Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

It sounds like T. is being a trooper through all of this. :)

Did all of you make the trip again today...or did the kids go to your moms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
This started happening, surges of feelings would come that I wouldn't understand. It was as if this stuff was happening now rather than years ago. It was about a year after that started happening that I got sick with a bacterial infection that was suspected to be Chlamydia Psittaci (parrot fever) from a pet bird that died. I was treated for it with 21 days of doxycyline (300 mg. per day, three doses).

Carla,

Its interesting to me. I'm obviously fasicnated by this stuff but a year ago I dont think I would have believed any of it. :ph34r:

In the interview Dr. K. was talking about how when he brings these emotional issues to the surface...these patients are immersed in it....everything comes flooding back....the colors, the smells, everything about the *event* comes back to them. There can be tears or whatever....its a flood of emotion coming to the surface.

He says that usually the next day there are alot of symptoms...they are in a healing crisis....he tests the urine and there are significant amounts of mercury and other metals being excreted following these treatments for the emotional issues.

It seems almost unreal but what you descibe sounds like exactly what he was describing in these patients. :o

I think you proably went through a detox at that point....possibly giving the lyme room to grow. I think theres more detox though...especially since you say you're still holding onto an issue.

If you ever want to talk about it...I'm a good listener. :)

I'd be frank with the guy. Guys stop listening/comprehending after about 10 words. Just ask, "Do you want to give it a try again? I need to know because if you say no, I'm going to move on." It's a yes or no question. If he says no, then you have to deal with that. You can't beat around the bush .... it's got to be point blank.

and do you really think I havent done that already?? :lol:

Yeah...I did that lots of times in the first couple years. I dont get straight answers. I get stuff like "I cant answer that. I cant say no....it will never happen...I dont know how I feel....my feelings are buried." Blah, blah, blah :rolleyes:

Then there is anger because I brought this subject up.....and everything gets all tense and yeah...my ex just goes deeper into that cave.

Anyways...I havent bothered with those types of questions for a couple years now...its kind of pointless. I wont get any yes or no answer.

I figure if its meant to be it will happen. :)

Now that I know what I'm dealing with with this illness....I just want to focus on that right now anyway. I'm not really wanting to be back together at this point. I know I would hope for it if I were better...until then I cant do much about anything. :(

The worst feelings I ever felt in my life was the fear and uncertainty I was feeling when I getting really sick...the stress from my relationship falling apart and then for the first time in my life feeling really vulnerable, insecure, scared and alone when we broke up.

All those feelings occurring at the same time....thats the feelings that would overwhelm me in my nightmares. Thats the only thing I can think of that has contributed. Before that I dont think I had any issues....I think thats the only reason I was able to stay healthy even though I smoked, had a poor diet and pushed myself too hard with everything.

With the amalgam removals, the galvanic reaction, a promotion at work, lots of fighting in my relationship, attempting to get pregnant, quitting smoking, getting radioactive iodine for my Graves Disease, lots of different antibiotics and prescription meds, a major break-up....all this occurring in about 6 months time....it was ALOT to deal with.

I think just the galvanic reaction was enough on its own....let alone all the other stuff. :(

Anna had said she'd never heard of so many major stressors happening in such a short time. She said if my luck were reversed I could have won the lottery.

tom Contributor
Guys stop listening/comprehending after about 10 words.

Good thing that's only an 8 word sentence. (Or I might never know how it ends!)

Oh wait I meant - "OUCH!" :lol:

P.S. Omg Donna what a tight series of awful events. :(

I'm just back from a groc store I don't generally go to and in a sockeye salmon tizzy!! :blink:

They jacked up the non-sale price for these Copper River, Ak reds but the sale price was awesome.

Not having the little card, it rang up as $85 at first!! (Just $6 non-salmon)

But pOw!! after the guy fakes the card it's only $22! YeeeeeeeeeeeeeHA!!!

Sidenote: I'm pretty sure wild alaskan salmon are in the group of least-mercurial fishies. Aren't they? They're not bottom-dwellers and there's like zero industry up there anyway.

There's a medium-sized (by AK standards) National Park by the Copper River and THAT park is bigger than Switzerland!!

(More & higher peaks too!)

rinne Apprentice
.... Dear Rinne,

Your experience with Lyme sounds like the typical kind. Everyone seems to have difficulty convincing doctors to test them, or interpret the tests by other standards than those of the CDC. How unfortunate is it that we must suffer for the sake if absurdity? I am tired of waiting on people's ethics to catch-up with their egos! I do not want to die!

Sincerely,

Jin

I went from being someone who never went to the doctor, had a physical at 45 or so and pronouced fine and I felt fine and then at 48 or so started to have a lot of different symptoms, first back and hip pain I attributed to something else and then a pressure on my chest and the feeling I couldn't breathe, then the gastric distress. I went for the tests, they didn't show anything.

I think we have to be detectives about our health, we have to pay attention to our bodies and take care of them. :)

....I honestly can't pin down when I got it. .....

Wow. That is an incredible amount of grief to come into a person's life in a short time. I am amazed you have done as well as you have for as long as you have.

Glad you had fun at the picnic. :)

...

Hehe Rinne, chuckling now at not having to think about dusting off the ole pistols for awhile. :lol:

(ok ya I do enjoy a good debate now & then, who am *I* kiddin'?) :P

Sorry, I'm way sleepy. :lol:

Whats really interesting to me is that as long as I can recall....my entire life maybe....I have NOT been able to hold onto anything. They say that holding things inside is not healthy and its healthier to release them.

.....

Maybe I was just born already broken?? :(

I agree with your assessment, I don't think the emotional issues are a major force behind your illness whereas for some that might be the case. I think there is a difference between natural sadness and what Dr. K is talking about.

I'm not saying you couldn't use some work :P:lol::lol: but I don't think that is the work that will get you well.

As to born broken, no but did you have vaccinations?

I can remember after my first vaccination, about ten or so, having some obsessive/complusive issues that I decided were too weird and I minimized them. This has never been an issue for me but as I read the reactions of the young who are toxic I see shadows of myself..

<------- new avatar.

I got my hair colored today. Brown this time! But with a few very light highlights on top. Very different.

Nice. :)

...

Yuck-a dookie! HERXATION HIDEOUSNESS!!!!!!!!!!!!!

:( Wise decision, hope the herx passes quickly.

I bought some whey powder tonight. That's as exciting as it gets. :lol:

CarlaB Enthusiast
In the interview Dr. K. was talking about how when he brings these emotional issues to the surface...these patients are immersed in it....everything comes flooding back....the colors, the smells, everything about the *event* comes back to them. There can be tears or whatever....its a flood of emotion coming to the surface.

Yes, it was odd. My spiritual director drove a couple hours out of his way to talk to me. He told me to escort the feelings into the front door, then out the back. Do not pack them away like I used to. Do not let them affect me, do not dwell on them, just let them resolve and be over.

If you ever want to talk about it...I'm a good listener. :)

Thanks. I'm in a good place right now, this is the only issue, and it can't be worked out. I mentioned it in the last post, but very briefly. This is why I understand what you're going through. This same thing is what triggered my first illness from the Lyme.

and do you really think I havent done that already?? :lol:

I thought maybe you used more than 10 words and confused the poor guy. :lol:

It's time to move on if he doesn't want it. There's nothing you can do. :(

Change of subject -- This is strange. I am starting to LOOK very different. I lost the weight a couple years ago now, but my face is only now changing. These pictures don't even look like me. The whole bottom part of my face and my neck have thinned out ... presumably from losing toxins from there.

If you go to the Detoxamin website, the guy there has before and after pictures ... the same thing happened to him. My glands are still swollen, but my face and neck are not. :D

CarlaB Enthusiast
I can remember after my first vaccination, about ten or so, having some obsessive/complusive issues that I decided were too weird and I minimized them. This has never been an issue for me but as I read the reactions of the young who are toxic I see shadows of myself..

I remember my first OCD type behavior ... it was in the country where I was bitten by ticks. Prior to that, I didn't have it at all. I remember thinking how it couldn't be normal. It was also right after my mom married my step-father ... so too many things at once.

I bought some whey powder tonight. That's as exciting as it gets. :lol:

This is more exciting than you even realize!!!

CarlaB Enthusiast
Good thing that's only an 8 word sentence.

Oh wait I meant - "OUCH!" :lol:

Tom, I've been married 22 years ... I have two sons ... I have a father ... I KNOW this is true!! Hubby even admits "the shorter the better."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Sidenote: I'm pretty sure wild alaskan salmon are in the group of least-mercurial fishies. Aren't they?

Yes, it's illegal to called farmed salmon "Alaskan" but "Atlantic" salmon can be farmed, thus bad for you.

You can even buy Alaskan sockeye salmon in cans .... not as good as fresh, but sure is better than tuna! Just crush it with a fork ... no need to debone. Mix with a little mayo and dill, spread on top of cream cheese, sprinkle more dill, and you've got a great topping for crackers.

tom Contributor
I think we have to be detectives about our health, we have to pay attention to our bodies and take care of them. :)

Truer words have never been spoken.

Uhhh or written .. . . . ..

. . . . . . . .would u believe typed. . .. ?

Re: pistols :lol:

Sorry, I'm way sleepy. :lol:

Oy I'm not looking for any debates. Shouldn't have even used the word before.

No debating now and no debating what dictionaries say.

If I *did* want a debate, I'd just call my buddy Tony. One time, seeing some band at a great club on Valencia (~20th?) in SF, we spent more time than any reasonable people should, discussing whether SHOELACES were more analog or digital!!!

:huh::blink::lol:

Wish I remembered club's name. Something about a Door maybe. "Open Door"? Nope . . . . . . . .

CarlaB Enthusiast
we spent more time than any reasonable people should, discussing whether SHOELACES were more analog or digital!!!

They're analog ... way too low-tech to be digital.

Velcro is digital. :lol: You know, those gym shoes for little kids??? Velcro ... took a genius to figure that one out.

tom Contributor
Yes, it's illegal to called farmed salmon "Alaskan" but "Atlantic" salmon can be farmed, thus bad for you.

Yup - Alaska has no farms nor any need. It's just insane how many salmon of the 5 alaskan types spawn there.

I once saw THE most amazing thing. Too many fish in the stream for the size of it. They just didn't fit. So at all times ~10-20% of them are pushed above water - each for just a few seconds. They drop back in and others squezzed up & out.

Incredible mass of salmon heading upstream.

The run was for 2 weeks and maybe they were *that* crowded for just that afternoon for all I know.

Unforgettable sight.

You can even buy Alaskan sockeye salmon in cans .... not as good as fresh, but sure is better than tuna! Just crush it with a fork ... no need to debone. Mix with a little mayo and dill, spread on top of cream cheese, sprinkle more dill, and you've got a great topping for crackers.

Sounds yummy!!

Looking fwd to it once I can have mayo, or cheese, or crackers that I haven't painstakingly made myself! :lol::lol:

tom Contributor
They're analog ... way too low-tech to be digital.

Ohhhhhhhhhhhh don't be baitin' me, girl!!!

:lol:

Digital doesn't need high-tech. it's a "one or the other" concept - like 1s & 0s.

I need to make dinner & the wave/particle duality of light and superstring theories of matter & energy don't make for good dinner conversation.

Clark Bent as Stupor-Man Contributor

alright, there's a lot I'm sure I'd like to comment on or ask questions about based on klinghardt's audio and the posts about it, but it will take too much time now so I'll try to get to it this weekend... thanks for posting the link, rachel, I downloaded the file and will probably listen to it in full when I get a chance...

quick question regarding the foot pads for anyone who might know... I assume they're mostly benign and haven't seen anything to the contrary, but I just want to make sure that in terms of extracting any metals, they aren't going to potentially exacerbate symptoms due to shifting and mobilizing any metals, maybe increasing the load in one part of the body... it doesn't seem to be the case from what I've seen but I just want to make sure before using them...

the handout from klinghardt re: foot pads states that among other things, the "pad draws toxins from the lymphatics, veins and small arteries in the skins and also directly from the matrix of the surrounding tissues"... it sounds to me from this quote as well as the rest of the handout that the pads may have both mobilizing and binding properties... which seems to me to be a major function in the grand scheme of metals detoxification for what is purportedly a rather benign thing like the footpads... am I missing something? is the transport of the metals via the footpads a simple and direct transport that doesn't create any unintentional shifting of metals from one part of the body to another?

AndreaB Contributor

Rachel,

I pm'd you. :)

Do you have Word or Word Viewer? I can send you the attachement Dr. E sent me.

Rachel--24 Collaborator
Pooping in to say hello!

Well- the korea decision was made for me. I'm herxing again and would NOT want to be in a hotel and definitely not a foreign country. I think last week could have been from the plaquenil (or the heat) because this is the herx I was expecting. :(

Awww Bev.....I'm sorry you had to miss this opportunity. :(

I do believe that you made the right decision though....I think you're body isnt ready for that yet...even if the rest of you really wants to go.

If you have time read some of my posts from the last couple days....if you can handle some scientificness....theres some good info.

and yeah....maybe try some good quality undenatured whey protein and see if it helps. Carla gave some good suggestions. :)

I think we have to be detectives about our health, we have to pay attention to our bodies and take care of them. :)

Absolutely. :)

I agree with your assessment, I don't think the emotional issues are a major force behind your illness whereas for some that might be the case. I think there is a difference between natural sadness and what Dr. K is talking about.

I'm not saying you couldn't use some work :P:lol::lol: but I don't think that is the work that will get you well.

As to born broken, no but did you have vaccinations?

I can remember after my first vaccination, about ten or so, having some obsessive/complusive issues that I decided were too weird and I minimized them. This has never been an issue for me but as I read the reactions of the young who are toxic I see shadows of myself..

Rinne,

I think you're right and Dr. K. is talking about serious psychological traumas or emotions or fears that people just didnt want to face and instead buried them deep inside.....locking them up and never dealing with them.

I dont have anything like that in my life. I've never been faced with anything more traumatic than this illness itself. I've been able to cope with everything in my life pretty easily except this last break-up....but the main reason I couldnt cope was because of the serious breakdown of my health that I was in the midst of dealing with already. :(

I did have vaccs....but I'm not sure if our childhood vaccs had any thimersol back then?? I'm thinking no....but I did have two vaccs.....given at the same time and both containing thimersol...this was 2-3 years before I got sick from the amalgams. I had no symptoms from the vaccs that I can recall.

My mom has a mouthful of amalgams and they were all put in shortly before she got pregnant with me. I'm thinking I got hit with alot of mercury from that. The mercury can damage any enzyme in the body so if any exposure messed up my enzyme function...especially if it involved liver detoxification....it could have set me up for something like this.

This is also why alot of people can develop problems with gluten and dairy. Mercury very often disables the enzyme which breaks down these proteins. This is one thing that happens alot with the autistic kids. Once the proteins cant get broken down and digested...there is all that imflammation, leaky gut, immune response, etc.

I can remember after my first vaccination, about ten or so, having some obsessive/complusive issues that I decided were too weird and I minimized them. This has never been an issue for me but as I read the reactions of the young who are toxic I see shadows of myself..

I had OCD behavior too. I had it really bad in my late 20's....right around the time I got diagnosed with hyperthyroid. At that point I was having some issues with OCD but they cleared up quite a bit when I went on my thyroid meds.

I think that was also around the time that I had those vaccs. <_<

I wonder if I could find out when exactly I had those vaccinations?? They should have those records right?? I think it would be interesting to find out when I had those vaccs and then I'd have a better idea of what was going on with me duiring that time.

AndreaB Contributor

Rachel,

Your shot record should be with your medical records. If you were with Kaiser at the time just contact them for a copy of your shot records.

Rachel--24 Collaborator
is the transport of the metals via the footpads a simple and direct transport that doesn't create any unintentional shifting of metals from one part of the body to another?

Good question about the footpads. I dont have the answer but I think I can get one for you. :)

I'll try to find out.

Andrea,

I dont know what the heck is on this computer. I guess I'll find out if I can open what you sent?? I havent checked my pm yet.

AndreaB Contributor

Rachel,

The document has been sent. :)

tom Contributor
Do you have Word or Word Viewer?

Or the fantabulous and FREE OpenOffice!!

Hey Charlie! U know OpenOffice don't u?

Rachel--24 Collaborator
Rachel,

The document has been sent. :)

Thanks Andrea!

I just read your pm....thanks for all the info. :)

I'm excited for all of you!

Anyways...even if things go really well with Scott's appt. tomorrow and I dont go up there for LED treatments...you can bet I'll be going there eventually. :)

Even after I get better I'm still gonna be wanting to be involved and to be learning. I'd love to go to a Dr. K. seminar at some point. :)

Judyin Philly Enthusiast

just droppen in for a few minutes ....but know we can't catch up that fast.

did I see Bev isn't going on the trip?

Rachel..saw this ..from Dr K

_________________--

He said the autonomic nervous system (ANS) regulates the width of blood vessels...it makes them wide or narrow.

The ANS controls the immune system. Unresolved emotional issues create abnormal electric circuits that are constantly discharching electric impulses which travel to the Hypothalamus....where the regulation of the ANS is.

__________________________-

The PT treating me is giving me exercises for this...she said i had a 'autonomic nervous system disorder' . i sure don't know what that is but there is so much reading..

Will have to process earlier in the day

hi to everyone.

judy

AndreaB Contributor
hi to everyone.

judy

Hi back to you Judy with the :wub: always in your posts. :D

Rachel--24 Collaborator

Hi Judy. :wub:

I think all of us here have Autonomic Nervous System "disorders". Everything that we talk about here disrupts the ANS. You would need to find out what is *causing* it before you can really do anything about it.

-----------------------------------------------------------

Klinghardt's Axiom

Dr. Klinghardt's axiom says:

"Most -- if not all -- chronic infectious diseases are not caused by a failure of the immune system, but are a conscious adaptation of the immune system to an otherwise lethal heavy metal environment."

What does this mean?

Mercury suffocates the intracellular respiratory mechanism and can cause cell death. So, the immune system makes a deal: it cultivates fungi and bacteria that can bind large amounts of toxic metals.

The gain: the cells can breathe. The cost. the system has to provide nutrition for the microorganisms and has to deal with their metabolic products ("toxins").

That does not imply that the tolerated guest cannot grow out of control, as it sometimes clearly does. Therefore, there is still a limited place for antifungal antibacterial treatment - but only for the acute phase of the disease.

A so-called "die-off effect" (the sometimes severe crisis or even lethal reaction a patient can have in the initial stages of aggressive pharmaceutical antifungal or antibacterial treatment) is often nothing else but acute heavy metal toxicity - metals released from the cell walls of dying microorganisms as suggested by my own correlation of clinical syndromes and urinalysis for metals.

Colleagues in Germany are working on a study at this time. Preliminary results show a dramatic improvement in clinical and scientific parameters in chronic Candidiasis using the Klinghardt protocol or heavy metal detoxification.

Is this axiom correct?

Dr. Klinghardt's results as well as those obtained from research by Health Restoration Consultants suggest that this axiom is correct because when patients are put through a thorough mercury detox program, there is always a dramatic improvement in the clinical picture for chronic Candida infections.

Open Original Shared Link

nikki-uk Enthusiast
<------- new avatar.

I got my hair colored today. Brown this time! But with a few very light highlights on top. Very different.

..and there's Carla looking UTTERLY gorgeous (as usual :rolleyes: )

How does she do it people???!!! :D

UR Groovy Explorer
It creates dysfunction on all levels...it changes biochemistry, the pH of tissue, the activity of receptors in the cell wall....you get a completely changed intracellular and extracellular environment. This is the beginning of a chronic state of illness.

Out on a limb here, but this is why I made the comment to you about whether you were broken or not when you were born.

I've heard of this before. I believe the theory was that you experience a trauma or some event or prolonged anxiety and peptides of one sort or another are released. The peptides are accepted at the docking stations of the cells or they are not. When you're in a state of trauma, you begin to mostly send certain peptides (say fear peptides) and not so much the "good" peptides. The docking stations (cell receptors) begin to accept only negative peptides after a while and the receptors begin to refuse the positive peptides. It begins to affect the cells because they no longer have balance.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,918
    • Most Online (within 30 mins)
      7,748

    Lisa Chant
    Newest Member
    Lisa Chant
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle.  Celiac Disease causes multiple vitamin and mineral deficiencies.   Itchy palms can be a symptom of iodine deficiency.  Low iodine levels can lead to dry, flaky skin on the hands and  body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are   fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing.  Strong Iodine and Lugols Solution are other options.  Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe?
    • Lkg5
      Be cautious with vitamin D if you are female and post-menopausal.  I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D.  Finally relief!  I hope to keep my D level below 50 nm/l now.
    • knitty kitty
      Do you eat processed gluten free foods?  
    • Scott Adams
      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
×
×
  • Create New...