Omg...i Might Be On To Something

[Rachel--24]

Well I got conflicting info on band 18.

18 kDa the specificity of this protein has been recently established; excellent marker for late infections.

9 cross-reactive for Borrellia

12 specific for Bb

18 unknown

20 cross-reactive for Borrellia

21 unknown

22 specific for Bb, probably really the 23/25 band

23-25 outer surface protein C (OspC), specific for Bb

28 unknown

30 unknown; probably an outer surface protein; common in European and

one California strain

31 outer surface protein A (OspA), specific for Bb

34 outer surface protein B (OspB); specific for Bb

35 specific for Bb

37 specific for Bb

38 cross-reactive for Bb

39 is a major protein of Bb flagellin; specific for Bb

41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia

45 cross-reactive for all Borellia (sometimes people with Lyme who have

this band positive also have the co-infection Ehrlichiosis)

50 cross-reactive for all Borrellia

55 cross-reactive for all Borrellia

57 cross-reactive for all Borrellia

58 unknown but may be a heat-shock Bb protein

60 cross reactive for all Borrellia

66 cross-reactive for all Borrelia, common in all bacteria

83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane

93 unknown, probably the same protein in band 83, just migrates differently in some patients

There are nine known [Lyme] Borrelia burgdorferi Genus species specific KDA Western Blot antibodies (bands): 18, 23, 31, 34, 37, 39, 83 and 93.

[DingoGirl]

Morning to my sweet friends.

I am trying to catch up, brain is bleary and eyes so tired, I came home from the drug store armed w/ Nuggets (yes, damned if I was not going to have nuggets on a day like that); a muscle relaxant that kind of works, I found out; Fosamax (for bone density) and naproxin.......and had a full, sobbing meltdown for over an hour........ugh. Posted the most MAUDLIN and morose thing on DS - zoigs - didn't know what else to do.

Trying to read along and catch up, brain not tracking, just wanted to say a profound thanks for all your wonderful wishes and kind words. Would like to thank you dear ones individually and by name but know that i"ll leave some out and that would make me dysfunctional with guilt (feeble smile here).

so many of you are just accustomed to chronic pain, so forgive me, I am newer to the horrible world of acute and debilitating PHYSICAL pain.....and I so empathize with what you all have been through, you are ALL heroes. Donna - - yes, doctor said the extreme weightlifting DID comtribute.....what an idiot I was.

I am to keep activity to an almost screeching halt and do very little.....THIS, I cannot handle. Hence the meltdown. I do everything around here, and there is lots to be done physically....pray taht God sends a garden crew of some kind.

now what did I want to address, adn enfeebled dingo-brain will not allow?

playing w/ mercury, yes, we did that - fascinating stuff.....will read about that scientist later - or not - - too tired.

Rinne - - - so charmed by your pistol-packing Scottish grandmother - - I have quite a bit of Scot in me also, we went from the lowlands to the highlands in our clan and have always been a rather rebellious bunch. I think I need a mother-of-pearl pistol, though.

I want to write a list of names to thank but am blurry and will forget, did I already say that? consider this a warm blanket of love covering and offering thanks and gratitude.

I am actually EXCITED for my MRI - - it's been confirmed that good drugs will be provided and I can most likely go to my magic place, and bring my own celiac disease's. this pleases me.

I will be on the couch quite a bit tomorrow, hurts to sit at computer, but will check in, but can't keep up. Rachel - hardly reading the science here.

back to bed..........

love this place.

I feel a miracle of some kind is coming, just don't know how or when.

nighty'night

[nikki-uk]

oh you guys.

:( :(

I am one sad dingo

Susan *sigh*

{{{{hugs}}}}

Fingers crossed for your MRI.

[NoGluGirl]

Dear Donna,

Those EFAs sure did a number on a lot of people! I do not think I want to even attempt the fish oil! Since I probably have mercury poisoning, that would only add to the burden anyway. Maybe flaxseed oil is something you could tolerate. There is also borage oil.

I am glad to hear the shoulder pain has improved. Even slight improvement is better than nothing. The pain returning and spreading seems odd. I get a lot of pain in my shoulders and neck. I am beginning to think it is not because of sitting and typing so much, but a result of maybe Lyme.

I am sorry your appointment was not that good. It would be disappointing. There is nothing interesting to hear from the doctor. I know you were hoping for more. Maybe the next appointment will be more productive.

Dear tom,

Dollface is going to enjoy having guns all of the time. She will probably keep it in a garter belt or something. It is going to be really cool. As you said, she really is better to be at a distance. Getting too close is a bad idea with her!

Between the hot-sour soup and the rangoon, I am going crazy! I need some! As soon as the check comes, I am going to the grocery, baby! Most people fantasize about material possessions when their check comes. I fantasize about the huge shopping list and all of the food I can buy! That is so neat that you got to go to Thailand!

So, what is the story behind that new avatar? Did I miss something? It is a great charcoal rendering. Did you do that, or did you have it done? Whoever drew that is very talented!

I am sorry to report I totally bombed on the exam. The book was no help. Dad could not help me, because he knew nothing. Now I am going to have to take this terrible class a third time! I hate Finance! It is going to cost so much, too!

I was laughing about the St. Bernards and the geese! That would be so funny! A St. Bernard carrying a jar of nutbutter to a goose, and they safely remove it from our town. There is a new spin on an elimination diet! Of course, you will have to take that up with Susie on the dingos, since she is in charge of them!

It was exciting to see something about Dr. Klinghardt in Women's World. You do not hear as much about natural stuff as you do pills in many magazines. I was glad to see something from a doctor like him. They finally seem to realize not all of us want pills to fix everything. Many people are leaning toward natural health now.

Dear Rinne,

That weather you had sounded quite violent! We have our share here! Tornadoes are our main thing it seems! I hope everyone is alright up there! It can do a lot of damage.

Yes, you and tom confused my brain, I think. Of course, the Finance has not helped at all. I hate that class. Now I have to take it again! God it sucks!

I am glad you enjoy my "columns". I enjoy writing them. It is so funny how that works out. I just write like crazy! There is always so much to respond to!

Your pistol-packin' great-grandmother sounds like my kind of lady! We must be related! She sounded like a smart woman! Guns are sometimes necessary. Take for instance, the fact we own Dart as our guard dog. Thank God for guns!

Dear Rachel,

I am glad you took up for yourself! That dentist should give a crap! Naturally, if it does not effect them, they do not care. People are self-centered. Nobody wants to listen.

Thanks for the link to the article on the scientist poisoned by mercury. That was so sad! You really have to feel for her family and colleagues. It is unfortunate someone had to die before the toxicity of the dimethyl mercury was discovered.

I wish they could have saved her.

I am glad you were confused as well. That makes me feel better. Rinne and tom's discussion got to my brain. It made me fritz out I think! Combine that with the Finance confusion, and you have trouble!

It is great you explained the WB values. I did not understand their meanings. I copied that into a document. I am sure it could be very useful once I am able to get my results back when I can get the testing done. My mother is really daft, though.

She thinks we should get the Celiac testing done first. My pill popping mother is so fickled. One second she acts like she thinks I have Celiac, the next minute, she refuses to believe my doctor actually came out and called me a Celiac! It really is exasperating! Then, she flips to contemplating about Lyme. She later goes back to saying she does not think I have Lyme. I told her, I do not have to have one or the other, you can have both!

Dear Rachel and Alison,

Hey, leave the attorneys alone! I want to be one! I want to sue bad doctors, prosecute sex offenders, and that type of thing. I have no desire to help these creeps! I resent that everyone thinks this about attorneys. Some actually have dignity and do not suck as people.

Dear Alison,

That is so tragic about that scientist. It is so terrifying what happened. Maybe if more people read this story, they would understand why this stuff should never be allowed in our mouths! The medical establishment is stubborn, though. Dentists are like MDs, they are determined to bury their heads in the sand.

Dear Christine,

I am concerned about my dental situation as well. It is scary. They do all kinds of stuff to you. Composites are not always safe for everyone either. I only have one filling, which is a composite, and it is a root canal. It just began getting really sensitive lately.

I did not know about that chelator. I had never heard of it before. The information you found is fascinating. I cannot wait to hear more! Post it when you can!

Dear Susie,

I am so sorry to hear about your degenerated disks and arthritis. As you mentioned, standing on your feet all of that time in the art store where you used to work could very well be what caused some of that. If you want, we can cry together. I am a sad dingo, too! I am going to have to take that terrible class a third time! I fear a nervous breakdown!

It is so nice to hear you are a lefty, too! I never knew many lefties when I was in school. I was always the only one, it seemed. You felt like such an outcast. Everyone else had notebooks and stuff made for them, while you got ink all over you.

This is a right-handed world!

I hope your MRI goes well. We will want to hear about it. I do not like enclosed spaces, either. Elevators are some of my least favorite. Maybe you will go to the magic place!

Dear Charlie,

The probiotics seemed to have reached the consensus of 30 minutes prior to eating! I always take mine right after eating. I am beginning to wonder if that is not right. Maybe I should take them before meals and wait a while from now on?

The directions say to take it with a meal, though.

It sounds like your sister could have some answers coming. That would be wonderful! Whether or not she does not have Lyme and just the other is another story. They can exist at once. I think Laura has or had both.

Dear Carla,

Chloe sounds like she is doing pretty well! I always get headaches, too. It makes your whole neck feel stiff, even. I hate it! My jaws hurt and everything! I am so glad she got a proper diagnosis.

That new property would be nice! I think it is wise that you decided not to do too much too fast. Your health needs to come first. After all, how can you enjoy the place if you are too sick? Let us know if you end up buying it!

The missing good bacteria explains a lot. That stool test seems to have identified the trouble! After all of this time, it is finally clicking! I thought you took probiotics. Shouldn't that have fixed it? Those two nasty bad bacterias you have in there should finally go away with the Cipro.

I am a lefty, too! I also have some ambidextrous qualities. I always wrote on the chalkboard and painted with my right hand, although I draw, color, and write with my left. How weird is that? It is so great there are other lefties!

Dear Patti,

Andrea was more kind that I would have been about it, too! My wording probably would have consisted of profanity, and a rant! I was thinking more along the lines of where you thought the dentist had his head! People choose to be ignorant. This is so aggravating when they refuse to take knowledge.

Dear Andrea,

Do you have an appointment for ART soon? I thought you mentioned having one. Maybe I am mixing things up. Poor Mitch only gets a week of vacation. That does not give you a lot of time to do anything.

Dear Lisa,

I am so glad you tolerated the supplement! Maybe you will tolerate others, too. I think it is great you are not going too fast. That can hurt more than help you. Rachel has had her experiences with that!

Dear Laura,

What is that car in your avatar? It is really nice! Do you own one? Or is it a car you want to buy? That one is a beauty!

Dear Barbara123,

I sent you the list. I knew you were referring to me, do not worry! You should have received the beginner's guide last night. It should be in your PMs. I know the misery you have experienced.

I have a very violent reaction to gluten as well. Make sure you have new pots and pan, utensils, etc. Cross-contamination is so easy to overlook. Your cosmetics can make you sick, as can your beauty products like hair styling aids and lotions. There are so many things we have to consider! I hope you recover soon!

Dear fajitas,

We are so glad you joined us! You know what they say, the more, the merrier! Rachelville is a great place to hang out! Everyone is cool, and has good information. If we can help you or others in any way, we try our best!

Dear Julie,

I do not know how you stand the heat! I have to have air-conditioning! I would die without it! Being too hot makes me very sick! My best friend has no air, either. I do not know how she stands it!

Dear Nikki,

Well, blow me if it isn't our friend from across the pond! How are you? What are you up to lately? I have been stressing over school and money and bad health. Yep, that pretty much covers it. I hope things are more fun over in London!

Sincerely,

Jin

[rinne]

.....

Has anyone had the test done? I would have to go to my holistic dentist for this, ill be seeing him on the 10th here in Ohio, Im just worried that he is not as skilled as my previous dentist. I feel like Im cheating on him or something, he has been really good to me, Im hesitant about asking them for copies of x-rays, I dont like confrontation, I don't want them to know Im seeing another dentist. Espically since their office has been so nice to me and I am there all the time!

.....

No I haven't but I am thinking of it because I have some bridgework that needs to be done. If you have it done I would be curious as to what you thought.

Donna, sorry your appointment didn't provide you with a sense of where you are going next with treatment. The good news might be that you are doing well with what you are doing. Other than that shoulder. I hope it is much better today, I was glad to read that it had improved so quickly.

.....

I know he knows his stuff but he doesnt like to move fast with toxic people at all. He'd rather do the baby steps thing....take stressors off the body...build up with supplements...work on detox...all that stuff comes first with him.

If you're taking glutathione directly then thats actually better than taking the precursers. I'm taking precursers because I tested badly for glutathione in ART but not the prescursers. The precursers have to "build" up glutathione in the body. If I could handle it I would want to try the IV Glutathione.

.....

That's a good point.

.....

Tired mommy must be getting "should be getting tired" children to bed soon.......daddy's not home yet, poor Seth. He loves saying goodnight to daddy and doesn't understand when he's not home. One reason why we stay up later, so they have a chance to say goodnight to daddy anyway.

And why not, with home schooling you can decide and how sweet to come home to little people who love you.

Charlie, I hope your sister can get a more definitive test result but it did look to me like there were indications of Lyme. Please keep us informed. I'm sorry if I missed this but how old is your sister?

....

I want to write a list of names to thank but am blurry and will forget, did I already say that? consider this a warm blanket of love covering and offering thanks and gratitude.

I am actually EXCITED for my MRI - - it's been confirmed that good drugs will be provided and I can most likely go to my magic place, and bring my own celiac disease's. this pleases me.

.....

Susan, I am glad you are feeling better about the MRI. Thank heavens there are good drugs available, I know I'd be feeling claustrophobic too. As for bringing your own celiac disease's who else's would you bring.

:wub:

Okay, I have a sore neck and it has been getting worse for a couple of weeks. I am feeling like it is a flare because I have a kind of fogginess, it takes more of an effort to express myself. It could also just be my back, I was doing better when I was seeing the network chiropractor.

I haven't been back to see him after a strange event. After the last session there was no-one in the office and he started talking about homosexuality but why I don't know. I suppose homophobic would be an appropriate word.

When I was 16 one of my very best friends was gay but at 16 I had not a clue he was gay. I just knew I really liked him.

I've never thought it was up to me to judge and I found his judgements harsh.

[miamia]

ok i ahven't posted for a few days so i have a ton to say but i probably will forget half of it- or i mean to say have already forgottten-

Susan-

i am so sorry you are having such a rough time and never say you are whinny !!!!!! we are all here for you- how often do you listen to us all tell of our problems and you always read them and comment and empathize - are you nutso to think we would not do the same for you!!!!!!!!

Rachel-

you ahve posted loads of good scientificness over the past few days !!

good for you with calling your dentist office!!!!!!!!!

I have thought of a few doctors i would like to call like the one who put me on 8 nexium a day when i weighed 90 pounds

there is lots of little news but the big news is my appt. was moved up with the new doc and it is today at 10:30 - thats like an hour from now. I am very anxious!!!!!!!!

Oh bad news my 3 day stool test has turned into a week long event thanks to an unexpected and unwelcome bout of constipation!!!!!!!!!!! (very unhappy ME!!!!!!!)

[dlp252]

Okay Mr. Tom! I made it a full three days without any nuts or nut butters, but today I am all over that Cashew butter in the fridge! (Pssst, I will redo my test when there are no OPEN jars in my home.)

I cant open PDF's.

Sorry, I meant to send you the Word version yesterday...I'll do that in a minute...it came in as pictures and it's 44 pages or so. It was originally a powerpoint presentation I think.

Sorry you had a dissapointing appt.

My second appt. with him was kind of like that too...or maybe it was the 3rd appt...cant remember. All I know is we went over alot of the same stuff. Dave was with me and he was disappointed....even more than me!

I always read up on the supplements first...no matter who wants me to take it. I'm real careful about the supplements. I figure theres no way Dr. S. can know what my body's gonna be able to tolerate or not. So far its only the Whey Protein and folate that he's put me on. I'm deficient in Folate.

Turned out I cant take the folate w/out B-12. I wasnt taking it anyway but if I was it would have done nothing beneficial for me.

I think you really have to talk to him about all your concerns. Did you talk about Lyme treatment? Co-infection testing?

I've been making sure we talk about everything on my mind so that I know where we're headed with each issue.

Also you could ask Scott what he thinks about this. I know Scott doesnt see Dr. S for Lyme...he sees him for heavy metals and parasites I believe. I stay with him because heavy metals is my main issue and hes been doing chelation/detox for alot of years. I think one of the most experienced in the area.

I know he knows his stuff but he doesnt like to move fast with toxic people at all. He'd rather do the baby steps thing....take stressors off the body...build up with supplements...work on detox...all that stuff comes first with him.

If you're taking glutathione directly then thats actually better than taking the precursers. I'm taking precursers because I tested badly for glutathione in ART but not the prescursers. The precursers have to "build" up glutathione in the body. If I could handle it I would want to try the IV Glutathione.

I think you would feel better if you knew how he intends to proceed with you. I'm never good at writing down all my questions ahead of time but I've been pretty good about remembering everything I want to ask.

If I dont ask enough questions I always feel disappointed. OMG...no matter who I see I never shut up. I have to know *everything*.

In the end I do feel better about things though.

If you end up feeling like you're not making progress with Dr. S. I would ask Scott about some of the other Dr.'s...I'm sure he knows all of them and can give you some feedback on who would be best for your situation.

Yep, I thought I remembered one of your earlier appointments being like this...so this morning I'm feeling encouraged again. I think what may have happened is that someone put some color copies of the reports in the file and he thought we hadn't discussed them, so was starting to go over them again.

I'm going to start writing down questions or topics NOW, lol. I had a couple of questions, which I did get to talk to him about, so it wasn't a total loss.

I seem to be able to handle the glutathione directly, and the form I'm taking is more available that capsules, etc, but not as good as an IV would be. He just really stressed that and the MeB12 and magnesium. Oh, and CoQ10 too since I'm actually deficient in it.

I think I've also decided to take less ALA. He didn't say how much to take so I've been taking what the label said to take, which is two a day. I think I may take just one a day.

Has your shoulder continued to improve today?

I don't know what you're going to be able to do about your work, not to mention your house. When do you get your vacation again. Maybe you could try and schedule heavier treatment to coicide with when you can take vacation again.

Yes, my shoulder is doing quite well, I still can't seem to do weighted exercise without pain, and there are certain ways I move it that causes pain, but overall I have almost full function. At least I can dress myself, shower, and drive now.

I'm really trying to save as much vacation as I can so when I DO start treatments I can take a few days off if I need to. I will definitely need a couple after my co-worker gets back at the end of July.

The house is a huge stress point for me...I feel a bit stymied. Can't afford to do much and don't have the energy or experience to do a lot myself. I figure I just need to start by getting rid of stuff...I have a lot of stuff. Stuff holds onto dust which also holds onto mold. I don't dust. If I get rid of stuff, it won't be so overwhelming to keep it clean. Doc really wants me to get rid of my carpet though! Before I do that I have to get rid of stuff. See what I mean...

she recommended for her to get the CD57 test done and that might give us some more direction with my sister... that's actually what I had recommended to my mom after I checked some stuff out regarding the Igenex results.. I know some LLMDs don't use the CD57 test but if my sister's numbers turned up out of the reference range or at the very low end of it, then that would probably lend significantly more credence to my sister (and her doctors to a lesser degree) for further looking into lyme... otherwise, with just the WB results, I assume any further looking into lyme would fall to the side with my sister, and understandably so...

Yes, this is one of the things that encouraged my LLMD yesterday...my CD57 score was decent...not wonderful, but he does use it to indicate how hard my struggle might be with recovery.

so many of you are just accustomed to chronic pain, so forgive me, I am newer to the horrible world of acute and debilitating PHYSICAL pain.....and I so empathize with what you all have been through, you are ALL heroes. Donna - - yes, doctor said the extreme weightlifting DID comtribute.....what an idiot I was.

I am to keep activity to an almost screeching halt and do very little.....THIS, I cannot handle. Hence the meltdown. I do everything around here, and there is lots to be done physically....pray taht God sends a garden crew of some kind.

right back to you! You could NOT have known that weight lifting, which is SUPPOSED to be good for you, would contribute to this! You just couldn't! So, don't go calling yourself names!!!! I feel that sense of overwhelmingness and I don't even have a yard to take care of!

Those EFAs sure did a number on a lot of people! I do not think I want to even attempt the fish oil! Since I probably have mercury poisoning, that would only add to the burden anyway. Maybe flaxseed oil is something you could tolerate. There is also borage oil.

I am glad to hear the shoulder pain has improved. Even slight improvement is better than nothing. The pain returning and spreading seems odd. I get a lot of pain in my shoulders and neck. I am beginning to think it is not because of sitting and typing so much, but a result of maybe Lyme.

The doc really didn't give me any alternatives to the EFAs...he just said not to take them if I react to them. He doesn't want me to take ANYTHING that I have reactions to. He did ask if I could take flaxseed...I did several years ago, but flax tested badly on BioSET for me. I think I have supposedly been treated for that, so maybe I can try it again. I told him I remember it making me a bit gassy...he didn't say anything, so I'm not sure if that was an "okay go ahead and try it" or if that was a "that's a reaction don't take it" thing.

Donna, sorry your appointment didn't provide you with a sense of where you are going next with treatment. The good news might be that you are doing well with what you are doing. Other than that shoulder. I hope it is much better today, I was glad to read that it had improved so quickly.

Yes, and I think it was ME who just said yesterday or the day before that I'd rather go slowly. I think I am doing well with what I'm doing...but I need to be better about asking him what his facial expressions mean! When I told him I was rotating the cumanda and banderol he made a face...couldn't tell if that was an approving face or a disapproving face, and a quick as a wink we were onto something else.

I think I was shell shocked or something.

[dlp252]

Oh bad news my 3 day stool test has turned into a week long event thanks to an unexpected and unwelcome bout of constipation!!!!!!!!!!! (very unhappy ME!!!!!!!)

This happens to me every time I have to do one of those stupid tests!!!! I hate that about those tests.

I am so happy that your appointment is moved up!!! Can't wait to hear all about it! Learn from my mistakes...ask LOTS of questions!

[UR Groovy]

Good Morning,

oh you guys.

:( :(

I am one sad dingo.

Would it be out of line for a new girl to send hugs?

HUGS

My doctor is holistic, but a naturopath does testing too I believe.

Integrative Dr.'s, LLMD's (Lyme Dr.'s), Naturopaths....lots of different Dr.'s do testing for mercury toxicity. The mainstream Dr.'s only test for acute toxicity which is useless.

Any urine test without some time of chelator taken beforehand is useless. The chelator binds with mercury in your body and its excreted in the urine. They can then measure the levels of mercury and other metals.

Thanks again.

I'm going to take this nice 'n slow. What's the rush, after all? I've had these damn things in my mouth for 30 years. From what I've seen here, I'll need to 86 the smoking (cigarettes, ay) before I venture into this. I've got another week of minimizing before my quit date (I've actually been sticking to the plan). First things first. I'm a free radical warehouse right now, between the kidney thing and the smoking. I'll do a little checking on holistic-type dentists in the area. I think I should see a naturopath first - been considering this for months - amalgams or not.

I can't tell you how nice it is to be "forearmed" about this though. My husband thanks you too. He'll also not be going to our regular dentist - we're both metal mouths. The desire to get this worked on isn't new to us - being informed ... that's new. We've both wanted to do this long before I was diagnosed with the kidney thing.

I'm having some trouble following all the scientificness. There's enough to keep me busy with the stuff I do understand, so I'm fumbling my way through.

**Mouse's avatar gave me a giggle this morning - thanks.

Have good days !

kat

[Rachel--24]

Hey rachel how was the oxy?. The digestive enzymes gave me no molding.

Great that you are able to take the enzymes!

Just pay attention to your body...with supplements sometimes it would take a few days for me to start having problems.

I got no bm's from the Oxypowder yesterday.

It says to start with 4....if you dont get 3-5 bm's the following day then add 2 more pills until you do acheive 3-5 bm's. That would be your correct dosage.

I only took 2 to start with. Amy had wrote down for me to only take 2 each night.

Anyways...I'll try 3 tonight. You have to take it on an empty stomach....before bed...I'm always eating so thats the problem for me. Thats why I didnt take it last night but tonight I'll make sure I eat alot earlier.

[dlp252]

More tempnutation! A co-worker just handed me two flourless PB cookies! I just have half of one...OMGosh, seriously YUMMY!!! No chance of CC here...she is more sensitive celiac than I am! She can't even smell gluten without reacting. Sometimes I am fortunate to be one of the FIVE gluten sensitive people here at work.

Kat, don't think it's ever out of line to send hugs!

I have a bit of trouble with the scientificness too, but ocassionally I get it and actually remember, so I'm awfully glad it's here!

Yes, metta (Mouse) has had that avatar for a while and STILL every time I see it I chuckle!

[Lisa]

Do you guys realize you are approaching 400,000 posts? Wow.

[Rachel--24]

I have a bit of trouble with the scientificness too,

Well...I guess I dont have too much trouble with the scientificness...however, the actual discussion ABOUT science....WOAH...totally a different story.

Like Jin....I think my brain went fritzo on me....my head was hurting alot.

I haven't been back to see him after a strange event. After the last session there was no-one in the office and he started talking about homosexuality but why I don't know. I suppose homophobic would be an appropriate word.

Yeah...that does seem odd....I think I'd be pretty apprehensive to go back there myself. Sounds like he's phobic but yeah....totally weird and random to be bringing that up at your session.

are you nutso to think we would not do the same for you!!!!!!!!

Yeah Susan.....are you NUTSO!!!

there is lots of little news but the big news is my appt. was moved up with the new doc and it is today at 10:30 - thats like an hour from now. I am very anxious!!!!!!!!

OK...now you've got me on the edge of my seat!!! I cant wait to hear all about it. I just did the math in my head (I'm very challenged in this area)...seems like you should be about done with your appt. now....hope you'll have time to post today!!

]

Thanks again.

I'm going to take this nice 'n slow. What's the rush, after all? I've had these damn things in my mouth for 30 years. From what I've seen here, I'll need to 86 the smoking (cigarettes, ay) before I venture into this. I've got another week of minimizing before my quit date (I've actually been sticking to the plan). First things first. I'm a free radical warehouse right now, between the kidney thing and the smoking.

Kat,

I was a smoker too. Good idea on 86'ing the cigs....I'm sure they contributed greatly to my situation.

Also...any heat on the amalgams draws more vapors from them....hot drinks or smoking pulls more mercury from the filling. I was smoking like a pack a day for a whole lotta years.

Its been more than 2 years since I've smoked....I'm already so toxic that one cig makes me really sick.

Congrats to you on sticking to the plan.

Glad hubby is on board with you and that you guys are learning and doing this together.

I'm having some trouble following all the scientificness. There's enough to keep me busy with the stuff I do understand, so I'm fumbling my way through.

Oh...if some of the scientificness is not making sense...let me know and I'll try to explain it better. Mostly I'm just putting up quotes but not all of its easy to follow.

[Rachel--24]

Do you guys realize you are approaching 400,000 posts? Wow.

400,000

Wow ....well I probably have somewhere around 4,000 posts in this thread...maybe more...maybe less.

So that leaves 396,000 posts to all you guys!

Dang...you guys have been busy!

Hey Donna....Thanks for sending Dr. Amy's presentation!!

[dlp252]

Do you guys realize you are approaching 400,000 posts? Wow.

Amazing isn't it! I want to go on record as saying that I am in no way responsible for this amazing statistic.

So that leaves 396,000 posts to all you guys!

Hey Donna....Thanks for sending Dr. Amy's presentation!!

Ha, see my response to Lisa above...

You're welcome!

[Mtndog]

Lisa- I was thinking about this last night. Not sure but if you're having such stomach problems right now you could consider eating baby food...I'm thinking about getting some for my next herx because you NEED to eat but baby food would be easier to digest and have nutrients you need. Has anyone tried this?

rachel- Those posts weren't scary- they were very informative. I actually plan on talking to my LLmd about this at my next appt. I've come to realize through this thread that biotoxins are EVERYWHERE . Honestly, if we keep up the way we are, I think humans will be extinct in the next 200 years.

Charlie- I take my probio in the am before I take my abx. Then wait an hour or so.

Rachel- as far as the C goes, I'm in the same bound up boat as you which is why I racheled my coffee the other night. Going to get a little mellower and do warm water daily and coffee only 2-3 times a week. My GI gave me Miralax, but I'm not sure how i feel about it.

Oops gotta run! Be back later today!

[tom]

Okay Mr. Tom! I made it a full three days without any nuts or nut butters, but today I am all over that Cashew butter in the fridge! (Pssst, I will redo my test when there are no OPEN jars in my home.)

Hehe I did love that 'shewbutter, until one nasty 1/2 day from what must have been contamination. Had only 1 brand to buy so I never bought it again.

That day required that I remove framed pics from hallway walls because I couldn't walk straight, and had almost knocked them off. A stark reminder of the pre-gluten-free ataxia & vertigo precautionary measures taken.

But I do buy raw cashews to roast. Yumyum.

Glad u plan on re-doing a test w/out tempt-nut-tation.

If I'd had soyDelicious (ice cream) in the freezer when I tried to test, there is NO way, we're talking ab-so-LUTE-ly no way you would've had to create a "Lymify" word.

And I still wish I had even a remote theory on why it could take me 10days to be sure.

A 3day delayed reaction still leaves it at a full week, and I don't remember any recommendations to test for a whole week.

Whatever the reason, I hope my new group of friends here keeps it in mind.

I expect to be too busy during the trip to keep up, but I'm sure I won't be able to resist telling friends about what a community I stumbled upon.

It's not *too* crazy to think there's an addiction to visiting a virtual town is it??

I'm sure there'll be moments betw RL interactions when my pocketed conduit to R'ville will allow me to not get TOO many pages behind hehe , but otherwise see y'all Sunday!! (And from airports )

[dlp252]

Hey Tom, if I can keep up while in Jamaica, Panama Canal, Costa Rica, etc., you CERTAINLY can in San Jose! What, do you have a life or something!? !!!

Have fun traveling today!

[Rachel--24]

Donna...double thanks for sending me Amy's presentation!!

I LOVE it.

Yeah...even if I've seen it all before... its really nice to have everything all together like that. Its organized and very easy to read.

I also love her quote at the bottom of her article.

-Great spirits have always

encountered violent opposition

from mediocre minds.-

-Albert Einstein

This test...

Asyra (the newest and most advanced computerized technology that looks at underlying causes of illness, rather than just acute stressors)

...she just got this machine and shes using it to test my saliva to see if the LED would be useful treatment for me. She was really impressed with the accuracy of this test...she said she was totally convinced and had to get it.

She said this testing could pick up things that may have been missed in all other testing...even ART.

I still havent heard anything back about the results. The nurse said it was gonna take a couple more weeks I think. She was doing it complimentary so I'm just waiting patiently till I hear something.

Theres alot good stuff from her presentation so I'll probably post some of it here.

I've come to realize through this thread that biotoxins are EVERYWHERE . Honestly, if we keep up the way we are, I think humans will be extinct in the next 200 years.

Bev, I've thought about that too. I never thought about how many years it would take but yeah....I think unless there are some significant changes this is where we are headed for sure.

I also think thats why bugs like Lyme have become such a serious threat....we create that environment for them. They would not thrive in a clean and healthy body. Its the constant exposure to toxins from *everywhere* which have accumulated in our own bodies and allowed these bugs to multiply....and from that we get disease and chronic illness.

Our bodies just werent designed to handle the amount of toxins we're exposed to every minute of every day. And sure...maybe we would all be able to cope with some exposure to mercury on a daily basis...if we were not also dealing with thousands of other toxins on top of it....and then the bugs come in.

It sucks and its a real wake-up call. When each year more and more of the kids are developing Autism...and chronic disease (with no known cause) is more and more common....something is clearly wrong...and its environmental. I dont think people are paying attention.

Those kids have infections...they have Lyme, they have yeast, they have viruses, they have heavy metal toxicity, they have food intolerance, they have leaky gut, they are unable to detox...sound familiar??

These kids are TOXIC....and they've only been in this world a very short time before their bodies have broken down from this.

Its all very scary and I dont think anyone will understand until they are directly affected by it....unfortunately the chances of that happenning are increasing every day.

[rinne]

....

The house is a huge stress point for me...I feel a bit stymied. Can't afford to do much and don't have the energy or experience to do a lot myself. I figure I just need to start by getting rid of stuff...I have a lot of stuff. Stuff holds onto dust which also holds onto mold. I don't dust. If I get rid of stuff, it won't be so overwhelming to keep it clean. Doc really wants me to get rid of my carpet though! Before I do that I have to get rid of stuff. See what I mean...

Yes, this is one of the things that encouraged my LLMD yesterday...my CD57 score was decent...not wonderful, but he does use it to indicate how hard my struggle might be with recovery.

.....

I know what you mean about stuff.

Sorry that it is such a stress though. What about packing one, doesn't have to be big, bag a day of things you just aren't that attached to and when you have a collection of them calling the Diabetes Foundation, up here in Canada they pick up from your house every couple of months, or someone like them.

I know when I am overwhelmed if I can pick a specific small task I can do it helps to get me motivated.

I finally tackled, well am tackling, three years of papers I've been avoiding. About half of them are now currently stacked in neat piles across my living room. I realized avoiding it was making me feel worse.

Good Morning,

Would it be out of line for a new girl to send hugs?

....

You may send me hugs anytime you like.

I'm glad you found us.

....

Sometimes I am fortunate to be one of the FIVE gluten sensitive people here at work.

...

Five.

I think I would find it dangerous.

Well...I guess I dont have too much trouble with the scientificness...however, the actual discussion ABOUT science....WOAH...totally a different story.

Like Jin....I think my brain went fritzo on me....my head was hurting alot.

Yeah...that does seem odd....I think I'd be pretty apprehensive to go back there myself. Sounds like he's phobic but yeah....totally weird and random to be bringing that up at your session.

....

Glad to know that you would feel weird too.

Lisa- I was thinking about this last night. Not sure but if you're having such stomach problems right now you could consider eating baby food...I'm thinking about getting some for my next herx because you NEED to eat but baby food would be easier to digest and have nutrients you need. Has anyone tried this?

....

Not the baby food but I basically ate a diet that could be fed to a baby, my theory was that I should treat my stomach as gently as possible. It helped.

...I expect to be too busy during the trip to keep up, but I'm sure I won't be able to resist telling friends about what a community I stumbled upon.

It's not *too* crazy to think there's an addiction to visiting a virtual town is it??

I'm sure there'll be moments betw RL interactions when my pocketed conduit to R'ville will allow me to not get TOO many pages behind hehe , but otherwise see y'all Sunday!! (And from airports )

Have a great holiday.

Just be aware that many people will look at you very oddly when you start talking about the dingos and the spinaching and the .....

[CarlaB]

Carla - wow, I had never heard of klebsiella until they told me I had it back in January, lol.

Me either, I had never heard of it until you were diagnosed with it! Sounds like a sausage.

I'm telling you, only one day on Cipro and my stomach feels better than it has in four years. Is this possible??

seems that the consensus is to take the probiotics a half hour or so before food... I know my mom takes her probiotic in the morning before eating... I might run it by my nutritionist for her perspective but I'll probably start taking it before food instead...

My problem was that four times per day I was taking abx with meals, so it would have to be an hour before meals. I don't think it's food that's key ... it's the empty stomach, then time for the probiotics to get to your intestines.

lymetoo who always mentioned them on the candida threads

Lymetoo likes Theralac. You can take it with whatever else you are taking. It has something like 15 kinds of bacteria.

I know it's not quite your schedule carla

I have two separate items to be taken two hours apart from everything else ... one is taken twice per day ...

I was taking amoxy three times per day ... the other meds two and supplements two. So I ended up taking the amoxy with supplements. My PA didn't want me doing that ... I told her it was impossible not to and still take everything ... so she switched me to a different amoxy. Let's just put it this way ... I could open an amoxy store with all I have leftover!! LOL

So, the two times per day abx is going to make it so much easier.

I stay with him because heavy metals is my main issue and hes been doing chelation/detox for alot of years. I think one of the most experienced in the area.

I think you would feel better if you knew how he intends to proceed with you.

If you end up feeling like you're not making progress with Dr. S. I would ask Scott about some of the other Dr.'s...I'm sure he knows all of them and can give you some feedback on who would be best for your situation.

All good advice.

I think all these docs have their way of doing things and if it's not working for you, go to someone else who fits your needs better.

great to hear that... amazing, at least to me, that her headaches cleared up just like that... just such a foreign concept to me to not have a headache... though for a while now, mine have generally been much less intrusive and more benign than they used to be

Yes, I was surprised, too ... but I had symptoms that improved immediately upon starting treatment, too. Headaches was never one of my symptoms. I'm glad your are improving.

Remember that with Chloe there were no major health issues. It was only because of her minor complaints and her history that we even pursued diagnosis. You and I were pretty sick when we got diagnosed, so she's bound to have issues clear up before we do.

[AndreaB]

there is lots of little news but the big news is my appt. was moved up with the new doc and it is today at 10:30 - thats like an hour from now. I am very anxious!!!!!!!!

Can't wait to hear how it went!

Sorry about the stool test......that seems to be the way things go.

I can't tell you how nice it is to be "forearmed" about this though. My husband thanks you too. He'll also not be going to our regular dentist - we're both metal mouths. The desire to get this worked on isn't new to us - being informed ... that's new. We've both wanted to do this long before I was diagnosed with the kidney thing.

I'm glad you popped over and that both you and hubby are learning. I also agree it's a good think to nix the smoking. Your body will love you for it.

Sometimes I am fortunate to be one of the FIVE gluten sensitive people here at work.

That can be good and bad......good because of no cc with gluten, bad if it has other things that you can't tolerate.

400,000

I think that would be views and the posts are in the 19,000 range.

I'm sure there'll be moments betw RL interactions when my pocketed conduit to R'ville will allow me to not get TOO many pages behind hehe , but otherwise see y'all Sunday!! (And from airports )

I'm sure you'll manage to jump in here once in awhile. Have a fun trip.

Hey Tom, if I can keep up while in Jamaica, Panama Canal, Costa Rica, etc., you CERTAINLY can in San Jose! What, do you have a life or something!? !!!

Have fun traveling today!

True.

This test...

Asyra (the newest and most advanced computerized technology that looks at underlying causes of illness, rather than just acute stressors)

...she just got this machine and shes using it to test my saliva to see if the LED would be useful treatment for me. She was really impressed with the accuracy of this test...she said she was totally convinced and had to get it.

She said this testing could pick up things that may have been missed in all other testing...even ART.

I still havent heard anything back about the results. The nurse said it was gonna take a couple more weeks I think. She was doing it complimentary so I'm just waiting patiently till I hear something.

I'll be waiting to hear about this too.

The world is definately getting more toxic. There is only so much we can do when the bigwigs don't want to change.

[CarlaB]

my sister got her Igenex western blot results a couple weeks ago:

IGG: Positive - 18, 41, 58; Indeterminate - 31, 39

IGM: Positive - 18; Indeterminate - 34, 39, 41, 83-93

Chloe's test was "less positive" than this one, so I can say that my doctor would treat your sister. My LLMD is looking for abx response in Chloe, and we're getting it. Though her headaches are better, her joints hurt more often.

Morning to my sweet friends.

love this place.

I feel a miracle of some kind is coming, just don't know how or when.

nighty'night

Part of the miracle is finding out what's wrong. From my experience, that's at least half the battle.

Now you can progress with treatment to get better.

I lift weights, but I don't squat nearly what you described! For me it's the bar plus a 10 pounder on each side!

That new property would be nice! I think it is wise that you decided not to do too much too fast. Your health needs to come first. After all, how can you enjoy the place if you are too sick? Let us know if you end up buying it!

When I posted here, I already knew we were buying it. We have a contract on it and will close in July. I hope to open my shop next spring.

My BIL was concerned, until he saw it ... then he wanted a piece of it! It's a beautiful place, is in GREAT shape ... the lady who lived there maintained it well and kept the original stuff .... for instance, the push button electrical switches. The floors have been covered by carpet as long as she can remember, so I would guess the wood is in good shape. The woodwork is still stained ... and looks GREAT. Anyway, BIL is excited!

Have good days !

kat

Kat, smoking less must be agreeing with you ... you wrote out your whole name!!

Sounds like you've come up with a good plan.

[Rachel--24]

Heres some stuff from my Dr.'s presentation on alternative methods to help guide Lyme treatment:

Keeping the system in balance

toxins in

↓

Body load

↓

toxins out

Toxic Burden

People who become symptomatic with Lyme disease have a high toxic load, such as:

Lyme neurotoxins and co-infections (Borrelia, Bartonella, Babesia, Mycoplasma, Ehrlichia, Rickettsia, Chlamydia)

Heavy metals

emotional burden

Toxic scars (especially if developed just before the onset of illness, if it is a scar that goes straight across the abdomen or if it is near the area of most symptoms)

Pthalates or other environmental toxins

High microbial load (molds, parasites, viruses)

Food allergies, increased intestinal permeability and decreased nutrient absorption

This is why it often takes more than just a targeted Lyme medication to get well

Simple changes to help reduce body burden

Limit chemicals used at home- hairsprays, perfumes, candles, cleaners (good cleaning option is vinegar and castille soap)

Diet- Stop the junk food, caffeine and alcohol

Diet- If not doing lab testing at least try to avoid major food allergens like gluten and dairy and choose foods containing fewer artificial ingredients and preservatives - Gluten and cow dairy increase the mucoid layer in the intestines and contribute to inflammation and poor nutrient absorption (A food allergy elimination diet like the LID diet Dr. Singleton suggests is best)

No fluoride in the toothpaste (this can disrupt hormones)- try using xylitol or herbs to keep plaque formation down. Also start using a water pik and Sonicare toothbrush

Stop smoking

Use more natural body care products

Don't cook in plastic or put in the dishwasher (plastics can chelate Mg & Zn)

Reducing body burden

Choose organic meats and dairy (i.e. chicken is full of arsenic)

Use a good quality air filter in your bedroom (IQ Air or Nikken are great)

Clean carpets and bedding regularly (If you have had mold issues, consider replacing carpets altogether)

Find a biological dentist

Check for geopathically disturbed sleeping location- cordless phones, cell phone towers, electrical smog, computers, etc

Be cautious about vaccines (thimerosol)

Drink plenty of water and consider adding electrolytes

Keep the bowels moving

Get enough sleep

Light exercise or at least some stretching to keep the lymph and circulation flowing (Emphasis on full body strengthening and flexibility vs aerobic)

Lab testing essentials

Thyroid panel- TSH, fT3, fT4 and antibodies

Chem panel and CBC (WBC's less than 4.5 strongly indicate to test for Borrelia)

Genetic testing of detox pathways to identify glutathione or methylation defects, among others

Hair metal analysis (good 1st step since not requiring provocation)

Porphyrin testing

Herpes, EBV and CMV viral panels

Complete stool panel (CDSA)

Vit D levels (25 hydroxy and 1,25 hydroxy)

Coagulation studies or fibrinogen

Hormones/Adrenals

Lab testing (cont)

Food allergy testing (either by blood, ART or electrodermal testing)

ANA

CRP and ESR

CD57

Western Blot for Borrelia (Lyme) using Igenex or MDL Since it is looking for an antibody response, it is ideal to first treat with herbs for at least 6 weeks before testing if the condition is chronic

Fry's Lab and Central Florida Research Lab also offer useful Lyme labs

Checking for co-infections (Igenex or Fry's)

Urinalysis for metals and minerals, following provocation (DMPS, DMSA or EDTA)

[happygirl]

its approaching 400,000 views, not posts . We are at 19,426 posts. I knew something was off if Rachel hadn't posted the majority

And yes, that car is mine as of Friday afternoon. I'm buying it in PA and I'm heading home tonight to get it. 2007 Toyota Camry, white....with a sunroof, 6 celiac disease changer....I'm excited, needless to say