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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
Umm, was this the same PM you sent me? ... In the PM you said you were sending the same one to Rachel. All I responded back was "thank you."

Carla....she sent me 2 pm's. This doesnt concern you....and as Lisa stated...pm's are not to be discussed on the board.


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Mtndog Collaborator
It is one thing to baby talk a bit. However, there should be a limit. People who own dogs have trouble getting dates. We spend our time standing out in the yard saying "Go poo-poo, go poo-poo!" Gee, I cannot figure out why we do not appear attractive to members of the opposite sex either! :rolleyes: Most of the time, when I am out with the dog, I just say "Crap already! I have stuff to do! Stop looking stupid and staring at me!"

Sincerely,

Jin

OMG LMAO...thank God I'm married cuz I am a dork with my dog. You gotta see this: Open Original Shared Link

AndreaB Contributor
Oh, boy. The soy is definitely a problem!! Not too much as far as abdominal symptoms though. Sinus, flushing, headache sore throat, asthma, tingliness in face and mouth, irregular pulse, and just a bit of mild abdominal cramping. 9 hours after eating I am still quite symptomatic.

There's goes my wheat-free soy sauce! :huh:

Soy is definately not a good thing. It is hard to do without soy sauce though. We used to have a lot of it.

I'm off to catch up, see you soon.

Thanks Mom. :wub:

I'm glad you're back Rinne. I've missed you. :)

I finally sang my solo in front of my choir director and one of the other girl's husband...did okay...now my next test is singing in front of the band. :P

I've decided to take that break I was talking before. I spend WAAAAYYY too much time in front of the computer and I really need to cut back, so I'll pop in and out to read a bit, but probably won't spend a lot of time posting. My main time will still be while I'm at work, but probably not quite as much. I'm trying to get up and away from my desk more here too. And, well, at home there is just soo much I really need to do instead of sitting in front of the computer.

Yay on the solo!

I'm still working on not being on the computer as much. The thing is I'm sitting in front of it a lot even if I'm not on it.

I think these didn't used to bother me so much during a herx because all I could do was lie down ... but now that I'm up and moving around, I'm noticing it. I do tire easily.

Sorry about your air hunger etc. I'm glad that you're feeling better overall during your herxes though.

AndreaB Contributor

Carla and Alison,

I hope that this is the last of the personal pm's mentioned on this thread.

It is extremely disrespectful and rude to discuss this on the open forum.

tom Contributor
:ph34r::ph34r::lol:

Jin - - you are the funniest - - and OMG - - if you HEARD me talk to the dingos.......it is outrageous, it really is, and the outrageousness of it cracks people up (I only let the inner circle hear me do it, though) :lol:

Aaehhh! <tom grimaces pushing hard on own forehead w/ heel of palm of hand>

Omg, 'Sue'(!), I SO don't want to hear this . . . . . <fingers in ears> LA LA LA LA! LALALALALALA!!

If you constantly truly talk baby-talk to the dingos, I'm - LOL! - :lol: "going to have to br......" ROFL :lol: :lol: :lol: :lol:

Claire! Llamas!! Who knew?? never once have I seen a llama on a backpacking trip.....I don't think it's done in the Sierra.....who knows.

Hoo boy I've got a llama post coming, but am also curious about where Claire's llama trips were!

I'm a huge llama fan. :o:D

DingoGirl Enthusiast
Dear Susie,

Those llamas you need to be careful with! :unsure: They sure do spit! HEINOUS! Llamas will have a goober the size of Texas in your hair before you know it! Never turn your back on them! Evil is what they are! :P

:o I do not want a Texas-sized goober in my hair.....egads.......

and Jin - - "him's a good boy" - - - :lol: :lol: :lol: To whom is she referring?

No - - it's not really traditional baby talk here w/ the dingos - - and it's definitely NOT all the time....not at all....I have a VERY stern end-of-the-world command tone that stops them dead in their tracks - - they are very, very well-behaved girls who've had lots of training.

But yeah, there IS a silly voice I use - - - :P

"ohhhhhhhhhhhhhh see [meaning "she" :ph34r: ] is a good girl! oh where's the dog....where's the dog??? - - - oh see is mommy's good girl!!!!!!!!!! oh that is a good girl.....WHERE"S the dog??? ohhhhhh these are good girls!!!!!!!!!!!!!! Yes, these are the GOOD GIRLS!!!!!!!!!!!!! Mommy loves the girls!! Mommy kiss? ohhhhh come here, mommy will kiss!!! [all in a sing-song voice - - now you guys know how I talk to my girls.......:lol::ph34r: ]

BEV - -- OMG OMG OMG - - - that "who's a good dog" thing makes me OUT OF MY MIND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :lol: am forwarding it to the entire universe...........

Donna - Yay on the solo! must be a relief, you did not pass out and die! and good to know you are feeling better.

Just mowed the lawn and raked and swept. Still in one piece. :)

dlp252 Apprentice

Well, here's something you can know for certain about me...if I met Susie's dingos tomorrow, there would be an obscene amount of baby talk, and wouldn't care who was around. :P


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AndreaB Contributor
Just mowed the lawn and raked and swept. Still in one piece. :)

Sounds like a productive morning. Hope you didn't overdo it.

Well, here's something you can know for certain about me...if I met Susie's dingos tomorrow, there would be an obscene amount of baby talk, and wouldn't care who was around. :P

:lol::P

DingoGirl Enthusiast
Well, here's something you can know for certain about me...if I met Susie's dingos tomorrow, there would be an obscene amount of baby talk, and wouldn't care who was around. :P

:wub::wub::wub:

The girls just said "mommy we want Donna!" and want to give you so many kisses and butt-biffs......:lol:

rinne Apprentice

I am on page 1350. :o:ph34r::o

I won't say much until I have caught up but that I hope we are mature enough that we can accept that we sometimes we disagree.

:wub:

AndreaB Contributor

He's another article for those who are interested.

From Open Original Shared Link

I've copied over the whole article.

Time To Scale Back On Big Fish?

High mercury levels may wind up harming the health-conscious eater

A middle-aged woman came to Dr. Jane Hightower's San Francisco internal medicine practice complaining of hair loss, upset stomach, and difficulty concentrating. Like many professionals in the Bay area, the woman ate a lot of fish. But that wasn't a concern -- not, at least, until Dr. Hightower sent the patient to a dermatologist, who knew hair loss could be caused by mercury poisoning. The dermatologist did a blood test, which showed four times the recommended limit for the metal. Weeks later, a second patient arrived at Dr. Hightower's office with similar symptoms. Another blood test was given. Again, mercury.

Suspecting she might be on to something, Dr. Hightower spent the next year analyzing 89 patients who reported eating a diet heavy in fish or had symptoms that could be linked to mercury toxicity. In the end, 82 tested above the 5 micrograms per liter widely used as the recommended limit for mercury in the blood.

Dr. Hightower's 2001 study on mercury toxicity was one of the first to identify this possible downside to Americans' growing appetite for fish. As more people heed the medical community's advice to eat fish often to ward off cardiovascular disease, they may be exposing themselves to high levels of mercury.

This is especially true for those who favor big predatory fish, such as swordfish, king mackerel, shark, tilefish, and tuna (although canned light tuna has lower levels than tuna steaks or canned albacore). Because methylmercury -- a potent form of mercury created by microbial action on mercury in polluted waters -- becomes more concentrated as it rises through the food chain, big fish that eat smaller ones have the most methylmercury. A chart on the Food & Drug Administration Web site (www.cfsan.fda.gov/~frf/sea-mehg.html) shows that swordfish has 14 times the concentration of mercury as catfish. Levels are low in scallops and crabs and are usually undetectable in salmon, oysters, and shrimp. (Farm-raised salmon, however, may be higher in another environmental toxin, PCBs.) Cooking has no effect on methylmercury, so it matters not whether you prefer your tuna grilled or wrapped raw in seaweed and rice.

So far, the FDA's consumer advisory addresses only the high-risk groups of pregnant women, those of child-bearing age, and their children. Mercury crosses the placenta and can damage the developing fetal brain, shaving points off IQ and causing shortened attention spans. Some doctors even speculate on a link between mercury toxicity and autism, and studies are looking at a possible connection. Meanwhile, the FDA and the medical community have long thought that commercial fish consumed in the U.S. don't have enough mercury to pose a problem for adult men or women not expecting to become pregnant, says Vasken Aposhian, professor of molecular and cellular biology at the University of Arizona and an expert on methylmercury.

Studies like Dr. Hightower's are challenging that assumption. The Centers for Disease Control reported last year that almost 8% of the 1,709 women of child-bearing age tested had blood mercury levels above 5.8 micrograms per liter (or 5.8 parts per billion), the amount consiered safe in umbilical cord blood by the Environmental Protection Agency. Other findings: Blood mercury levels rose with frequent fish consumption, and levels were greater among those with higher education (who presumably know the benefits of eating fish and can afford pricey sushi and game fish).

If a patient shows up with a string of symptoms that could indicate mercury toxicity, and a blood test confirms the diagnosis, what's the next step? Not all doctors agree. Dr. Hightower shifted her patients to fish with low mercury levels and watched their blood mercury readings drop into the acceptable range. "It's real easy," Dr. Hightower says. "You eat mercury, it goes into your blood. You stop, and the mercury levels go down." The body excretes mercury through feces, urine, sweat, hair, and nails. In fact, that's why many doctors think adults are not at great risk unless levels are extremely high. The half-life of mercury in the blood is two to three months for adults.

STORED METALS. But others see a more complicated -- and serious -- health problem. Even if the blood is readily cleansed, Dr. Richard Horowitz, an internist in Hyde Park, N.Y., says mercury can be stored in body tissue, including the brain. Dr. Horowitz, who treats many Lyme disease patients, says the symptoms of chronic Lyme disease mirror those for metal toxicity. He suspects some Lyme patients' continuing problems, such as fatigue, are linked to metals in their bodies. If so, that may explain why they don't get better when they take the antibiotics used to treat Lyme.

Dr. Horowitz does not rely on the standard blood test to diagnose the presence of mercury because it measures only recent exposure. Instead, he gives patients a chelating agent -- a chemical that binds to and pulls metals from tissues. He then measures the amount of mercury excreted in the urine. He also uses three-month regimens of alternating chelation, vitamins, and minerals to remove stored metals. He has seen symptoms ease in about 10% of those treated.

Such routine use of chelating agents is controversial. "Chelators are not benign drugs," points out Dr. Michael Shannon, an associate professor at Harvard Medical School. They can cause kidney and liver damage as well as allergic reactions.

Chelation might be an answer in extreme cases. For most of us, the remedy is simple. As one doctor advises: "Eat the little fish." How complicated is that?

By Carol Marie Cropper

AndreaB Contributor
I am on page 1350. :o:ph34r::o

You'll be caught up in no time. :D

tom Contributor
I am on page 1350. :o:ph34r::o

I won't say much until I have caught up but that I hope we are mature enough that we can accept that we sometimes we disagree.

:wub:

hehe Rinne, some pages not too fun.

If u haven't gotten to my stupid long posts supporting my "yes, i AM better" position, PLEASE feel free to skip them!!

And I'm on a real PC for a change!

At mom's and recent posts make me want to use that fun little QUOTE button.

(It better work like i think it does)

rinne Apprentice
...

And Rachel.....she needs to come back!

This IS a good place. No matter what happens, it's a magic, amazing, supportive and loving place, with all kinds of info that of COURSE upon which we will not all agree. Duh.

But it's a mouse-click away to love and support. We have NOT lost that lovin' feeling, dear ones. :)

Big, Giant, GROUP HUG.

:wub::wub::wub:

......

Rachel, come back.

xoxo

Yes, Rachelville without Rachel is, as someone said, just a ville. :lol:

Rachel, I hope you will post when you are inclined to, your scientificness is greatly appreciated. I am beyond grateful to you for your continuous effort here. :wub:

As to the rest of it, I am too exhausted after reading the past twenty some pages :P to really comment and perhaps I shouldn't since I was on holidays from Rachelville. :lol:

I can't really resist though. :P

I was shocked by one particular attack on Rachel and it wasn't so much the attack as the attacker's bringing in extra ammunition with a comment about someone else........ I think that is a truly mean thing to do.

But you know we can all lose it, anyone ever heard of Lyme rage?

......

Rinne hasn't posted recently. Don't know if she's busy or not very happy about the tension as of late. ....

Nope,the tension didn't keep me away. :)

Okay dingo'd everything else.

This is a great, wonderful, fabulous, funny place and if it will continue it will change, the best thing we can do is keep it going and hope that our fearless president resumes her duties at some point. :)

tom Contributor

part one

I am currently trying corn free for my daughter, didn't realize that the thyroid meds have corn in them. As an FYI any dark colored diet soda has corn starch in the carmel coloring. Didn't realize that till I started calling around I thought it would just be in regular soda but no.

Sarah

Hi Sarah!

I remember first going off corn, and the inevitable "wth! it's in THIS *TOO* !!".

It's pretty tough to get used to how wide-spread corn-based ingreds are.

re: me voting LOL :D:lol:

OMG Jin, Thank you sooooo much for the comic relief!! Damn, could use a few more laughs around here. I mean, life is too short to take it so seriously.

Hehe Claire I think you weren't here when I brought up how I'd NEVER get to vote! LOL

Then decided it was my civic duty to get Men the vote here.

I think it was Donna that called me a Suffragent !! ROFL

No offense Tom. Hey, have I ever told you I LOVE your llama avatar! Llama packing is one of my favorite things to do.

Sheesh i hadn't gotten a peep on my llamas until you!! <_<

Where have u llama packed?

That pic is from the Ranch my brother Pat and wife Pam had outside Wasilla AK. She had her own llama-packing business for almost 20 yrs. I tried to find google cached copies of her old website, llamabuddies.com, but none were found.

5 or 7 day outings REALLY get ya out there in Alaska. (daytrips or whatever someone w/ $ wants were all possible too)

She usually had 10-12 llamas at a time - once I'd met her anyway. :)

Dear Susie,

Those llamas you need to be careful with! They sure do spit! HEINOUS! Llamas will have a goober the size of Texas in your hair before you know it! Never turn your back on them! Evil is what they are!

I've personally known plenty of llamas & they take great offense to being called spitters. They like to blame camels for the misappropriated reputation. :angry:

<methinks it's the dromedaries too> (Buncha humps!!)

I always get annoyed at people who baby talk to their children and animals. They wonder why they grow up stupid? Hello! :blink: My mother goes around saying things like "Him's a pretty booooy!" (Too bad there is no gagging emoticon!) That would be perfect for this instance. People should get arrested for that crap!

It is one thing to baby talk a bit. However, there should be a limit.

Yes Jin!! - a limit is very important. I know I used the word "constantly" in my initial response to this god-awful subject. <_<:lol:

Noooooo, llamas are not evil! I've always had the best llamas when I've gone llama packing. The place I rent from trains their llamas really well. They might spit at each other, but I've rarely seen that happen too. Have you had a bad experience with llamas? I just think they are soooo cute, but they don't like to be petted.

Claire

While I like to not stand alone on the goodness of llamas . . . . . .

AAAAAAGH !!! All of the ones I've known loved being petted! OK, one time one of them had some medical issue and wasn't into it then.

Pet anywhere, stroke nose & head, they were up for all of it.

WHERE WHERE WHERE do u use llamas !!???

tom Contributor

part B

I finally sang my solo in front of my choir director and one of the other girl's husband...did okay...now my next test is singing in front of the band.

Yay!

There's a band? I've thought all along you were in a choir! Did the word "choir" mutate while I was out?

That is so funny! I used to talk to my babies just like I talk to anyone else, no baby talk or small words, just normal talking!!! My friends thought it was hysterical.

I always talk to kids like they're short adults. Not vocab-wise, but throwing some words in they may not know about, where the context helps a lot.

I have SUCH fun w/ kids! I know I know - easy to just be fun when none are your own!! LOL

Did i ever mention that the Alaska nephews/nieces named me Uncle Silly? ROFL

(Then it was celiac and I renamed me Uncle Surly :( )

OMG LMAO...thank God I'm married cuz I am a dork with my dog. You gotta see this: Open Original Shared Link

Oh Bev! if I'd known it was from The Onion, there's NO WAY I would've waited until I got on PC to read it!!!

:o I do not want a Texas-sized goober in my hair.....egads.......

So . . . . . .. . hard . . to . . . .. . . .. re-----sist . . .. . . .

<don't say it> <don't go there>

I just can't make that joke.

<cameron diaz was in what movie?>

No - - it's not really traditional baby talk here w/ the dingos - - and it's definitely NOT all the time....not at all....I have a VERY stern end-of-the-world command tone that stops them dead in their tracks - - they are very, very well-behaved girls who've had lots of training.

But yeah, there IS a silly voice I use - - - :P

"ohhhhhhhhhhhhhh see [meaning "she" :ph34r: ] is a good girl! oh where's the dog....where's the dog??? - - - oh see is mommy's good girl!!!!!!!!!! oh that is a good girl.....WHERE"S the dog??? ohhhhhh these are good girls!!!!!!!!!!!!!! Yes, these are the GOOD GIRLS!!!!!!!!!!!!! Mommy loves the girls!! Mommy kiss? ohhhhh come here, mommy will kiss!!! [all in a sing-song voice - - now you guys know how I talk to my girls.......:lol::ph34r: ]

Ohhh SOO-zeyQueue!

PHEW! The upper paragraph qualifiers were a relief to read.

And ROFL while practically hearing the silly sing-song soliloquy!! :o:lol::D:lol:

And to think all I'd heard of was their potential as championship staring contest contestants.

<coming soon to espn2 - where they just broadcast the freaking world rock-paper-scissors championship!!> Dingo-staring is in the on-deck circle. :rolleyes::huh:

Nooooooooooooooooo!!! My 1st ever emoticon violation!!

Why can't it say how MANY over!!??

AndreaB Contributor
Sheesh i hadn't gotten a peep on my llamas until you!! <_<

I'm sorry. My bad. I love the llamas.

So what's the difference between a llama and an alpaca? I think alpaca's have longer necks though.

AndreaB Contributor
Rachel, I hope you will post when you are inclined to, your scientificness is greatly appreciated. I am beyond grateful to you for your continuous effort here. :wub:

Yes, me too.

Rachelville definately isn't the same. Rachel brought a certain hominess to this place. So quiet most times now. She also has done so much research. I miss reading everything.

tom Contributor
I'm sorry. My bad. I love the llamas.

So what's the difference between a llama and an alpaca? I think alpaca's have longer necks though.

Aw dang!!! I thought it was the set-up for a joke! :lol:

1st guess is native to different regions way down south there. And I'm pretty sure alpacas don't get quite as big as llamas.

(LOL "don't quote me on that" !!)

diamondheart Newbie
WHERE WHERE WHERE do u use llamas !!???

Hi Tom, All my llama trips have been here in Colorado, mostly in the Rawah Wilderness Area. It's the closest to the place I rent llamas. I've also taken them into the Mt. Zirkel Wilderness and the Comanche-Peak National Forest, all in the mountains of northeastern Colorado. I always rent from a place called Buckthorn Llamas. Unfortunately, I haven't found places to rent llamas near some of the other cool wilderness areas in Colorado, like Holy Cross Wilderness and Maroon Bells. I'd really like to llama pack those sometime.

Claire

diamondheart Newbie

I too am feeling that it's time for me to leave this thread for a while, if it even survives the current turmoil. It's unfortunate that we can not put our differences behind and rise to the greater good of all who are suffering and seek healing. I learned a lot on this thread, so I'm thankful for that.

The negativity is driving people off, and I wish y'all could just drop it. How important it is to be attached to our positions? What do we gain by it? United we stand, divided we fall. I have wanted to respond, but intentionally waited until I could be more objective. I don't think it's any coincidence that in the last 24 hours, there are some of us saying they are going to be posting less.

Think about it folks. Is it really worth it?

Claire

NoGluGirl Contributor

Dear Carla,

It is strange how SIDS seemed to be more rare before people used cribs. You have to wonder about that. As long as you do not roll over on the kid, it should be alright. There is a new blanket out now, where it fastens around the baby so they cannot smother. That was really sad about people accusing kids of shaken baby syndrome when there could have been another cause. The idea is horrific of people going to jail for a crime they did not commit, on top of losing their child. :(

We had a poor baby robin fall out of his nest and die the other day. It appears the nest caved on the one side. The poor mother robin was just in shock for a while. I felt so sad for her. She is back to feeding and taking care of her other baby now.

My parents never baby talked to me, yet they do to the pets. I do not know why. I just feel stupid doing it. Other people think it is funny that I talk to the dog and babies just like I do anyone else. Really, I think it insults their intelligence. Some dogs like it, though. I prefer to talk to them normally, which might be why the dog listens to me more.

Dear Bev,

The Web site is a hoot! :lol: I had heard of something like it before. I never saw it, though! Hey, if your hubby finds you sexy when you talk to the dog, you know he was the one! :lol: My aunt really overdoes it with hers. Plus, she has some big babies! Three English Mastiffs, which are all big babies!

Dear Susie,

Baby talk is not my thing. Profanity, now that I can do! :lol: Dart knows all of the curse words! My mother is like, "Look what you taught him!" :angry: I say "Good boy!" :lol: He wiggles his tail.

Hey, I figure he might as well learn something useful. That is useful. Especially since even after I move, he will be stuck with them! They will deserve it! You know how they drive everyone crazy.

I have not had a lot of encounters with llamas. I know the ones at our zoo were not that friendly. They were kind of mixed in with the goats. That is the usual. Maybe they just were in a bad mood because they were by them!

Yes, Mom says "Hims a good booooy" to the dog. I think he understands pretty good. A lot of times, when he wants something, she does not get it. I get him. He looks at me like "Why is Mommy dumb?"

I am so glad to hear you had a good day! It sounds like you got a lot done!

Dear Sherry,

It sounds like the soy really is bad for you! I hope to God I am not allergic! I will be so depressed. No Chinese food = sad Jin. The idea is terribly upsetting.

Dear tom,

S.J. this weekend! It is going to be great! You will go to all kinds of great places! That will be so fun! Are you going to go to the beach?

Llamas are something I never actually saw much of. Like I said, the zoo is the only place I ever saw any. None of them were very welcoming. That is neat about your family having them. I bet that was hard work!

Dear Donna,

I am so glad to hear you are doing well! I was concerned. You were having a rough time. Of course, baby talking to the point it is obscene to Susie's dogs may cause some of those symptoms! I heard that anyway. The source was Contrarian Spice, though.

I am so proud of you! I knew you would do well with your solo! You probably were pretty nervous. Don't worry, you will do great! The band will look bad compared to you!

Dear Claire,

Llamas do not spit? That is good news! I have to say I have never been hit by one! Still, the people at the zoo warned us. The camels were in with them. Maybe that is why. However, they directly addressed the llamas.

I know what you mean. I wish things could go back to normal. Everything is so messed up now. I got so upset, I actually cried last night. The whole situation is so tragic.

Dear Rinne,

Well said, Rinne! We miss Rachel! Plus, throwing away the love here is such a waste. Maybe she will come back soon! Meanwhile, how have you been?

Dear Rachel,

I am glad to see you on today! I hope things are going alright. I really liked the article Andrea posted. I think you will, too. Of course, you might already have read it.

Dear Alison,

Are you going to do anything with that beetle? Will you set him free? Or are you going to squish his little perverted butt? That is a hard decision. I am not sure what I would do.

Dear Andrea,

Thank you for posting the article! I primarily eat tuna. I do not eat albacore. My system still may not be able to get rid of it, though. If I do have Lyme, there is a good possibility of that.

Dear Everyone,

Please keep your fingers crossed! Dad heard from a guy who used to be a competitor for his former employer. He is going to speak with him Monday. It turns out, they are expanding in this area! Send that positive energy! By the way, Mom and Dad appreciate it! They thought it was nice that you guys care so much!

Sincerely,

Jin

tom Contributor
Hi Tom, All my llama trips have been here in Colorado, mostly in the Rawah Wilderness Area. It's the closest to the place I rent llamas. I've also taken them into the Mt. Zirkel Wilderness and the Comanche-Peak National Forest, all in the mountains of northeastern Colorado. I always rent from a place called Buckthorn Llamas. Unfortunately, I haven't found places to rent llamas near some of the other cool wilderness areas in Colorado, like Holy Cross Wilderness and Maroon Bells. I'd really like to llama pack those sometime.

Claire

Sounds pretty sweet!

I don't think my SIL ever rented hers out. She was a guide too for the trips.

Sooooo many bear stories, omg!

Renting must be awesome. :)

How big is a deposit on a healthy llama anyway? Does Visa offer automatic insurance?

AndreaB Contributor

Claire,

I hate to see you go too. We'll leave the light on.

Jin,

Sounds hopeful for your dad. Keep us posted.

tom Contributor

Does this sound like 'alien baby'?

(Can't believe I've typed that sentence)

Open Original Shared Link

He's new to gluten-free (started 6/19) and scared.

No one has responded to his post yet and I only wish I knew what to say.

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      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
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