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Omg...i Might Be On To Something

Rachel--24

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Rachel--24 Collaborator
Rachel--24
Posted
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I'm certainly not complaining--I had a breath test for H-Pilori last month that was negative. I still wonder if this could have something to do with a bacterial overgrowth. I mentioned it to my GI at the last visit, and he did the H-P test only.

I see him again in October, but do you guys think I'm on the right track here--that there's a bacterial thing happening? Do you think this wonderfulness is going to last?

Hmmmm... I dunno. :unsure:

I tend to think that most of us who are dealing with the intestinal issues have dysbiosis to some extent. Bacteria overgrowth, yeast...stuff like that contributing to the food intolerance and digestive problems.

I tested negative in a few tests for H.Pylori....including bipsies when I had my endoscopy. I did test positive for C Diff overgrowth and earlier this year I tested positive for yeast, bacteria and food proteins all contributing to leaky gut and poor intestinal function.

I recently repeated that test and keep forgetting to call for the results. :rolleyes:

I never tested positive for any of this stuff when I was at Kaiser...but obviously I do have gut issues.

Are you still taking the abx? I do think its likely there is some dysbiosis. I dont know if the wonderfulness will last but I'll definately keep my fingers crossed for you! :)

The balance of good flora is critical for intestinal health...so I think that those of us having problems in that area most likely have upset that balance and are dealing with overgrowths. :(

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diamondheart Newbie
diamondheart
Posted

Hi Everyone, Just a quick drive by for me...

One question for the BioSET people: after we're treated we lay in a darkened room with the glass on our stomach (it has to touch bare skin). I've never noticed this before, but the last three treatments (for lyme) have all been the same. As the glass is on my tummy, after about 5 minutes or so, the area directly under the glass starts gurgling and actually feels like it's bubbling...I can almost feel it bumping the glass, lol. I don't think this has happened in all the other times I've had the treatments, but for each of the three lyme panels so far this has happened. It is just a coincidence? Has anyone else had that happen? I'm going to ask Anna if I can possibly remember by then, but just wondered if anyone has had that happen.

Sorry Donna, I can't help you. Dr. F my acupuncturist does BioSET a different way.

So I told the girl that I'm up to 9000 mg. of Vit C and still no loose stools...in fact I was getting more consitpated. :huh:

I was also up to 3000 mg. of magnesium.

:blink: :blink: Wow, that's ALOT of magnesium!! The most I can tolerate a day is about 1000mg before getting D.

Before we started she was massaging my intestines cuz of the constipation issue. She said she could feel that I was bloated and she was moving stuff around and somehow knowing what was what. :huh:

I still have no idea about anatomy. :unsure:

She was telling me I could do this myself and kind of get things moving so that I might stimulate bowel movements. She was saying something about neurotransmitters and the brain not sending the message to the bowels and stuff just sits there because my body sort of "forgets" what its suppossed to do.

My massage therapist taught me an easy way to remember how to massage your intestines to help you pooh. She teaches mothers to do it on their babies. It's called I Love U. First, you start on your right side of your lower abdomen near your groin. Stroke up for the "I". Then, start in the same place, and make an upside down "L" going up your right side of your abdomen, then across just below your ribs. Next, start again in the same place on the lower right, go up, then across to the left, then down the left side for an upside down "U". You've finished the I Love U! The "I" is the ascending colon, "L" covers the Transverse colon", and the "U" picks up your Descending colon. It's much easier to show you, but I can't really do that here, eh :P ! Hope this helps you to remember it.

Back to packing :rolleyes: .

Claire

AndreaB Contributor
AndreaB
Posted
Back to packing :rolleyes: .

Have a fun, relaxing time Claire. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My massage therapist taught me an easy way to remember how to massage your intestines to help you pooh. She teaches mothers to do it on their babies. It's called I Love U. First, you start on your right side of your lower abdomen near your groin. Stroke up for the "I". Then, start in the same place, and make an upside down "L" going up your right side of your abdomen, then across just below your ribs. Next, start again in the same place on the lower right, go up, then across to the left, then down the left side for an upside down "U". You've finished the I Love U! The "I" is the ascending colon, "L" covers the Transverse colon", and the "U" picks up your Descending colon. It's much easier to show you, but I can't really do that here, eh :P ! Hope this helps you to remember it.

Ahhh....that must be what she was doing! She seemed to be following a pattern. She said she'd done it on her kids before and it helped them.

She was telling me she was following the shape of my intestines. She started on the lower right side...just like you described...and then continued from there. She didnt mention the "I Love U" part though. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna...I've had rumbling in my tummy when I've been in the treatment room before. It was mainly when I was getting treatments for fungal stuff though.

I didnt always have my glass directly on my skin though. It was only Susan that wanted it on my skin.

It doesnt have to be touching your stomach but it does have to be touching your skin at all times. The main reason Susan has us put it directly on our skin is in case we fall asleep for a second and dont have our hands firmly on the glass...that way its still touching our skin.

I've never fallen asleep during a treatment but apparantly other people have and they've let go of the glass and then had to repeat the treatment.

Judyin Philly Enthusiast
Judyin Philly
Posted

oh...my...gaaaawwwaddddd.....my head is so spinning :blink:

there are so many comments i want to print and list and put my thoughts..

Rachel...started with looking at the site you put up on the lymph machine..

my lymph pt does some stomach massage for me for the 'd' too.

just to much........going into the garden..can't deal today with the scienticitness of this today.

need a calmer day.

agreeded with the last few of rachel's comments in responce to Patt's

I have an apt with GI ..will be my last with her before she takes a leave of absence..for a long time..i guess...she sent me a letter. ...since all my tests came back neg..we'll discuss why i continue to have 'd'

any questions to ask her.

already did the 'big lyme' discussion.

will try again tho.

will get back to you with a clearer mind. :blink:

j

jerseyangel Proficient
jerseyangel
Posted

Hi Judy :D When is your appt. again?

I'm not currently on the abx, but I have a Rx for more, as my eustation tube is completely blocked and she thinks there may still be an infection behind my eardrum. I keep debating taking more--the doctor kind of left it up to me.

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AndreaB Contributor
AndreaB
Posted
just to much........going into the garden..can't deal today with the scienticitness of this today.

need a calmer day.

We'll be here when you're calmer day hits. Have fun in the garden.....don't work too hard. :)

tom Contributor
tom
Posted
Tom, I didn't mean that it would fix the problem, but I've seen it mentioned on here that it helps some with glutenings. It's also good for helping to digest casein. I know it doesn't "fix" celiac! If only it were so easy, right?

Yikes! I sure didn't word my post the way I'd wanted!

I've seen mention of it here, but ppl say they *think* it "helps", while never actually having any idea whatsoever whether they needed any "help". (Possible cc is scenario)

CarlaB Enthusiast
CarlaB
Posted
Yikes! I sure didn't word my post the way I'd wanted!

I've seen mention of it here, but ppl say they *think* it "helps", while never actually having any idea whatsoever whether they needed any "help". (Possible cc is scenario)

I read a post once where someone had definately been glutened and was feeling very bad. She felt better after the Glutenease.

Don't know how you meant to word it. :) But that's okay.

tom Contributor
tom
Posted
I read a post once where someone had definately been glutened and was feeling very bad. She felt better after the Glutenease.

Cool! That's the 1st time I've heard something specific. :)

I might have to look closer at that.

Argh! I'm so behind! And don't want to catch up piecemeal; rather get all the post-LED appt news at once. :)

Claire must be in transit by now. Wish I didn't have to wait until Fri for SJ!! :D

Donna,

I've been wondering whether that bubbling has anything in common w/ the freaky wavy part-spirally perception I'd get in the gut during acupuncture, but mine (chi-related it seems) could never be described as bubbly.

Donna AND Claire - see ya soon!! ;):lol:

Open Original Shared Link

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:):):):)

And not all Jazz - there's a Salsa stage, 2 Blues stages, a Latin stage etc etc :o:)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Andrea,

Thank you for the Rinne update! :) I was worried. We had not heard from her in so long. I hope her business venture is taking off. Maybe she will get time to post again soon! If you hear from her again, tell her I send my love, too!

I think an extraction would be smarter for my situation as well. The possibility of having Lyme certainly makes the risk great. My immune system probably already struggles. Obviously, I would not be sick if things were normal. I need to make an appointment with my doctor. She needs to get her butt in gear and check out the IgeniX lab so we can get the testing done.

Dear tom,

Friday will be here before you know it! Do not wish time away! It goes much too quickly as it is. The Jazz Fest will be great. They seem to have quite the variety there. Thanks for the links.

I have a bad feeling that Glutenease would not do much for me. Still, if I could afford it, taking it as a precaution due to sharing a kitchen would be helpful. At least then I would not maybe get violently ill. Sorry to hear about your terrible coffee experience. I only drink what I get at home. I do not chance getting anything from anywhere.

All of those rocks would be hard on the feet! Beaches are so nice. I want to sit out on one. Maybe when I get well, which will hopefully be soon, I will get to go to L.A. like I have always wanted.

We have a beach here, but the heat has been stifling, and the pollution is terrible. Maybe Hawaii would be less toxic to visit. My cousin and her family live there.

Dear Donna,

What wonderful news that your solo went well! ;) We knew you could do it! The stomach discomfort is difficult to deal with, especially in cases like that. Is your throat doing any better? There are times I cannot hit notes because I run out of air or my voice is just not with it that day. Days like that can be so frustrating! :angry:

Hopefully, the D will improve. Do you think it is supplement related? I think I have a bacterial dysbiosis issue. The yeast makes that easy to occur. I know I do not have H. Pylori.

Dear Claire,

The retreat will be fantastic, I am sure! I hope you get time to check in some. Getting away from electronics is good for you, though. All of the phones ringing, faxes going off, e-mails, and everything else can easily stress someone out. You need a repreive occaisionally.

Dear Rachel,

Your LED appointment sounds like it went very well! :) The detox period probably did make you feel pretty rough. I am glad you felt better after resting. They sure covered a lot. I found it fascinating about the autistic children knowing where to have the laser blast away toxins.

The information on lymph drainage and detox was great! I am going to keep all of this in mind. You never know when you will need something! I think I will start rebounding some this week. Every little bit should help. I also bookmarked the chi machine site.

I agree that many of us probably have bacterial dysbiosis issues. I know I probably do. Anytime yeast is present in the intestines to the point it is excessive, bacteria can freely reproduce. I take probiotics and prebiotics. However, that is not always enough. Sometimes other underlying problems make it impossible to get rid of the bad stuff without eliminating other root causes first.

Dear Carla,

I would willingly try Glutenease. If it could help my reaction be decreased at all, it would be worth it. The violent response my system has from gluten is unbearable. If there is any way I could get a hold of some, I would do so. I know it cannot prevent damage to my intestines, but at least it would maybe prevent me from being completely debilitated by a reaction. Sharing a kitchen is so dangerous.

I looked Astragalus up. I was surprised to find out it is a legume! :o How odd is that? You just never know what things are in what food family. Take for instance, mangoes and cashews are in the same biological classification. As Nikki would say "Well, blow me!" :lol:

Dear Judy,

I hope you get through to your G.I. doctor at your next visit. They really need to prioritize. Some of these doctors think you can just wait on them while they take their sweet time. Most could not care less that you could have a deadly disease. It is impossible not to get annoyed when you suffer on a daily basis.

The D could be a bacterial problem. A lot of different kinds of bacteria cause it. Everything from C. Diff to E. Coli can do it to you. Carla had the same situation. The Lyme likely increases the risk of having other problematic bacterias in your system. It weakens your immunity, and the other bacteria cannot be repelled like they normally would be.

Dear Patti,

I have been making an effort not to overdo using the computer. There are times I am on here practically all day. That is not good for anyone. Your eyes are strained more, and you are not moving around much. Then there are the EMFs.

You are right. We are relieved Dad found a new job so quickly. Even better is, this company has good insurance for them, as well as a salary that is $14,000 more annually. The other day, they had FedEx deliver a new computer, printer/fax/copier/scanner, and a bunch of office supplies. He also has two laptops.

He used to have to beg the other company for toilet paper for the office! :blink: It was pretty absurd. Right now, he has to work out of the house. They do not have an office here. He has not been able to find an acceptable place yet. You see, the company he works for is just now expanding to this area.

I am glad to hear the Zithromax seemed to help the D. Maybe you had some bad bugs in your colon. It might have killed them off. Sometimes there are too many nasty buggers floating around. Then, after you take some meds, you end up repairing the damage.

Sincerely,

Jin

dlp252 Apprentice
dlp252
Posted

Patti - not sure about the bacterial thing, but it kind of sounds like it!

I didnt always have my glass directly on my skin though. It was only Susan that wanted it on my skin.

It doesnt have to be touching your stomach but it does have to be touching your skin at all times. The main reason Susan has us put it directly on our skin is in case we fall asleep for a second and dont have our hands firmly on the glass...that way its still touching our skin.

Yeah, I've never fallen asleep either. My plan is to put it (the glass) in a different location next time. It's odd that it's directly under the glass and no where else...and limited to just that little area the size of the glass.

Susan and Denise are apparently NOT testing right now...not sure why...should have asked. Anna is the only one testing this month and she was training two new people on Saturday...one of which I recognized as a patient. :lol: She was one of the girls I met in the waiting room a few months ago while waiting for my ART session. :P

already did the 'big lyme' discussion.

Did she even test you for it though?

Claire must be in transit by now. Wish I didn't have to wait until Fri for SJ!!

Nice little house in your avatar...is that one you are considering?

I've been wondering whether that bubbling has anything in common w/ the freaky wavy part-spirally perception I'd get in the gut during acupuncture, but mine (chi-related it seems) could never be described as bubbly.

Well, I'm not sure it's exactly bubbly, but it is...it's definitely unrest that's for sure and it feels like it's thumping the glass, lol, so bubbly is what came to mind. Could be wavy...

Hopefully, the D will improve. Do you think it is supplement related? I think I have a bacterial dysbiosis issue. The yeast makes that easy to occur. I know I do not have H. Pylori.

I'd bet money I have bacterial dybiosis, lol. I don't know what it is...it seems more than supplement related, but the supplements could be making it worse. I'm also getting pain in my stomach...I'm hoping H.Pylori isn't back. :( I really don't want to do another stool test, but I'm afraid that's what they'll have me do if this doesn't clear up soon. :(

covsooze Enthusiast
covsooze
Posted

Hi all

Jin - it's great to hear that new dad's new job is going so much better. :)

I've got a couple of questions for those who are better with the scientificness than me ;)

I'm starting to take vitamins (making sure they're free of everything except the vitamin lol) and so I had a multi-B tab with my lunch. Within 3/4 hour I went for a pee and it was yellow, as in the yellow of excreting B vits. How come it went through my system that quick? Is that normal or does it show that I'm just not absorbing the vitamins at all? What are the reasons for not absorbing vitamins? I'm thinking the whole leaky gut thing, but is that only caused by candida?

Thanks for listening!

Patti and Donna, I hope you're both feeling loads better really soon. Donna, well done with going ahead with the solo B)

Susie x

AndreaB Contributor
AndreaB
Posted
Susan and Denise are apparently NOT testing right now...not sure why...should have asked. Anna is the only one testing this month and she was training two new people on Saturday...one of which I recognized as a patient. :lol: She was one of the girls I met in the waiting room a few months ago while waiting for my ART session. :P

Could Susan and Denise be on vacation? That's nice that she takes patients to train to do that who are interested. :)

I'm also getting pain in my stomach...I'm hoping H.Pylori isn't back. :( I really don't want to do another stool test, but I'm afraid that's what they'll have me do if this doesn't clear up soon. :(

I hope you don't have H Pylori again. :(

Susie UK, I don't know about the vitamins. That is awfully quick though. Hopefully someone else will know.

tom Contributor
tom
Posted
Dear tom,

Friday will be here before you know it! Do not wish time away! It goes much too quickly as it is.

Chalk up another one for our wise-beyond-her-years columnist Jin. :)

. . . Sorry to hear about your terrible coffee experience. I only drink what I get at home. I do not chance getting anything from anywhere.

Coffee's usually so easy. It's either plain or it's not.

Don't forget I'm the guy who hasn't been to a restaurant of any sort in 2-3yrs except once when stuck in Santa Cruz. That time I had a 1 ingred entree and had the waiter go talk to the chef TWICE to make sure it'd work. (Awesome salmon!!)

All of those rocks would be hard on the feet! Beaches are so nice. I want to sit out on one. Maybe when I get well, which will hopefully be soon, I will get to go to L.A. like I have always wanted.

Bah La-La land, go to Santa Cruz or Capitola!! :) Well . . . . . I do have to credit the southland for having warm water tho. North of Point Conception, by Santa Barbara, where CA sorta has a corner, the water's current is from Alaska. South of there the current is up from the tropics.

Dear Rachel,

. . . . I found it fascinating about the autistic children knowing where to have the laser blast away toxins.

Wow!!! I *really* need to read all that LED stuff today.

The information on lymph drainage and detox was great! I am going to keep all of this in mind. You never know when you will need something! I think I will start rebounding some this week. Every little bit should help.

I love rebounding!! And blocking shots!! :huh:

Am I the only one who thinks basketball when reading the word rebounding? :blink:

. . . As Nikki would say "Well, blow me!" :lol:

I don't think I'll try to get away w/ saying that. :o

Nice little house in your avatar...is that one you are considering?

Ohhhhh yeah, 1/2 block off Lincoln. I'd told John (future roommate) how much I liked very short walk to little Mi Rancho market when, for instance, I "suddenly need a lemon", and he saw one house on Willow Glen Way that HAS LEMON TREES!! LOL :lol: but it got nixed for being like the mystery house, it's settled so strangely.

[Edit: oops that should be the "gravity-defying" Mystery Spot, in S.Cruz Mountains, not that silly Winchester house in town)

Well, I'm not sure it's exactly bubbly, but it is...it's definitely unrest that's for sure and it feels like it's thumping the glass, lol, so bubbly is what came to mind. Could be wavy...

Such strange phenomena in these things. I should do more acupuncture soon, both just-in-case and just because I've ALWAYS felt healthier leaving than going in. (Not so much my AZ guy, but def the Santa Cruz woman)

nikki-uk Enthusiast
nikki-uk
Posted
Take for instance, mangoes and cashews are in the same biological classification. As Nikki would say "Well, blow me!" :lol:

I would indeed Jin! :lol:

You learn something new everyday :D

Green12 Enthusiast
Green12
Posted

Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

tom Contributor
tom
Posted
Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

Hehe "out of sight, out of mind" doesn't quite count for Rachelville, does it?

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Sorry to hear of the turn, julie.

Has something been figured out for the comeback or is it still search mode?

Good luck, regardless!! :)

Has mia mia been around? I tried to pm her and her inbox is full.

She's posting more days than not anyway, juliejulie. ;)

(Seems redundant to write that since Mia's probably on prev page or one before)

With storage the way it is now, 50 PMs is an awfully low limit.

nikki-uk Enthusiast
nikki-uk
Posted
Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

I'm sorry you've been so ill :(

Great to hear from you!!! :)

Mango04 Enthusiast
Mango04
Posted
Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

Hi Julie! Welcome back. So sorry you've been sick :(. It's nice to "see" you though :)

jerseyangel Proficient
jerseyangel
Posted
Just dropping by to say hello to everyone.

Hi Julie :D How nice to see you!

dlp252 Apprentice
dlp252
Posted

JULIE WAS IN THE HOUSE AND I MISSED HER!!!!!

I'm starting to take vitamins (making sure they're free of everything except the vitamin lol) and so I had a multi-B tab with my lunch. Within 3/4 hour I went for a pee and it was yellow, as in the yellow of excreting B vits. How come it went through my system that quick? Is that normal or does it show that I'm just not absorbing the vitamins at all? What are the reasons for not absorbing vitamins? I'm thinking the whole leaky gut thing, but is that only caused by candida?

Thanks for the well wishes! Yep, I think it COULD happen that fast. I'm judging that by me, but then again, I'm not absorbing vitamins well either, so, okay, maybe I don't know the answer afer all. :P Come to think of it, now that I've been on my vitamins for awhile, it's not as yellow. I'm taking mostly liquid forms of stuff and they're having me take double the doses on a couple of them like the multi and the Bs, so maybe my body has finally started absorbing stuff.

Having said all that, I always thought it was normal to be really yellow, lol.

Could Susan and Denise be on vacation? That's nice that she takes patients to train to do that who are interested. :)

That was my first thought, and then I had "flashbacks" to my own work situation where they would never allow two of us to go at the same time if at all possible. Course, they couldn't do anything about it if someone were on vacation and the other one sick or on leave. :P

I love rebounding!! And blocking shots!! :huh:

Am I the only one who thinks basketball when reading the word rebounding?

Yep, I've heard that term for basketball before, but wouldn't be my first thought, so I'm thinking it's a guy thing. :P (I actually thought you were saying you loved it for a different reason...something like Charlie said about women on rebounders, :P )

Ohhhhh yeah, 1/2 block off Lincoln. I'd told John (future roommate) how much I liked very short walk to little Mi Rancho market when, for instance, I "suddenly need a lemon", and he saw one house on Willow Glen Way that HAS LEMON TREES!! LOL :lol: but it got nixed for being like the mystery house, it's settled so strangely.

[Edit: oops that should be the "gravity-defying" Mystery Spot, in S.Cruz Mountains, not that silly Winchester house in town)

Such strange phenomena in these things. I should do more acupuncture soon, both just-in-case and just because I've ALWAYS felt healthier leaving than going in. (Not so much my AZ guy, but def the Santa Cruz woman)

I think it looks cozy. :P

Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

Hello my friend, so sorry you have been so sick! Mia is also having a tough time now, but comes in and out every couple of days or so.

AndreaB Contributor
AndreaB
Posted
Has mia mia been around? I tried to pm her and her inbox is full.

HI JULIE!!!!

It's so good to see you! :D

Miamia has started chelation with her new doctor and has been having some rough spots. I don't know if they are going after the lyme at this time or trying to lower her metals first.

tom Contributor
tom
Posted
Yep, I've heard that term for basketball before, but wouldn't be my first thought, so I'm thinking it's a guy thing. :P (I actually thought you were saying you loved it for a different reason...something like Charlie said about women on rebounders, :P )

:lol:

I make a point of trying to separate my sports-related thoughts from the unavoidable sexist ones. I do run into trouble when watching WNBA players miss layups tho. :P

Hello my friend, so sorry you have been so sick! Mia is also having a tough time now, but comes in and out every couple of days or so.

Oops I guess I'm wrong on Mia's recent posting frequency. But still there ARE posts.

Dingy's been AWOL long enough, she's become the *other* Susie!! :o

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      Testing

      By Wheatwacked · Posted

      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
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