Omg...i Might Be On To Something

[tabasco32]

I've only had mexican hot chocolate a couple times. The have it at Xmas In The Park (San Jose) every year. Its so funny that you brought it up because I was actually thinking about it last night.

and molds.

Yeah only christmas time is when she makes it. Altole In spanish, like chicken mole. Mmm so good, oh and budweiser. I miss my beer. Everyday beer drinker here. Nice cold beer or margheritas.

[tabasco32]

Oh man

I woke up with that too familiar molden diarrhea thing again. I didn't even change anything I ate. No magnesium Citrate either. Do prunes have mold in them? I forget I ate those last night. Please say no. They were cold and Paul Newmans prunes. Do you think Martinellis apple juice will have mold to. I didn't drink the juice yet, just wondering.

Where did this diarrhea come from. I know it's a mold reaction. Its just too familiar and causing a lot of abdomenal pain. I don't even want to eat.

But at least I have some stool for my stool specimen for parasites. So what if I do have parasites? Can they get rid of those free loaders now?

P.S.

I skipped to the back of the book and The Giant Robot wins!

UGH DIARRHEA CHACHACHA

or could it have been the water enyma? Does water mold?

[CarlaB]

Quick post --

Had our phone consult ... Chloe has a slightly elevated lead level, we'll start chelating next month. She has a clinical diagnosis of Lyme. We will be observing her reaction to antibiotics (see if she improves or herxes).

If you want to know what he's giving her, PM me.

I'll tell you about mine later, gotta go.

[jerseyangel]

Andrea--I just love your new picture. Charming!

[tom]

I felt much, much better when I went gluten-free. It was the best I had felt in a long time.

Then I started going downhill again, and by the end of last summer, I wasn't very functional and couldn't even walk around the block.

Ahhh thx Carla.

When I went gluten-free I certainly improved but got nowhere near good enough to go back to a life. How long did the good part last, if u don't mind me asking?

Of course, being here, Lyme will be the 1st thing I want to check if I start going downhill again.

I've considered getting pre-emptive tests. Maybe I should just go ahead and do it.

Or would not feeling the effects yet make it not show even if it is hiding, waiting to strike? Hmmmmmm

[tom]

And hey, you are going to have to write more if you want to be apologizing for it .

OOOOOOoooooooooohhhhhhhh

<slaps self on head>

Well, phew then cuz I'm not often gonna write even more.

Posts never seem overly long to me while reading what ppl actually typed.

<ctl> C

But writing more than 2 paragraphs and "I got blistahs on mah fingahs!!!".

Well no, but maybe I'd rather read than write. Always hated Composition classes.

[tom]

Have you or anyone else found a way to test a way for corn intolerance other than trial and error. Please let me know, as I think we may be in the same boat. I hope you're feeling better though

I did an ELISA test that was helpful.

The Lab I used has since changed their name but in '04 they were York.

Donna!

I wonder if I saw u sing!

:D :D :D :D :D :D

I'd always stop to listen, but only went once in the last few yrs.

[AndreaB]

Or would not feeling the effects yet make it not show even if it is hiding, waiting to strike? Hmmmmmm

I've wondered about that.

If your asymptomatic how do you know you have something. To me, if you have to continue removing foods from you diet and are willing for alternative testing then go for it. The candida shouldn't be an issue so much for you anymore from what everyone else has said......unless something else is driving it.

I'm very curious as to what ART is going to show next week when we go. If mercury isn't behind our intolerances than I'll have to continue testing.

Rockshow,

I did ELISA testing as well. You can do the same thing yourself if you don't want to spend the money by going down to a very basic diet for awhile and then adding back in foods one at a time. ELISA testing can be a quicker route but it does have false negatives as well as false positives so you still need to experiment with the diet to see if a positive food is really a problem.

My two oldest children have an intolerance to something in Enjoy Life chocolate chips but can have cocoa it seems. We've elminated what they tested intolerant to so this is new.

[AndreaB]

Andrea--I just love your new picture. Charming!

Thanks Patti.....I've missed seeing you on here. You've been quiet lately.

[tabasco32]

My grandma came by and told me she was going to Las Vegas Saturday. Great! I want to go to Las Vegas Too! If I had a free pass weekened, no sickness, nada, I would make sure I was in vegas at 12:00 a.m. Saturday morning.

I would hit all the buffets!!! Well maybe just the good ones.

What would you do or go on a free pass weekened?

p.s.

How do you get pics or avatars? I tried to put a pic on mine but it says file to large or something?

[CarlaB]

How true! Jin is pretty good with those long ones too though.

So true.

Do prunes have mold in them? I forget I ate those last night. Please say no. They were cold and Paul Newmans prunes. Do you think Martinellis apple juice will have mold to.

Dried fruit can have mold. All fruit juice unless you make it yourself most likely has mold. It doesn't matter whether or not it's a good quality juice, it has mold.

Ahhh thx Carla.

When I went gluten-free I certainly improved but got nowhere near good enough to go back to a life. How long did the good part last, if u don't mind me asking?

Of course, being here, Lyme will be the 1st thing I want to check if I start going downhill again.

I've considered getting pre-emptive tests. Maybe I should just go ahead and do it.

Or would not feeling the effects yet make it not show even if it is hiding, waiting to strike? Hmmmmmm

In 2005, I mysteriously lost 15 pounds in four months eating a ton of food desperately trying to keep on the weight. I hadn't felt great since a bacterial infection in 2003 ... took 21 days of doxycycline for that. I was VERY sick. I didn't bounce back, but slowly got somewhat better. Then it was early 2005 I started losing weight.

I knew since 2003 that wheat caused me to feel bad from a rotation diet. I didn't cut it out completely then. The first thing we thought of was celiac because I presented "classic" symptoms.

I was low-wheat when I was tested and they only did an IgA. Then I went gluten-free. I got a little better. I was somewhat functional, but tired a lot. I ate triple what my husband would eat to maintain my weight ... if we ate out, I'd make myself another meal as soon as we got home ... or else I'd order a second meal at the restaurant. I'd also eat a whole pint of Haagen Dazs for dessert after a big meal.

I went back on gluten in Nov. for an endoscopy in December. It was negative. I went gluten-free Dec. 2005.

I started feeling better and seemed to be improving. We moved in January from Indiana to Ohio ... I packed the whole house except for the kids' stuff.

I stayed back in Indiana with our oldest till she graduated from HS. So, I didn't have a lot to do ... rested a lot. Worked out four or five days per week ... could do 40 minutes on elliptical at a high level then do a full weight workout (now I do 20 minutes at a low level after not doing any for months).

The beginning of last summer I was doing pretty well, though not great. I went to the pool, King's Island, etc. I did pretty well over spring break, too ... took Morgan to Florida, went to Busch Garden's etc.

By the end of the summer I started declining and just sat around all day ... couldn't go to the poor or King's Island anymore. I hung around here a lot with a bunch of people just like me ... most of us ended up having Lyme. Of course, when Rachel and Rinne started talking about it, I thought, No way, those 30 ticks that bit me were healthy!

So, that's the long answer .... I never got well, I just saw improvement when I went gluten-free.

As far as Lyme testing, I don't know if it would show up or not. They told me that if Chloe was tested on days she had symptoms that it probably would have shown up, but she was healthy the day she was tested.

You could try to stir it up a bit by taking herbs that hit it, then test. I did the salt/vitamin c cure for a month, plus samento and noni. I'd bet that stirred things up for me.

It's better to get it before it gets bad. Chloe will most likely have an easier time with it than I have.

[CarlaB]

More info on the phone consult ...

Chloe has no food allergies.

I mentioned that the past few nights I've had insomnia ... even sleeping with earplugs Adam keeps waking me up. Also, I had a night sweat last night, but hadn't had one in over a month. I didn't have air hunger for about a month until today.

She mentioned that it sounded like a herx ... ... this is GREAT! A herx and I'm not flat on my back!!! I think she's right because little things have been bothering me that normally don't. I actually cried last night that I couldn't sleep , crying is ALWAYS a sign of a herx ... I don't really cry otherwise.

She was surprised at my progress ... I told her I was 70% overall. Last month I said 55%, but only when I felt good.

She said that my herxes could be lightening up and might be more mild now. Maybe this is because the babesia has lightened up so much. Everyone on LN seems to think the babs herxes are the worst.

So, the appt. was all good. I feel good about Chloe's treatment, too. I'm glad we've caught it so early, and I'm sure the response to the abx will confirm the clinical diagnosis.

[Rachel--24]

I could believe you could have a short version ... it would be Rachel that wouldn't have a short version!

Hehe....whats a short version??

Seriously though.....I've tried to sum things up in a nice, neat, yet short post....I just dont think I'm capable.

Whoa!!! Xmas in The Park!!!

And the nearly-summer-long Thurs Music in the Park series has always been a blast. I went years w/out missing one b4 getting sick.

I went to Xmas in The Park pretty much every year....but I've missed the last 3 because of getting sick and then getting single.

I never went to Music in The Park for some reason.

Hey, our choir sings (and actually my small group has too) at Christmas in the Park!

Cool!! I cant remember if I ever watched a choir sing there or not. I'm usually going later in the evening when the crowd dies down some. One year I went for all the festivities of "tree lighting ceremony"....I'm sure there must have been a choir that night. I dingo'd it though.

What you mean you invented it? Does it have chocolate on the outside and nuts or toffee pieces?

She means she invented it.

Yup Rinne has invented some kind of ice cream treat (Rinne Bars)....one day she will be just as famous as Ben & Jerry.

[Rachel--24]

I'm just discovering that I'm gluten intolerance and yesterday I made some corn tortillas out of whole corn (ingredients: corn, salt, lime) and I seem to be swollen today (edema is the major side effect/reaction I get when I've been glutened). I'm not sure if it's just corn in the more pure forms which I cannot handle or if it's corn additives, i.e. corn starch, syrup etc..

Have you or anyone else found a way to test a way for corn intolerance other than trial and error. Please let me know, as I think we may be in the same boat. I hope you're feeling better though

This is what happens to me too!! Major swelling and edema...not so much noticeable to others but VERY noticeable to me.

I'm actually not intolerant to corn....but I cant eat it anyway. The post you read at the beginning of this thread is more than a year old.....so I've figured out alot about my intolerances since then and also been diagnosed with the underlying causes of it all.

My reactions are actually triggered by mold in foods. I cant eat any grains because I'm hypersensitive to molds....cant eay most fresh veggies or fruit either.

I had ELISA testing and alot of other allergy testing but nothing showed up for me....even though I react to everything. I'm not really intolerant to the foods I'm reacting to....its the mold and yeasts which are triggering the reactions for me.

The additives like corn starch and corn syrup are even worse for me.

[rinne]

Quick post --

Had our phone consult ... Chloe has a slightly elevated lead level, we'll start chelating next month. She has a clinical diagnosis of Lyme. We will be observing her reaction to antibiotics (see if she improves or herxes).

If you want to know what he's giving her, PM me.

I'll tell you about mine later, gotta go.

I've caught up on my reading so I know you are feeling good about this, I'm glad. I'm sure it makes many problems much clearer now.

And that is great news about the herx.

...

I would hit all the buffets!!! Well maybe just the good ones.

What would you do or go on a free pass weekened?

...

This will sound funny to you but I don't feel like I need a free pass, I am okay with what I can eat and I am well enough that when I indulge in a little chocolate I'm okay. This is just to say that although I understand missing food it is possible not to.

I think we have already established that I have a peculiar attitude towards food.

......

By the end of the summer I started declining and just sat around all day ... couldn't go to the poor or King's Island anymore. I hung around here a lot with a bunch of people just like me ... most of us ended up having Lyme. Of course, when Rachel and Rinne started talking about it, I thought, No way, those 30 ticks that bit me were healthy!

.....

Lyme Clan!!!!!

Hehe....whats a short version??

.....

Yup Rinne has invented some kind of ice cream treat (Rinne Bars)....one day she will be just as famous as Ben & Jerry.

Short, what's that?

As Rachel says I invented them, in over 30 years of cooking I have never come across a recipe like this nor have I ever seen a product on the market like this. I buy cookbooks for fun reading, or at least I used to before. Now I am making up my own cookbook.

It's just simple ingredients but it is the technique that I use that makes it unique, also and very importantly all the ingredients are of fine quality and organic.

Rachel, shucks, thanks for your confidence in me.

I guess I really will be a taifun then. (Taifun comes from my telling my sweetie that I had decided to become a tycoon and he said, "don't you mean typhoon?" )

And you know, it never would have happened if I hadn't gotten so very ill. Why would any cook be inventing recipes if they can use and are used to using all the usual ingredients?

[Rachel--24]

Yeah only christmas time is when she makes it. Altole In spanish, like chicken mole. Mmm so good, oh and budweiser. I miss my beer. Everyday beer drinker here. Nice cold beer or margheritas.

I used to *only* drink budweiser for alot of years but a few years before I got sick I switched to Corona. I was only a social drinker....but it was always beer for me.

Oh man

I woke up with that too familiar molden diarrhea thing again. I didn't even change anything I ate. No magnesium Citrate either. Do prunes have mold in them? I forget I ate those last night. Please say no. They were cold and Paul Newmans prunes. Do you think Martinellis apple juice will have mold to. I didn't drink the juice yet, just wondering.

YES....prunes are HECKA moldy!!! Alll dried fruit and fruity juices are moldy. I know your Dr. told you to eat the prunes and drink the fruit juice....but she might not realize how sensitive you are to molds.

YES....the apple juice will absolutely have mold in it. All store bought fruit and vegetable juice is moldy.

Heres a list of the moldy foods to avoid...I posted it before but I'll repost it now. Dried fruit (PRUNES) is first on the list.

Foods to Avoid!

- NO dried fruit; raisons, apricots, prunes, figs, etc.

- NO aged cheese of any kind - Some cheeses are acceptable if milk is tolerable, e.g., cottage cheese, mozzarella, provolone, ricotta and farmer's cheese.

- NO mushrooms or fungi whatsoever, such as truffles, even avoid sprouts.

- NO Leftovers- Eat within 24 hours, unless frozen (microwave frozen food to thaw quickly)

- NO Breads. Malted means moldy. Dough conditioners are moldy. Sourdough or sourdough starter is the worst. (Sometimes labeled yeast-free) Bread develops surface mold within a day. Some tortillas, biscuits, muffins, cakes and cookies are usually yeast free, yet high in sugar content. You can buy sprouted bread with no yeast (Not sourdough) at the health food store.

- NO Sauerkraut. It has been fermented.

- NO Tomato Products; Juice, sauce, paste, ketchup, etc., are made from moldy tomatoes.

- NO Beer - The darker the beer, the more mold it contains.

- NO Wine & Wine Vinegar - White wine is least moldy; clear vinegar may be tolerated.

- NO liquor - Vodka, tequila, clear rums are least moldy.

- Be careful of multi-B Vitamins - Many contain either yeast or mold (Rice hulls are moldy). Some are

alright. Check with manufacturer. See note below on Aspergillus fermentation process.

- NO cider or fruit juice (juice contains mold as it is made with old fruit).

- NO Pickled and smoked meats and fish, including processed delicatessen foods, sausages, salami, bologna, frankfurters, corned beef and pickled tongue.

- NO melons, except watermelon if very fresh and eaten same day.

Drink bottled water. Tap water contains mold. Try to drink distilled or reverse osmosis water as it retains the good bacteria in the digestive tract.

Try to avoid chemicals and additives such as hormones and antibiotics. Try to avoid wheat and wheat products as much as possible.

Avoid crackers, they are notorious for molds

Dried fruits are very moldy.

PRODUCTS OF ASPERGILLUS FERMENTATION:

SOY SAUCE- FLAVORED WITH ASPERGILLUS

CHOCOLATE - ANYTHING MADE WITH CHOCOLATE LIQUEUR IS DEEMED UNSAFE DUE TO THE FUNGAL CONTENT.

TEA (BLACK)

MALT EXTRACT (MOST CEREALS)

LACTAID (MILK ADDITIVE)

SOME VITAMINS - Selected brands ARE SAFE; MOST ARE NOT DUE TO THEIR FUNGAL PROPERTIES

CITRIC ACID (A VERY COMMON FOOD ADDITIVE; NOT DERIVED FROM CITRUS FRUIT)

SOFT DRINKS (Citric acid is made with the aspergillus fermentation process)

FRUIT JUICE (COMMERCIAL-OFTEN MADE FROM MOLDY FRUIT; MANY CONTAIN MOLD ENZYMES ADDED IN PROCESSING)

DIGESTIVE ENZYMES (PANCREATIC ARE ALRIGHT), OTHERS ARE NOT

CHOLESTEROL LOWERING ENZYMES

ACIDOPHILUS WITH F.O.S. (Acidophilus has very healing effects and promotes natural anti-fungals in the body, however, artificially produced F.O.S. is made with the aspergillus fermentation process. If you would like natural F.O.S., you can consume watermelon seeds and reap the same nutritional benefits without any aspergillus fermentation).

Heres a link to the site...

Open Original Shared Link

Hey Donna....I just recently noticed that the Dr. who put this list of foods together is Dr. Vincent Marinkovich.

He's actually the mold Dr. that Scott wanted me to go see after I had my first ART session. Dont know if you recall that I was planning on seeing this mold Dr. in Redwood City?? There was also another guy....about an hour away....but I was gonna see Dr. Marinkovich first.

I got all the paperwork from his office but never made the appt. I dont know how helpful it could be to me right now....seems like nothing can be as beneficial as getting the metals detoxed.

Now that Scott is more familiar with me and my issues...I think I'll ask him what this guy can do....if anything...to improve my situation with molds. I could see if the molds were an issue on their own...but since the metals are behind it...holding the molds in place...it seems like it might be fruitless.....cant hurt to find out more though.

[Rachel--24]

Where did this diarrhea come from. I know it's a mold reaction. Its just too familiar and causing a lot of abdomenal pain. I don't even want to eat.

Hey....on the positive side....you are getting to know how your body reacts to the mold.

This is really gonna help you pinpoint the problem foods, supplements, etc. Once you really start recognizing it...it wont happen nearly as often because you'll learn what to avoid.

But at least I have some stool for my stool specimen for parasites. So what if I do have parasites? Can they get rid of those free loaders now?

Oh....I can almost guarantee that you've got parasites. People with mercury toxicity get parasites. Sorry.

I havent had any show up in my stool tests but I know that they must be there. My Dr. treats parasites so I'll deal with that later. I think they might show up more clearly once the mercury starts getting detoxed.

The parasites can hide behind other things....but they're usually there even if they dont show up in the tests right away.

P.S.

I skipped to the back of the book and The Giant Robot wins!

UGH DIARRHEA CHACHACHA

Dont eat the prunes or drink the apple juice and you'll have less of the CHACHACHA.

or could it have been the water enyma? Does water mold?

Yeah...tap water does have mold.....see above list of moldy things to avoid...tap water is one of them.

I hope you're not using tap water for anything.

I use distilled water for my enemas and for cooking. I dont wash any of my foods with tap water either. If I need to wash something (like my chicken) I use a small bowl of distilled water...never tap water. I just started doing this maybe 6 months ago.

Tap water also contains heavy metals.

[Rachel--24]

Had our phone consult ... Chloe has a slightly elevated lead level, we'll start chelating next month. She has a clinical diagnosis of Lyme. We will be observing her reaction to antibiotics (see if she improves or herxes).

When will she be starting on the antibiotics?

I think I could probably guess what he'll be using to chelate the lead....then again maybe not.

[Rachel--24]

What would you do or go on a free pass weekened?

OMG....A free pass weekend....

I would definately go where there is ALOT of food.....and ALOT of fun!!

Vegas would be good.....definately alot of action going on there....dont know about buffets though. I think I'd hit McDonalds first.

After that it would be an Italian restraunt (tons of bread), then I'd have to find me some good Mexican food....then some good chinese food....definately gotta find me the best PIZZA joint in Vegas.

Oh yeah....cheesecake is a must.

[AndreaB]

She was surprised at my progress ... I told her I was 70% overall. Last month I said 55%, but only when I felt good.

She said that my herxes could be lightening up and might be more mild now. Maybe this is because the babesia has lightened up so much. Everyone on LN seems to think the babs herxes are the worst.

So, the appt. was all good. I feel good about Chloe's treatment, too. I'm glad we've caught it so early, and I'm sure the response to the abx will confirm the clinical diagnosis.

Great news!

As Rachel says I invented them, in over 30 years of cooking I have never come across a recipe like this nor have I ever seen a product on the market like this. I buy cookbooks for fun reading, or at least I used to before. Now I am making up my own cookbook.

It's just simple ingredients but it is the technique that I use that makes it unique, also and very importantly all the ingredients are of fine quality and organic.

I'd be interested in that in the future. I also want to get Lorka's cookbook.

[AndreaB]

Rachel,

You're not hungry are you?

[rinne]

The first part of the Klinghardt protocol for Lyme is dealing with parasites through salt/c. I did this and I saw parasites. He does three six weeks courses of salt/C.

Klinghardt also says the salt/C has an independent effect on the Lyme.

I think the ratio is 1 gram of salt per 15 pounds of body weight. I weigh about 125 pounds so I took 8 grams of salt and 4 grams of C divided into four daily doses, dissolved in a large glass of water I found it easy to drink.

I did get to one point though where I felt like I had had enough salt and stopped other than my general cooking and eating use. Since then I've been feeling that the C is not so good for me but haven't got my nerve up to challenge it.

[tabasco32]

OMG....A free pass weekend....

I would definately go where there is ALOT of food.....and ALOT of fun!!

Vegas would be good.....definately alot of action going on there....dont know about buffets though. I think I'd hit McDonalds first.

After that it would be an Italian restraunt (tons of bread), then I'd have to find me some good Mexican food....then some good chinese food....definately gotta find me the best PIZZA joint in Vegas.

Oh yeah....cheesecake is a must.

YEah all of those. Italian, mexican, and chinese. Even though the smell of gluten makes me sick right now. OH man when we are better God willing, come to Fresno I know the best Pizza Parlor and Mexican Restaurant. The best Tamales ever thick with masa.mmmmm

Banana Split or German Chocolate Cake.

[tabasco32]

Hey....on the positive side....you are getting to know how your body reacts to the mold.

This is really gonna help you pinpoint the problem foods, supplements, etc. Once you really start recognizing it...it wont happen nearly as often because you'll learn what to avoid.

Oh....I can almost guarantee that you've got parasites. People with mercury toxicity get parasites. Sorry.

I use distilled water for my enemas and for cooking. I dont wash any of my foods with tap water either. If I need to wash something (like my chicken) I use a small bowl of distilled water...never tap water. I just started doing this maybe 6 months ago.

Tap water also contains heavy metals.

Oh Great, I just keep getting myself more toxic and toxic. Yeah I have been rinsing my veggies in tap water and chicken. Would the filtered water from the frige be o.k. I don't want to drink bottled water. To much Uranium in that. I did use distilled water for the enymas though. I didn't one time and got the worst anal cramp ever.

My guts won't stop gurggling. or my aannuuuss.!

Can you feel the parasites?

[tabasco32]

The first part of the Klinghardt protocol for Lyme is dealing with parasites through salt/c. I did this and I saw parasites. He does three six weeks courses of salt/C.

Klinghardt also says the salt/C has an independent effect on the Lyme.

I think the ratio is 1 gram of salt per 15 pounds of body weight. I weigh about 125 pounds so I took 8 grams of salt and 4 grams of C divided into four daily doses, dissolved in a large glass of water I found it easy to drink.

I did get to one point though where I felt like I had had enough salt and stopped other than my general cooking and eating use. Since then I've been feeling that the C is not so good for me but haven't got my nerve up to challenge it.

What is C? Vitamin C?

Oh and can you wash dishes with tap water?