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Omg...i Might Be On To Something


Rachel--24

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NoGluGirl Contributor

Dear Laura,

I know you must be really worried. Let us know when you get the results of the test. We know how difficult waiting is. It literally can drive you crazy! Hopefully, there will be good news.

Dear Patti,

Hello Angel Spice! How are you today? Well, I got your PM. I hope I explained everything alright. The situation is complicated.

Dear Susie,

Yay! Shakespeare! :D I miss reading it. Yeah, I have not been much on dating anyway. Since that guy nearly raped me that I was friends with for three years several years ago, I am too afraid. They all just look like hungry werewolves ready to eat me, drooling with huge teeth. No thank you! The only guy I really want is married. He is a soap actor!

Dear Donna,

I took a Japanese Art class in high school! I was lucky they had it my junior year. They stopped having it after that but every other semester. It is a good thing I got to it when I did! I wish I had those slippers! You are so lucky to have them all!

Dear Carla,

Yep, there has certainly been some flirting going on! Who knows? Maybe they were meant for each other? There is this new thing called speed dating. That sounds kind of cool. One lady found her husband that way! Imagine finding your soulmate in three minutes! :lol: I feel that if two people are meant to be together, it will happen!

Sincerely,

Jin


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Mtndog Collaborator

Oh no- not one day- more like 5 (started literally immediately after I took my first pill). Scared the heck out of me. I'm feeling a *little* better today.

called my LLMD and haven't heard back. Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan? :P

tom Contributor
I also love the Big Sur River Inn because you can go sit in the river in these cool chairs and have your margaritas delivered.

Ah yes - wet feet, a cold drink, and a big white Adirondack!

dlp252 Apprentice
I wish I had those slippers! You are so lucky to have them all!

Well, I COULDN'T NOT get them...they were on sale for $7. :P

Oh no- not one day- more like 5 (started literally immediately after I took my first pill). Scared the heck out of me. I'm feeling a *little* better today.

called my LLMD and haven't heard back. Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan?

Saw your question on LN...said hello to you to keep it near the top!

jerseyangel Proficient

Hi Jin--Thanks :D Hope you're having a great day!

Hi Bev--Sorry this herx is so rough on you :( I'll be interested to hear what your doctor says.

dlp252 Apprentice
Ah yes - wet feet, a cold drink, and a big white Adirondack!

OMGosh...I didn't even know that was there and the picture looked heavenly! Where's a dreamy smilie when you need it. :P

tom Contributor
Three is a short one for me ... every 24 days, 3-6 days long. :( Last time was two weeks, but I had a cold at the time, so I can't blame it all on herx.

Whoa! I'd never heard of such a thing! Is there progress in betw? Is there a trend to the herxes? Wow, how long has this been going on?


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CarlaB Enthusiast
Imagine finding your soulmate in three minutes! :lol: I feel that if two people are meant to be together, it will happen!

Adam and I both stopped in our tracks the first time we SAW each other. It was like our guardian angels tapped us on the shoulder and said, "That's the one!" It's actually very odd.

Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan? :P

Brace yourself. :( Especially once you start going after the babesia. :(:(

I can bring Morgan ... she can take care of both of us when Susan's away. ;) I live in a house with 8 people ... I know how to SHARE! :lol::lol:

NoGluGirl Contributor

Dear Donna,

I wish you could have gotten those slippers, too! Maybe another time? Getting those for $7 is pretty good! Most pairs I have seen are at least $20! That is a good amount off!

Dear Patti,

My day has been busy. I started getting queasy after eating cereal again. :( I took my medication. I feel a little better now. I am drowsy, though.

Sincerely,

Jin

CarlaB Enthusiast
Whoa! I'd never heard of such a thing! Is there progress in betw? Is there a trend to the herxes? Wow, how long has this been going on?

It's the nature of Lyme treatment. Each herx lowers the bacterial load, so after each herx, you feel slightly better than before. That's how progress is made.

In the beginning, I just felt bad all the time, then I started noticing the herxes more and the slight improvement.

NoGluGirl Contributor

Dear Carla,

That is weird! You and Adam were meant to be together for sure! I think a lot of people believe angels bring you together. That makes sense to me. There is such a thing as love at first site.

Sincerely,

Jin

Rachel--24 Collaborator
I THINK i feel better and may be at the tail end of surviving my first herx. Holy moly!!!!!!!!!!!!!!!!!!!!!!!!!!

Bev...sounds like the herx was heinous!! Glad you're coming out of it and feeling better....phew! :)

I think he should be Saxy Spice :P

Saxy Spice. :lol:

Yeah...I think its perfect! ;)

Donna....you crack me up with all the fuzziness keeping your feet warm. :lol:

Loved all your artwork by the way. :)

All this talk about Big Sur and Nepenthe (dont think I've been to either place) is making me miss the great outdoors...all the camping, exploring....OMG...sitting in chairs on the river sipping margaritas!! Is there really anything much better thatn that!!

Thankfully, I'm not much afraid of the outdoors even after all this..I wanna be out there enjoying it asap!!

The dentist office is another story altogether... :ph34r:

Hey Donna...

I forgot to mention this yesterday but Dr. Amy does prefer her patients to be off of everything before she sees them. I had only taken a couple things on Saturday night but she needed to know what I'd taken and when.

She said there are advantages either way....but she prefers testing when all treatment has been stopped so that she can get the clearest picture of whats going on.

It makes sense....I would think that if you're taking something which is working really well at controlling a certain infection or managing something else going on in your body...it seems like it could possibly prevent it from showing up in testing. Whereas if you're totally off of treatment she can have a better picture of how significant certain infections (or other issues) are.

Thats my guess anyway...that the supplements could "mask" things so that they either...dont show up at all...or they dont show up as strongly as they would off of treatment.

I actually hadnt taken anything for Lyme or Babs in almost 2 weeks...I did this last time too because I wanted to make sure they arent showing up weakly because of treatment.

I also asked her why she thinks I got soooo messed up from the mercury to begin with?? She said that most likely I was having problems with the detox pathway long before I got sick....that I was probably already at a full load...the mercury just totally pushed me over the edge....it was the last straw.

Thats basically the same thing both Anna and Dr. S. had said about it.

Even Dr Rick (though at first he didnt believe mercury was the underlying cause) had said that things piled up and even though it was one thing that broke the camels back.... many things were going on before my body reached that point.

So Amy said once the mercury came into it and the scales tipped....yeast pretty much "exploded" in order to help my body cope with the metals. So now the yeast/molds are basically trapped in my body along with the metals. Theres no way for my body to release the metals and no way that I can get rid of yeast as its binding with the metals.

She said the same thing that Dr. S and Anna said.....its now gonna be a "back and forth" thing with symptoms of both flaring up throughout treatment. Anything I do to move the metals out will cause the yeast to flare up big time and anything I do to kill off yeast will release mercury and cause symptoms from that. BOO-HOO :(

On the bright side my sauna should be coming any day now. :D

Scott said he knows which one I got and that his is basically the same...except his is the "lay down" kind and mine is the kind you sit in. He said it will work really good. :)

Stupid mercury and yeast have turned off my internal heater. :angry:

Cant wait to get totally hot and sweaty. :P

NoGluGirl Contributor

Dear Rachel,

It is such a bummer about the pathways! That mercury is making everything a problem!

What can they do to fix the pathways? The mercury and Candida both sound stuck right now. I know they are trying those other supplements. The sauna should help, too. I think the LED therapy will likely help open up the pathways, though so the herbs can do their job.

Sincerely,

Jin

CarlaB Enthusiast
Dear Carla,

That is weird! You and Adam were meant to be together for sure! I think a lot of people believe angels bring you together. That makes sense to me. There is such a thing as love at first site.

Sincerely,

Jin

You have no idea, that's only the beginning.

One night shortly after we met, I drank some beer (not with him) ... between the Lyme and the gluten intolerance, I was pretty sick. The next day, he wanted to get together, but I told him I was too sick. So, he walked all the way across campus (I had a car so could have driven to his frat house). He took me out for some fresh air and that was the first time he thought he could marry me. :blink: When I was sick. I guess it was his vocation to care for me. :rolleyes:

Then we didn't date for over a year because I realized what an @ss he really is. :lol: My Mr. Darcy! :lol:

dlp252 Apprentice

Rachel,

Yeah, it makes sense to be off the supplements. The only thing really different in my case though was that this time he didn't find a viral infection...last time I had some sort of viral thing happening.

I thought one of the main purposes to NOT taking the supplements before testing was to see how much your body really wants them...this time Scott found a couple more things I didn't need or my body doesn't like, BUT I'd been taking my other supplements...so maybe with those things in my system, my body didn't need the other stuff. Phew, I think I just confused myself. :P

I sm so excited for you to get your sauna. I really want one too...so yours is a sit down model? Cool.

Oh, and I just called to put my name on Dr. Amy's list...but Amy (the receptionist) isn't there today...some guy took my name and phone number. :P Said he'd give it to Amy tomorrow.

dlp252 Apprentice

Carla that is too funny! See, you know someone REALLY cares when they will take care of you when you're sick!

CarlaB Enthusiast
Carla that is too funny! See, you know someone REALLY cares when they will take care of you when you're sick!

Yeah, and when I tell him he's an @ss, he says, "Yes, but you knew that and married me anyway." I can say the same thing about my being ill.

He says he likes taking care of me ... then made a joke about being guilty of Muchausen by proxy. :lol:

dlp252 Apprentice

Did anyone else have to go look up Muchausen? :lol:

Rachel--24 Collaborator
Dear Rachel,

It is such a bummer about the pathways! That mercury is making everything a problem!

What can they do to fix the pathways? The mercury and Candida both sound stuck right now. I know they are trying those other supplements. The sauna should help, too. I think the LED therapy will likely help open up the pathways, though so the herbs can do their job.

The B-12 shots might help alot. Some people start making alot of progess once they got on B-12. Its needed for methylation and that is one of the essentials for detoxing mercury. She said all of the autistic kids she treats have the same problem and also have the same problems with sulfur. They improve with B12.

Shes doing a test to see if the LED therapy will do me some good. We dont know yet...but because of the sulfur issue she thinks it might really help alot. Thats the exact reason why I felt like the LED treatments would be worthwhile the first time I learned of it.

I'll find out more later on this week after she runs the test. Also the test she's running (with my saliva) can tell her alot of other things. She said its similar to what Anna does at BioSET but its "new generation".

She said it can pick up things that she may not be finding...even in ART. So she wants to determine how well LED will work for me...if at all...and at the same time see if theres anything else that shows up which may have been missed in other testing.

Rachel--24 Collaborator
Did anyone else have to go look up Muchausen? :lol:

Nope. Its just you. :lol::lol:

CarlaB Enthusiast
Did anyone else have to go look up Muchausen? :lol:

Sorry, I probably made that difficult by spelling it wrong! :lol:

dlp252 Apprentice

Okay, so maybe it's a good thing I didn't know what Munchausen was. :P

OMGosh!!! Super hyperventilation going on here... I may have to sing my solo as soon as June 24th! It was scarey enough when I thought I had a couple of months to go...that's like NEXT weekend.

Okay, I need everyone's expert weaseling out techniques! :P

DingoGirl Enthusiast
Ah yes - wet feet, a cold drink, and a big white Adirondack!

One dingo (Tika) and I fell in the river once, and everyone saw. :lol:

That place is heaven.......I miss it so much it hurts. :(

rach - when you're all better, you CAN go down to Ventana and Nepenthe - - just sit safely on teh patio and LOOK at the beauty around you. You won't have to get all nerdily dressed w/ socks pulled over pants and duct tape, either. ;)

Yeah, and when I tell him he's an @ss, he says, "Yes, but you knew that and married me anyway." I can say the same thing about my being ill.

He says he likes taking care of me ... then made a joke about being guilty of Muchausen by proxy. :lol:

:lol::lol::lol: Munchausen (sp?) is one of my fascinations. Along with a few other things that I watch with my mom on discovery health.... :blink:

Did anyone else have to go look up Muchausen? :lol:

OMGosh!!! Super hyperventilation going on here... I may have to sing my solo as soon as June 24th! It was scarey enough when I thought I had a couple of months to go...that's like NEXT weekend.

Yay Donna! What song?

GRUMP 1 Contributor

I need some help. I started on a new medicine about 4 days ago. It is NABUMETONE, generic for RELAFEN. I feel like I am being glutened from it. I have stopped taking it as of today to see if my symptoms change back to normal. I know am 99% sure I have not gotten any thing else that is gluten. But what I need to know is if any one knows what is in this or if any one knows where I can look on the internet to find the ingredients.

Thank you,

Grump

tom Contributor
Sorry we padded the whole thread with fluff yesterday, Tom and I, the top two posters of the day. :lol: that is heinously crazy! Staying OFF computer today, too much to do,

Hold on - I had to respond to a plethora of interrogatory postings!!

Ya SusieQ, great job staying off the comp hehehehehehehehe :P

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    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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