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Omg...i Might Be On To Something


Rachel--24

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jerseyangel Proficient

Hi Jin,

I'm glad you appreciate some of the older music. My sons do, too, and enjoy 70's rock as well as other types of music.

America did Sister Golden Hair ;)


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UR Groovy Explorer
So......I probably won't be around much....needless to say I am not in the best of spirits these days. :(

Tchhhh ... I'm sorry the news wasn't better. Wish I could say something to make it better. Hugs.

Dear Kat,

Have you made any new progress on your mercury filling situation? I know you have quite a few of them. I did not think you had any appointments yet. Like the others, you will probably have to shop around a bit. The right dentist is out there somewhere!

Well, Jin, I've had a bit of an issue figuring out what to do first. I've looked into it & it looks like there's a group in San Diego that can help me with my first step. They appear to follow good protocol and can refer to practices that can help me with the nutritional and mercury diagnostic stuff.

I'm going to get rid of the smoking first. The plan is to quit the 5th (can't quit on the 4th of July ! - any excuse to prolong the agony). I'll be supporting the detox of cigarettes with lots of water (distilled), plenty of B Vitamin support and the usual anti-oxidant stuff. After that, when I'm sure I've done everything to support detox, I'll set the appointment.

I'm excited, afraid, nervous, anxious, and looking forward to dealing with this. It's going to take a while with 9 amalgams - I'm taking everyone's advice & I'm going to make sure I'm prepared and that I don't do too much at once.

I'm going to need a little help when I get the ball rolling.

I thought this was intersting.

Andrea, this is my biggest issue - right here. Along with my kidney condition comes extreme LDL numbers. My cholesterol has been as high as 575 total. It's very typical. Oxidation and Free Radical issues go hand in hand with what I have. I'd like it to just go away. I feel like a ticking timebomb.

I suspect that a lot of my problems started when I was a little kid. I was hospitalized in a Isolation unit for 2 weeks when I was 2 years old with a strange strain of the Herpes Virus.

Interesting information.

Rachel, you've been an enormous help in me sorting all this out (and everyone else too). I feel like I have a clue of what I'm looking for and what I'm facing.

Happy & safe 4th's of July everyone.

CarlaB Enthusiast

Susan, sorry about the bad news. When things are bad, this is the place to be for support ... there's no need to feel like you're the entertainment committee!! Stick around and lean on us, we're here for you.

NoGluGirl Contributor

Dear Patti,

I am duhing myself now! :lol: I knew that it was America! Weren't they the ones that sang "Riding Through the Desert on a Horse with No Name" as well? I like that one, too! I also like John Denver, especially "Rocky Mountain High".

Let's not forget "Incense and Peppermint" by Strawberry Alarm Clock! :) David Cassidy's "I Think I Love You", and of course Blondie's "Heart of Glass". Did you know Debbie Harry did the first rap song, which was "Heart of Glass?" Most people do not know that. They thought it was invented in the 80s by hip-hop artists.

Dear Kat,

It is wise to take a slow but steady approach. Smoking is very bad for your system. My father smokes. Despite me being asthmatic as a child, he ignored that. I know it is an addiction, but when you get Broncchitis like I did, you would think he would have been more careful.

There are a lot of bad chemicals in those things. I guess being asthmatic saved me from that in a sense. Many people I went to high school with were trying to use the gum to quit by sophmore year! I am glad I never started! It is so difficult!

The amalgams are something you have to do in baby steps. It wounds like you are off to a good start. Before you know it, you will be mercury-free and in good shape! There are many problems that could arise. Luckily, since you know who to talk to, you could avoid some of the pitfalls with proper supplementation and procedures.

Sincerely,

Jin

jerseyangel Proficient
Dear Patti,

I am duhing myself now! :lol: I knew that it was America! Weren't they the ones that sang "Riding Through the Desert on a Horse with No Name" as well? I like that one, too! I also like John Denver, especially "Rocky Mountain High".

Let's not forget "Incense and Peppermint" by Strawberry Alarm Clock! :) David Cassidy's "I Think I Love You", and of course Blondie's "Heart of Glass". Did you know Debbie Harry did the first rap song, which was "Heart of Glass?" Most people do not know that. They thought it was invented in the 80s by hip-hop artists.

Interesting about 'Heart of Glass'....I had the album (ha, remember those?) and I never heard it refered to as rap. Speaking of Blondie, their song, 'The Tide Is High' will always remind me of the birth of my first son. I had my radio with me in the birthing room, and that song came on not long before he was actually born. To this day, when I hear it, I smile :)

I had no drugs whatsoever, and the music helped keep me calm. :rolleyes:

Yea--America did 'Horse With No Name', too. That was a huge hit--I was still in high school at the time.

Rachel--24 Collaborator
Tom, what is bad about the chicken with skin and bones? Is it the fat? I eat that part FOR the fat ... I'm taking Mepron and need a high fat diet ... but I'm curious what problems it was causing for you. Is it that as a celiac you have trouble with fat?

I've read that the gelatin in the bones is very good for you, but you do have to boil them to get it out.

This also creates alot of free glutamates....some people react to glutamates. I always got really sick from boiling meat in water....especially the chicken with bones. This is also why I take all of my supplements out of their capsules...gelatin.

MSG is listed on Andreas post:

Lead, mercury, monosodium glutamate (MSG) and fluoride can also cause the same set of inflammatory reactions in blood vessels.

MSG is made from free glutamates....a person with alot of toxicity can easily develop problems with glutamates. I wouldnt be surprised at all if this werent contributing to alot of the immflamation in Lisa's intestines.

Its kind of like the dentists always telling you flouride is good for your teeth....I dunno....my body tells me something completely different about flouride. <_<

Its one of the first things I realized I couldnt tolerate...right up there with Aspertame. Its been over 3 years since I've used toothpaste or anything else with flouride. A couple times I got in a situation where I just needed to brush my teeth and thats all that was available.....HEINOUS reactions from toothpaste w/ flouride. :(

Flouride is also listed as a neurotoxin...along with MSG and the others.

I dont think I'll ever boil chicken bones in water for broth again...I think I'm traumatized. :ph34r:

Lisa, I agree with everything Carla said about your mom. Shes not gonna want to help you if she thinks you're listening to a bunch of people online instead of the Dr.

You do need to talk to your Dr. and explain to her that you're very sensitive. Supplements bother you, chemicals bother you, molds bother you and most foods bother you. She needs to know this.

You're most likely not going to able to tolerate the supllements when you're starting out with normal size doses. Like Carla said....you should only be starting out with tiny doses.

My Dr.'s have never started me out on full doses of anything. I'm usually taking WAY less then what is considered normal. My Dr. knew right off the bat just from knowing that I have chemical sensitivities that I would not tolerate supplements.

Its not like I'm the only person who's this sensitive...he's treated lots of people like me and recognizes that I cant just take any supplement he wants me to take....no matter how good it might be. I can react to anything.

Like Rinne said...you should find out if your Dr. has treated people who are as toxic as you are. If she has then she should know that all these different supplements at regular doses is very likely to make you sick.

tom Contributor
Dear Rachel,

Dear Lisa,

Dear Claire,

Dear Patti,

Dear Laura,

Dear Kat,

Dear tom,

Dear Donna,

Dear Andrea,

Dear Bev,

Carla,

Dear Robin,

Dear Susie,

Dear Rinne,

Dear Sherry,

Holy mole sauce Jin!!!

Tappy Spice is really workin' it on THIS one! :):lol::)

(How *does* she do it?)

Did I delete too haphazardly or did Carla get an "un-Dear-ing"? Hehehehehe

Contrarian Spice thinks it's part of a coded message to your handlers at "The Company", but I just think it's either my deleting or the rare Jin typo.

FIFTEEN ppl in one response!! And probably multiple posts for each person. I know the "dear tom" chapter must reference at least 7 of my posts!!

How *does* she DO it!?


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Rachel--24 Collaborator
I have a question about air conditioners, i.e. window shakers, I am wondering if sitting directly in front of one could have triggered the migraine, nausea - throwing up, etc. last night. I was only in front of it for about ten minutes but then I got a headache which turned into the migraine.

I was going to say the same thing Carla said. Awhile back I had problems with the heater...and before that it was the air conditioner. Theres mold and dust blowing out....and yeah...it got me sick. :(

I put out bowls of water and collected stuff from the "environment" in a couple rooms in my Moms house cuz I suddenly felt alot worse. At BioSET they tested the water and said I was reacting badly to something in the room I sleep in.

It was because the heater had just started coming on and the other room where I left water did not have a vent...my room does have a vent and the water collected all that mold and dust that I was reacting to. We shut off the vent and I felt alot better.

I haven't posted because the MRI news is just SO SO SO not good. I am just grieving now, I suppose, and when I rally back, will become aggressive and try and find out what to do.

Susie....lots of hugs for you...I'm sorry about the MRI results. :(

I agree with Carla though...this is a place for support...this is where we come to feel better, to vent and to just be ourselves...no matter if we're sad, happy, angry, etc. ;)

I thought this was intersting.

Andrea...thanks for the scientificness. :)

I'm excited, afraid, nervous, anxious, and looking forward to dealing with this. It's going to take a while with 9 amalgams - I'm taking everyone's advice & I'm going to make sure I'm prepared and that I don't do too much at once.

Well....to me it sounds like you're informing yourself and taking all the right steps to make sure things go the best way possible. I'm glad to hear it...and especially glad you're quitting the smoking first. Good for you! :)

Susan, sorry about the bad news. When things are bad, this is the place to be for support ... there's no need to feel like you're the entertainment committee!! Stick around and lean on us, we're here for you.

Yeah Susie Q......lean on us...thats what we're here for...not just the good times but the bad ones too. :wub:

Rachel--24 Collaborator
How *does* she DO it!?

Me thinks she takes notes. ;)

tom Contributor
Let's not forget "Incense and Peppermint" by Strawberry Alarm Clock! :) David Cassidy's "I Think I Love You", and of course Blondie's "Heart of Glass". Did you know Debbie Harry did the first rap song, which was "Heart of Glass?" Most people do not know that. They thought it was invented in the 80s by hip-hop artists.

Slow down there Miss Born-After-It-Happened!! LOL :)

I'm trying to read thru then jump back to post, but I can't let this slide.

1) Blondie's oft-overcredited "1st recorded rap" song was titled Rapture.

2) She never claimed to be doing anything more than mimicking what was goin' on on the streets. The rappers just hadn't yet gotten into the then-prohibitively-expensive recording studios. (Very pre-digital) (some home recordings made for very local distribution tho)

3) Many vocalists of all skin-tones had rhythmically spoken lyrics for decades, IMO. (IMNSHO?)

4) Blondie does sing in parts of "Rapture". The Stones' "Memo from Turner" in 1969 was *entirely* spoken rhymes, yet probably ALSO is not the 1st recording of same. Certainly, like most major shifts in music since the birth of jazz, it was mostly a 'black thang'.

5) "No pooftahs!!"

<hush C.Spice!!>

6) "there IS no #6!"

<grrrrr I better stop> :lol::P:o

tom Contributor
Me thinks she takes notes. ;)

Methought that too, until recently.

Me has heard otherwise. ;)

P.S. Yay rain stopped at Wimbledon. Mauresmo goin' down! :P (Hey not *that* way, gutter-mind! <u know who u are> :lol::P)

Vaidisova steamrollin' last yrs' grass champ in 3rd set!

NoGluGirl Contributor

Dear Patti,

I have never heard "The Tide is High". That is great that it was playing while you gave birth! There is a song for every feeling! It is amazing the effect music has. You have birth without medication! Any woman who does that should probably receive a gold medal! :)

I also love The Carpenters. Karen's voice is close to my key. I am a second soprano, but can sing some of their songs. Doris Day is another great singer. She could sing jazz or soft and pretty.

"Fever" by Peggy Lee is one I like a lot, too. It is also fun to sing. Aretha Franklin is a favorite with "I Never Wanted", and "Respect". Simon and Garfunkel have some songs I enjoy, too. I actually only have one artist where I like every single song. That artist is Billy Joel. "The Piano Man", "It's Still Rock'n Roll To Me", and "Uptown Girl" are just a few of them.

Dear Rachel,

Flouride is deadly to the Thyroid. You have Graves. No wonder you reacted so badly to it! I heard flouride is not necessary for dental health. There is evidence that supports this.

For instance, the ancient Greeks had the healthiest teeth in history. They did not use flouridated toothpaste. They just used twigs or linen cloths to scrape their teeth clean. You have to wonder how come today even though me and a lot of other people could use special mouthwash, toothpaste, and toothbrushes, and still have bad teeth. Chances are, the flouride is not helping us!

Hey, I was thinking about Lisa's situation. The glutamates are one possibility. Also, what about mold in the zucchini?

It is squash. Didn't tom talk about how cucumbers need peeled because of that? It is in that food family! Maybe she needs to peel the squash and zucchini. What do you think?

Yep, I cover a lot! :lol: Actually, your hypothesis is correct. I do take notes, but not while at the computer. I read everything first. Then, I tap my memory buttons on my head. After that, I go upstairs and write down everything I remember and make an outline. Later, I come down and type out what I want to say.

Dear tom,

I do not know what happened with Carla's! I think I might have put someone else's name and erased it, then did not realize I erased dear. Carla is now re-deared! Sorry about that Carla! I could have sworn it was there when I posted it! :blink:

Hey, I may be young, but I ain't dumb! Give me some credit. So you know more about the history of music than me.

Big whoop! What do you know about hydroponics? :P (Contrarian Spice did it again!)

Here he goes trying to start trouble. I did not put that! Yes I did! Hey, stop that Contrarian Spice! Don't make me get Dollface after you, CS! :angry::P

Dear Mia,

I see you! :) Do you have any appointments today? That therapy sounds like it is helping. Is it an every other day thing? Or do you go twice a week?

Sincerely,

Jin

tom Contributor
Doris Day is another great singer. She could sing jazz or soft and pretty.

"or"?

. . . . . . . . .OR????????!!!!!!

I contend that most jazz vocal standards are soft and pretty. I could name dozens but I'll leave it at "My Funny Valentine" & "Softly, as in a Morning Sunrise" (wth other kind of sunrise IS there??) & "The Nearness of You".

All spectacular and I've literally listened to multiple versions of each in just the last 4 days!! :P:lol:

Then, I tap my memory buttons on my head.

Hence my Tappy Spice reference, surely understood by none but u, Tappy!! Rofl :lol:

Big whoop! What do you know about hydroponics? :P (Contrarian Spice did it again!)

Here he goes trying to start trouble. I did not put that! Yes I did! Hey, stop that Contrarian Spice! Don't make me get Dollface after you, CS! :angry::P

I may be far more familiar w/ hydroponics than u think. One old buddy ended up doing hard time after a law enforcement personnel's accidental pointing of an infrared measuring device at his house. :(

C.Spice does not like to think of WhatWouldDollfaceDo & hurriedly skeedaddles!! :lol::o:P

jerseyangel Proficient
Dear Patti,

I have never heard "The Tide is High". That is great that it was playing while you gave birth! There is a song for every feeling! It is amazing the effect music has. You have birth without medication! Any woman who does that should probably receive a gold medal! :)

I also love The Carpenters. Karen's voice is close to my key. I am a second soprano, but can sing some of their songs. Doris Day is another great singer. She could sing jazz or soft and pretty.

"Fever" by Peggy Lee is one I like a lot, too. It is also fun to sing. Aretha Franklin is a favorite with "I Never Wanted", and "Respect". Simon and Garfunkel have some songs I enjoy, too. I actually only have one artist where I like every single song. That artist is Billy Joel. "The Piano Man", "It's Still Rock'n Roll To Me", and "Uptown Girl" are just a few of them.

I like the Carpenters, too :)

Doris Day makes me think of my dad--while I was growing up, he liked her and had several of her albums. My mom liked Frank Sinatra :lol:

We saw Billy Joel (with Elton John) a couple years ago in Philadelphia. It was fantastic. My fav by him is 'Leave a Tender Moment Alone'--but I love all his stuff.

How did we turn this into the 'down memory lane with music' thread? :lol:

Love Aretha Franklin! I cut my teeth on soul--all the great stuff that came out in the late 60's early 70's. Wilson Pickett, Gene Chandler, Jr. Walker, gosh, so many. I get carried away talking about this stuff :ph34r:

UR Groovy Explorer
Andrea, this is my biggest issue - right here. Along with my kidney condition comes extreme LDL numbers.

Upon further investigation, I realize that I misread the point of the scientificness. I do that.

However, I can say that my LDL cholesterol has become a very irritating substance.

Mtndog Collaborator

I need to go back and catch-up but....I need the citizens of Rachelville to come to order. I have a big conundrum and I need y'all to weigh in on this. I got a phone call from my friend who works at Stanford and is going to teach writing to middle school students in Seoul, Korea for 2 weeks in August. She and I used to teach together in CA. The other person going with her can't go and they want me to go.

It would be August 5-18th. All travel expenses paid (flight and hotel) and a stipend for food. Apparently they treat you very well. At the end of the trip we have the opprtunity to travel to Jeju island and go to a lotus festival and visit Tokyo and Kyoto on the way home. So more likely a 3 week trip.

There is NO doubt that this is an incredible opportunity but the question is, between the lengthy travel and teaching, am I asking too much of my body? I put in a call to my Lyme doc and will call my primary but you guys know me better than them (much more details- probably too many :P ).

I want you my dear citizens to weigh in- is this even reasonable to consider? What do YOU think I should do? I would love to go but I don't know if my immune system is up for this.

Thank you all in advance- I consider you my official council (ha and counsel!)

Mtndog Collaborator

One thing I DO want to say is Lisa........ You ARE gonna make it. There have been days I think when many of us thought this and we are still here. You WILL get well.....I just know it. Do what you need to do, listen to your body and talk to us. There's always an open ear in Rachelville and a shoulder to lean on when the going gets tough. :wub: :wub: :wub: :wub:

CarlaB Enthusiast

Bev, that's quite the opportunity!

I know that when I've needed energy for an event, I have found it. However, never for a three week period. I know for a fact that unless I could back out of something and stay in the hotel if I needed to, I would not be able to do it.

Do you feel that good? Could you do it today?

What happens if you herx when you're there, can you take a few days to recover?

I can see how this will be a hard decision to make. On the one hand, it's an opportunity of a lifetime ... on the other, will you realistically be able to handle it?

What are your own thoughts on the matter? You need to be really honest with yourself on this. If you can do it, that's great, if not, you have to say no.

I know, I'm no help, but ultimately you will have to figure it out ... I would say if you were herxing, it would be nearly impossible. If you were healthy ... well, only you know how good you feel then.

Will you have any trouble taking your medication into those countries? We don't want you to end up like Stallone! ;):lol:

miamia Rookie

ok i have not posted that much becasue for some reason i cannot get on to this site from my house right now- very frustrating. but i have some kind of big news. I got test results back and on one stool test- one is still pending- they found yes lots of candida and an AMOEBA!!! I named him Gus.

The bigger one though is i got my metal toxicity test- and this is a huge problem for me it turns out. elevated were- CAdmium, Lead, mercury, nickel and tin. Lead went into very elevated along with aluminum.

I had my first chelation today and will be going once a week. It has made me feel really bad right now and I am only doing 1/3 of the normal dose becasue he know i am so sensitive. I don't feel like i can wirte that much right now but i just wanted to tell everyone the news

Miamia

AndreaB Contributor
I'm going to get rid of the smoking first. The plan is to quit the 5th (can't quit on the 4th of July ! - any excuse to prolong the agony). I'll be supporting the detox of cigarettes with lots of water (distilled), plenty of B Vitamin support and the usual anti-oxidant stuff. After that, when I'm sure I've done everything to support detox, I'll set the appointment.

Sounds like a very good plan. :) We are here for you.

Susan, sorry about the bad news. When things are bad, this is the place to be for support ... there's no need to feel like you're the entertainment committee!! Stick around and lean on us, we're here for you.

Ditto.

This also creates alot of free glutamates....some people react to glutamates. I always got really sick from boiling meat in water....especially the chicken with bones. This is also why I take all of my supplements out of their capsules...gelatin.

MSG is listed on Andreas post:

MSG is made from free glutamates....a person with alot of toxicity can easily develop problems with glutamates. I wouldnt be surprised at all if this werent contributing to alot of the immflamation in Lisa's intestines.

I dont think I'll ever boil chicken bones in water for broth again...I think I'm traumatized. :ph34r:

I'm a little paranoid about chicken broth now too. Since the time I made chicken broth and added blended up chicken I haven't had it again. It must have been to much free glutamates for me since I got a migraine type headache afterwards.

I want you my dear citizens to weigh in- is this even reasonable to consider? What do YOU think I should do? I would love to go but I don't know if my immune system is up for this.

Thank you all in advance- I consider you my official council (ha and counsel!)

I'm very curious as to what your doctors have to say. I know you'd have fun if your were healthy and didn't herx while you were there.

I don't know that I'd want to go and deal with a herx, possible reactions to foods, etc.

I just think it might be too soon.

You have to listen to your body and get answers to whether you could stay holed up if you got sick.

Be honest with yourself.

AndreaB Contributor
they found yes lots of candida and an AMOEBA!!! I named him Gus.

The bigger one though is i got my metal toxicity test- and this is a huge problem for me it turns out. elevated were- CAdmium, Lead, mercury, nickel and tin. Lead went into very elevated along with aluminum.

I had my first chelation today and will be going once a week. It has made me feel really bad right now and I am only doing 1/3 of the normal dose becasue he know i am so sensitive. I don't feel like i can wirte that much right now but i just wanted to tell everyone the news

Miamia

What's Amoeba? :huh:

I'm not surprised about the metals though.

I hope the chelation doesn't leave you feeling bad for too long. :(

I'm glad you are getting some answers though. :)

CarlaB Enthusiast

Miamia, I'm so glad you got some answers!! Gus :lol::lol: !!! Gus paid me a visit in Mexico City, it was a severe, acute attack and a doctor had to come to the house where I was staying at 10PM. He made my roommate go to the airport pharmacy by subway to get my meds immediately.

I think it was amoebas ... I'm almost certain, but in the condition I was in I was having trouble with my Spanish! I lost something like 10 pounds in about 4 days ... it all came back, plus some, once I got better.

I don't know if it's the chelation that's bothering me this month, or if it's a herx from the Cipro. Either way, I'm supposed to feel good right now and I don't. :(

I'm glad you will be working towards getting better!!! YAY!

tabasco32 Apprentice

Hi all

I am at the library again. This time because someone is baking a pizza at home and the smell of that stuff makes me ill.I know it's the gluten a junk in it. But you know, they have to have their glutounous stuff, which I don't feel I should restrict them from.

I restrict them from most other things. Anyways Susan I am sorry to hear about this thing happening to you. Hope you feel better soon. I know that it's hard. Chronic pain is not fun.\

Miamia how did you get so toxic? Filling, fish, or what?

Rachel

How do you cook your chicken? I am figuring out that this is true about boiling my chicken because last night when I ate it my gut at the bottom expanded and hurt. I don't know where else to cook my chicken.

I can't pan fry nothing, it hurts more. I don't want to use the same ovens as my mom does to make cookies and pizza and stuff. Can you not boil anything? Even if it doesn't have bones on it.

I can't stop going poop. It's not diarrhea just normal don't float poops. THey just won't stop coming out all day today and yesterday. I must have been really backed up.

I took that fiber stuff, just a sprinkle and I had to go right away. I think there is mold in it. MY doctor says there's not, but I saw prunes, citrus something and cranberry something. This would be considered mold right?

Also Rachel

What do you think of apple pectin? DO you think pectin could have mold since I think it is dried skin from apple and meat from apple?

Do you ever juice your own fruit like apples or carrots?

Time is running out need to reserve again

lisa

Rachel--24 Collaborator
Rachel

How do you cook your chicken? I am figuring out that this is true about boiling my chicken because last night when I ate it my gut at the bottom expanded and hurt. I don't know where else to cook my chicken.

I can't pan fry nothing, it hurts more. I don't want to use the same ovens as my mom does to make cookies and pizza and stuff. Can you not boil anything? Even if it doesn't have bones on it.

I can't stop going poop. It's not diarrhea just normal don't float poops. THey just won't stop coming out all day today and yesterday. I must have been really backed up.

I took that fiber stuff, just a sprinkle and I had to go right away. I think there is mold in it. MY doctor says there's not, but I saw prunes, citrus something and cranberry something. This would be considered mold right?

Also Rachel

What do you think of apple pectin? DO you think pectin could have mold since I think it is dried skin from apple and meat from apple?

Do you ever juice your own fruit like apples or carrots?

Time is running out need to reserve again

lisa

Lisa,

I'll respond to your post first since time is running out. ;)

No...I dont boil any meat at all....it causes problems for me. I havent done it in over a year now. Its stuff I learned at the beginning of the thread when I did alot of research on MSG and glutamates. Thats why I started taking all my supplements out of the capsules....its helped me alot to avoid little things like that.

I bake my chicken in the oven. I dont worry about gluten in the oven. I dont think it matters....as long as you're using your own clean cookware I dont think it would be a problem. I use pyrex or corningware....I dont cook or bake anything with aluminum of teflon anymore.

If you're using teflon pots and boiling your foods in there...you could also be getting sicker from the teflon. I changed all my cookware to stuff thats non-toxic. I didnt want to be poisoning myself even worse everytime I cooked my food.

rinne Apprentice

Susan, I'm so very sorry you received bad news about your back. :( I wish there was something I could do for you, a case of rinne bars with :wub: will become my motivation for international distribution. :)

:wub: :wub: :wub:

....

How did we turn this into the 'down memory lane with music' thread? :lol:

Love Aretha Franklin! I cut my teeth on soul--all the great stuff that came out in the late 60's early 70's. Wilson Pickett, Gene Chandler, Jr. Walker, gosh, so many. I get carried away talking about this stuff :ph34r:

I missed the Carpenters :ph34r: but loved Three Dog Night and Janis Joplin. I saw her when I was 15 and she was amazing. :ph34r: I'm working on my cool points, I seem to recall someone saying they thought someone who had seen her was cool. :lol:

I need to go back and catch-up but....I need the citizens of Rachelville to come to order. I have a big conundrum and I need y'all to weigh in on this. I got a phone call from my friend who works at Stanford and is going to teach writing to middle school students in Seoul, Korea for 2 weeks in August. She and I used to teach together in CA. The other person going with her can't go and they want me to go.

.....

What an incredible opportunity. :)

When do you have to let her know by?

I think you've had some excellent counsel thus far and I have little to add but I wonder if you did decide to go, could your husband go with you?

I suspect you are brave enough to venture out there even in the midst of treating Lyme. :rolleyes::P:lol::wub: I'm just thinking that having someone there to help you if you needed it might be a very good thing. :)

....

I got test results back and on one stool test- one is still pending- they found yes lots of candida and an AMOEBA!!! I named him Gus.

....

:lol::lol:

Miamia, I'm so glad that you are getting answers and treatment. I hope you feel better soon. :)

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    • trents
      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. Make sure all are gluten free. Costco's Nature Made and Kirkland Signature products are a good choice and reasonably priced.
    • trents
      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. 
    • Tarp
      I am at a loss with spine issues. I have had 4 spine surgeries.  These were=all before my celiac diagnosis.  Currently I am dealing with chest pain arm pain and burning with increased weakness in my legs.  I have had bowel incontinence for 6 months.  I had a nuclear stress test and heart issues were ruled out.  I can not get a doctor to listen to me and diagnose me.  I am afraid I will end paralyzed. I had a question of celiac 11 years ago and then was told I did not have it.  Last month it was finally confirmed by biopsy.  
    • TanyaB
      My journey started over 11 years ago. I know this because I recently went to set up an account here and discovered I had set one up 11 years ago, when I first suspected celiac.  Also of note, it began in the US and continued in the UK, so I’ve experienced both countries inability to figure out what is wrong with me.   So, 11 years ago I had major stomach pain, gas, bloating, nerve pain in hands and feet (clear MRI), anxiety, depression, migraines, and this weird gnawing pain in my stomach. PCP said IBS and sent me on my merry way. After chatting with friends, and at their suggestion, I gave up gluten and dairy (actually did a complete elimination diet) with fantastic effects. After I month I reintroduced and was in agony so went back to the PCP. She thought I might be celiac so sent me for full allergy testing and a celiac test. No idea which. This was I’m 2014/2015.  It came back negative. But I’d been eating gluten for three days at that point and had not been told I needed to be eating gluten for the test.  Was told it was IBS. Kept eating gluten.   2018 - by now the gnawing pain was constant.  Figured it might be an ulcer.  Other “IBS” pain and nerve pain. Was finally referred to gastroenterologist who did an endoscopy and biopsies and found chronic gastritis and H.Pylori but no evidence of celiac.  Had a bucketload of antibiotics and the H.Pylori went away (confirmed by breath test).  Alas the pain didn’t.  Figured I didn’t have celiac but the gastritis remained despite clearing up the infection.  Gave up gluten anyway because I felt better off it.  2019 / 2020 - moved to UK, grandmother died, Covid hit. With all this stress I started eating all the gluten  like constantly  everything I missed.  Stomach hurt, but of course it did - I was eating like crap.  Not just gluten, just bad food generally    2023 demanded h.pylori test because I’m convinced if I had it before I might have it again and maybe that’s why I’m in more pain than ever. Fecal test, came back negative.  put on PPIs 2024 - went to the dr because of severe gas pains. They were so bad nothing helped and they were keeping me away at night.  All my previous symptoms are worse than ever and now had stabbing ovary pain. I thought maybe now it’s all due to perimenopause.  Dr doesn’t even examine me.  Just tells me it’s IBS and tells me we will run blood test to rule out other things, just to be safe. Well, my IgA-tTG came back positive (67 0-20 is normal). They ran an EMA test and that too was positive. I finally felt I was getting somewhere. I went to the dr and she told me to quit eating gluten. I said I wanted an endoscopy before I stop eating gluten because that’s what the medical guidelines recommend. She wasn’t too happy about it but referred me to get an endoscopy.  I had one and the took 5 samples from the duodenum (4xD2 and 1 x D1 - whatever that means). Well, results are in and my biopsy was normal.  I am just at a loss now.  I felt so happy to finally have an answer, but now am frustrated.  I know I feel better gluten free and I tend to continue that way, but to have the positive blood tests then receive a negative biopsy (I was eating fully gluten prior to this for years) has just left me feeling …. I don’t know.  Lost!   Thanks for reading this.      
    • Kwinkle
      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
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