Omg...i Might Be On To Something

[dlp252]

If you don't get it ... have someone else say it out loud for you. There's nothing to get .... it's a play on words that is totally obvious when someone else is saying it ... you can try to say it out loud and see if you "hear" it ... but not to be said out loud around children ... except for the Wee Todd Did part, that's clean, it's Tom's part that has a wordy dird in it.

Okay, I finally got Tom's but it took me forever to get yours, I guess I am Wee Todd Did.

Hi Donna, My parsley tincture is also from NutraMedix, and a bargain at $30 an ounce Really, I don't know what they are doing with these tinctures. I used to make my own herbal tinctures and they worked just fine. I could make a gallon of tincture at that price!

Thanks for the website link...got it bookmarked. Hum, okay...maybe I'll see if Anna can order the Parsley for me.

Wow, really? I've got a mini-trampoline that I couldn't get rid of. So, what's the secret girls? How much bouncing?

I've forgotten what the consensus was on the amount of bouncing...I'll have to reask that question. I don't think it has to be long, for some reason 5 minutes sticks in my mind, but that doesn't necessarily mean that's correct. I'll ask.

Yeah....so we are not talking about a cup of applesauce

Its usually one full jar per day....and the jars are big. So could that be enough to keep things moving??

Today was day #2 of unassisted bm's!!

WOO-HOO....I'm on a role here people!

Oh...and is it Wednesday yet??

Wow, who knew applesauce in mass quantities could be so therapeutic.

I wonder if it could be some sort of herx from the chelation or parasite killing stuff. Does anyone have an opinion on this?

I'd say yes...you're going through chelation which is killing off some of the candida, which has probably been buffering some of the lyme bugs. Now that you're killing them off the lyme bugs are coming out to play.

I agree so much with the money thing! My friend is totally ticked off (not at me), lol. She says she wants me to get well so that I can spend my money on fun things again instead of tests, meds, etc. She sent me an info package on a cruise....it was a great bargain to Europe. I had to tell her no because even at a good price, it would still take a huge chunk out of my money for flooring or paying off bills, and then there's the time off...

[dlp252]

Okay, so I asked the question on my fitness forum about rebounding, here's what a couple said:

I have read the minimum time for healthbouncing to increase the lymphocytes in the bloodstream is 2 minutes. 15 minutes sound about right to me for the ultimate effect if it is the only thing you are doing cuz in Discovering Chi, bouncing in horse stance (on a regular floor/ground) is supposed to be done 15 minutes a day especially if nothing else is being done.

Forget how long others have suggested LOL

I was looking up the health bouncing question in "Rebounding To Better Health" an old paperback I got years ago. It says "A couple of minutes of health bouncing is very effective for moving the lymph fluid, flushing toxins and waste products out of your body." "In a few minutes of health bouncing, the white blood cells are increased as much as three fold....It can be an exercise by itself, done briefly four or five times a day."

I do remember 5 mintues from somewhere, though...

...

It says brief sessions, several times a day are more therapeutic than one long session, because of the repeated movement of lymph and increased production of white blood cells every tiem you health bounce.

I did some checking on the Internet and found one site that said 40 minutes! Now, that was 10 minutes at a time, 4 times a day. Still I think that is a bit much, lol. Anyway, I like the comment on the several sessions a day thing. My favorite thing to do on the rebounder is jumping jacks, so I can do 2 minutes of jumping jacks a bunch of times a day.

[AndreaB]

I do not have a clue where Rinne is. I think she was on here reading the other day. She never posted, though. I hope she is doing okay. Hopefully, we will hear from her soon!

She was last on on Friday afternoon. Hope she pops back on here today. Maybe she got away for the weekend.

I agree so much with the money thing! My friend is totally ticked off (not at me), lol. She says she wants me to get well so that I can spend my money on fun things again instead of tests, meds, etc. She sent me an info package on a cruise....it was a great bargain to Europe. I had to tell her no because even at a good price, it would still take a huge chunk out of my money for flooring or paying off bills, and then there's the time off...

I know how that goes too.....not that we take vacations though. I'm sorry you can't go.

We are looking into raw milk, or should I say we will be once we get the ok from Dr. E. She had written continue gluten-free/cf on Talitha's ART form but Micah needs more calcium (I'm pretty sure we all could) and I've read recently on Mercola's site that supplements don't provide the bone mass like food sources do. We hope to go visit some farms nearby in August.

Mia,

I think you may be stirring up some things with your treatments. I'm so happy you are starting down the road to feeling better. I really like your new doctor.

[tom]

Back when I was on my ice cream binge (and regular) I was also eating alot of applesauce. It was only one brand that I could tolerate and WF stopped carrying it.

.......

.....A few days ago I saw that there were rows and rows of that applesauce BACK on the shelf!!

WOO-HOO...I bought 6 jars.

1st, . . . . .. . YAY!!

2nd, what brand is this?

Seems I could file it under "safest possible applesauce". Heehee

3rd, when I started having having normal morning BMs last month, I'd find there'd sometimes be an involuntary audible "yay" or "woohoo". It's not like there's anyone to talk to. And while it would be just a medium volume "yay", I'd have to laugh at it actually being said.

It's one thing to think it. Another to have no control over it being audible.

Soooooooo glad I wasn't out at a public restroom!!!

Imagine THAT!!

[tom]

Dear tom,

That is so strange that I never saw those posts from Nikki or Elye! I wonder why I never saw them? WTH?

LOL I meant for the preamble-type sentence to explain it. (Non-applicable if u responded b4 I realized my error and added preamble, but the timestamp says otherwise)

I mistakenly pasted quotes and replies from Tickle thread, while doing my manual version of that fancy-shmancy stacking QUOTE button that every PC user can take advantage of.

So, do not wonder why u never saw those posts. They're from the other thread.

Sorry for the kon-fewwww-zhun!!

[tom]

. . . . I wish I could afford some nut butters, but stirring them up is exhausting!

I wish you could afford them too! Dang those lottery gods ignoring my non-jackpot request to start an R'ville Health Fund!!

Stirring - I realized I may have started pouring off the oil just to skip the stirring!! It would've been a 2 step biggest-workout-of-the-day for me too, before the soy-deprivation began.

No way I would've gotten thru it all at once.

So, if want to skip the stirring just refridge it (right-side-up), then pour off the oil, and munch away!

It won't spread on bread easily, but for the longest time the only thing I had it "on" was a spoon.

More recently, on apple wedges, and the thicker non-drippy reduced-oil almBtr worked great for that.

. . . . There are times upon standing up I nearly pass out. Even stretching can do it to me! It is really scary! Does anyone else have trouble with this?

Quite awhile ago for me. Pretty flippin' scary ! I'd be about 3/4 of the way up & feel if I continued and tried walking I'd pass out for sure. Good thing it never seemed to be on a D day.

It was quite rare for me and I'd assumed low BP, but never figured out how it would be so drastic and intermittent.

I do not have a clue where Rinne is. I think she was on here reading the other day. She never posted, though. I hope she is doing okay. Hopefully, we will hear from her soon!

Ahhhhhhh Rinne seen but not posting! I was wondering how someone said it had been just a couple days when it seemed like a wk to me.

I sure hope it's a self-imposed absence and not health-imposed.

Rinne!!! Let us know how u are!!

Re: Lisa - it's good to hear she's doing ok. But is any IV action gonna happen?

LISA!! How are u TODAY???

Oh and JIN! What time is dentist? Hmmm maybe you're already there. Wondered if u saw that great PDF sheet from a recent thread on Dentists.

Ugh, my last remaining stupid cracked tooth has gotten loose.

Seems so insane that dentists don't know more (or ANYTHING!) about what celiac can do to teeth.

Way long ago one told me some damage was simply from me brushing too hard!!

Bah time to get an extraction. I've put it off forever since they'll give me antibiotics.

I'll let it get looser until the biznatch FALLS out if an extraction (& antibiotics) will get candida going again!

I wonder if some sort of non-pharm anti-biotic herbs or SOMEthing could do the job well enough. Any comments anyone?

[CarlaB]

Is my Couch of Royalty gonna git me ree-Poe-tid??

I thought I'd come close to crossing the line in the past, but I doubt I'll get any closer than this. Not here anyway.

You didn't expect anyone to notice, did you? Jin, you just need to look back at my post ... I quoted the essential part of Tom's for the joke.

Carla-

thanks for the description of Air hunger. this is definitly one of my symptoms. It's funny i have described this to so many doctors over the course of my illness and no one has connected it with lyme, metal, herxing or anything.

It has improved but the past week i ahve had some weird symptoms including alot of return of symptoms and this is a major one . It is worst when i am eating and makes it that much harder.

I am going to talk to my doctor about it.

I wonder if it could be some sort of herx from the chelation or parasite killing stuff. Does anyone have an opinion on this?

Miamia, maybe all the other stuff you're doing is revealing a babs infection. Chloe didn't used to have air hunger, but since we've been treating the Lyme, the babs symptoms are starting to show. As you are peeling away one layer, maybe the symptoms of the other layer that have been masked are starting to show. That would be my guess.

If you feel like you are going to pass out a lot, that could be your trouble. My previous MD told me that could cause me to feel the way I am feeling. There are times upon standing up I nearly pass out. Even stretching can do it to me! It is really scary! Does anyone else have trouble with this?

Yes. I think it's from low blood pressure ... I had low blood pressure from the Lyme. That doesn't happen as often as it used to, but when it happens, I completely black out ... I have to stand there for a few seconds.

Wow, who knew applesauce in mass quantities could be so therapeutic.

It's definately the applesauce ... I can't imagine what a jar of applesauce would do to me!

Way long ago one told me some damage was simply from me brushing too hard!!

Yeah, I have some gum recession ... it's *only* cosmetic ... dentists always accuse me of brushing too hard. I use a soft toothbrush and a circular motion. Now I use a Water Pik and one of those electric toothbrushes that moves in circles (my ortho told me to use these). If I brushed any softer, I would have to be using my finger instead of a toothbrush!

Anyway, I spoke with a dentist about what causes gum recession in the case of gum disease. It's the gram-negative (cell wall deficient) bacteria that causes the bone to erode, which causes the gums to recede.

One of borrelia's forms is cell wall deficient, so if it were present in the mouth, it could cause gum recession. Since I have TMJ issues, I would guess it is present in my mouth.

Dentists always make the assumption that I'm brushing too hard because I don't have gum disease, so they don't consider it could still be caused by bacteria.

[bunnyrobinson]

Well I've been struggling for quite some time now. It doesnt matter what I eliminate I'm still sick. Its like it HAS to be something that is constantly in my system because I havent had a single symtom-free day for over 3 years now. Even when I limit myself to 2 safe foods I'm still having symptoms so basically nothing has worked. All meds or supplements have worsened my symptoms. All gluten-free packaged foods bother me. I toatlly eliminated casein and still have problems. It was only one supplement I was taking that had milk in it so I stopped taking it...felt better...started eating more foods and totally symptomatic again.

I was eating Enjoy Life chocolate chips with no problems..also did some baking...no problems. I had one cake mix with all safe ingredients and reacted. The mix only had like 4 ingredients and I tolerate all of them...the only questionable ingredient is Xanthan gum. Its also in every gluten-free product I've reacted to and also rice milks and almond milks and a ton of other stuff I cant have. I found out its from CORN. I never thought about corn...but its in everything. Even when I'm only eating meat and veggies (no corn) I'm still having corn everyday in my thyroid meds and any supplements or vitamins I've ever taken most likely have corn.

Pre gluten-free I never ate much candy or sweets....my favorite snacks were popcorn and Tostitos. These were also the first foods I started avoiding long before I ever heard of gluten because the next day I always had a swollen face and a migraine. I had thought it was from the salt or something. I thought everything was thyroid related since I had Graves so I started avoiding all salt.

I did some research on corn and its in pretty much everything...seems more difficult to avoid then both gluten and dairy. Today at work (I work in a grocery store) I started reading all the labels of the foods I used to eat before I got sick. They ALL have corn. Its in bread, soups, microwave dinners, yogurts, cheese (why is corn in cheese?). Anyways, I've never been corn-free because of my thyroid meds and lots of other things I've tried over the last year. I had posted about getting "glutened" by all the gluten-free cereals. Well they are all corn based....DUH. I dont know why I never thought of this since everything I've had problems with have some form of corn in them.

I really need to eliminate the corn to see if I get better but dont know how I can do this when I need to take thyroid pills everyday. What do people do in a situation like this? What if I'm intolerant to corn all this time and its in the medication I need to take?

The other big question is am I really intolerant to gluten and dairy? If I get better off corn I dont know what to think about that. All the foods that have gluten also have corn so I would likely have to stay off gluten anyways....hmmm...does pizza have corn in it?

Also yogurt and ice cream really mess me up but they also have corn. There ARE some brands and flavors that dont have corn so I would LOVE to not have a problem with dairy!!

I would rather be intolerant to corn and gluten both than have to give up dairy for good.

Does anyone have a corn intolerance? Could I have just developed this out of nowhere and NOT have gluten intolerance...or is it more likely that gluten caused this to happen in the first place? I'm actually hoping I'm corn intolerant cuz as hard as it seems I've been struggling a long time now. The symptoms I've gotten from the stuff I've eaten with xanthan gum are severe....also I had powdered sugar yesterday and had another severe reaction. I have no reaction to cane sugar but when I looked at the ingred. of the powdered stuff its cane suger AND corn starch! Right now I feel exactly like I felt before I ever went gluten-free...everything hurts. This would explain why I dont do well with anything processed or with any supplements or vitamins or medications.

I dont see too many people here with corn problems but hopefully someone has some advice about the thyroid meds??

[tom]

You didn't expect anyone to notice, did you?

LMAO I figured a few would get it, and others would assume it's just my alleged "speaking in riddles" and move on.

I CERTainly never imagined it being *QUOTED* and discussed!!!! ROFL!!

It's been around forever, as far as I'm concerned and I was online before the WEB was!!!

It was all BBS and no links. Had to hang up modem and have it redial the # of another 'site'.

Sure sounds ridiculous now!

Yeah, I have some gum recession ... it's *only* cosmetic ... dentists always accuse me of brushing too hard.

Pfffft dentists!

Mine was a ridge in the tooth. And worn-off enamel on others.

Minor compared to everything celiac did to me, but it makes my blood boil to see every mainstream "trusted" medical site say adult celiac is only about D and "foul smelling stools". AAAAAARRRRRRRGH!

I hate mentioning celiac to someone and seeing some look in their eye that suggests they plan to "look it up" on some "trusted" site. AAAAAARRRRRRRGH!

And CARLA!!! what's w/ being avatarless??

P.S. Rachel, you got another one! (Reply to April 18 '06)

Cracks me up every time.

[UR Groovy]

...

If you feel like you are going to pass out a lot, that could be your trouble. My previous MD told me that could cause me to feel the way I am feeling. There are times upon standing up I nearly pass out. Even stretching can do it to me! It is really scary! Does anyone else have trouble with this?

...

You know, I had this problem for a long time. I think it was 2 things - mostly blood pressure.

One was that my stupid doctor put me on an ACE Inhibitor - it's a med. for high blood pressure - even though my BP has always been normal (apparently, it's typical protocol for reducing proteinurea, but for me, it's stupid because my BP is totally low anyway). The ACE causes a rapid drop in BP which causes dizziness. I almost passed out lots. I went off the meds and it got much better.

Secondly, I have to assume I was really low in Vitamin D, because when I started getting more sun and taking D3 supplements, the dizziness went away and never did come back. That was last summer.

P.S. Rachel, you got another one! (Reply to April 18 '06)

Cracks me up every time.

This is beginning to crack me up too.

ALSO,

I'm really glad you guys were talking about EPSOM SALTS a while back. I really think that there are so many benefits for so many people and that people just don't know. I started looking into this because of the sulfur connection months ago.

ALSO, please:

WHAT IS DINGO'ING exactly? I have a feeling that I may "Dingo" a lot.

Speaking of which, Susan, your couch procuring episode is really one of the most prime examples of the Art of Laziness. It's amazing how much we're willing to go through in order to enjoy countless days and months and years of future laziness. Enjoy your couches. They sound awesome.

[tom]

Dear tom,

Oh tomatha! You silly man! Don't you know going cold turkey is deadly to someone with low glucose?

Oops!!! <Emily Litella voice> "Never miiiiiind!!"

Playing with words is always fun. Sometimes, I play this word game where I try to go through the alphabet and find a fruit or animal or something for each letter.

Hehe I have a game w/ license plate letters. Must create a word, w/ as few letters as possible, and as many adjacent letters (to match the plate) as possible.

There's a points system, but not actual points LOL. I just know which word would score higher.

The hardest have a J in the middle.

Hadn't even thought of the game in years until brain woke up. It used to be, and is again, practically involuntary.

The almond butter is difficult to stir or even open without making a huge mess. I have not been able to figure out how to avoid making a huge mess while opening it, or while doing anything else with it. All of the oil disappears somewhere after it is refrigerated. Then, it dries out! Even if I could afford to get some cashew or almond butter (it is like $10 to $13 a jar), I am not sure how to solve that problem!

Out of what must be hundreds of jars, only one ever dried out. (And that's even w/ the oil poured out) That one was only because I'd left it in Mom's fridge and forgotten about it.

What kind do u get? Mine is WhFds house brand. $6/jar. Could NOT believe when I first saw $18 almond butter!!

[dlp252]

Re the passing out thing...yeah that was bad for me last year. I have really low blood pressure, and when I stand up it (the blood pressure) shoots down. My doctors (the Health Now doctors, lol) told me that, that was a sign of low adrenals. Well, yeah, I definitely have low adrenal function...in my case, though, I think THAT is caused by something else. I mostly don't feel like I will pass out anymore, but I still do feel a change in blood pressure when I stand up. I think the supplements they've had me on forever now have helped a great deal.

Having the amalgams out probably helped too.

Addressing the lyme and mold and metals and candida has probably helped too.

[CarlaB]

Pfffft dentists!

Mine was a ridge in the tooth. And worn-off enamel on others.

Yeah, I have two enamel defects ... interesting since I don't have celiac ... but I am clearly gluten intolerant and have two DQ1 genes, so maybe it is from that.

Minor compared to everything celiac did to me, but it makes my blood boil to see every mainstream "trusted" medical site say adult celiac is only about D and "foul smelling stools". AAAAAARRRRRRRGH!

I was a "classic celiac" ... then ended up testing negative for it ... so many celiacs here who are not "classic".

And CARLA!!! what's w/ being avatarless??

I got tired of it. Shall I put it back up? How about an oldie? Yeah, I'll put up an old one ...

[CarlaB]

Okay, Tom, there's an avatar ... that's hubby and I at Outback ... it was taken spring 2006 ... I had JUST stopped losing weight, but that was only because of the quantity of food I started eating ... after a full meal at Outback, I went home and made myself another full meal ... it would be 8 more months before I figured out it was Lyme Disease.

And, yes, hubby ALWAYS makes goofy faces in pictures. His "ring" on my new phone is "boing" ... it makes me laugh every time he calls ... and his goofy mug shot shows on the screen.

[tabasco32]

Girls

Don't know what to do.

So weak now.

diarrhea again, Only started the amino acids 4 days ago. The only change.

Don't know if it's because my mom vacummed my room last night or what.

Don't know if my mom hugged me greatly because she loves me and she cries because I am dying.

She had all these toasted bread crumbs on her and I can taste toast all day.

Dont know if it's the whey powder in the house flying around. I can still taste it even with a mask.

I am so weak. I have no money and no money for treatment and doctors. Just prayer is all I have now.

Good bye

Lisa

How can anyone be this sensitive and live????????????????????

[CarlaB]

Lisa, please get to a hospital and get some IV nutrition in you!!!

[Rachel--24]

Lisa,

You *can* get better. You need to get some help.....you need to go to the hospital if you're getting weaker. What about the money you were going to use to get the last 6 fillings out??

Can you use some of that money to get some help now?

I think something has to be done now...before you get any weaker. I agree with everyone about getting some IV nutrition in you. You might even be dehydrated because of all of the "D".

Please go to the hospital.

I will say some prayers for you.

[dlp252]

Lisa, I agree with Carla and Rachel, you need some immediate help and the hospital will at least get some nutrients into you. The other stuff can come later.

I have some websites bookmarked at work for assistance/patient advocacy...I'll post them...maybe there's something there that can help you with the medical costs.

[AndreaB]

I am so weak. I have no money and no money for treatment and doctors. Just prayer is all I have now.

How can anyone be this sensitive and live????????????????????

Lisa,

YOU NEED TO GET TO THE HOSPITAL NOW FOR IV NUTRITION AND REHYDRATION!!!

PLEASE GO.

[tom]

Lisa,

This is not a time to worry about paying.

Go to the County Hosp or equivalent and they WILL treat you regardless.

Please go.

[Rachel--24]

I talked to Lisa....she is on the way to the hospital with her mom and her Aunt. She is really needing our prayers right now. She asked me to post and let everyone know shes going into the hospital and asked if we could say some prayers for her.

She's scared but I'm praying she'll get some help now.

Hopefully I will hear from her soon. She said she will call when she can.

[AndreaB]

Thanks Rachel.

I'm so worried about her. I'm glad she's going. As much fun as hospitals aren't she really needs some help.

[Judyin Philly]

Thanks Rachel for calling her and andrea too

prayers are flowing her way.

Glad her mom and aunt will be with her

hope and pray they can help her!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[tom]

Yes, thank you Rachel for the update.

[diamondheart]

Gluten and dairy can do the same thing....especially if the person is intolerant....or in your case Celiac....it makes it harder for your body to detox.

Wow Rachel, these are the two main foods I don't tolerate. What's the connection with detoxification exactly? Two more days till your LED treatment. I need to schedule another one, but I've been so dang busy. And like Miamia, it's a money thing .

Thanks for updating us on Lisa. I was really worried when I read her last post .

GOOD LUCK LISA! I'll be thinking of you. ((((((HUGS))))))

AAM: One week until I get the rest of my amalgams removed. My one tooth that was replaced two weeks ago is hurting again. I think I'm going to ask the dentist if he can put more composite on it. I think he filed it down too low. The only good thing about amalgam fillings is that they don't hurt . I haven't had much luck with composite fillings yet. The two I have are sensitive. Anyone know of any techniques dentists can use to prevent this with the composite fillings?

Stupid cavities !

Claire