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Omg...i Might Be On To Something


Rachel--24

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NoGluGirl Contributor

Dear Laura,

I know you must be really worried. Let us know when you get the results of the test. We know how difficult waiting is. It literally can drive you crazy! Hopefully, there will be good news.

Dear Patti,

Hello Angel Spice! How are you today? Well, I got your PM. I hope I explained everything alright. The situation is complicated.

Dear Susie,

Yay! Shakespeare! :D I miss reading it. Yeah, I have not been much on dating anyway. Since that guy nearly raped me that I was friends with for three years several years ago, I am too afraid. They all just look like hungry werewolves ready to eat me, drooling with huge teeth. No thank you! The only guy I really want is married. He is a soap actor!

Dear Donna,

I took a Japanese Art class in high school! I was lucky they had it my junior year. They stopped having it after that but every other semester. It is a good thing I got to it when I did! I wish I had those slippers! You are so lucky to have them all!

Dear Carla,

Yep, there has certainly been some flirting going on! Who knows? Maybe they were meant for each other? There is this new thing called speed dating. That sounds kind of cool. One lady found her husband that way! Imagine finding your soulmate in three minutes! :lol: I feel that if two people are meant to be together, it will happen!

Sincerely,

Jin


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Mtndog Collaborator

Oh no- not one day- more like 5 (started literally immediately after I took my first pill). Scared the heck out of me. I'm feeling a *little* better today.

called my LLMD and haven't heard back. Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan? :P

tom Contributor
  Mtndog said:
I also love the Big Sur River Inn because you can go sit in the river in these cool chairs and have your margaritas delivered.

Ah yes - wet feet, a cold drink, and a big white Adirondack!

dlp252 Apprentice
  NoGluGirl said:
I wish I had those slippers! You are so lucky to have them all!

Well, I COULDN'T NOT get them...they were on sale for $7. :P

  Mtndog said:
Oh no- not one day- more like 5 (started literally immediately after I took my first pill). Scared the heck out of me. I'm feeling a *little* better today.

called my LLMD and haven't heard back. Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan?

Saw your question on LN...said hello to you to keep it near the top!

jerseyangel Proficient

Hi Jin--Thanks :D Hope you're having a great day!

Hi Bev--Sorry this herx is so rough on you :( I'll be interested to hear what your doctor says.

dlp252 Apprentice
  tom said:
Ah yes - wet feet, a cold drink, and a big white Adirondack!

OMGosh...I didn't even know that was there and the picture looked heavenly! Where's a dreamy smilie when you need it. :P

tom Contributor
  CarlaB said:
Three is a short one for me ... every 24 days, 3-6 days long. :( Last time was two weeks, but I had a cold at the time, so I can't blame it all on herx.

Whoa! I'd never heard of such a thing! Is there progress in betw? Is there a trend to the herxes? Wow, how long has this been going on?


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CarlaB Enthusiast
  NoGluGirl said:
Imagine finding your soulmate in three minutes! :lol: I feel that if two people are meant to be together, it will happen!

Adam and I both stopped in our tracks the first time we SAW each other. It was like our guardian angels tapped us on the shoulder and said, "That's the one!" It's actually very odd.

  Mtndog said:
Just wondering if the first is the worst. Or if I should brace myself for ALL of them.

Yes- Carla- you can come to Camel back but Susie is MY nanny. Can you bring Morgan? :P

Brace yourself. :( Especially once you start going after the babesia. :(:(

I can bring Morgan ... she can take care of both of us when Susan's away. ;) I live in a house with 8 people ... I know how to SHARE! :lol::lol:

NoGluGirl Contributor

Dear Donna,

I wish you could have gotten those slippers, too! Maybe another time? Getting those for $7 is pretty good! Most pairs I have seen are at least $20! That is a good amount off!

Dear Patti,

My day has been busy. I started getting queasy after eating cereal again. :( I took my medication. I feel a little better now. I am drowsy, though.

Sincerely,

Jin

CarlaB Enthusiast
  tom said:
Whoa! I'd never heard of such a thing! Is there progress in betw? Is there a trend to the herxes? Wow, how long has this been going on?

It's the nature of Lyme treatment. Each herx lowers the bacterial load, so after each herx, you feel slightly better than before. That's how progress is made.

In the beginning, I just felt bad all the time, then I started noticing the herxes more and the slight improvement.

NoGluGirl Contributor

Dear Carla,

That is weird! You and Adam were meant to be together for sure! I think a lot of people believe angels bring you together. That makes sense to me. There is such a thing as love at first site.

Sincerely,

Jin

Rachel--24 Collaborator
  Mtndog said:
I THINK i feel better and may be at the tail end of surviving my first herx. Holy moly!!!!!!!!!!!!!!!!!!!!!!!!!!

Bev...sounds like the herx was heinous!! Glad you're coming out of it and feeling better....phew! :)

  Quote
I think he should be Saxy Spice :P

Saxy Spice. :lol:

Yeah...I think its perfect! ;)

Donna....you crack me up with all the fuzziness keeping your feet warm. :lol:

Loved all your artwork by the way. :)

All this talk about Big Sur and Nepenthe (dont think I've been to either place) is making me miss the great outdoors...all the camping, exploring....OMG...sitting in chairs on the river sipping margaritas!! Is there really anything much better thatn that!!

Thankfully, I'm not much afraid of the outdoors even after all this..I wanna be out there enjoying it asap!!

The dentist office is another story altogether... :ph34r:

Hey Donna...

I forgot to mention this yesterday but Dr. Amy does prefer her patients to be off of everything before she sees them. I had only taken a couple things on Saturday night but she needed to know what I'd taken and when.

She said there are advantages either way....but she prefers testing when all treatment has been stopped so that she can get the clearest picture of whats going on.

It makes sense....I would think that if you're taking something which is working really well at controlling a certain infection or managing something else going on in your body...it seems like it could possibly prevent it from showing up in testing. Whereas if you're totally off of treatment she can have a better picture of how significant certain infections (or other issues) are.

Thats my guess anyway...that the supplements could "mask" things so that they either...dont show up at all...or they dont show up as strongly as they would off of treatment.

I actually hadnt taken anything for Lyme or Babs in almost 2 weeks...I did this last time too because I wanted to make sure they arent showing up weakly because of treatment.

I also asked her why she thinks I got soooo messed up from the mercury to begin with?? She said that most likely I was having problems with the detox pathway long before I got sick....that I was probably already at a full load...the mercury just totally pushed me over the edge....it was the last straw.

Thats basically the same thing both Anna and Dr. S. had said about it.

Even Dr Rick (though at first he didnt believe mercury was the underlying cause) had said that things piled up and even though it was one thing that broke the camels back.... many things were going on before my body reached that point.

So Amy said once the mercury came into it and the scales tipped....yeast pretty much "exploded" in order to help my body cope with the metals. So now the yeast/molds are basically trapped in my body along with the metals. Theres no way for my body to release the metals and no way that I can get rid of yeast as its binding with the metals.

She said the same thing that Dr. S and Anna said.....its now gonna be a "back and forth" thing with symptoms of both flaring up throughout treatment. Anything I do to move the metals out will cause the yeast to flare up big time and anything I do to kill off yeast will release mercury and cause symptoms from that. BOO-HOO :(

On the bright side my sauna should be coming any day now. :D

Scott said he knows which one I got and that his is basically the same...except his is the "lay down" kind and mine is the kind you sit in. He said it will work really good. :)

Stupid mercury and yeast have turned off my internal heater. :angry:

Cant wait to get totally hot and sweaty. :P

NoGluGirl Contributor

Dear Rachel,

It is such a bummer about the pathways! That mercury is making everything a problem!

What can they do to fix the pathways? The mercury and Candida both sound stuck right now. I know they are trying those other supplements. The sauna should help, too. I think the LED therapy will likely help open up the pathways, though so the herbs can do their job.

Sincerely,

Jin

CarlaB Enthusiast
  NoGluGirl said:
Dear Carla,

That is weird! You and Adam were meant to be together for sure! I think a lot of people believe angels bring you together. That makes sense to me. There is such a thing as love at first site.

Sincerely,

Jin

You have no idea, that's only the beginning.

One night shortly after we met, I drank some beer (not with him) ... between the Lyme and the gluten intolerance, I was pretty sick. The next day, he wanted to get together, but I told him I was too sick. So, he walked all the way across campus (I had a car so could have driven to his frat house). He took me out for some fresh air and that was the first time he thought he could marry me. :blink: When I was sick. I guess it was his vocation to care for me. :rolleyes:

Then we didn't date for over a year because I realized what an @ss he really is. :lol: My Mr. Darcy! :lol:

dlp252 Apprentice

Rachel,

Yeah, it makes sense to be off the supplements. The only thing really different in my case though was that this time he didn't find a viral infection...last time I had some sort of viral thing happening.

I thought one of the main purposes to NOT taking the supplements before testing was to see how much your body really wants them...this time Scott found a couple more things I didn't need or my body doesn't like, BUT I'd been taking my other supplements...so maybe with those things in my system, my body didn't need the other stuff. Phew, I think I just confused myself. :P

I sm so excited for you to get your sauna. I really want one too...so yours is a sit down model? Cool.

Oh, and I just called to put my name on Dr. Amy's list...but Amy (the receptionist) isn't there today...some guy took my name and phone number. :P Said he'd give it to Amy tomorrow.

dlp252 Apprentice

Carla that is too funny! See, you know someone REALLY cares when they will take care of you when you're sick!

CarlaB Enthusiast
  dlp252 said:
Carla that is too funny! See, you know someone REALLY cares when they will take care of you when you're sick!

Yeah, and when I tell him he's an @ss, he says, "Yes, but you knew that and married me anyway." I can say the same thing about my being ill.

He says he likes taking care of me ... then made a joke about being guilty of Muchausen by proxy. :lol:

dlp252 Apprentice

Did anyone else have to go look up Muchausen? :lol:

Rachel--24 Collaborator
  NoGluGirl said:
Dear Rachel,

It is such a bummer about the pathways! That mercury is making everything a problem!

What can they do to fix the pathways? The mercury and Candida both sound stuck right now. I know they are trying those other supplements. The sauna should help, too. I think the LED therapy will likely help open up the pathways, though so the herbs can do their job.

The B-12 shots might help alot. Some people start making alot of progess once they got on B-12. Its needed for methylation and that is one of the essentials for detoxing mercury. She said all of the autistic kids she treats have the same problem and also have the same problems with sulfur. They improve with B12.

Shes doing a test to see if the LED therapy will do me some good. We dont know yet...but because of the sulfur issue she thinks it might really help alot. Thats the exact reason why I felt like the LED treatments would be worthwhile the first time I learned of it.

I'll find out more later on this week after she runs the test. Also the test she's running (with my saliva) can tell her alot of other things. She said its similar to what Anna does at BioSET but its "new generation".

She said it can pick up things that she may not be finding...even in ART. So she wants to determine how well LED will work for me...if at all...and at the same time see if theres anything else that shows up which may have been missed in other testing.

Rachel--24 Collaborator
  dlp252 said:
Did anyone else have to go look up Muchausen? :lol:

Nope. Its just you. :lol::lol:

CarlaB Enthusiast
  dlp252 said:
Did anyone else have to go look up Muchausen? :lol:

Sorry, I probably made that difficult by spelling it wrong! :lol:

dlp252 Apprentice

Okay, so maybe it's a good thing I didn't know what Munchausen was. :P

OMGosh!!! Super hyperventilation going on here... I may have to sing my solo as soon as June 24th! It was scarey enough when I thought I had a couple of months to go...that's like NEXT weekend.

Okay, I need everyone's expert weaseling out techniques! :P

DingoGirl Enthusiast
  tom said:
Ah yes - wet feet, a cold drink, and a big white Adirondack!

One dingo (Tika) and I fell in the river once, and everyone saw. :lol:

That place is heaven.......I miss it so much it hurts. :(

rach - when you're all better, you CAN go down to Ventana and Nepenthe - - just sit safely on teh patio and LOOK at the beauty around you. You won't have to get all nerdily dressed w/ socks pulled over pants and duct tape, either. ;)

  CarlaB said:
Yeah, and when I tell him he's an @ss, he says, "Yes, but you knew that and married me anyway." I can say the same thing about my being ill.

He says he likes taking care of me ... then made a joke about being guilty of Muchausen by proxy. :lol:

:lol::lol::lol: Munchausen (sp?) is one of my fascinations. Along with a few other things that I watch with my mom on discovery health.... :blink:

  dlp252 said:
Did anyone else have to go look up Muchausen? :lol:

  dlp252 said:
OMGosh!!! Super hyperventilation going on here... I may have to sing my solo as soon as June 24th! It was scarey enough when I thought I had a couple of months to go...that's like NEXT weekend.

Yay Donna! What song?

GRUMP 1 Contributor

I need some help. I started on a new medicine about 4 days ago. It is NABUMETONE, generic for RELAFEN. I feel like I am being glutened from it. I have stopped taking it as of today to see if my symptoms change back to normal. I know am 99% sure I have not gotten any thing else that is gluten. But what I need to know is if any one knows what is in this or if any one knows where I can look on the internet to find the ingredients.

Thank you,

Grump

tom Contributor
  DingoGirl said:
Sorry we padded the whole thread with fluff yesterday, Tom and I, the top two posters of the day. :lol: that is heinously crazy! Staying OFF computer today, too much to do,

Hold on - I had to respond to a plethora of interrogatory postings!!

Ya SusieQ, great job staying off the comp hehehehehehehehe :P

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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