Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

miamia Rookie
I want to take up kickboxing and write words like leaky gut, gluten, corn, dairy, celiac, immune system, hives, allergies, grains, and so on all over the punching bag and then beat the H E L L out of it.

Anyone want to join me??

:lol::lol:

juliem-

I don't know if its those words I'de want to beat up for me it would be all the doctors who misdiagnosed me for so long and put me on all the meds that I know made me worse!!!

Miamia

WOAH

I must have missed this! :o

60 years!! That is so impressive. Congrats to you Evie.....and your hubby too! :D

Rachel-

My doctor did order the Keto for me so I am going to jump on the boat with you next week and start taking it- fingers crossed

Miamia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator

Ooooh....I got some other words I'd like to put on my bag....random words that have nothing to do with illness. :ph34r:

miamia Rookie
Cissie maybe you just need to reload your page like Patti said.

Don't get too excited, it's not like you missed anything great :lol:

I gotta put up a picture

miamia

jerseyangel Proficient

Julie, Celia and Rachel--Thanks for your input! I'm drinking nothing but the Poland Spring like I did back at the beginning of all this and see if it makes a difference that will last. I've been going out of my mind trying to figure out why I keep getting sick. I've been joking that pretty soon I'll be down to a vitamin pill and water! (and now the water is suspect :lol: ) Thanks for being there guys! :)

Celia--are you going to try the theory out too?

Rachel--24 Collaborator
Rachel-

My doctor did order the Keto for me so I am going to jump on the boat with you next week and start taking it- fingers crossed

Miamia

Awesome!

I hope you do well!! We can share our successes. See I'm being optimistic for both of us. ;)

Did the guy say anything different about the Keto than what I posted previously...or just basically the same? Did he tell you any success stories? I wanna hear it all. :P

Rachel--24 Collaborator

LOL....Jersey you can put the word "water" all over your punching bag!

:lol::lol:

jerseyangel Proficient
No problem... I just dumped out the glass of water I was drinking just a few minutes ago.... no more crap water for me... just the good stuff :D

You go girl! I always get excited when I think I've figured out another piece of the puzzle. Hope it's helpful for us both! ;) We seem to have a lot of stuff in common :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

I guess I"ll put the word ROBERT all over my punching bag..... :angry: His birthday's tomorrow, and I'm having a very sad day. :(

( :ph34r: sorry to add a sad note to the fun-ness of the sleepover Rachel)

leaving the slumber party, off to take a giant pot of spaghetti to my brother's now....

The good thing about this post, as serious as it can be, there is always something so funny and encouraging here, and I laugh every time I read it! :rolleyes:

jerseyangel Proficient
LOL....Jersey you can put the word "water" all over your punching bag!

:lol::lol:

:lol::lol::lol:

DingoGirl Enthusiast
Julie, Celia and Rachel--Thanks for your input! I'm drinking nothing but the Poland Spring like I did back at the beginning of all this and see if it makes a difference that will last. I've been going out of my mind trying to figure out why I keep getting sick. I've been joking that pretty soon I'll be down to a vitamin pill and water! (and now the water is suspect :lol: ) Thanks for being there guys! :)

Celia--are you going to try the theory out too?

allergic to water...holy cow....glad you figured it out and you're feeling better, Patti!

Rachel--24 Collaborator
:angry::angry::angry::angry::angry:

Grrrrr......what I wouldn't do for rain (I am a freak and love rain and fog, now why did I leave Monterey again?) It's the high one-hundred-and-TENS here after weeks of.......high nineties and ONE HUNDREDS......I am bloody sick of it and just have to pray like heck we don't have a brownout, as we did last month :blink:

Susan....nooooo..."rain rain go away".... Do you know that song? I soooo love the heat. Rain sometimes makes me sad. Unless I have someone to cuddle with and I could drink hot cocoa with marshmallows. But I dont...and I cant.....soooo rain rain go away. :P

jerseyangel Proficient
allergic to water...holy cow....glad you figured it out and you're feeling better, Patti!

Thanks Susan! Hope that's it, anyway :) You have a nice evening--sorry you're feeling down right now :(

Rachel--24 Collaborator
I guess I"ll put the word ROBERT all over my punching bag..... :angry: His birthday's tomorrow, and I'm having a very sad day. :(

( :ph34r: sorry to add a sad note to the fun-ness of the sleepover Rachel)

First rain and now this! :blink:

:lol::lol:

Seriously, I know how bad I feel when its my exes b-day....well heck...I feel bad on regular days too. Exes suck! :angry:

miamia Rookie
Awesome!

I hope you do well!! We can share our successes. See I'm being optimistic for both of us. ;)

Did the guy say anything different about the Keto than what I posted previously...or just basically the same? Did he tell you any success stories? I wanna hear it all. :P

Rachel-

he told me alot of the same stuff. But he did say healing time is different for everyone- in some cases people with worse damage healed faster than people with less. He was just so nice we started talking about the things we like to cook ansd the dangers of eating out. He was just really personable- and so confident it would owrk- it was very contagious I got off the phone with him thinking of course this is the answer.

Miamia

Rachel--24 Collaborator
Rachel-

he told me alot of the same stuff. But he did say healing time is different for everyone- in some cases people with worse damage healed faster than people with less. He was just so nice we started talking about the things we like to cook ansd the dangers of eating out. He was just really personable- and so confident it would owrk- it was very contagious I got off the phone with him thinking of course this is the answer.

Miamia

Yeah....he is very personable and so up to date on all this stuff. I could have talked to him for a long time...well I did...but I could have just kept talking all day. I felt great after we hung up. Thats why I wish I could call him everyday that I feel bad....his words were just so reassuring.

miamia Rookie
Yeah....he is very personable and so up to date on all this stuff. I could have talked to him for a long time...well I did...but I could have just kept talking all day. I felt great after we hung up. Thats why I wish I could call him everyday that I feel bad....his words were just so reassuring.

Rachel-

Yeah calling him on bad days would be a good idea- yesturday I had a terrible day!!! bad brain fog really bad pain- what I call "candida bloat" And after I talked to him I was happy despite all of this. He told me to call him in one or two weeks to let him know how I react, but maybe I'll call him just to cheer me up on bad days- thats a good idea!!!

Miamia

Rachel--24 Collaborator
He told me to call him in one or two weeks to let him know how I react, but maybe I'll call him just to cheer me up on bad days- thats a good idea!!!

Miamia

:lol::lol:

Between the two of us he wont be getting any work done. :D

miamia Rookie
:lol::lol:

Between the two of us he wont be getting any work done. :D

Rachel-

we could save him some time and one of us should just get 3 way calling.

Miamia

AndreaB Contributor
I guess I"ll put the word ROBERT all over my punching bag..... :angry: His birthday's tomorrow, and I'm having a very sad day. :(

( :ph34r: sorry to add a sad note to the fun-ness of the sleepover Rachel)

leaving the slumber party, off to take a giant pot of spaghetti to my brother's now....

The good thing about this post, as serious as it can be, there is always something so funny and encouraging here, and I laugh every time I read it! :rolleyes:

Hang in there Susan. I know it's hard but each day gets better and each day we get stronger. :)

We are here to celebrate and comfort...don't worry about crashing the party...it won't happen.

allergic to water...holy cow....glad you figured it out and you're feeling better, Patti!

Patti and Celia,

Aquafina is good brand. I watched a show a few years back that tested the bottled water. There were only 3 or 4 that were good. I had to email the person who hostess of the show and ask her if she remembered which ones they were. She remembered aquafina because it is what she drinks. She said a lot of the expensive waters were worse than aquafina.

VydorScope Proficient
Yes, it's filtered. There's a filter right in the fridge. I changed it when the indicator light came on. Don't think it's CC. Maybe you would know this Vincent--I think those filters have charcoal in them--there wouldn't be wheat in that like there is in cooking charcoal--would there?

Gosh, its possible, and heck it might explain why on days my son gets more water his stools are much looser and more often then on days that he dont. I better look in to this too. :(

Fiddle-Faddle Community Regular

What do you all think? Am I grasping at straws?

evie Rookie

[Celia--I know what you mean.

I was doing fine. About that time, we bought a new refrigerator with filtered water thru the door. Before that, I had been drinking only Poland Spring water. I don't know if it was a coincidance, but that is about when my symptoms came back and I began the elimination diets.

What do you all think? Am I grasping at straws?

AndreaB Contributor

Miamia,

Keep us posted as to how the med works for you.

You and Rachel be sure to let that super nice guy get some work done. :P That kind of personal attention is sure nice though isn't it. :D

Guest Robbin
Gosh, its possible, and heck it might explain why on days my son gets more water his stools are much looser and more often then on days that he dont. I better look in to this too. :(

Vincent-we had a short discussion about water on the thread for Megan/TCA/Tanya- Zack, my youngest, has had a problem with water with chlorine or fluoride all his life. There were a number of interesting posts on that thread from others regarding water. It is scary some of the things we ingest unknowingly. btw--great news about the adoption. I wish I could adopt, but at 45, I don't think it is something I can do. Hubby is 57, so I think we are just going to wait for grandkids.

Who was it, evie? 60 YEARS!!! THAT ANNIVERSARY IS AMAZING AND WONDERFUL!! CONGRATULATIONS!!!

Susan-Dingo-girl--It does get easier--I will pray for a gorgeous, rich, sexy, kind, loving man from Monterey to come into your life and sweep you off your feet. Everyone join in and focus on that for Susan and maybe our combined prayers and good vibes will get things rolling so Susan will someday say, Robert-? who?

All of you are so gorgeous, I will probably put up a picture of my dog for my avatar if I ever figure out how to do it!!!!!

Thank you guys for the info on quinoa--I still am having some serious bouts of D periodically and was thinking of trying quinoa-so thanks for saving me from THAT misery.

Andrea, I tried the Irish oats that were supposed to be safe and had a bad time of it. I hope you can eat it, but heads up on that. Rachel, I have had 5 laparascopy (sp?) surgeries and they are not fun, but they are about the only way to really know what is what with the ovaries. I hope you don't have to have one, but you are under anesthetic for the procedure. They cut in the belly button so the scars are pretty invisible.

DingoGirl Enthusiast
Susan....nooooo..."rain rain go away".... Do you know that song? I soooo love the heat. Rain sometimes makes me sad. Unless I have someone to cuddle with and I could drink hot cocoa with marshmallows. But I dont...and I cant.....soooo rain rain go away. :P

I totally get what you're talking about Rachel.....that is the best thing of all to do on a rainy day! I love rain any time, EXCEPT when the dogs get cabin fever and need a walk - -

And it would be SO nice to have a cool rain right about now..... :( If you like heat, just head on down to the good ol' Central Valley right now - - but I don't know if you'd like it so much!

I don't think I should post any more this evening.....somehow I've been glutened, and I can't figure it out, the only NEW thing yesterday was Arborio rice but not a new package - - might have had anti-caking something-or-other....but, when my thinking becomes this dark, something is definitely wrong, and I think I will call it a day and just head to bed with my book.

Rachel, I keep picturing your jumping intestines.....wouldn't you be able to FEEL them if they were doing that? I mean, sounds like that would produce intense cramping, and I can't remember if you were feeling the cramping during the exam or not - I know there was intense pain when she pressed on your ovary area - -

DO YOU THINK THERE"S AN ALIEN IN THERE??

;););) and please note - - not making light of your situation - - just a little levity here, that's all. Can't imagine how frustrated you must be with all of this and what your little body is continually going through. Adding you to my prayers before bed.

Rachel-

Yeah calling him on bad days would be a good idea- yesturday I had a terrible day!!! bad brain fog really bad pain- what I call "candida bloat" And after I talked to him I was happy despite all of this. He told me to call him in one or two weeks to let him know how I react, but maybe I'll call him just to cheer me up on bad days- thats a good idea!!!

Miamia

Um, who is this guy that y ou're calling - what page is he on - I want to call him too and feel better.... :rolleyes::rolleyes:

I heard the Europeans say they would NEVER drink the disgusting tap water. Hmmm. gfp, are you on? You live in France...Any comments?

We will need to PM him - - - this thread is just a little intimidating and long to jump in the middle of :blink: esp. for a guy as it's such an estrogen-fest!

Good thing we have Picard and Vincent - - am I missing anybody else??

Susan-Dingo-girl--It does get easier--I will pray for a gorgeous, rich, sexy, kind, loving man from Monterey to come into your life and sweep you off your feet. Everyone join in and focus on that for Susan and maybe our combined prayers and good vibes will get things rolling so Susan will someday say, Robert-? who?

THANK YOU for that Robbin, so precious...and BTW 45 is not too old to adopt! Neither is 57! But...I will add to that prayer and say may we ALL have the peace, joy and love we so richly deserve...

Andrea, I tried the Irish oats that were supposed to be safe and had a bad time of it. I hope you can eat it, but heads up on that.

I ordered some from Gluten Free Oats, two pounds for about $16, and am ecstatic to report, NO problems at all, might you consider trying that? I really missed my oats and am so relieved.

Dang, this thing about the water is starting to concern me ....have had D for the last three or four days, not normal for me as I am very careful, and I MIX tap water with bottled.....I never thought of this! Must thank all of you for the thoughtful and varied posts on here - - we learn so much, don't we?

G'night John-Boy....'night Mary Ellen......'night Ma.....

Good night and sweet dreams to all of you.

:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...