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Omg...i Might Be On To Something


Rachel--24

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dlp252 Apprentice

Quick post...got home really late from my appointment. THe good news is that it looks like I am detoxing well. My liver function is normal. They measured 3 things...I'll have to post more tomorrow though.

We talked about my sleep again, he wants me to try something new. I described my waking pattern and then he asked me some very focused questions. IN the end he thinks I may have a type of low blood sugar that causes problems during the night. So he wants me to try eating right before I go to bed. He gave me some guidelines of snacks, so I'm going to try it tonight...he literally wants me to eat, brush my teeth then go to bed. So, I'm willing to give this a try because I'm not willing to take more supplements to help me sleep...I'm already taking a bunch of 5-HTP and a couple of melatonin tablets.


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Judyin Philly Enthusiast

ANDREA..GOOD SUMMATION OF WHAT YOUR DOING FOR THE KIDS ...GOOD LUCK

DONNA...GREAT NEWS...AND GOOD LUCK TO YOU ALSO --HAPPY ABOUT THE LIVER RESULTS.

HI EVERYONE ELSE

RACHEL..YOUR MAIL BOX IS FULL AND REJECTED MY PM

NITE ALL.

AndreaB Contributor
IN the end he thinks I may have a type of low blood sugar that causes problems during the night. So he wants me to try eating right before I go to bed. He gave me some guidelines of snacks, so I'm going to try it tonight...he literally wants me to eat, brush my teeth then go to bed.

Great news on your liver tests! :D

I'll be waiting for results of this.....hopefully it will work.

Is it possible the sleep troubles are from the lyme or mercury/molds?

ANDREA..GOOD SUMMATION OF WHAT YOUR DOING FOR THE KIDS ...GOOD LUCK

Thanks Judy! :D

diamondheart Newbie

Just popping in from San Jose to say hi! This conference certaintly isn't gluten-free friendly, but I met a celiac woman on my field trip today :) . A couple of people were talking on the field trip about the mercury mines up in the hills around here and how it comes down the watershed. Scarey :( .

My internet connection is really sketchy, so no long message here. Pretty much how I've been feeling today - a bit sketchy <_< .

Claire

Clark Bent as Stupor-Man Contributor
I was just glacing through my current Blaylock report, reader questions. Someone had asked about candida and he mentioned diet, probiotics and something like diflucan that started with an S? Anyway, he said diflucan is fluoridated. :o

I've already been holding off on starting the diflucan because I don't want to add another burden to my liver, and I guess I'm giving my body a break for a couple weeks too... can't say this bit of info will exactly get me started on it any sooner.. is fluoridating drugs common? I know the water supply is fluoridated but didn't know some drugs were as well...

oh, and just guessing, but the "S" might be SF722.. only antifungal I know offhand that starts with an "S"... it's some type of naturally derived (from castor oil?) antifungal, not a prescription one...

evie Rookie
Andrea....I couldnt even believe that little buffalo got up and walked away from all that!! :blink:

I hope he survived. :)

I have some Time/Life wildlife videos...whales, lions...all that good nature footage. I've seen tons of video with animals hunting down their prey and stuff like that....but I have to say...THIS was just the most amazing thing I've seen!!

Way cool how the buffalo came back for the little guy! AWESOME. :D

I WATCHED THAT TOO..ANOTHER AMAZING THING WAS THAT THE PHOTOGRAPHER WAS ON VACATION AND SAID HE ONLY GOT HIS CAMERA OUT ONCE A YEAR, GUESS HE MUST HAVE BEEN AMAZINGLY LUCKY OR??? VERY INTERESTING RACHEL ABOUT YEAST AND MICOTOXINS..I USED TO BATTLE THE YEAST PROBLEM AND TOOK NYSTATIN YEARS AGO..ICKY STUFF, TOOK IT FOR OVER A YEAR...HOPE YOU ARE FEELING BETTER AFTER YOUR ORDEAL...XOXOX..EVIE

AndreaB Contributor
I've already been holding off on starting the diflucan because I don't want to add another burden to my liver, and I guess I'm giving my body a break for a couple weeks too... can't say this bit of info will exactly get me started on it any sooner.. is fluoridating drugs common? I know the water supply is fluoridated but didn't know some drugs were as well...

oh, and just guessing, but the "S" might be SF722.. only antifungal I know offhand that starts with an "S"... it's some type of naturally derived (from castor oil?) antifungal, not a prescription one...

The following is a small quote from the response to a readers question.

The cure is to take one of the

antifungal medications, such as Sporanox (Diflucan

is a fluorinated medication and should not be

taken), or natural remedies.


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AndreaB Contributor

Hi Evie!

Good to "see" you. :D

Rachel--24 Collaborator
The cure is to take one of the

antifungal medications, such as Sporanox

Andrea,

Sporanox is one of the antifungals used to treat Aspergillus.

Itraconazole (Sporanox
Rachel--24 Collaborator
Hi Evie!

Good to "see" you. :D

Ditto!!

Its always a pleasure to "see" Evie here. :)

Yup Evie.....that photographer sure did get lucky with that footage!

If it was me.....I'm not even sure I would be smart enough to keep filming. :rolleyes: I would just be in total awe of the drama unfolding in front of me....like this... :o

Another extremely lucky guy....the guy who pocketed Barry's 756th HR.

A Mets fan....in town for ONE day...en route to Australia...at the last minute purchases a ticket to the game...and ends up with the ball.

Sheeesh...thats some crazy luck!

Well...he did get a bloody nose and stuff....but still. :P

Andrea...if I had that ball...you'd all be getting your treatments this year! :)

Rachel--24 Collaborator
Quick post...got home really late from my appointment. THe good news is that it looks like I am detoxing well. My liver function is normal. They measured 3 things...I'll have to post more tomorrow though.

Good news Donna....looking forward to hearing more. :)

Rachel--24 Collaborator
Is it possible the sleep troubles are from the lyme or mercury/molds?

Thats what I was thinking too.

It reminds of what I read about the autoimmune reactions that occur when there are toxins in the body. I actually thought about Donna when I read this becuase of the sleep example.

*The autoimmunity concept is important, and explains a lot of otherwise unexplainable health problems.

It is impossible to become allergic to a normal human molecule - the immune system just won't recognize as "foreign" a molecule that has been present within you since birth - but this statement is not precisely true.

Let's say you are exposed to a non-human molecule that enters your system and binds to a normal human molecule. Your immune system will react to this hybrid molecule as foreign, and the antibodies and other immune mediators produced will then cross-react with the normal human molecule. This is the process of biochemical auto-immunity, the result of toxicity.

Let's say the normal human molecule was a neurotransmitter involved in sleep. From this point on your body will react to this particular molecule and you will never again enjoy a full night's rest.

Let's say the normal human molecule was involved in reproductive health; from this point on your reproductive cycles will be out of balance. The more toxins that are are exposed to, the greater is your chance for ill health based upon this principle of auto-immunity.

Thats why they treat for autoimmune stuff with each toxin they address in LED....cuz apparantly these things are all related.

Hopefully eating before bed solves the problem (I'm keeping my fingers crossed for you Donna :) )....if not it may be something that is a direct result of toxicity....like the examples in the quote.

AndreaB Contributor
Andrea...if I had that ball...you'd all be getting your treatments this year! :)

Thanks Rachel. That's a nice thought. :)

tom Contributor
I am not sure if it was the almond milk or the coffee?

I saw a site that said to avoid all nuts except dry roasted almonds and almond butter, but I tried almond milk and not sure if that is what went wrong?

Neither coffee nor almond milk is good for yeast overgrowth . .. . ..wait . . .. . I'm still not sure if you have that. I know the mold allergy, but unsure if it's alone or caused by candida/yeast.

Anyway - if candida, coffee kills good bacteria, but almond milk has a sweetener which feeds the yeast and makes symptoms quickly. In my experience anyway.

Never saw an unsweetened almond milk.

Nuts - tons of variation here for candida diet, and mold allergy can disallow all (hi Rachel).

I ended up w/ 5 that'd be ok if bought raw and roasted by me. Baked really.

Almonds, cashews,brazils, filbert/hazelnuts & pecans. Never liked pecans but rest were fine.

I am so happy to be here....finally!!!

Shelly

I tell ya Shell, I knew IN A SECOND you needed to come here.

Glad ya made it! :)

tom Contributor
Just popping in from San Jose to say hi! This conference certaintly isn't gluten-free friendly, but I met a celiac woman on my field trip today :) .

Was wondering how you're doing w/ the food. Wish I could've helped more, but I only have pre-gluten-free restaurant experience. :(

Hopefully that celiac is local??

LOL you'll give ME tips!! :lol::blink:

A couple of people were talking on the field trip about the mercury mines up in the hills around here and how it comes down the watershed. Scarey :( .

Almaden Quicksilver County Park, on the site of the biggest mines, is pretty popular, too!

tom Contributor

OMG OMG OMG

I was up late last night when the Rachelville Town Crier announced that Dubya had Lyme last year!!! :o:o:o

Not seeing it mentioned here, I'm wondering if somehow the forum isn't showing me newest posts!!!

But, that'd be a first, so I guess the news hasn't hit yet.

How strange IS it that many here share Lyme w/ the President!!!?? :lol:

They say he got it last August, bullseye & all.

If only WE all had a team of doctors . . . . . .

NoGluGirl Contributor

Dear Claire,

I am sorry to hear SJ is not Celiac friendly. :( I hope you were not exposed to any gluten through cc or anything. That would be bad! Whenever I end up traveling, I will stay in a hotel with a kitchen! I would rather make my own meals than have to play gluten Russian Roulette!

Dear Judy,

Hello back! Did you end up getting an appointment with your G.I.? I thought you mentioned that recently. I know you are in a similar situation as I am. Doctors do not seem to have any sense of urgency on important matters. :rolleyes:

Dear Andrea,

That was a lot to recall! You did great on describing the children and their situation. It is so sweet Rachel would pay for your treatment if she could! :D Maybe one of us will win the lotto! Would that be groovy or what?

Diflucan is flouridated? :o That stuff will be no good for anyone with a sleepy Thyroid then! It is amazing how so many things contain ingredients that are so troublesome for various health conditions.

A lot of pills contain corn, so many people have to watch that as well. I could never tolerate Diflucan anyway.

Dear Donna,

What great news about your liver! Whew! :) I am glad you appear to be detoxing well. That is wonderful to hear! I am so happy! The results came in pretty quickly, too.

Low blood sugar does that to me. It makes me break out in sweats, and I have to eat because I will not be able to sleep. I actually have to wake up and eat after several hours. Candida tends to cause low glucose. That is also why you crave the sugar so much, not just because the yeast wants fed.

Here is an exciting development. I desperately wanted that new OPI Nail Lacquer called Just Groovy. It is this funky blue, like a Smurf. I love it! I called JCPenney's salon, and they only had one left! I got it, too! :) Maybe I am lucky afterall! Although, $7.50 is a lot for nail polish, but I deserve it! I have not gotten anything for myself in months!

Dear Rachel,

I did not get the chance to see the buffalo/lion/crocodile video. :( Maybe I could view it online somewhere. If something gets killed, I cannot stand to see it. Once, I saw this poor seal get eaten by a whale, while the mother cried watching. :( The mother was so sad!

That is so sweet that you would pay to help Andrea get treatment! I know one day, we all will be able to get well. It takes time. However, the wait I am sure will be well worth it! I am just anxious to recover.

LED has some amazing properties. I am so glad you gave the link. Knowing how it works is fascinating. The way it moves toxins out quicker is really amazing! This technique will probably be more widely used in the next few years.

Mycotoxins are really tough. Awesome scientificness my friend! B) I would not be surprised at all if we had toxic mold. I believe my grandfather is right. Years ago, he said he thought the house made us all sick. I am glad there is finally an explanation of how we get sick from normal things we should not. It is due to exposure to toxins that mess up our body chemistry.

I read about amphotericin B. For many years, it was solely available in Europe. Americans almost could never get a hold of it. This is what I believe they used on Charlie Swaart, the drinkless drunk to help cure him of the mutated yeast overgrowth he experienced. Nystatin is the most commonly prescribed. I doubt I would tolerate any of them. Sporanox is one I have not heard of.

Aspergillus is difficult to destroy. These antifungals must be extraordinary to work on it. Many people exposed to it have suffered serious damage. Some of it cannot be reversed. It was one of the toxic molds my friend was exposed to that caused her to lose her kidney. The other was penicillium.

I know what you mean about the luck. I get so frustrated. Sometimes, I feel cursed! The thing is, aren't Irish people supposed to naturally be lucky? If so, someone forgot to tell whoever controls that.

I am a seven in numerology, and they are also naturally lucky. Someone forgot to tell the stars!

Dear Patti,

Yes, Helmut is a cutie patootie! If you think he looks good, wait until you hear him sing! He makes it seem so effortless! Go to Open Original Shared Link to see a clip. It is one of my favorite Dean Martin songs "That's Amore!" Enjoy!

Dear Shelly,

I would say get the testing done for mold as soon as possible! You can find people who do it in the phone book. Many also remove mold if it is troublesome. I heard Atlas Vanlines actually does this. I was a bit surprised. These mycotoxins are extremely dangerous to be exposed to, and have been cited as causes of lung cancer, intestinal hemmhorages, chronic body pain, respiratory illness, and numerous other things.

Almond milk may have a number of things in it that does not set well. Many soymilks have seaweed called carageenan. A number of people react badly to ingesting it. What were the ingredients? That could help us sort this out. Chocolate is not surprising, many people do not do well on that, especially people who have Candida.

Do you often have a white coating on your tongue? Does eating fruit make you feel worse? Do mushrooms and bread with yeast or foods with vinegar bother you? Do you have heartburn frequently, ringing in the ears, lower abdominal bloating, headaches, and/or nausea frequently? How about strange rashes that come out of nowhere (like eczema), then disappear? If so, you could have Candida.

Dear tom,

I hate those people that make people sound like they are just crazy! My parents are like that person you were describing. These individuals are typically know-it-alls that have done zero research.

WWDD? :lol: We know how to handle them! Don't we?

Dear Charlie,

I can see why you would be apprehensive about beginning antifungals. I do not want to take them, either. They do not always set well with sensitive people. You just do not want to make things worse. Who can blame you for that?

Have any of your other symptoms improved any? Are you still taking the ABX? I was curious, because I know you were having a hard time. It sounded like a major herx! Those antibiotics can really get those bugs in an uproar!

Sincerely,

Jin

jerseyangel Proficient

Jin, honey, you just put a smile on my face :)

When I was a little girl, my favorite thing was to spend the weekend with my grandparents. Nobody ever yelled at me over there...

Every Sunday morning, my grandfather would wake up early, start coffee and make pancakes on his gigantic griddle. I would hear him from down the hall singing "That's Amore" :D Gosh, I haven't heard that song in so long--' :) bigga pizza pie....love it! Thanks! :)

I really like Helmut, too. I'm gonna listen to more of his stuff.

dlp252 Apprentice
Is it possible the sleep troubles are from the lyme or mercury/molds?

Oh yeah, I'm pretty certain it does. I think Dr. S does too. Dr. Rick may also think so, but he's willing to try a lot of stuff to see if it helps, and this is low cost, lol. I've always been a "light" sleeper, but never used to wake up so much during the night. I'm thinking it must be related to the lyme since that seems to be affecting every area and system of my body. :(

Just popping in from San Jose to say hi! This conference certaintly isn't gluten-free friendly, but I met a celiac woman on my field trip today :) . A couple of people were talking on the field trip about the mercury mines up in the hills around here and how it comes down the watershed. Scarey.

Gosh, like Tom, sorry I couldn't have been more help. I only eat out at two places...Carls Jr. and Outback, lol. I only eat at one Carls Jr. and so far have had very good luck there ordering their low carb burger (it's wrapped in lettuce)...I get it without cheese and stuff. Outback has a gluten free menu, and I've had really good luck there many times...except the last time I went. I think they put the seasoned butter on my sweet potatoe, cuz I had a tummy ache immediately afterwards.

Thats what I was thinking too.

It reminds of what I read about the autoimmune reactions that occur when there are toxins in the body. I actually thought about Donna when I read this becuase of the sleep example.

Thats why they treat for autoimmune stuff with each toxin they address in LED....cuz apparantly these things are all related.

Hopefully eating before bed solves the problem (I'm keeping my fingers crossed for you Donna :) )....if not it may be something that is a direct result of toxicity....like the examples in the quote.

Well, I still woke up last night, but only remember one time lasting any length. Interesting stuff you posted about it. I think that's why Dr. S gave me the supplement to take...he said it would help with detox in the middle of the night. I ran out of it a couple of weeks ago and have been waiting until my appointment on Tuesday to get more. :(

Here is an exciting development. I desperately wanted that new OPI Nail Lacquer called Just Groovy. It is this funky blue, like a Smurf. I love it! I called JCPenney's salon, and they only had one left! I got it, too! :) Maybe I am lucky afterall! Although, $7.50 is a lot for nail polish, but I deserve it! I have not gotten anything for myself in months!

Cool. Course, you are a much better artist than I, but if you don't want to paint designs on your toes you can get decals at Walgreen's, Long's, and probably lots of other stores...beauty supply places have them too. I have jewels on my toes at the moment. :P Polish is a cross between bubble gum pink and fuschia pink, and I have jeweled flowers on my toes. This weekend the color gets changed...not sure what yet...maybe black glitter. :lol:

NoGluGirl Contributor

Dear Patti,

I just knew you would love this! Dean Martin was a favorite of mine, between his "That's Amore" and "Mambo Italiano", I tell you! :wub: You just had to love it! I also love some other old Italian classic styles. Have you ever heard Dominic Chianese from "The Sopranos" sing? He is wonderful!

What a wonderful memory! Your grandfather sounds like the typical Italian grandfather! I always wondered if we had some Italian in there somewhere. I have not found any yet, though. We may have some Cajun blood, though. That explains why I like the hot stuff!

Dear Donna,

Yes, the blue is definitely me! I love it! Surprisingly, the dog has not tried to eat it off yet. That is good! He always does weird things like that! This is pricey polish, so he is not allowed to do this one for sure! :lol:

Your nails sound beautiful! It is so funny you mentioned the stencils. I have been contemplating designing some. I saw on televisions some pretty nails last week. They were pearly white, then had two or three rows of small rhinestones on the tips! That would be gorgeous for a wedding or formal occaision!

Sincerely,

Jin

dlp252 Apprentice

Okay so the test I had done was called a Metabolic Profile. It tested for digestion of dietary protein and/or an overgrowth of bacteria in the small and/or large intestine. That came out negative which is good. :P

It also tested for Urinary Lipid Peroxides. "Elevated levels of lipid peroxides is an index of cellular membrane damage due to the action of free radicals. The elevation of lipid perioxides can serve as an early warning of the long term effects of oxidative stress. Oxidative stress can result from exposure to toxins or pathogens, from inappropriate lifestyle factors, excessive exercise, or byproducts of normal metabolism." My score, 5.89. Reference range 1.00 - 7.50.

It tested for urinary bile acide sulfates--a direct measurement of liver function. "Bile acid levels are regulated by teh enterohepatic circulation and little leaks into the bloodstream and in consequence little is converted to sulfate and excreted in the urine. Elevated bile acid levels are associated with impaired liver function, hepatocellular damage, and a high specificity toward hepatobiliary disesases." My score 10.50. Reference range 1.00 - 12.00.

~~~

Here are some of the snacks Dr. R suggested for my bedtime feasting, lol:

One piece of deli turkey or chicken (with no preservatives, 1/2 apple, and 6-10 almonds

A hard boiled egg, small peice of fruit and a few nuts

1-2 ounces of meat (a few bites) leftover from a meal (like THAT's likely to happen :lol: this girl likes to eat and I eat everything as often as I can) and a couple of pieces of celery with a little peanut butter on them

A serving of plain or fruit sweetened yogurt (no added sugar)

A protein bar that contains allergy-free ingredients and has a balance of 3 parts protein to 2 parts carbs

~~~

I also told him about my cookie/chocolate chip binge. He thinks I should stay away from ALL grains. I said I normally DO. :lol::rolleyes:

~~~

Some of the other things he wants me to try as far as sleep...keep my bedroom very dark. It's odd that he specifically mentioned my clock. Just last week the light from it actually started to bother me, so I'm having to turn it away from me. Anyway, he was talking about some sleep study that someone did where they got a group of people, had them sleep in a totally darkened room. Then they shown just a small light on the back of their calf...they measured a definite decrease in melatonin in those people who had the light shine on their CALF... He said you don't actually have to see the light with your eyes, that if it reaches any part of your body, it's enough.

I have two very, very dim night lights that I use because my bathroom is VERY close to the top of my stairs and I can just seen in my lyme middle of the night with no sleep stupor heading for the bathroom and hitting the stairs instead. :P Anyway, the light is just enough so I can actually see the stairs faintly. I may have to get darker curtains though...I have blinds on my window, but only sheer curtains over that, so some light comes in.

dlp252 Apprentice

I thought this was interesting.... (taken from the AOL news story about George W's lyme):

"Lyme disease is a tick-borne infection that, if left untreated, can cause arthritis and other problems. Symptoms can include lethargy, joint pain, fever, limping and loss of appetite. A bacterial disease, it can be eradicated with antibiotic treatment in the early stages, but can become more complicated to treat if not caught early."

I'm happy that it acknowledges that lyme IS a problem if not treated and CAN lead to other things. Um, I haven't experienced the loss of appetite thing though. :lol:

tom Contributor
. . . . I only eat at one Carls Jr. and so far have had very good luck there ordering their low carb burger (it's wrapped in lettuce)...I get it without cheese and stuff.

I bet I've been to very same one. Not many in the south bay.

South from WhF, maybe Curtner or Camden?

No cheese is right!

Once I had to see pickle ingred and they ripped label off that giant tub to bring to me!!

Of course, I last ate there in '05, but it was nice back then, before candida diet.

D'oh!!!! Almost forgot avatar! Hmmm what's to say . . . . . .that's 30 min ago.

AndreaB Contributor
I have two very, very dim night lights that I use because my bathroom is VERY close to the top of my stairs and I can just seen in my lyme middle of the night with no sleep stupor heading for the bathroom and hitting the stairs instead. :P Anyway, the light is just enough so I can actually see the stairs faintly. I may have to get darker curtains though...I have blinds on my window, but only sheer curtains over that, so some light comes in.

I have nightlites in the bathrooms and we have them all over the house. Children won't allow them to leave their bedrooms. I do have a small one in my room for Seth too.

I have heard that the blue light is better, which is what we use.....we just buy blue nightlite bulbs.

dlp252 Apprentice
I bet I've been to very same one. Not many in the south bay.

South from WhF, maybe Curtner or Camden?

Nice new avatar! :) There's one on Camden, but that's not the one, lol. I actually eat with my mom and aunt, so go to one closer to their house.

I have nightlites in the bathrooms and we have them all over the house. Children won't allow them to leave their bedrooms. I do have a small one in my room for Seth too.

I have heard that the blue light is better, which is what we use.....we just buy blue nightlite bulbs.

Hum, mine are green, so the light is very dim...maybe I should check out blue.

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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