Omg...i Might Be On To Something

[tom]

I think. May need a lymification here.

The near-20 syllables that meant "anything can happen" or the word I made up? (Culpritude - hey I got called "the culprit" - and it that case it was undebateable. Else I'd naturally . .. .well, u know)

[Fiddle-Faddle]

I need to look to see if I can find any info on the bi-polar microorganism.....forget the name. One of Mitch's son's has bi-polar and is also pre-diabetic or diabetic now. He refuses to change his diet and he's told us we are crazy (as far as our diet talk).

Would he still think you are crazy if you:

1) show him all the links on the internet relating gluten to bi-polarity (is that the right way to say it?)

2) show him the studies linking caffeine to bi-polarity

3) explain how the pharmaceutical companies don't want him to know about these food links because they would prefer that he buy expensive meds that mask the symptoms, don't address the cause, and have unpleasant side effects.

It was interesting how I found the caffeine link, by the way. I have always been EXTREMELY constant in mood and energy level, but after the third baby was born and I had to return to work, I tried coffee, which I've never liked, but it's yummy with a ton of cream and sugar (aka coffee milkshake).

I felt like Superwoman for two straight days (and nights), got a ton accomplished--and then crashed. For nearly a week, I felt like I was underwater, with a headache, no energy, and totally listless.

I tried coffee three other, separate times, and it was the same thing each time. No further amount of caffeine would even get me back to normal, let alone the energized state.

It occurred to me that how I felt is pretty much how bi-polar highs and lows are described, so I googled "caffeine and bipolar", and was stunned at the studies I found that show a VERY strong link--but you never hear about it. You only hear about what drugs are good.

Typical, isn't it?

[tom]

...... Like I said earlier. Brain not working. Thanks again. Barbara123

There's not a single person here who that statement is foreign to. I know *I've* never been anywhere else among so many who've 'been there'. (and/or currently 'are there')

Not even one person I've stood next to in RL.

And no other threads have anything like Rachelville!!!!

Glad u made it, Barbara!

[barbara123]

Well, I'm no expert on the testing numbers, but I'd be happy with a positive like that. You said your appointment with the gastro was in October?! Is that for further testing, cuz if so it would most likely come out negative if you continue eating gluten free.

Oh, it's mocking me alright! I may finish the stupid jars tomorrow and be done with it.

My gyno recommended I see a dr that comes into my town every month. He is a gastro and supposed to be a expert in celiac I made a appt. with him for July 30th Alot better than Oct. 4th and i dont have to travel 3 hours (one way) to see him. So tired of traveling and not having any fun. Just Drs that want to hurt me. So looking forward to that. Imagine that a dr coming to me

[tom]

Oh, it's mocking me alright! I may finish the stupid jars tomorrow and be done with it.

<tweet!!> "Send in the geese!"

They're well-aware you're not an outsider, Donna, but wasn't there something ~p545-718 about their mind-reading abilities and the distinct brainwave patterns of the tempted? Where *did* I hear that?

Shouldn't let those generations of selective goose-breeding go to waste. I can barely imagine all the training it must've taken to create such an innate ability in offspring.

To paraphrase Samuel L. Jackson:

"That's one talented m*t*er*u***ng goose!"

Barbara!! Yay for a celiac doc w/out roadtrip!

[AndreaB]

morning all - - - gotta run - - slept quite late today and doctor's appt. soon.

Is this for the xray results???? I'm anxiously awaiting news of that.

Would he still think you are crazy if you:

1) show him all the links on the internet relating gluten to bi-polarity (is that the right way to say it?)

2) show him the studies linking caffeine to bi-polarity

3) explain how the pharmaceutical companies don't want him to know about these food links because they would prefer that he buy expensive meds that mask the symptoms, don't address the cause, and have unpleasant side effects.

I don't think he'd listen to anything right now. We could certainly try though.

[dlp252]

My gyno recommended I see a dr that comes into my town every month. He is a gastro and supposed to be a expert in celiac I made a appt. with him for July 30th Alot better than Oct. 4th and i dont have to travel 3 hours (one way) to see him. So tired of traveling and not having any fun. Just Drs that want to hurt me. So looking forward to that. Imagine that a dr coming to me

Well, very cool that he'll come to you! I'm glad you can see someone sooner!

They're well-aware you're not an outsider, Donna, but wasn't there something ~p545-718 about their mind-reading abilities and the distinct brainwave patterns of the tempted? Where *did* I hear that?

I shall not be fooled again into going back into the depths of this thread... Besides, I think I was there when I was looking for everyone's Igenix results and I remember NOTHING about mind-reading geese!

[dlp252]

For anyone who is interested in the presentation that Dr. Amy did at the Hope To Heal Conference, here is a link (it's to a PDF), from Scott's website:

Open Original Shared Link

[nikki-uk]

I can write with my right hand, and sometimes will if my left is holding something, but it's not as neat as my left.

why yes, I am! Whenever people get the visual with me - writing - they always say, Ohhhhhhhhhhhhh NOW it makes sense!

Well HELLOOO and add me to the ambidextrous lefty club

[tom]

Right or Wrong, there's a twinge of feeling Left out.

[CarlaB]

Well, I'm no expert on the testing numbers, but I'd be happy with a positive like that. You said your appointment with the gastro was in October?! Is that for further testing, cuz if so it would most likely come out negative if you continue eating gluten free.

Right. If you feel you want more testing, you need to eat gluten continuously until all the testing is over.

If I were you, I'd just keep eating gluten-free and take the blood test along with dietary response to prove it's celiac. I wouldn't want to delay getting better.

The GI most likely will want to do a biopsy, which is a waste of time if you've been gluten-free for a couple months.

Well HELLOOO and add me to the ambidextrous lefty club

I really should type with my glasses on ... if I remember correctly, I put two "d's" in that word ... I KNEW it had a b ... I didn't go back and look.

NONE of my children are lefties. It's so sad. One time when Morgan was about two, my FIL took something out of her left hand and put it in her right ... he told me to do this so she wouldn't become left-handed. I asked him what was wrong with being a lefty! I guess he didn't know I was left-handed ... people don't notice because I don't wrap my arm around my paper like some lefties ... I look like a right-hander.

[nikki-uk]

I really should type with my glasses on ...

gosh,... I HAVE too with the new format/colours

NONE of my children are lefties. It's so sad. One time when Morgan was about two, my FIL took something out of her left hand and put it in her right ... he told me to do this so she wouldn't become left-handed. I asked him what was wrong with being a lefty!

Yeah, my grandmother tried to discourage my Mum from letting me be a leftie - not sure what the reasoning is behind it

(My middle son is a leftie )

... people don't notice because I don't wrap my arm around my paper like some lefties ... I look like a right-hander.

Me also - but I do smudge a bit if writing with a fountain pen.

[AndreaB]

For anyone who is interested in the presentation that Dr. Amy did at the Hope To Heal Conference,

Thanks Donna! That was interesting.

[Rachel--24]

Hey SJ-ers!

Wasn't there recent talk of it being warm or even hot there??

Ummm....you can bet it wasnt me saying it. "

Its not hot to me until its hitting the 90's.

Manteca has higher temps....I'm home now and loving it.

what? what does this mean exactly? is that just specific to those hosting Lyme, or for anyone? cause my back and neck hurt all the time....but I feel it's skeletal (getting xray results tomorrow - er, today actually)......

I believe the results are based on what he's finding in ART...after testing a huge amount of people. I'm sure if someone goes to Dr. K with a Parkinsons diagnosis...he's probably got a good idea of what pathogens are lurking in that patients body just from what he's seen in all of his years doing this. Certain bugs produce certain disease-like symptoms.

So yeah....he's saying for anyone with back/neck pain....when he does ART....he's most often finding Herpes viruses in those people. The second most common is Lyme...followed by Clamydia.

and yeah...we know you read the science too.

I felt awful when I would take the whey protein. No energy, no stamina, very depressed and achy. I feel better off of it.

Well...this is the main thing. If something makes you feel bad dont take it.

Always listen to your body and if its telling you no....then go with that. I dont force anything ....even if the Dr. says it'll help. If something makes me feel bad I stop taking. Its not always easy to figure out which thing is making me feel bad...thats the part that sometimes takes some investigating.

All of this scientific talk between her and tom has got me thinking on the wrong track.

Yeah...my head was spinning a little too.

What a trouble-maker he is! Next he will steel the Lymerdida Guadalupe!

Rest assured.....Lymerdida Guadalupe isnt going anywhere.

Not that Tom has any need for a SpiceShip....sounds like he's got plenty of heat already.

What got me thinking this with Lisa is that she's saying she can't feel the stool in her colon ... it's like it's not there. So, I was wondering whether she was possibly reabsorbing it ... which obviously would prevent detoxification.

Are we supposed to feel stool??

I dont feel anything either. I could go days and days and all that will happen is my lower back and kidneys start hurting alot...then the pain will spread higher up. I wont feel anything but my tailbone area will hurt alot. The only time this wasnt happening was when I ate ice cream.

I feel the same way..."like its not there". I wasnt surprised when the GI said I had massive amounts of impacted stool....but I dont know whats causing it to begin with. If I wasnt doing the enemas I dont think I would be having any bm's on my own now that I've given up the ice cream.

[Rachel--24]

I'd say she is definately responding to abx (in both a positive and negative way), so it's making it pretty clear that the clinical diagnosis was correct.

Yay for getting an answer for Chloe.

Hum, I am taking some herbal stuff for the lyme now, and I just added in ALA too, so I guess that all could be working together somehow to stir things up...possibly coincidental to the shoulder fiasco.

ALA mobilizes mercury but isnt good at holding onto it....so it redistributes the mercury if you dont have the other things in place like charcoal, chlorella, DMPS, DMSA, etc. Its not something you can take by itself if you're mercury toxic...you have to have everything else along with it...including organ support (esp. kidneys).

I would be very careful with ALA....Dr. Amy didnt want me taking it for that reason...it redistributes the mercury.

anyone understand test results ?

Do i need more testing?

Tissue Transglutaminase Ab- IgG 69EU anything over 30EU is positive

Hmmmm....I thought Tissue Transglutaminase IgA is what they test??

I've never seen TtG IgG results before.

You might want to ask this question on the main board for better clarification on the IgG part. I dont know if TtG IgG is diagnostic or not??

I propose *none* of us eat things w/ an ingred list u can't say in one breath.

None of my foods or even supplements have more than a few ingredients. Anything with a list of ingredients and I put it right back on the shelf...too risky for me.

[dlp252]

ALA mobilizes mercury but isnt good at holding onto it....so it redistributes the mercury if you dont have the other things in place like charcoal, chlorella, DMPS, DMSA, etc. Its not something you can take by itself if you're mercury toxic...you have to have everything else along with it...including organ support (esp. kidneys).

I would be very careful with ALA....Dr. Amy didnt want me taking it for that reason...it redistributes the mercury.

I am taking the chlorella again and also take pectasol (modified citrus pectin). Dr. S is the one who wanted me to take ALA...I'll make sure when I see him today that I'm taking enough of the binders to take care of it. I take a teaspoon of chlorella in the morning and one in the evening. I take 5mg of the pectin two or three times a day.

Is alpha lipoic acid the same thing as lipoic acid?

[rinne]

.... It was you that posted about the immunizations? I wonder why I thought it was Rinne. All of this scientific talk between her and tom has got me thinking on the wrong track. I can PM you. My e-mail address is fairly unusual you will find.

....

Jin, your columns are a delight to read.

I think Tom and I have stopped now. I hope you recover quickly.

Forgot to at this! :lol: I think these kinds of nuts are okay...at least I don't have a reaction to them, YET!

Well, you would have to do a challenge and we couldn't have that.

Barbara, I found licorice tea soothing when my stomach was very upset, also ginger tea (just use fresh ginger, about a tablespoon grated per cup). I hope you feel better soon.

.....

He was okay with my rent free till I'm making money deal, too (we gave him other concessions). I'm thinking that I'll open next spring. With my health being so unpredictable right now, I don't think it's a good idea to try to push it and open at Thanksgiving. If my herxes keep lightening up as they have been the past five months, I should be doing significantly better by then.

Carla, that is really exciting. I look forward to hearing how it grows.

And great news about Chloe.

As I putter away at the rinne bars I am making every effort to keep it fun, it is one of the reasons I decided to back off from buying a building and installing a commercial kitchen.

Last Friday I met with the stainless steel guy about creating the forms and he was lots of fun to deal with. I had taken my prototype form and a rinne bar sample for him to see and taste and when I asked him about the cost he said it would depend on whether or not he liked it.

I'm right handed, but I can write with my left hand too...just not quite as neat as my right is. Haven't tried painting with my left hand, but maybe things would look better if I did.

Seems to me that your right hand works very well.

.....

It occurred to me that how I felt is pretty much how bi-polar highs and lows are described, so I googled "caffeine and bipolar", and was stunned at the studies I found that show a VERY strong link--but you never hear about it. You only hear about what drugs are good.

Typical, isn't it?

Totally.

....

None of my foods or even supplements have more than a few ingredients. Anything with a list of ingredients and I put it right back on the shelf...too risky for me.

Me too now, in the beginning I was creating new cake recipes and thinking that I could just eliminate the gluten and I'd be fine. NOT.

I don't miss those things so much anymore and feeling better all the time makes it worthwhile.

Tom, you asked about the almond butter. I has a lapse on Sunday, darn them open jars.

[dlp252]

Tom, you asked about the almond butter. I has a lapse on Sunday, darn them open jars.

See, this is why I thought I should just pull a Rachel and eat my two remaining open jars! In one sitting...just like the ice cream wipeout episode a few hundred pages ago.

[AndreaB]

Last Friday I met with the stainless steel guy about creating the forms and he was lots of fun to deal with. I had taken my prototype form and a rinne bar sample for him to see and taste and when I asked him about the cost he said it would depend on whether or not he liked it.

On your Almond Butter relapse.

See, this is why I thought I should just pull a Rachel and eat my two remaining open jars! In one sitting...just like the ice cream wipeout episode a few hundred pages ago.

[Rachel--24]

For anyone who is interested in the presentation that Dr. Amy did at the Hope To Heal Conference, here is a link (it's to a PDF), from Scott's website:

Open Original Shared Link

I cant open PDF's.

I've been busy this morning. Got more info on LED treatments....still trying to find out more. Andrea...I got a little feedback on Dr. Elizabeth as well.

Someone from the dentist office called me back. Of course the dentist would not...and will not speak with me.

We talked for awhile...she had reviewed all of my history with them before even calling me. Everything was right there in front of her. At least she wasnt stupid about mercury and we had a reasonably intelligent conversation about everything.

Basically she was saying that mercury could have been causing me problems long before he did anything with my amalgams.....even though I wasnt feeling sick doesnt mean I wasnt sick.

Yes...this is very true....but the point is that *any* amount of mercury is toxic to the body. Anytime he's drilling out fillings using no protection whatsoever....or placing gold in contact with amalgam....he's risking that persons health by creating a heavier burden that that person may be able to handle.

Obviously, I could not handle what I was exposed to. I told her he didnt even use a rubber dam...he did NOTHING. She said he always uses a dam.....its not true....he argued with me when I requested he use a dam when I wanted my crowns out.

He also said he never uses it and has never had a patient request it....he said it would "get in his way" and prolong my discomfort. I told him I didnt care...I wanted him to use the dam.

She said that they didnt charge me removing the gold crowns and replacing them. It was the right thing for them to do anyways....I was getting sick.

She said they still use amalgam more than anything else....shes gonna talk to the dentist but she doubts he'll change his thinking or the way he practices dentistry because of this *one* time that someone became toxic from mercury.

I told her that I'm not an isolated incident....not by any means. I'm just someone who was able to link my illness directly to mercury. Many people are suffering but will never link their health problems to their amalgams. I told her its usually a more gradual process....unlike what I experienced. That makes it very hard to determine the source.

She didnt dispute anything I said....she said it may be true but until the ADA tells them to stop using amalgam...they will continue to use it as do more than 80% of the dentists in this country. She knows other countries have banned amalgams in dentistry but the larger countries are still using them.

She said at some point the ADA may indeed ban the use of amalgams but until then they're gonna be used more than anything else.

She said the problem is that its extremely difficult to PROVE mercury is the cause of illness and that it came from the amalgams. So far this has not been scientifically proven. I told here theres plenty of research and scientific studies proving mercury is toxic....it leaks from the fillings....it accumulates in the body. Its never been proven that *any* amount of mercury is safe in the body. She said its never been proven to cause harm either.

Ummm...I'm sorry....anyone with a reasonable amount of intelligence would not risk exposing themselves to mercury on a daily basis voluntarily. I think most people realize mercury is toxic.

I told her the scientific evidence has been presented to the ADA time and time again. The evidence is there....they just choose not to *see* it. Because it's sooooo difficult to determine mercury toxicity and it is so difficult to prove in a living human being....they can get away with continuing to use it. She said there are always flaws in every study.

She said they cannot LINK the mercury directly to the illnesses.

She said insurance companies want them to use amalgam....this is what they will cover and most patients still choose amalgam for this reason. It doesnt make it right....and I do not think that people would still choose amalgam if they were aware of the health risks involved.

I told her that I didnt even KNOW that those fillings contained mercury...I had no reason to ever think about it....they had been in my mouth since childhood. If I was informed things might have turned out differently for me.

She said all these years those fillings were leaking and there is no way to know that this wouldnt have happened eventually anyway. I told her that sure....shes right....I most likely would have had problems down the road thanks to the amalgam fillings....nothing to *this* extent though.

I told her I can only eat a few foods and I have through the roof chemical sensitivities ever since he did this work in my mouth. She didnt say anything.

I know she believed everything I was saying but she said...even if this was brought in front of a board and even if I'm sick from mercury directly caused by galvanic reaction there is NO WAY to prove it. Its very difficult to link mercury to the health problems and definately NO WAY to prove the amalgams were the source.....even if its obvious. Thats just the way it is.

She said the composites contain petroleum....she said there is NO substance in this world, no food, no chemical, no material used in dentistry than there isnt *some* person in the world reacting to. She said all these dentists replacing amalgam with composites and later we'll find people are sensitive to the petroleum...or people will be allergic.

I agreed with her but at the same time....you cant lump mercury into the same category as everything else. Yes, there will be people who are allergic to any type of material. Again....mercury is something which has NEVER been proven to be safe in ANY amount. Its the third most toxic substance on this planet. If I had been informed and if I were old enough to make my own decision...I would have chosen anything BUT amalgam.

We're not talking about an allergy or a sensitivity to mercury....we're talking about debilitating chronic illness. She said that since I'd had the fillings all my life I would have been having problems before seeing him...she said the mercury stays in the body. She said its cummulative so I would have already accumulated plenty over the years.

Well....HELLO....shouldnt that be a red flag right there??

She said not everyone ends up like me. She even said I was one in a million.

I told her its not true...I've "talked" to hundreds of chronically ill people the past few years. I'm seeing Dr.'s who specialize in this...I am FAR from being one in a million. I'm just not that special.

Well....if you cant prove it I guess its not really there??

I told her not every kid ends up with Autism when they get their vaccinations...but one in 150 boys DO get it. So is it right to just gamble with every kids life this way?? Or would it make more sense to remove a major trigger for Autism from the vaccs??

Is it right for the dentist to drill out amalgams with no protection or place dissimilar metals in the same mouth....is it really RIGHT for him to gamble like that??

Just because they can find ways to get around the obvious...and to not be liable when things go bad.....doesnt make it right.

She said its all documented. She hopes I get better. Shes gonna present it to the dentist but it wont change anything. She said if anything now that shes heard this its something for her to think about.....and maybe the dentist will think about it as well. At least the thought has been put into their minds.

I told her thats all I really want...I cant change the world but I want it to be known that this can...and does happen...it can happen to *anyone*.

Last time I spoke with him he was saying galvanic reaction doesnt cause harm, mercury from amalgams is perfectly safe, anything else is propaganda...even the fact that other countries have banned its use....ALL propaganda.

I want him to *know* that its not propaganda....people DO get sick.

[jerseyangel]

Rachel,

Wow, what a conversation! At least the nurse will tell him what happened with you, so he will hear it. Too bad he couldn't be bothered to take the call himself Typical....

[tom]

Its not hot to me until its hitting the 90's.

Manteca has higher temps....I'm home now and loving it.

Woohoo!

So yeah....he's saying for anyone with back/neck pain....when he does ART....he's most often finding Herpes viruses in those people. The second most common is Lyme...followed by Clamydia.

yehhhh not the most comforting thing to read . . . . . . .my back & neck have been trouble since 1980.

But I'm gonna stick w/ the theory that it's from that little bit of vertabra (c6? 4?) that broke off during bball. (Didn't even notice until barely able to move the next day)

And 2 other times I had weird bone chips that docs could barely believe! One was sooooooo embarrassed when *I* had to point it out on the xray w/ a "what's that?". He was just looking where the rest of the wristbone is.

I've assumed it's just another celiac thing. So now that I've got someone to ask - anybody out there w/ weird bone chips?

Not that Tom has any need for a SpiceShip....sounds like he's got plenty of heat already.

111<intheshade> and climbing @ 2pm!!

I'm like the only car out there not using AC!! I like a breeze.

[Fiddle-Faddle]

Way to go, Rachel!!

Of course you are right.

My husband is a PhD chemist, and says that ANY chemist knows the toxicity of mercury. That's why mercury thermometers have been replaced with digital ones. There are documented cases of people DYING from exposure to mercury (even a chemist he knew, who wore double gloves--the mercury burned right through her gloves, and she eventually died of exposure to the one or two DROPS that touched her skin). Mercury poisoning is well-documented and accepted by the experts--except in the cases where we directly inject it in the bloodstream or put it into people's mouths . Then, all of a sudden, "you can't PROVE it causes harm???!!"

Yeah, right.

I'm betting that the person who spoke with you was his attorney, and I bet he's scared to death of a lawsuit. And you may have a good case, if it's documented that he did not use a dam.

[CarlaB]

Drive-by --

Just got the results of my stool test.

Two "good bacteria" were non-existant. Overgrowth of Citrobacter and Klebsiella. Candida was one plus, so she said it was not really a concern.

She started me on Cipro to take care of it, so off the amoxy for 10-20 days.

[UR Groovy]

Hello all - hope you're doing well. I've been reading about things (here - in Rachelville)

...

There are tests available to determine toxic levels of mercury in the body.

...

Rachel (or anyone else with suggestions),

I'm really thinking about checking into my mercury levels. I can't help but want to know where I fall in this. There's maybe 10 reasons why mercury would make sense in my case.

Question - what sort of practice would do testing for this?

I can't believe I landed here. I'm thrilled . Thank you,

k