Omg...i Might Be On To Something

[NoGluGirl]

Dear Donna,

The rebounding is something I used to do everyday when I was younger. I have a jogging trampoline. I used to do aerobics on it all the time. Usually I would work out on it for 20 minutes, then do my Gravity Rider. I was in excellent shape.

Like I said, the Tylenol is dangerous. You should not consume more than 2,000 mg. in a day if I recall correctly. So many people have gone into liver failure and died annually as a result of this. Tylenol seems so benign, but like anything, too much is bad for you. I am glad you will be more careful from now on.

That sounds like a great massage session you had! I wish I could have one! Even massages would probably hurt me. My body is so sensitive. Sometimes the slightest bump really bothers me.

You know how you were talking about the EFAs not agreeing with your system? Well, my mother discovered the same was true with her. She got D and stomach cramps really bad a few times this past week. She was taking those Fish Oil capsules, because her doctor wanted her to use them to lower her cholesterol and triglycerides. I told her you could not tolerate EFAs, and she asked if you were taking the fish oil, and I told her I was not sure what the source of EFAs were in your supplement.

Your blue toe nails sound so cute! I hope to get that blue polish OPI has out. It is new. I like funky colors. They are just fun to play with!

Dear Rinne,

Yes, Dollface has quite a few issues. Not just with men, either. She is angry at pretty much everyone. This woman is out for vengeance. She is angry at the world for hurting her.

The cravings can drive you crazy at times. If I could get some Glutino pretzals, that would be awesome to take some chocolate and melt it, then cover them with it! I miss fudge, too. I would love to have some of that! Peanutbutter fudge especially would be good!

I found your information regarding immunizations interesting. I believe that these things are very possible. I do not trust the government. They keep all kinds of stuff from us. I would like to receive some of those e-mails you talked about. Mine is in my profile.

Dear Mia,

It is great you were able to go to your niece's recital! The little girls always look so cute! They have their little tutus on and everything! So many of them are pretty good at a young age, too. I took ballet one summer, and was good at it. I was seven.

I wondered if anyone else was like that with food! I wonder why hot and cold irritate the stomach so much? I suppose it makes sense, though. Room temperature tends to not cause reflux or indigestion too much. There are so many quirks that go along with illnesses like these.

I will not fault you for using the microwave. I use it on occaision myself! I try not to overuse it. Sometimes it is your only option, because it is quick. On the Candida Diet, it kind of has to be used I would think. This is due to you having to freeze the leftovers.

Dear Bev,

That was hilarious about your niece! I cannot believe she wiped her booger on the other girl's tutu! You have to be curious what the other mothers were thinking! That goes especially for the mother of the child whose dress was boogered! I told my parents about that, and they thought that was so funny!

I am glad you pooped in, too! I hope your herx is improving. It is strange. One day, you will do pretty well, the next day, you will feel like you are dying. They tend to do that.

Dear tom,

Dollface would not carry a knife. She is literally drop-dead gorgeous. Dollface will not allow anything but a good gun with a silencer for her use. She believes in being discrete. Knives are too messy, and she does not have the patience.

I am glad you enjoyed the teaser, so to speak. I am still working on character design. I hope to have another piece of art in here by the week's end. I have not had any time to work on that due to the final exam. It is taking forever, and I have no idea. I cannot find much in the book that even helps. An exam that is open-book usually is easy, but when your book sucks, that obliterates any hope you have of doing well.

I am glad you enjoyed my holy crap. Holy horse hockey! Divine dookies! Consecrated crap! It is all right here! Yes, purely for your amusement, we have put it here for you to be laughing silly!

There is one difficulty with turning your relatives into flies. That is, insulting the frogs. They are noble creatures, afterall.

Offending them would not be wise. One thing is for sure, they probably would not be that hard to tell apart. My mother would be the one that would be bouncing all over the place. Dad would be the one that likes to hear himself croak. Meanwhile, the dog would be trying to eat them! I would be like "No, don't eat your Mommy!"

The Silver Dragon has terrific Hot-Sour Soup! I love that stuff, too! I miss it! We used to go to A Taste of China nearby.

It was funny, because I think they thought I was one of them, because they always gave us ten fortune cookies when I came with Dad or Mom. Whenever they went by themselves, we only got four! A lot of people I went to school with thought I was Asian and not white!

The soup was so good! It had tofu, smoky pieces of pork and chicken, golden noodles (from the day lily), shiitake mushrooms, white button mushrooms, bamboo shoots, red pepper flakes, egg, and made my tongue so happy! They often gave you fried noodles to put in it. I loved to dip my crabmeat rangoon in it, though. There is something about the spiciness and the rangoon flavors that went so well together! (Wanting to cry now!)

Flutes are something that are difficult to get at a good price. If you buy one from a pawn shop, you probably will not get a very high quality one. I actually got my violin off of E-Bay. I do not know if it is a really good one, though. I need to take it in and get a string fixed, because Dad broke it trying to fix it, like he did with my guitar.

The delayed reactions are strange. So many people miss those. That is one of the reasons Celiac can be such a problem.

Many people have a reaction many hours or days after consuming the gluten. That is why they think it is the other foods making them ill.

Thanks for the hotel info! I do not travel at the moment, but who knows? Maybe I will finally get out of here, get well, and be all over the place! It is especially important for Celiacs to have places with kitchens whenever possible. That makes traveling much simpler for us. God knows this disease is complicated enough at home!

Dear Sherry,

I am anxious to try the licorice. If it works as well as you say it does, that would be a godsend. I hate having to take the medication I have for the nausea, because it makes me so tired. I practically passout within a couple hours of taking it.

The drowsiness makes it so I cannot function.

Dear Rachel,

The rebounding is what I used to do. I worked out nearly everyday. Maybe I should start doing that again. That would explain why I was so much healthier when I was working out like that. I had no idea it could help the lymphatic system and all of that other stuff!

I am glad the second party went well. I know what you mean when you talked about being sad afterward. That is how I get a lot, thinking about how I used to be. I used to be well and happy. Now I am trapped, depressed, and sick. Sometimes it feels so hopeless.

I would be cautious with the ex-best friend, too. You do not need any drama. People who do that tend to stay that way.

I have had friends I had to break ties with because they were toxic spiritually, emotionally, and in every other way. You need to protect yourself.

I think everyone else hit the nail on the head about your ex-boyfriend. He might care too much. It is difficult to see someone you care about suffer. They can have guilt about you being ill while they are healthy. He cannot handle this emotionally, so it is easier to stay away.

I will be anxious to hear about the B12 shots and how they go. I think they could help a lot. The alternating supplements sounds like an interesting approach. It seems this doctor of yours produced a productive appointment. I am glad you found him.

Dear Carla,

I think you are right on the pawn shops. I really think getting an instrument from a music store is a better approach.

You can get lucky and get a good piece at those places sometimes, but if you get one from a pawn shop, and take it into a music store, many times, they will tell you it is a piece of crap. The prices for flutes, even good used ones, are pretty high.

They had one in the JC Penney Catalog for $800. I think that is probably the least expensive decent instrument you could get.

I agree keeping your options open is a good idea with romance. You just never know. In all truth, love normally finds you when you are not looking for it at all! My best friend had that happen. She tried so hard finding "The One". She was cheated on, lied to, etc. Finally, she stopped looking. Now, she is engaged and very happy! Their wedding is next April.

Dear Andrea,

That is terrible about T! I cannot believe she reacted to other stuff now! Poor kid! It is so unfair! I suppose it is par for the course with Celiac, though. You know how these intolerances kind of pop up after so long being gluten-free.

Dear fajitas,

ROFLMAO! I think that tom likes to screw with us! He knows he can use his little miniature computer as an excuse, but I know better! This is so much fun for him! He is trying to confuse us! He wants us to think we are crazy! Or, it could be that other guy that is trying to frame him. I remember tom talking about him earlier, saying he was even sticking his tongue out at him!

Dear Julie,

I am glad to hear you are doing alright. We have not heard as much from you lately. Everyone has been wondering how you are. Traveling certainly is complicated for us. Celiac is complicated enough to manage at home, let alone when traveling! Anything that makes it easier is good!

Dear Charlie,

Thank you for your input on the science. I think the largest problem really is the lack of clinical trials. I was talking to my doctor about that shortly before I switched to a holistic physician. He knew about yeast being problematic, but said it was the lack of clinical trials that left much of the conventional medical community unconvinced. I think it is probably the same with the connection between vaccinations, thimersol, and autism.

Sincerely,

Jin

[dlp252]

Okay all, I propose a new word for the Rachelville dictionary! Lymify...similar to clarify, but with the added understanding that should we ask for lymification we are asking for clarification but said restatement should strive for simplicity, formatting ease of read (i.e., not more than 2-3 sentences in a paragraph), etc.

An alternative word might be herxify...where those who are herxing might want to clearly state what they need from a herxification or lymification. Herxification could be necessary for any of us whether we have lyme or not.

I'm feeling better today in case you couldn't tell.

Shoulder has much more range of motion today without pain...was actually able to shower and dress with little or no pain. There are still ways that I move my shoulder joint which sends searing pain throughout the body, but overall, MUCH, MUCH better!

That may not be so out of the box Andrea, I remember reading something about that.

Wow, on that storm!!!! Any re the out of the box thing...now that I'm thinking about it more...it might make sense if I was bitten somewhere on my head on that side. I wouldn't have noticed the bite or any resulting rash.

And I did book a flight to SJ. w00t!!

Wed thru Sun, I'm gonna love it!!

WOW!! Very cool! Tom's gonna be travelling!

Actually I was thinking it's pretty amazing what people do/have done despite major health problems- work full-time, raise kids, home school, paint, garden. I'm really blown away at how much LIFE there is an a thread about illness

It IS pretty amazing!! Sorry for your head near explosion!! Tell your head it want the pain to go away!

I don't mind my hubby taking care of me but I'm not to comfortable with anyone else. How sad is that?

I don't mind being taken care of by anyone. I may feel extreme guilt over it, but hey, I'm lazy.

Ay-yi-YI!!

U have nutbutter IN THE HOUSE during a test!!!

I never attempted testing anything w/ it around.

I'm not sure I could.

Especially since, the result I'd like best is to feel much better and not eat any more whatever anyway.

Hide it!! *Have* someone hide it! Put it in the time-lock safe, set for Wed!!

But mostly, don't eat it. That's what they *want* u to do.

<the terrorists win if u eat it>

Mmmmmm gaaaarrrrrrrrr-lic . . . . .

Sometimes I toss whole cloves into the broc/cauli I'm cooking however.

Admittedly most often it's frozen and cooked in microwave, w/ unpeeled cloves but now that I write I don't quite remember why. Maybe the cloves steam up more unpeeled.

Whatever, the flavor is mild but still tasty to me.

With such limited spicing options, I use glc all the time. (Still missing dried herbs - might need to try some sometime)

nut butter terrorists !!!

Well, I actually DID make it without any nuts or nut butters yesterday.

Having the nut butters in the house was one of the reasons why I didn't start it that same day I first mentioned it, and one reason why I considered putting it off for a while...I have two open jars in the refrigerator! They are almost gone though, so I may just finish them to get them out of my sight. I have two more unopened jars in my pantry, but those aren't nearly the problem that the open jars in the fridge are.

Can't say I'm positive of what

'lifestyle' u speak of, but there are times I'm surprised my brain survived the 80s intact.

Shhhhhhhhhhhhhheeyit the mota still had its mojo woikin 2 yrs ago!

There *are* proven ways to alleviate nausea.

Hum, I guess my wild 80s are mild compared to some people's apparently. Oh no, more lost mojo... did Richard and Bev ever find theirs I wonder?

The rebounding is something I used to do everyday when I was younger. I have a jogging trampoline. I used to do aerobics on it all the time. Usually I would work out on it for 20 minutes, then do my Gravity Rider. I was in excellent shape.

...

That sounds like a great massage session you had! I wish I could have one! Even massages would probably hurt me. My body is so sensitive. Sometimes the slightest bump really bothers me.

You know how you were talking about the EFAs not agreeing with your system? Well, my mother discovered the same was true with her. She got D and stomach cramps really bad a few times this past week. She was taking those Fish Oil capsules, because her doctor wanted her to use them to lower her cholesterol and triglycerides. I told her you could not tolerate EFAs, and she asked if you were taking the fish oil, and I told her I was not sure what the source of EFAs were in your supplement.

Your blue toe nails sound so cute! I hope to get that blue polish OPI has out. It is new. I like funky colors. They are just fun to play with!

Yes, I do aerobics on mine too. Love to do jumping jacks on it.

The massages are very, very nice. I've seen this same girl for about 3 years I think...she uses heavy pressure, but eventhough it hurts while she's working on me, it always releases the knots and muscles.

The EFAs were fish oil (mercury free). I may see if there are any other kinds I can take...don't know yet.

I'm really having fun with the wild color polishes...who knew. I guess I'll be one of those little old ladies who wear the really bright colors and probably all at once.

[Mtndog]

I agree keeping your options open is a good idea with romance. You just never know. In all truth, love normally finds you when you are not looking for it at all! My best friend had that happen. She tried so hard finding "The One". She was cheated on, lied to, etc. Finally, she stopped looking. Now, she is engaged and very happy! Their wedding is next April.

Love often is where you least expect to find it. I had known my hubby for 14 years (maybe more- since I was about 16). His brother, now my BIL, was one of my closest friends. We even dated for awhile (disaster- good friends does not always equal good lovers!).

I chaperoned my husband's high school band ski trip! He was 17 and I was 20 at the time. He was always my friend's annoying little brother Now he's my annoying little husband :wub: Some things are right under your nose and you're so busy looking out that you forget to look at what's right around you!

Donna You ARE feeling better!!!!!!!! I love lymify and herxify- I'm sorry but could you lymify that for me? In other words, my brain is so dead that I can only handle two word sentences. Subject and verb. Or just verb will do....

ie Head exploding

I'm tired

Found mojo

Go away

Dying

Must eat

Need peanut butter

racheled pretzels

overdid enemas

I did find my mojo. It wasn't gotten....it was just being attacked by spirochetes and had to rest! Actually I have a confession- I think the way that word is pronounced is so cool (even if they are not). SPY-RO-KEETS

[tabasco32]

HI Everyone,

Wish me luck on my new doctor today! I hope it's worth it.

[jmengert]

Good luck, Lisa--let us know how it goes!

[tom]

Okay all, I propose a new word for the Rachelville dictionary! Lymify...similar to clarify, but with the added understanding that should we ask for lymification we are asking for clarification but said restatement should strive for simplicity, formatting ease of read (i.e., not more than 2-3 sentences in a paragraph), etc.

Love it!! <tries to think if the word has some conflicting connotation but coming up blank>

I second the proposal!! (I've accepted the no-vote status, but can't I at least second?)

We'll get it written up and put thru committee for review. Word is the Majority Leader is pushing for a vote by late Tues.

. . . . . . . . .I'm feeling better today in case you couldn't tell.

I can tell! hehehe

And I can't help but wonder whether a "lymify" notion would've come to mind if u *did* succumb to tempt-nut-tation.

<wonder wonder>

Maybe the new temptation is to 'rachel the test'!

<psssst! toss the fridge jars>

WHO SAID THAT!!

Great to hear you're feeling better, regardless of the reason!! :)

[tom]

Grrrr double-post

So I'll edit/erase and catch up w/ a couple things I've been meaning to say for SO loooooooonng.

Pics!!! Lovin' all the avatar-switching!

Donna - u have so many great ones! The ones already seen aren't gone for good are they?

Barely got a good look at some of them!

At least more one lap for the series?? :)

Bev - ohhhhhhh my what an adorable little ham your niece is! :)

Julie - Hi! Can I assume that beach is in VA?

I'm always curious about the west/east difference in names for the coast/shore. Forgot the other eastern term that we don't say in the west. Grrrr

I'm thinking I can't call that "dingo-ing it" since I didn't *just* have it in mind - is that accurate?

Charlie - daaaaa-yum how up are U on the current status of that lawsuit!!!? (Those lawsuits?)

I forgot to post about your pgmg of a game awhile back. Sounds like quite a project. <tom hopes it's an FPS>

Under some amount of interrogation, I'd have to admit a former addiction to certain shooters. (& I was damn *GOOD* too!!! :lol: )

Lisa!! Good luck w/ the doc! Pretty exciting!

[dlp252]

Lisa!!!! Good luck at the appointment today!!!! I'm still excited for you!

Donna You ARE feeling better!!!!!!!! I love lymify and herxify- I'm sorry but could you lymify that for me? In other words, my brain is so dead that I can only handle two word sentences. Subject and verb. Or just verb will do....

ie Head exploding

I'm tired

Found mojo

Go away

Dying

Must eat

Need peanut butter

racheled pretzels

overdid enemas

I did find my mojo. It wasn't gotten....it was just being attacked by spirochetes and had to rest! Actually I have a confession- I think the way that word is pronounced is so cool (even if they are not). SPY-RO-KEETS

Ha, never knew that's how you pronounced the nasty little keets.

Yes, and I suppose if one has lyme brain normally and is experiencing a herx at the same time, lymherxify could be used. Then we would know to use very short two word sentences.

Done now

just ate

must vegetate

And I can't help but wonder whether a "lymify" notion would've come to mind if u *did* succumb to tempt-nut-tation.

<wonder wonder>

Maybe the new temptation is to 'rachel the test'!

<psssst! toss the fridge jars>

WHO SAID THAT!!

Great to hear you're feeling better, regardless of the reason!! :)

Thank you! No, can not toss the fridge jars... HOLD ME I'M SCARED!!!! That would produce a quite sad possible rummage through the trash scenario. Unless I tossed it in the trash bin outside, but, um, don't think that can happen either. The tempt-nutation will just have to be an ever present danger in the next few days.

[barbara123]

HI Everyone,

Wish me luck on my new doctor today! I hope it's worth it.

good luck to you. Hope everything turns out good. I should get my test results today!!!

[dlp252]

Pics!!! Lovin' all the avatar-switching!

Donna - u have so many great ones! The ones already seen aren't gone for good are they?

Barely got a good look at some of them!

At least more one lap for the series??

I still have all the ones I did at home...the ones I did at work are history I think...may have one or two still. I'll go check.

good luck to you. Hope everything turns out good. I should get my test results today!!!

Barbara, let us know how it goes!!!

[dlp252]

Okay, put up my chubby little self. Note the look... or maybe it's closer to ! Anyway, I had a string of baby photos with that same look.

[CarlaB]

I think you are right on the pawn shops. I really think getting an instrument from a music store is a better approach.

You can get lucky and get a good piece at those places sometimes, but if you get one from a pawn shop, and take it into a music store, many times, they will tell you it is a piece of crap. The prices for flutes, even good used ones, are pretty high.

They had one in the JC Penney Catalog for $800. I think that is probably the least expensive decent instrument you could get.

I would definately buy one from a music store. I bought a used, overhauled silver-plated Bundy for my daughter for $250. It's a good basic instrument. They used it for a rental, which is very cheap to do, btw. I can get a very good sound out of the thing ... it has a beginner head joint though, so the sound is never going to be as good as my under-cut headjoint ... but a beginner can't learn on an undercut one (they're less forgiving).

I would not buy one from a catalog. Period. Flutes need tweaking because they easily get out of adjustment. JC Penney won't be able to do that for you.

If you want to order one for a good price online -- Prowinds is the place. They order their instruments to their physical store (in Bloomington, IN), they do the adjustments, then ship them out. GOOD PRICES.

Okay all, I propose a new word for the Rachelville dictionary! Lymify...similar to clarify, but with the added understanding that should we ask for lymification we are asking for clarification but said restatement should strive for simplicity, formatting ease of read (i.e., not more than 2-3 sentences in a paragraph), etc.

An alternative word might be herxify...where those who are herxing might want to clearly state what they need from a herxification or lymification. Herxification could be necessary for any of us whether we have lyme or not.

I like these ...

Lymify -- something that is ongoing ... short paragraphs, easy to read presentation (not the word I'm looking for, but having trouble with word recall).

Herxify -- not only short paragraphs, but now we're stupid so KISS us (Keep it simple, Stupid).

So, Lymify has to do with that our brains are actually working, but we need an easy to read format ... herxify are when the brain is MIA.

HI Everyone,

Wish me luck on my new doctor today! I hope it's worth it.

Good luck, can't wait to hear about it!

Think I'm past my herx, so I have a busy day planned. Looks like I get 2 1/2 good weeks, then five days of herx. Better than last summer!!

[dlp252]

So, Lymify has to do with that our brains are actually working, but we need and easy to read format ... herxify are when the brain is MIA.

Exactly! Glad your herx is done with for the moment!

[tom]

Thank you! No, can not toss the fridge jars...

Would u allow us to fit each jar to an attack goose, like a St. Bernard's little barrel?

Pleeeeeeeeeeze!!!?? It'll make it more fun if u give in!!! (For us anyway ROFL)

We need a community paypal acct, so we can hire specialists to craft and install the jar-holding collars!

The tempt-nutation will just have to be an ever present danger in the next few days.

<tom's not a fan of ever-present danger> What are u, a Tom Clancy character?

I still say it'd be best to go in assuming the best possible outcome to the test. Namely, every day from now on feeling at least as good as today, and not wanting any more evil nutbutter anyway.

I'm positive that if I'd had SoyDelicious brand "Awesome Chocolate" flavor fake ice cream in my house, there's no way I would've lasted 3 days off soy, much less the 10 it took to know for sure.

I haven't been around long enough to *know* if this is true overall, but today's post seems so much more lively than others.

You created a new word for R'ville!!

P.S. And another new avatar!! Moving into the color series?? Nice!

(I still request a future 2nd pass thru the b/w's)

[dlp252]

Would u allow us to fit each jar to an attack goose, like a St. Bernard's little barrel?

Pleeeeeeeeeeze!!!?? It'll make it more fun if u give in!!! (For us anyway ROFL)

We need a community paypal acct, so we can hire specialists to craft and install the jar-holding collars!

<tom's not a fan of ever-present danger> What are u, a Tom Clancy character?

...

P.S. And another new avatar!! Moving into the color series?? Nice!

(I still request a future 2nd pass thru the b/w's)

Can't be too much of a Tom Clancy fan because I don't think it can ever be CLEAR and present danger with me!

Hum, I think I could find a way to get the jars off the attach geese...I'm clever that way. Besides...they don't attack us silly...just the auxigro or people who try to smuggle in contraband (okay, I guess in this case contraband can apply to almond and cashew butter, but I choose to ignore that).

Yes, I will run through all the b/w's again just for you!

[tom]

. . . . I should get my test results today!!!

Great!!

We talked previously but I don't think I've seen u in Rachelville before.

It's a nice place to be.

So, in Wyoming but to Salt Lake for doc? Guess that wouldn't put u near Cheyenne. Went there long ago as a kid, during a rodeo.

Since I keep a Rand McNally w/in reach (some may be amazed at how many things I have within reach while spinached to the recliner hehe), I saw Evanston. I was *BORN* in Evanston!!!!

Well, Evanston IL anyway. (home of the Northwestern Wildcats!!!!! *rOWr!!* )

Let us know how the results come out.

[UR Groovy]

Good Morning,

So, there's a real, actual reason I'm here. It's not to confess all my sins. It's about my amalgams at this point. I've been instructed not to 'go back' into the thread, so I'm starting here, if you'd be so kind:

Do I need to go to some special type of dentist or will my regular dentist be good enough?

Is there a ballpark on how much this may cost? Is there anything I sould be aware of?

I have 9 ancient fillings that have been haunting me for years, and they were done in Bakersfield.

(notorious for bad dental work) - like 20-30 years ago. I put some money aside for this, and have planned on doing it for a while. I think this is a good first step, no?

______________________

Also, I wanted to mention that while I've been checking this thread out, I've been reading some very poignant stories about you folks. I hope you all are feeling just a little bit better today than yesterday, and so on, and into the next day of even betterness. Betterness to you.

Can't say I'm positive of what

'lifestyle' u speak of, but there are times I'm surprised my brain survived the 80s intact.

Shhhhhhhhhhhhhheeyit the mota still had its mojo woikin 2 yrs ago!

There *are* proven ways to alleviate nausea.

Well, I was more referring to my k too lazy (to expend the energy that it would take to figure out what you're saying) lifestyle, but i'm not saying that one has nothing to do with the other - 80's, 90's, my old friend Senor Mota ... It's all a blur. I would swear I used to be smarter.

Have good days,

k

[tom]

Okay, put up my chubby little self. Note the look... or maybe it's closer to ! Anyway, I had a string of baby photos with that same look.

Ack!!! The 1st color one gone already??

You . . . . . .are . . . . . . QuikDraw McAvatar!!

IMO, too many townfolk didn't get to see 'girl in green dress on stairs'.

Might I suggest(request?) a minimum day & a half?

<Contrarian Spice says "pretty @#$%^ demanding for a newcomer who can't even vote!>

[dlp252]

Good Morning,

So, there's a real, actual reason I'm here. It's not to confess all my sins. It's about my amalgams at this point. I've been instructed not to 'go back' into the thread, so I'm starting here, if you'd be so kind:

Do I need to go to some special type of dentist or will my regular dentist be good enough?

Is there a ballpark on how much this may cost? Is there anything I sould be aware of?

I have 9 ancient fillings that have been haunting me for years, and they were done in Bakersfield.

(notorious for bad dental work) - like 20-30 years ago. I put some money aside for this, and have planned on doing it for a while. I think this is a good first step, no?

Yes, good first step and yes, definitely a dentist who specializes in amalgam removal. There are precautions that need to be taken...at a minimum, the dentists needs to use a rubber dam to prevent amalgam from going down the throat and from flying around, also a good vacuum/suction system, which ideally should be vented to somewhere other than where you are, , and I'm not talking those little suction devices they normally have (they should use that too by the way), but my dentist had a MASSIVE vacuum hose...it had to be at least 3-4 inches wide and he put it right next to my mouth during the removals.

Ideally they will also test you for compatibility for the materials they will use, although my dentist didn't do that, he did do it when Rachel saw him I think.

A good dentist will also recommend supplements and such which will help during the removal process...some may even give you Vit C during the process.

My removal was very pricey! I had 11 amalgams, 6 of those were covered by gold crowns. I think the whole process cost somewhere around $8000. One reason why I'm concerned about finances right now. Most of that had to come out of my pocket cuz my dental insurance sucks!

I was sick after each of the removals, the first removal was the worst in that regard...my doctors also suggested some supplements which I think helped keep that to a minimum.

My dentist didn't even want me to consider chelation for 6 months....I'm coming up on that now and have a doctor who not only will treat my lyme, but the mercury toxicity as well.

Ack!!! The 1st color one gone already??

You . . . . . .are . . . . . . QuikDraw McAvatar!!

IMO, too many townfolk didn't get to see 'girl in green dress on stairs'.

Might I suggest(request?) a minimum day & a half?

<Contrarian Spice says "pretty @#$%^ demanding for a newcomer who can't even vote!>

! Most everyone here saw that photo already anyway.

[tom]

Good Morning,

. . . . I think this is a good first step, no?

Hi "k too lazy",

I know very little about the amalgam issues myself, but I'm very much in the minority here regarding that.

The thing I DO know is that joining Rachelville in your situation is one *hell* of a good 1st step!!

. . . . I would swear I used to be smarter.

My brain just woke up earlier this month. (While trying a soy-free test for 10days). This has been beyond my wildest dreams <sniff>.

I had even come to accept I may be muddle-brained for the rest of my life - practically relearning how to interact, hoping I could eventually just forget what it used to be like.

Now I just gotta make sure I don't go 'back in the hole' like in '05.

[AndreaB]

I'm feeling better today in case you couldn't tell.

Yay on feeling better!

I will need some time to assimilate the new words into my vocab......if I ever get them straight.

Actually I have a confession- I think the way that word is pronounced is so cool (even if they are not). SPY-RO-KEETS

I thought it was kets. Keets sounds so much more sophisticated?

Wish me luck on my new doctor today! I hope it's worth it.

Hope your appointment went well. I'm looking forward to hearing about it.

<psssst! toss the fridge jars>

WHO SAID THAT!!

good luck to you. Hope everything turns out good. I should get my test results today!!!

What tests did you have done?

Do I need to go to some special type of dentist or will my regular dentist be good enough?

Is there a ballpark on how much this may cost? Is there anything I sould be aware of?

Yes, you need to see a holistic dentist.

As far as cost figure around $1000 for each crown if you need one. Could be more or less depending on where you live. For replacing amalgam with composite and no need of crown it would be somewhere between $100-300 per tooth (at least up here in WA).

[tom]

I know this will be hard to believe, in light of my madness manifested as recent posting prolificness-osity, but, wow I've got things I've been meaning to comment on for a while.

/////start Lymified Version//////

OMG, I post a lot, but more coming!!

//////////////////////////////////////

Bev-

oh my god i recently went to my nieces dance recital it was the happiest i've been in the longest time. It had to be the cutest thing i have ever seen. they did a dance to splish splash i was taking a bath and they danced with back scrubbers!!!

Hard to beat "the happiest i've been in the longest time."

Rinne- ahhh Leonard Cohen( a personal favorite)

My possible favorite lyrics that have helped me through many hard times .......

"There is a crack in everything

That's how the light gets in. "

Mmmmmmmmm yes.

I'd seen/heard that b4 several times, and never knew its origin.

Found the song name, so now just 1 step from hearing it.

[Rachel--24]

Good Morning,

So, there's a real, actual reason I'm here. It's not to confess all my sins. It's about my amalgams at this point. I've been instructed not to 'go back' into the thread, so I'm starting here, if you'd be so kind:

Do I need to go to some special type of dentist or will my regular dentist be good enough?

Is there a ballpark on how much this may cost? Is there anything I sould be aware of?

I have 9 ancient fillings that have been haunting me for years, and they were done in Bakersfield.

(notorious for bad dental work) - like 20-30 years ago. I put some money aside for this, and have planned on doing it for a while. I think this is a good first step, no?

______________________

K,

Good first step?? YES...excellent place to start.

No...a regular dentist is not good enough. This is how I got sick in the first place....a regular dentist drilled out 2 amalgams...no safety precautions in place whatsoever....I've been sick ever since.

I wasnt going into the amalgam removal informed...I wasnt even aware of mercury....the fillings were just "old"...one was broken and the dentist said they needed replacing. I said fine...now here I am...5 years later still trying to recover from that disaster. I learned about mercury the hard way.

That dentist also replaced those 2 amalgams with gold crowns...I had requested porcelain (he said gold was more stable than anything else). Those new gold crowns were in direct contact with the 2 remaining amalgams I had in my mouth. It created an electrical current within my mouth (galvanic reaction). This reaction releases very large amounts of mercury from amalgams....a very dangerous situation.

A dentist should never place disimilar metals in the same mouth....but again, I was uninformed. This is really what allowed for my body to never recover after the the first exposure to mercury from the unsafe removals. My health deteriorated rapidly after the gold crowns were placed...they were in for a full year before I found out what was actually occuring and had them removed. By that time it was too late to recover without ALOT of help....which I'm finally getting.

Anyways...yes...it is a pricey procedure. After my first disaster I did not want my 2 remaining amalgams to contribute to an already bad situation. I went to a biological dentist and had them removed *safely*. I cant recall the cost but I dont think I payed more than $1000. I could be wrong...its been a few years...it may have been a little more but I'm certain it wasnt over $2000. I also dont recall what insurance payed...or if I even submitted.

I was pretty messed up at that time and just wanted them out...that was my only concern but it was only 2 fillings I was dealing with. I only started out with 4 amalgams.

There is alot to be aware of before going into the removals.

I realize you are K...(as in...I am way too lazy to read all this info. Rachel is throwing at me in her megapost ) so if you dont remember anything else in my post just be sure to understand the importance of this protocol...its more important than the removal itself. Taking amalgams out unsafely is more dangerous than leaving them in....I know this from experience.

International Academy of Oral Medicine and Toxicology

Protocol for Mercury/Silver Filling Removal

PATIENT PROTECTION

First in every concerned doctor's mind is the protection of the patient from additional exposure to mercury. This is especially true of the mercury toxic patient. The mercury toxic patient may have been exposed to varying amounts of mercury from diet, environment, employment or from mercury/silver dental fillings. All forms are cumulative and can contribute to the body burden. The goal of this preferred procedure is to minimize any additional exposure of the patient, ourselves, or staff to mercury.

During chewing the patient is exposed to intraoral levels which are several times the EPA allowable air concentration. 2 During the removal or placement of amalgam the patient can be exposed to amounts which are a thousand times greater than the EPA allowable concentration.3 Once the drill touches the filling temperature increases immediately vaporizing the mercury component of the alloy. There are 8 steps to greatly reducing everyone's exposure.

1. Keep the fillings cool

All removal must be done under cold water spray with copious amounts of water.

Once the removal has begun, the mercury vapor will be continuously released from the tooth.

2. Use a high volume evacuator

Therefore, a high volume evacuator tip should be kept near the tooth (1/2 inch) at all times to evacuate this vapor from the area of the patient. Polishing amalgam can create very dangerous levels of mercury and should be avoided especially for the mercury toxic patient.

3. Provide an alternative air source

All patients having amalgam removed or placed should be provided with an alternative air source and instructed to not breathe through their mouth during treatment. A nasal hood such as is used with the nitrous oxide analgesia equipment is excellent. Air is best and oxygen is acceptable although not required. If just air is used it should be clean and free of mercury vapor preferably from outside the dental office.

4. Immediately dispose of the mercury alloy

Particles of mercury alloy should be washed and vacuumed away as soon as they are generated. The filling should be sectioned and removed in large pieces to reduce exposure.

At present the International Academy of Oral Medicine and Toxicology (IAOMT) has approved removal both with and without the use of a rubber dam. Some evidence exist to support both views since high levels of mercury and amalgam particles can be found under the dam. All members are agreed that whether or not a rubber dam is used the patient should be instructed to not breathe through their mouth or swallow the particles. Some experts feel that it is better to remove the amalgam first and then apply the dam if needed for restorative procedures.

5. Lavage, and change gloves

After the fillings have been removed, take off the rubber dam if one was used and lavage the patients mouth for at least 30 seconds with cold water and vacuum. Remove your gloves and replace them with a new pair. If a restorative procedure is next then reapply a new dam and proceed.

6. Immediately clean patient

Immediately change patient's protective wear and clean their face.

7. Consider nutritional support

Consider appropriate nutritional support before, during and after removal.

8. Keep room air pure

Install room air purifiers or ionizers and fans for everyone's well being.

The dentist you choose should follow this IAOMT protocol....if not...look for another.

In my opinion the other most important thing is nutritional support. (#7)

Proper foods and nutritional supplementation are important for assisting the body in removing toxic materials, especially mercury, and to provide extra support for the stress of the procedure and for the extra mercury released in the process, that may be inhaled as vapor or ingested as small particles that may get past the rubber dam.

Drinking 64 ounces of purified water per day assists the body in removing toxins through the bowels and the kidneys. It is important to avoid caffeine, sugar, alcohol, and tobacco, because they add toxic burden and additional stress, for obvious reasons. Fish needs to be avoided because all fish contain mercury until proven otherwise. High protein (organic) foods help the body in detoxifying mercury and many other toxins. Extra green vegetables are helpful because of the chlorophyll, fiber and, many phytonutrients. High sulfur foods like eggs, garlic, onions, and the cruciferous vegetables (broccoli, cabbage, cauliflour, brussel sprouts, etc.) help phase II detoxification enormously.

Cilantro chelates mercury. Eating cilantro blended with olive oil and garlic as a pesto can be eaten, and also it can be taken as an herbal extract 10 drops in water 2x/day, 5 days on, 2 days off, but taken on the day of the procedure. It is important to get organic cilantro, to make it less likely to get cilantro that has already chelated mercury from its environment. Chlorella is a type of algae that also binds mercury. It can be taken 8-10 capsules or tablets daily in divided doses as tolerated (can cause intestinal upset in high doses). It can be used as a mouth rinse immediately after the dental procedure by chewing the tablet form. Chlorella likewise must be mercury free, and must be obtained from a reputable company that has the GMP label (Good Manufacturing Practices), and that can verify that it monitors for the presence of heavy metals.

Fiber supplements also help the bowel to detoxify optimally, if taken in amounts to result in 2 bowel movements per day.

The dietary habits and supplements are best done for 2 weeks in advance of the dental procedures, and for several weeks afterward.

Supplementation with a good quality high potency multivitamin-mineral is important to provide all-around antioxidant support. This should include daily approximately 400u Vit. E, B-complex 50-100mg, Magnesium 500mg, Zinc 30mg, Copper 2mg, Selenium 200mcg, mixed carotenoids 10 to 20 thousand units, as well as many other trace elements, in divided doses.

Vitamin C should be 3000mg/day in divided doses, or as high as tolerated without diarrhea. It is better tolerated as the buffered sodium ascorbate powder instead of ascorbic acid. It is important to remember to not take a high dose of Vitamin C immediately before the procedure, as it may inactivate the local anesthetic.

Other supplements that help detoxification of mercury are L-cysteine 500mg 2x/day between meals, and alpha lipoic acid 100mg 2x/day.

The essential fatty acids, especially the omega-3 fatty acids, ALA in flax seed oil, DHA and EPA in fish oil are generally deficient in most Americans diet, and they are very important for brain function and to reduce inflammatory tendencies. Fish oil, like previous supplements mentioned, need to be monitored and verified for absence of heavy metals. These fats are an important part of any supplement program, and mercury related illnesses often have strong inflammatory components.

Glutathione is not usually well absorbed from the G.I. tract, but it binds mercury, so taking a dose immediately before the dental procedure and another dose immediately afterward can bind mercury that may get swallowed.

The intravenous Vitamin C is a mercury chelator, weaker than DMPS or DMSA, but much safer. It is best taken as soon as possible after the dental procedure, within 1-2 days. Approximately 50 grams (50,000mgs) of vitamin C as buffered sodium ascorbate is given in an arm vein over about 3 hours, in a solution of sterile water or similar solution. You would need to find a physician experienced in intravenous vitamin therapies.

Here are some links to sites about what to do before, during and after removals, choices for replacement materials, compatibilty testing, etc.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

This whole process may appear daunting to someone who thought changing fillings in the teeth should be a simple process.

If not all the supplements are taken, there may not necessarily be ill consequences, but if any parts of the protocol is skipped, the main point not to neglect is to have the dental procedure done properly, to have the i.v. Vitamin C, to follow the dietary do's and don'ts, and to take the high potency multivitamins with plenty of Vitamin C.

For people with mercury-related problems, it is important to remember that there are people who have had their fillings replaced without any preparation and without attention to protocol, and they became more ill than before, in fact bedfast for several months. These usually are people who have health problems attributable to mercury. There is very good reason for doing everything reasonably possible to assure safety and to help the recovery from mercury toxicity to be a speedy one.

Keep in mind that after all amalgams are removed you may benefit from chelation (not until 6 months after removals) to remove toxic levels of mercury which may already be present in your body and contribituting to health problems. There are tests available to determine toxic levels of mercury in the body.

To reiterate....dont allow any dentist to place other metals in your mouth with amalgams...especially gold.

A good point about gold is that it is the strongest choice, a bad point is that it will create an electrical field in your mouth which can be harmful to your health according to experts.

Gold does give off an electrical charge and you will have an electrical field in your mouth if you use it, although according to experts it is a very low field. Also, you NEVER mix gold and mercury/silver amalgam in a mouth, not even for one day.

This is what happened to me and if not for my dentists ignorance on this subject I believe I would still have my health.

Remember...knowledge is power....its good you are getting infomed....even if it does take you a few days to get through my post.

[tom]

Project? If you want to share.

Well, briefly (I hope), it's dedicating myself to doing every single possible thing I can to prevent any slide 'back in the hole'. In '05 I took the newfound bliss & brainpower for granted.

I realized I can do crazy things like turn this apt into a room like Kyra Sedgwick's char on The Closer uses to facilitate making obscure connections while solving her cases.

I'm not buying giant whiteboards, but maybe having a giant space to write could allow a diff view on the data available.

All I've thought of is butcher paper on walls to sub for whiteboards.

It'll *look* loco, no?

Did I hear that Van Gogh was a celiac?

<tom ain't goin' 'back in the hole'>

Do you know the story of Royal Raymond Rife?

I do not.

Did a quick google and read the bits on that page and emailed it to myself for further perusal.

Not sure where you're going w/ this.

Didn't he profess that cancer was caused by bacteria?

I've been eating some walnuts and pecans,

Hmm

Me being a non-LLRR, I don't know if it means much that I've seen so many diet similarities to my anti-candida, and that walnuts were a solid "Don't" for me.

I thought the mold-related reasons were same.

I'd found anti-candida consensus w/ the following:

____OK to eat____

Raw nuts - Alm, cashew, brazil, filbert, pecan.

Anyway - can't help but toss that into the mix.

[tom]

Hum, I think I could find a way to get the jars off the attach geese...I'm clever that way. Besides...they don't attack us silly...just the auxigro or people who try to smuggle in contraband (okay, I guess in this case contraband can apply to almond and cashew butter, but I choose to ignore that).

Oh the geese needn't *attack* u to play keep-away!! <silly goose>

At a minimum, you'd need to fully decide & commit to get nutty wid'it.

No passing whim as easy as "open fridge / open jar / open mouth"!!

And are u sure the geese weren't trained to specifically aid in this way during elimination tests?? Coulda swore I read something ~p180-200.

Go ahead and check! I'll wait here