Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

NoGluGirl Contributor

Dear Judy,

You are important you know! ;) You are right, Astragalus is a legume. I looked it up. I know what you mean about how hard it is to go in the grocery. There are so many things that look so good that we cannot eat! :(

I was annoyed at this goofy board earlier. I typed all of that in, and then it tells me it cannot find the server! Does that happen to other people, too? At least it did end up being posted. I spent a bit typing that out.

Do you think Jim would mind building a third bubble for me? :lol: With Celiac, it feels like you will have to be in one to avoid becoming sick. There are gluten particles everywhere! Everything can make you ill! It is difficult not to become paranoid!

Sincerely,

Jin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Rachel, Thanks for the info.

"""we have to avoid EMF's as much as possible"" could EMF=electronic Magnetic Fields??????????????? AM I FINALLY STARTING TO GET IT?????????? SINCE JIM IS TRYING TO DESIGN AND PATTEN FOR A BUBBLE FOR ME TO LIVE IN...HE COULD MAKE ONE FOR YOU TOO? :lol:

:lol:

JUDY,

Yup....EMF's = Electro Magnetic Fields. You got it Girl! :D

Hopefully I wont be needing a bubble after these treatments! The whole point is to be able to live bubble-free. :D

I have 4 more to go. If any of them dont work because the detox was somehow interupted....then I'll have to repeat the treatment. :(

Maybe I could borrow your bubble for the 25 hours after each treatment. :lol:

Rachel--24 Collaborator
I know I'm getting extremely tired of the same old food.....I don't know how you do it Rachel. :blink:

I think I can only handle it because I'm always telling myself that its not forever....just a little while longer. ;)

Sometimes I get frusterated though...the other day I said "I hate my food!!"

My mom got mad and said "Thats why you're doing these treatments so stop being so negative!". :huh:

Yeah....I'm not sure anyone would be positive about eating the same stuff for over a year. :unsure:

Rachel,

How'd you do with you water if you were sleeping all but 10 hours of the detox time?

I did a good job with the water. I think I probably drank more than the 4 quarts. :D

Even though I was sleeping I woke up alot to go pee and drink more water....also to take my necessary detox supplements.

Rachel's mom......I just want to say that I wish my mom were as understanding with the alternative type treatments. Rachel is lucky she has you. :)

Yup...I'm a lucky girl. :)

My mom is really believing in the alternative stuff but she says she'll believe it even more when I get better. :P

Shes new to all this too but she always says that she notices alot of improvement from the time I started BioSET to now. I dont really see it because I'm still real sensitive but she says I'm forgetting how bad I was before that.

She reminds me of how I was crying all the time, really struggling with what foods to eat....she says when I was going to Dr. Rick at HN I was always doing really bad.....complaining about everything, no energy, etc. All of that is better....I'm never crying anymore. :)

Its the things that were really draining on my mom that are almost non-issues now....so thats what she notices the most. No more big outbursts, no crying every night, no more fits after eating something bad.....stuff like that.

I also used to be asleep everyday when she got home from work....now we *know* that has changed.....now shes constantly trying to get me to go to bed! :P

On the way to my treatment I said "I hope this stuff works and that I can start getting better." I told her I was nervous about feeling bad during the detox....but I was even more worried about the treatment not doing anything at all.

My mom said "Rachel...if you go around thinking that its not gonna work...nothing is gonna work....you have to be positive." :)

Andrea, I'm glad you got out by yourself...even if it was just for a short time. :)

Rachel--24 Collaborator

Ok....so heres how the treatment went. :)

First she put me on the chi machine for 10 minutes. I just layed on a real comfy bed they have set up on the floor....my ankles sit on the machine...she covers me with a blanket and the machine just shakes me up.

The purpose of the chi machine is to stimulate the lymphatics..... it aids in the removal of toxins by getting things flowing and making it less likely that toxins will get "hung up" in certain areas.

Lymph can only be moved around the body as the result of physical activity. The Chi Machine effectively moves the body's fluids and aids the Lymphatic system - particularly important for those who get very little exercise. Professor Neil Piller (a world renowned Lymphoma researcher) said he has found the Chi Machine to be the most efficient method of lymph drainage that he has come across.

Movement of the Lymph Fluid is very important. The lymphatic system is spread like a web throughout the body. There are tiny vessels that carry a colorless fluid called lymph. Suspended in the fluid are lymphocytes, white blood cells whose purpose is to fight disease and infection.

Connecting this network are small bean sized organs called lymph nodes; the lymph nodes, which are connected in the arm pits, neck, groin, chest, and abdomen filter the fluid and initiate the body

AndreaB Contributor

Rinne update!

I emailed her and she got back to me and said she's been busy and not on the computer. She's been thinking of us and will try to get on soon again.

She sends her love. :wub:

Rachel, Thanks for the info.

"""we have to avoid EMF's as much as possible"" could EMF=electronic Magnetic Fields??????????????? AM I FINALLY STARTING TO GET IT??????????

You got it!

Andrea, Good lord girl............you go to the grocery to relax? :blink:

If I'm by myself I can take my time, aside from getting back to Seth. As he gets older I can be gone longer though. When I was at the store last week one of the workers commented on me being kidless and the break. I thought it was funny.

The hard part is deciding between my beloved chocolate and something we really need, like lettuce. :P

We want to head up to a lake with a walking trail around it today, even though it is overcast. There is also a playground there if we decide to stop and let the children play for a bit. Really depends on how much time we'll have left before lunch.

Oh boy! A tooth extraction! :lol: What a treat! I may have to get one, too. I either need a root canal or extraction on this one molar. I need to see my doctor and ask her what she thinks.

I'd vote for the extraction. You don't need to additional toxins from the root canal.

Yeah....I'm not sure anyone would be positive about eating the same stuff for over a year. :unsure:

I did a good job with the water. I think I probably drank more than the 4 quarts. :D

That's really good to hear! :D

On the way to my treatment I said "I hope this stuff works and that I can start getting better." I told her I was nervous about feeling bad during the detox....but I was even more worried about the treatment not doing anything at all.

My mom said "Rachel...if you go around thinking that its not gonna work...nothing is gonna work....you have to be positive." :)

Your mom is right. We don't know how this stuff works, but it's worked for other people and it will work for us. Positivity does play a part in it I believe too.

AndreaB Contributor
First she put me on the chi machine for 10 minutes. I just layed on a real comfy bed they have set up on the floor....my ankles sit on the machine...she covers me with a blanket and the machine just shakes me up.

Mitch says he has something like the chi machine he goes through everyday...........it's the truck he drives. :P lol

Rachel--24 Collaborator

So I told the girl that I'm up to 9000 mg. of Vit C and still no loose stools...in fact I was getting more consitpated. :huh:

I was also up to 3000 mg. of magnesium.

She wanted to test my urine to check vit c levels. I'm pretty sure thats what they wanted to check last time when I spaced out and came out of the restroom with an empty container. :rolleyes:

My mom was saying..."Dont let go of the container...dont forget why you're going in there!" :lol:

So she tested the urine and I was about 75% with the Vit C. :blink:

She said I'm just really deficient and on top of that my system is slow...she said it would probably catch up with me....its just taking time to build up.

She had me go back down to 5000 mg vit c...and increase the magnesium.

Well I ended up never relieving the constipation and I did 3 enemas yesterday to make sure toxins were moving out. :(

Whenever this happens where I'm feeling totally "blocked"....it seems that with the enemas I end up removing a ton of yeast. :o

At least I've always *considered* it to be yeast. :unsure: It actually *looks* like yeast....totally opaque or white in apperance.

I think its the yeast that causes the blockage. I couldnt wait for the 25 hrs to pass so I could get online and see if large doses of Vit C would kill yeast....because I know dead yeast can cause constipation if its not removed.

I found this stuff...

In addition, to help bring prompt symptomatic relief, I suggest megadoses of vitamin C. Used in sufficient quantity, I think it is superior to nystatin, imidazoles or any other pharmaceutical you may be offered. Drugs may indeed kill fungus, but they do not build your immune system. Vitamin C does, and it is your immune system that is the key to a healthy body with healthy balance.

In general, Vitamin C is a weak acid. Candida, bacteria, fungi and parasites are often killed off by high dose vitamin C and this releases toxins into the system. Gas, headache, nausea and lightheadedness sometimes results but this is just a sign of a temporary cleansing or detoxification reaction.

If you have a weakened immune system you are more susceptible to Candida overgrowth and in fact Candida overgrowth is often seen as evidence of a weakened immune system.

Vitamin C affects general immunity which impacts the environment in which yeast can multiply. Stress also depletes vitamin C and we may not be getting the levels of Vitamin C we need for optimal health and immunity with our current 'fast food' diets. Vitamin C is not stored by the body so we need a constant supply to keep Candida at bay.

Vitamin C is most known for its ability to boost the immune system. It has numerous other biological functions as well. Vitamin C is among the most powerful antioxidants, providing protection from free radical damage to the eyes, lungs, blood and the immune system. Vitamin C inhibits candida and promotes wound and gut healing. This vitamin is also important in the biosynthesis of carnitine, serotonin, and certain neurotransmitters, including norephinephrine.

So I think I'm gonna continue with taking alot of Vit. C. and see what happens with the candida....obviously I'm not gonna get rid of it...but I just want to reduce it so that my sensitivities improve some. :)

I feel like I was definately clogged up by the yeast once I started really increasing the Vit. C.

As the candida organisms begin to die off, they collect in the intestines. Some people experience a rapid "die-off", and the dead candida organisms build up in the intestines quicker than they can be removed. If this happens, constipation can result.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor
Dear tom,

It is too bad you cannot walk barefoot among the beaches. Of course, you have to be careful. Glass and everything else probably is laying around from disrespectful individuals who care nothing about the Earth. They throw trash anywhere. Only the wildlife suffers, not the people responsible.

Gah! No no no! I didn't say it right at all!!

Monterey Peninsula coast isn't trashed!!! Bite your tongue!! :P <ouch> :o

It's wild and rocky, not sandy and slow-mo red-suited silicone!!

And not smooth rocks either. THAT's why shoes are recommended.

(Plenty of great sandy beaches all over the Central Coast, just not at that unique tip of that peninsula. :P )

Dear Rachel,

. . . . I understood why the electronics are not allowed. I am a bit confused about the others. The items you are sensitized to makes sense, but the spices I am curious about. What is wrong with cinnamon, peppermint, and spearmint?

Ya I thought the same. It makes me think of BigRed and the Doublemint Twins!

Here's something I meant to write Fri . . .then Sat . .. .so I better do it before I forget.

Bah it's just so minor compared to what goes on here, tho my mental reaction wasn't minor.

I'm getting coffee at what I'd thought was a great place but a little out of the way. I take great pains to specify "plain, regular, nothing added coffee" and this moronic punk kid gives me what I think is right. One large sip to test temperature and I know he can't even serve a plain coffee. It was some damn Creme Brulee flavor of the day.

And I'm freaking out, so worried that some stupid thing is gonna knock me out of all the goodness I've been experiencing. 60 sec later, after getting some water from this idiot I'm in the bathroom trying to puke. Only barely did.

For a few hrs, while minor, it *was* the worst I'd felt since May. Little dizzy, little nauseous, fuming at an incompetent who can't handle the simplest task, sitting slack-jawed & glassy-eyed, I could NOT f***** believe I ingested something so wrong, as careful as I am.

Some effects felt for the rest of the day.

Maybe I need to smell before taste.

Strangely, or maybe not, my feet really hurt the rest of the day. I'd forgotten what it was like to be constantly aware of pain, tho it was that way every day for many years - and certainly not just feet.

Thought my luck had finally run out. :(

Waking Saturday morning feeling great in spite of it was a moment to be treasured.

I'm still so scared all the goodness will suddenly be gone. <1 actual tear>

OK THEN!!!! Back to posts about real health issues!!!! :)

Hope everyone's feeling good today!

AndreaB Contributor

Wow Rachel! :blink:

That's very interesting. Glad you did the enemas though.

CarlaB Enthusiast

Any word on Donna's solo????

Tom, sorry you got glutened. I use Glutenease ... it's an enzyme that helps you digest gluten ... it might be good to carry around for such emergencies. Obviously you wouldn't want to consume gluten, but it might ease the pain when you get some accidentally.

Rachel, I'm glad it went well.

Andrea, I used to go to the grocery for relaxation, too.

Hi to everyone else!

CARLA..IS THE 'ASTRAGALUS' A LEAGUME???????????

HMMM, I REALLY DON'T KNOW. I DON'T THINK IT IS ... I'M PRETTY SURE IT'S NOT. I TOOK IT IN A PILL FORM ... THE PILL WAS GARLIC AND HAD ASTRAGALUS IN IT.

tom Contributor
Tom, sorry you got glutened. I use Glutenease ... it's an enzyme that helps you digest gluten ... it might be good to carry around for such emergencies. Obviously you wouldn't want to consume gluten, but it might ease the pain when you get some accidentally.

Heyyyyyyy I never used the G-word ;)

The last time I got glutened was mid-march 2004, and I *know* I would've felt far worse if I got glutened.

It could have been corn syrup or dairy or who knows really.

I personally don't think Glutenease would help me. Until there's a product called Gliadin-ease I'm not interested. :)

A celiac's problem isn't lack of the right enzyme(s).

I can't deny the product could be a godsend to some gluten-intolerant ppl.

CarlaB Enthusiast

Tom, I didn't mean that it would fix the problem, but I've seen it mentioned on here that it helps some with glutenings. It's also good for helping to digest casein. I know it doesn't "fix" celiac! If only it were so easy, right?

Rachel--24 Collaborator

Next we went into another room and she just explained everything about LED...step by step what she would be doing. I understood all of it because I had already written that post describing LED a few weeks back. :)

Before we started she was massaging my intestines cuz of the constipation issue. She said she could feel that I was bloated and she was moving stuff around and somehow knowing what was what. :huh:

I still have no idea about anatomy. :unsure:

She was telling me I could do this myself and kind of get things moving so that I might stimulate bowel movements. She was saying something about neurotransmitters and the brain not sending the message to the bowels and stuff just sits there because my body sort of "forgets" what its suppossed to do.

We were talking throughout my whole treatment so it went by pretty fast.

She had to do the photon pulse at each of my most toxic sites (toxic foci)....that was mostly around my head area...my jaw, brain, brain stem, thyroid, sinus, lungs, tonsils, etc....and then my liver.

I cant recall the order she did everything in...but it went something like this.

A typical session involves
Rachel--24 Collaborator

We talked about the bugs also.

I was mostly wanting to know what the reasoning was for going after the bugs with LED before going after the metals. :unsure:

I know Dr. Cowden doesnt usually do LED on the bugs because he says they come right back with the metals still in the body. Once the metals are gone he goes after the infections with the herbal remedies and says its much easier to deal with them at them point.

Alot of other Dr.'s do go after the bugs with LED. Scott and I both have our LED's for infections scheduled ahead of the metals...the metals are last.

I asked Scott about it and he said hes not too worried about it since our LED's are scheduled close together...it shouldnt really be an issue.

I asked the girl about it as well. She was saying that with the bugs being latched onto the metals they like to get the bugs out of the way first. They start you on the appropriate antimicrobials once they do the LED for the bugs. Then they have those detox support agents in place as well.

She said they cant get to all the metals as easily while the bugs are still there and carrying the metals around to different areas. Once they start reducing the bugs...then the metals come out alot easier she said.

Cowden says that LED's for mercury usually have to be repeated later on once the bugs are killed off with antimicrobials...because this releases more mercury into the system.

So if thats the case it makes sense that its easier to remove the metals w/out the bugs still there holding onto to them.

She said the metals by themselves dont usually cause too many symptoms but they're weakening the immune system and creating the environment which allows the bugs to take over. Thats when the symptoms really hit us.

She said the bugs also do so many thing to *keep* the environment favorable for them....reducing our body temp....etc.

Part of the protocol for the 25 hour detox period includes chlorella. I told her I cant tolerate any brands of clorella I've tried. :(

She said she would test me for another brand that they have. She tested me and yeah...it was definately NOT gonna work for me. She said the bugs can actually create these intolerances when we begin to take something which is really helpful to us....but NOT helpful for them. They do everything they can to keep the environment favorable for them.

Instead of the chlorella she had me on something called Porphyra-zyme during the 25 hour detox period. It tested ok for me but only for 2 cpasules twice a day...more than that weakened me.

Porphyra-Zyme, unlike other chlorophyll products, is a concentrated porphyrin supplement.

By increasing the porphyrin content, the heavy metal binding capability is also increased, providing a natural, very effective and safe oral "chelating" tool.

The porphyrin ring of chlorophyll has the ability to bind with metal ions. The central ion in chlorophyll is magnesium, which is freed from chlorophyll under acidic conditions, permitting other metals to bind in its place. Toxic metals, such as mercury, lead and arsenic are complexed first. Then excess amounts of other metals can be complexed.

dlp252 Apprentice

Uggg, still not feeling well today, but made it through the solo. People said it was good, so I'll just choose to believe them. :P

Anyway, more D today and bad pain in my stomach for about an hour this morning...thankfully that went away before I actually had to do the solo for real.

Very interesting stuff Rachel.

Glad you "talked" to Rinne Andrea.

jerseyangel Proficient

Sorry you aren't feeling well today, Donna :( I'm glad the solo went so well, though. I know you were great despite the stomach upset. :)

Aren't you glad it's over :D

jerseyangel Proficient

Rachel,

This is all quite exciting! :) Thanks for posting all about your treatment--it is so interesting.

Andrea,

How are you doing? Thanks for contacting Rinne--I was wondering how she was and if everything was ok.

Jin,

Hi sweetie--I haven't been on much--just pinning posts and such. I wanted to tell you how happy I am that your dad has started his new job already. That must really be a load off all of your minds.

Hello to everyone! Hope you're all having a nice weekend :)

Rachel--24 Collaborator

Scott got there while she was still in the middle of my treatment. He went ahead and got himself started on the chi machine so my mom went and chatted with him during that time.

He is 2 treatments ahead of me but its still neat to be going through it at the same time and to have someone to talk to about it....especially since we're seeing the same Dr.

I'm actually surprised that I dont have as many toxins to treat as I would have expected. I guess it might just be that the mercury and infections (especially the fungal ones) are causing a significant amount of problems. I think the fungal issues probably account for the vast majority of my symptoms.

I dont have sessions for the plastics or some of the other things that Scott is scheduled for. He said they must be non-issues for me.

I'm surprised I'm not even needing treatment for the group which includes nickel, cadmium and chromium.

I'm gonna ask about it and maybe have them recheck it later since I used to smoke all those years and cadmium showed up in hair analysis and BioSET. A huge source of cadmium is cigarettes and cigarette smoke....maybe my body detoxed it since it was elevated in my hair but I'm still gonna ask.

Scott was saying that he's heard of people smelling like rotten eggs after the sulfa treatment. I was like "Great...so I'm gonna smell like sewer??" :P

It didnt happen to him and I can now say that it didnt happen to me either. :)

The girl said that one time when she was treating someone who used to smoke....even though he had quit a long time ago...during the treatment he started really smelling like cigarette smoke. :blink:

She said they both noticed it right away.

Unfortunately I cant have a treatment until the 17th. :(

They're gonna be closed until then.....nobody is gonna be there. I figure the girl must be going on vacation or something.

After that I have a treatment every Friday until I finish. :)

They could have sheduled me this coming week....during the week. But the appt.s were early afternoon so my work schedule would have to be adjusted and I'd have to take the next day off...then either make up for it on Saturday or take a "floater" and get paid for my day off.

Anyways....it was too short of notice to figure it all out and the work scedule is already done for the week...so I'm just gonna have to wait till the 17th.

I could be getting them done all at once (with 25 hours in between) if I wanted but I think it might be better to kind of let my body catch up with a week in between treatments. I'll just have to be patient through the process. :)

So after the treatment I felt fine and then a couple hours after the treatment I got really tired and went to sleep. I didnt know if it was because I was bored or because of the detox. :rolleyes:

Every time I woke up to go pee during the 15 hours I slept I felt "extra" groggy....my legs hurt when I walked and my head hurt. I just felt achey and once I felt a little dizzy.

In the morning when I got up I felt really nauseus. I was laying in bed and feeling like I might throw up. I felt exactly like I felt from the sauna and the chlorella. I went back to sleep and felt better when I woke up. The nausea was gone. :)

My bowels felt really backed up and my back was hurting so thasts why I started with the enemas and my back felt alot better after that.

The girl said that my body is really gonna want sleep during the detox period and thats ok because my body will be working really hard to detox this stuff and its gonna want alot more rest than normal. So I just listened to my body and slept until I was feeling better.

She said the frequencies get absorbed by my body (during LED) and everything is working energetically. Its kind of like when we go outside into the sun and our bodies absorb Vit. D and then it works in our bodies the way it should.

So with the LED its telling my body to dump these toxins and triggering a rapid release of the toxin and at the same time letting my immune system know that this toxin doesnt belong in my body. So things start happening and it starts the process of unburdening my immune system by releasing the toxins. It starts a cascade of the body beginning to properly rid itself of these toxins. :)

Rachel--24 Collaborator

Andrea...thanks for contacting Rinne!! :D

I was getting worried about her....glad she is doing well and keeping busy. :)

Donna...YAY for making it through the solo and I'm certain you did great. :D

Sorry you're still dealing with the yuckiness and the D though. :(

jerseyangel Proficient

Rachel,

When I had corrections with the Kinesiologist, I felt very nauseous starting about an hour after the visit. My skin also itched as though I was going to break out in hives--but I didn't break out.

The next day, I felt very "heavy" and tired. Sounds very similar to how you felt.

Rachel--24 Collaborator
Rachel,

When I had corrections with the Kinesiologist, I felt very nauseous starting about an hour after the visit. My skin also itched as though I was going to break out in hives--but I didn't break out.

The next day, I felt very "heavy" and tired. Sounds very similar to how you felt.

Patti....thats how I felt!

I felt "heavy".....especially my legs and my head. I *never* sleep that much so I think it was more than just boredom. Even after my 25 hours was up I still felt more tired than normal.

Just my little outing in search of Harry Potter and then to Whole Foods was pretty draining. :huh:

I mostly just wanted to lay down all the time.

My next treatment is for Dioxin, PCB, 12 foods and one other thing that I'm not sure what it is. I forgot to ask what Amm. Caus. stands for....but its included in my next treatment.

I'm gonna have to avoid lots of things! :o

In the group which contains Dioxin there is also other chemicals...one is called Artizine...and I would have to avoid isopropyl alcohol.

I dont know if I'll just be treated for Dioxin or all the chemicals in that same group.

Whats interesting about the isopropyl alcohol is that ever since I was a teenager...all the way till I got sick...I used plain ol rubbing alcohol to clean my skin. :ph34r:

It was easy and effective. I put it on cotton balls and used it to clean my face at night. It took off my make-up really good....also dirt. If I felt dirty or sweaty I would also use it on my back, shoulders and arms.

I never used the normal skin cleaners....just ivory soap and alcohol. :rolleyes:

My mom told me when I first started doing it as a teenager that it was bad for my skin...gonna dry it out...cause wrinkles etc.

It never did those things and my skin looked healthy so I didnt bother with using anything else. Now I have to wonder if all that alcohol I put on my skin for almost 20 years was toxic to me! :o

jerseyangel Proficient

What does everyone make of this--if anything?

A couple of weeks ago, I did a course of Zithromyacin for an upper resp. infection. I was nervous to even take it because all antibiotics have always caused me GI upset and D.

Well, not only did I not have any side effects--since I started it, I've been the most regular I've been in years. No D--in fact, how to put this...I use toilet paper, but I don't really need it B) . :unsure:

The other night, I had Perdue chiucken (instead of the Kosher Empire chicken I usually get). I had some indigestion that night that kept me awake and some the next day--but that was it. No D or anything "lower" like I usually get.

I'm certainly not complaining--I had a breath test for H-Pilori last month that was negative. I still wonder if this could have something to do with a bacterial overgrowth. I mentioned it to my GI at the last visit, and he did the H-P test only.

I see him again in October, but do you guys think I'm on the right track here--that there's a bacterial thing happening? Do you think this wonderfulness is going to last?

jerseyangel Proficient
I have to wonder if all that alcohol I put on my skin for almost 20 years was toxic to me! :o

That could very well be--but on the other hand, a lot of skin cleansers and things have alcohol in them, so you may have gotten a fairly good dose of it over the years anyway.

AndreaB Contributor
She said her kids dont get sick at all now and the one that was slow is now doing all the normal things just like any other kid. :)

It was encouraging because you could just see how excited she was to talk about it....she said doing these treatments has been so rewarding for her because its actually helping people and she gets to see it.

That's great news! :D

Instead of the chlorella she had me on something called Porphyra-zyme during the 25 hour detox period. It tested ok for me but only for 2 cpasules twice a day...more than that weakened me.

Dr E had a hard time finding anything Micah would tolerate. I guess he's not as "healthy" as I thought.

Mercury is Monday night for him. We won't get home til around bedtime (9 ish).....and then have the detox period again.

Uggg, still not feeling well today, but made it through the solo. People said it was good, so I'll just choose to believe them. :P

Glad you made it through the solo. I'm sure you did good too. :)

Hope you feel better real soon. :(

I'm actually surprised that I dont have as many toxins to treat as I would have expected. I guess it might just be that the mercury and infections (especially the fungal ones) are causing a significant amount of problems. I think the fungal issues probably account for the vast majority of my symptoms.

I dont have sessions for the plastics or some of the other things that Scott is scheduled for. He said they must be non-issues for me.

Don't forget the onion layer thing. You never know if some things are hiding behind other things. With Talitha during ART mercury wasn't very visible (it's behind everything else, other metals). Mercury didn't come up with the ASYRA for her.

I hope you don't have to go through plastics. That one sounds like a nightmare........a nightmare we get to go through on the 24th. Hopefully Talitha's other treatments will take as I'm planning on having Mitch take off to help with her. Maybe we could figure out something where he wouldn't have to but we'll have to talk about it more.

AndreaB Contributor
I see him again in October, but do you guys think I'm on the right track here--that there's a bacterial thing happening? Do you think this wonderfulness is going to last?

That's a very good possibility. I do hope the wonderfulness last for you. :D That's wonderful news!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748

    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...