything thats listed on that page. I started doing the castor oil and coffee enemas on my own cuz I've heard so many good things. Castor oil was recommended by my BioSET practitioner.

For kidneys I'm on something not listed here.

For Fungal I'm on Nystatin and might also get put on the Fungal Defense (transformation enzymes).

For Lyme and Babesia I'm on Samento and PC-Noni....but not the brands listed.

I get treated based on my ART results.

Dr. Derksen (Dr. Amy) is one of my LLMD's...she worked with Klinghardt for a couple years and she had extensive training from him. She's in Washington though so I only get to see her every 3 months. I also have an LLMD right here that I see more frequently....he's an M.D.....he doesnt do ART or anything like that. He wants me on the same stuff Dr. Derksen wants me on...so they're on the same page. He doesnt want me on antibiotics at all...at least not any time soon.

If he puts me on antibiotics it will be more near the end of my treatment...when I'm doing alot better as far as chemical sensitivity, detox, candida, etc. Antibiotics will worsen my condition at this stage....so we dont even discuss that yet. I might not ever need them....hopefully that turns out to be the case...will have to wait and see.

So thats all to catch you up on my treatment, Dr.'s, etc.

This is where I'm at right now.

[CarlaB]

Susan, it could be Lyme brain ... but if it's gotten better gluten-free, maybe it was the celiac. It wouldn't hurt to test. Don't beat yourself up over it ... I never got along well at work ... it's cause we're both smart. Usually women above me didn't want me working there.

One time the stress of the job caused a Lyme flare (I know what it was NOW) ... I would be totally FINE at home, I'd go into work, throw up and come down with a 102 degree fever. I'd go home and be fine. Lyme can be rather odd. I obviously had to quit that job. We moved from Houston to LA and I couldn't work for a few months after that. I also had massive GI trouble then ... couldn't eat anything. Finally, it just went away on its own.

That's how strange Lyme can be.

I get Lyme brain, too. Sometimes I'm totally irrational ... mostly that's during a herx. I'll agree to go to the gym to work out, I'll get there and if no one is working out with me, I'll do two exercises, then leave. Adam's learned he has to go with me on those days. I just can't think. He'll come home from work and it won't even register that we need to eat dinner ... there will be no food and I've not started cooking. This isn't so bad when I'm not flaring/herxing.

When my Lyme is flaring I can't count the three sets of each exercise. I used to NEVER be able to count them, but at some point, on a good day, I could. I can't count to three!

I can't keep track of a conversation. I can't remember names ... sometimes of people I've known for years. I can't remember what simple objects are called. The kids know I never know what day of the week it is and that if they have to be somewhere they'll have to tell me. One of them will leave me a note on the counter when I need to pick her up from school, then call before school is out to remind me ... she ALWAYS gets where she needs to be!

I have obsessive thoughts. I don't talk about that ... ever. I have with another Lymie with the same problem in PM's ... it's the same thought ALL DAY, EVERY DAY. I can't talk about it. It gets worse when I feel bad and almost goes away when I feel better.

Lyme can affect the brain in a very bad way. Some of those issues you have could be Lyme.

[AndreaB]

As I write this, it has brought me to tears. I know you ALL have suffered SO MUCH physical pain....but I have not - - it has all been mental.

Does any of this sound like Lyme brain? from what I"ve read - it doesn't really apply - - because I have known deep sadness since about the age of five, and since then, carried with me what feels like an internal scream (yes, I"ve had lots of therapy) - unlike Bev, whose depression came on very rapidly and deeply. I was virtually never sick as a child, except very mild chicken pox, strep throat in fifth grade, and that's about it. But something has always been very, very wrong.

I didn't keep too much of your post but I do hope you don't erase all of it if you do erase any of it.

I really, really wish I had the money to pay for your and Jin's western blots. I really think you should get the testing done. It certainly wouldn't hurt anything. I know the money is the hard part.

You know I'm always here if you want a shoulder to lean on and an ear to listen......you have my number.

As far as the horse.....it's not listed right now. I was going to try again in the fall. I'll just keep him. I paid a great deal for this one and he wouldn't have sold for what I paid as it is, he's my most expensive purchase. I have 6 horses left which I'll probably keep. Must keep two that aren't sellable and then my model replica of my horse.

[Rachel--24]

ok....update on Dr. Amys upcoming visit. I still dont have an appt.

I called BioSET on my lunch today and told her I didnt get scheduled and I didnt even know Dr. Amy was coming next week! She said she already got an email from Scott about it but the scheduling is already booked.

She said she's telling me the same thing she told Scott....that all the schueduling is filled up...according to when Dr. Amy told her to start and end appt.'s for each day. She cant add in an extra appt. without Dr. Amy's consent.

She said to call Dr. Amy's receptionist and if they say its ok...she can add me into the schedule...but its not her call to just add people in once the schedule is booked. I'm gonna call her office tomorrow and let them know what happened and hopefully Scott has been able to get in touch with her and find something out.

I'm still keeping my fingers crossed.

[AndreaB]

ok....update on Dr. Amys upcoming visit. I still dont have an appt.

I hope that you can get squeezed in and that this scheduling snafu doesn't happen again.

[DingoGirl]

Him and Dr. Derksen found that 100% of the autistic kids they tested were positive for Lyme. If you look at the Dr. Klinghardt/Dr. Derksen protocol for autism you will see some of the stuff I'm currently doing.

This is astonishing.......I have got to look into this (for people's kids I know).

Rachel - - I really feel that you'll get into see Amy - - after all, you're famous, and you ARE the founder of Rachelville.

I have obsessive thoughts. I don't talk about that ... ever. I have with another Lymie with the same problem in PM's ... it's the same thought ALL DAY, EVERY DAY. I can't talk about it. It gets worse when I feel bad and almost goes away when I feel better.

Lyme can affect the brain in a very bad way. Some of those issues you have could be Lyme.

I have had obsessive thoughts since the age of four or five. It has exhausted me to the point of tears. Now, I just take a tranquilizer if I'm having a day like that. They are SO much better now. Carla - - you are SO blesssed to have Adam, and your family. I have never had the problems with working out and keeping track of reps - nothing like that. Mine has been an auditory processing thing, quite a lot - - I will hear the first word or two or three in a directive sentnece, or a sentence containing information. I struggle a great deal with reading and keeping track of things here, for example, and I don't read books any more. And this is the girl who read East of Eden and Nicholas and Alexandra in the fourth grade. Haven't finished more than three or four books in the last five years. I can't take LOTS of information and make it concise - - can't take empirical data and come up with a conclusion. Much better now - - but still not optimal.

All of the scientificness on here - - very hard for me. I can't remember who has what, who is going through what, even when I"ve JUST read it twice.

Andrea - - hugs. If God wants me to have the western blot.....you know, I've been wanting to paint in oils again - bright, Fauvist abstact, as I did before. Many of my oils are dried and old, and I never bought any at work - not that great a discount. so - - I said to God, whilst praying - if you want me to paint , you'll have to provide the subject matter, materials, etc. Well.....my friend and her husbnad were here just yesterday, showing me their new car. Her husbnad is a talented painter, but in watercolor. So, he was looking at my paintings, a bit out of his mind, I have to say. And then we walked into this room where there were two of my oils, and I just casually mentioned, I really want to do more of these oils. That's all I said. And Brad says, I just received about $1000 worth of oil paints (from his wife's father), that I"ll never use.......

and he's giving almost all of it to me.

And also, I just ran into a little bit of money......which has allowed me to walk out of my job.

And then found my way back to Rachelville (I promise I"ll keep my silliness to a minimum!)...just have to remember these things and how God DOES answer prayer and DOES provide, when I start to go into spiral panic mode.

HOT AND STICKY must take cool shower.

[AndreaB]

Well.....my friend and her husbnad were here just yesterday, showing me their new car. Her husbnad is a talented painter, but in watercolor. So, he was looking at my paintings, a bit out of his mind, I have to say. And then we walked into this room where there were two of my oils, and I just casually mentioned, I really want to do more of these oils. That's all I said. And Brad says, I just received about $1000 worth of oil paints (from his wife's father), that I"ll never use.......

and he's giving almost all of it to me.

And then found my way back to Rachelville (I promise I"ll keep my silliness to a minimum!)...just have to remember these things and how God DOES answer prayer and DOES provide, when I start to go into spiral panic mode.

Looks to me as if you have your answer. God has provided. Now, don't worry about working outside the home, look for the motivation to paint some more beautiful pictures. I've seen what you have posted on D/S.

You did a wonderful job on the last job and I'm very happy for you. You couldn't help the people you worked for. Take the success of that job and carry it forward whereever you need it to be.

We are glad you are back and your silliness is a nice reprieve around here so don't worry about that. I'm not dealing with anything like everyone else.....just a very trying daughter. I look for the laughs too.

[Rachel--24]

Everything is progressing, I've come up with a second one, did I mention I am going to produce a line of gluten free foods?

Rinne...that is AWESOME!!

I'm really proud of you...for making it through the rough times of this past winter...coming back here with a renewed strength and an invention on top of it!! WAY COOL.

I'm very impressed with all you're accomplishing...new flavors of Rinne Bars...a whole gluten-free line.

I hope you will still visit Rachelville when you're famous.

The diagnosed brother has had all his symptoms clear up since going gluten free last year and he had years of suffering. I tend to think in my case it is Celiac and Lyme but I am willing to be open to the possibility that I could eat pizza again. Very thin crust with pesto and goat cheese and pine nuts......

Rinne...the pizza sounds yummy. I'm more of a thick crust gal though.

My favs are combination pizza...and definately hawaiian style....ham and pineapple. I LOVE Little Ceasars pizza sticks with the side of pizza sauce. HEAVENLY.

I'd be darn content with an Amy's pizza but since I cant even have that I think I'll just hold out for the real thing.

There is no Celiac in my family and I dont have a gene so I guess I do feel I have some freedom to experiment when the time comes....but I doubt I would be so brave if I was genetically susceptible.

Rinne - - you really should be a writer, you are just an other-worldy creature and I think the above paragraph proves it. (insert winky face here)

Yup...I've been saying this for about a year now...her words just capture the reader. Rinne you would do quite well as a writer I'm sure.

I LOVe weather! I get SO excited when we have thunderstorms acoming! Clearly not the case for everyone

Yeah...you're right about that last part!! You wont be seeing me chasing any storms. Heck..I cant stand normal wind...definately have no desire for seeking out intense winds that have the ability to uproot houses and such...no thanks.

I'll leave all that storm chasing stuff to you and Jin.

Everyone thinks moderators are evil. I mean, I know I am evil but in a different way...mischieviously evil

Bev...I'm sure I've been hated by many here....I think it probably started when I got diagnosed with Lyme right after that one girl got banned for talking about Lyme. It was very bad timing indeed.

I dont know if I've reached the "evil" status yet....but its quite possible.

If its evil to say that most MFS is safe....I'm pretty sure they wanna lock me up for suggesting I might not have Celiac...and I might eat pizza again.

[Rachel--24]

Well...I'm about 3 pages behind I think. Still need to catch up...no time for my story about my day at work.

Its bedtime.

Yup...my body is saying its that time...and for once I'm actually listening.

Night.

P.S. Andrea.....sorry about your horse.

Susan....cool about the oil paints!! Yup....God does provide when we need it most. I've been "guided" quite a few times when I had hit very rough spots in the first couple years of this heinosity of an illness. It doesnt happen anymore...I think because I'm carrying myself now.

There were times when I needed to be carried...and I definately feel as if I was.

[Clark Bent as Stupor-Man]

Bev,

thanks for posting about the person you know who had lyme for a few years with neuro-lyme symptoms and whatnot and has gotten better... always encouraging to hear these cases...