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Omg...i Might Be On To Something


Rachel--24

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NoGluGirl Contributor

Dear Donna,

I am sorry to hear you had such a lousy weekend. :( There seems to have been terrible heiniousity involved with the detox. Too much of a burden on your body must have been the trouble. I hope the D goes away soon. That can really be inconvenient to have at times.

It is good that you are sleeping better. The new supplement must be helping. That is a great sign! :) A lot of those things have a cumulative effect. They do not work right off the bat. You have to let them build in your system over a period of time before they are very helpful.

As far as I know, the quartz does not have to be mounted or polished. I might look that up to be sure, though. I will let you know what I find. I do know it is encouraged to let them charge out in the sun or moonlight every now and then. It is essential to do this to all gemstones for them to be of their maximum helpfulness.

Those people that drain you must be avoided when possible. However, wearing the chrystal should protect you from that. Exposure to them weakens you physically as well as mentally. They are stealing your lifeforce, also known as your spirit energy. Many times, people who live or work in haunted buildings feel this way, or even sick when they have been in such places. The spirits need our energy to move objects and to sustain themselves a lot of the time.

I love Billy Warlock! I have been head over heels for him since I was 13 years old! :wub: I prefer dark-haired men for the most part. Plus, he is not that tall. He is only 5'7, which I like. Tall men are intimidating to me, and dating a man so tall would make me feel like I am dating my father.

Now, I know Billy is married. He just got married about a year ago. However, I am holding out hope for a divorce, because in Wiccan lore, August 26th is one of those days that you should never get married on, agree to go on a date, or anything else having to do with love. I know how selfish this is. There is just something about him, though. He is the only thing that I am so selfish about.

You all probably think I am a lunatic now. I just always felt like he is a soulmate of mine. I know he is 22 years older than me, but that does not matter. It is so painful to watch someone else be with the person you have feelings for. As ridiculous as it is, I feel like I am connected to him in some way. Have you ever felt that way about anyone?

Dear Julie,

Sister Golden Hair is groovy! I like America, they were a great group! "I Was Riding Through The Desert on a Hourse with No Name" was another great song of theirs. Moon Blossom it is for me! :) I love many different groups from the 60s and 70s.

Thank you for explaining the police officer confusion! I was not here when some of that went on. That was before I joined Rachelville. Hot police officers are always welcome! Erik Estrada as Ponch anyone?

Dear tom,

I did not join this discussion until around November, I think. I was talking about Candida, and my other issues. That is when a bunch of the girls said it sounded like Lyme. Now, if I can just get tested, diagnosed, and treated! There is bound to be a way to come up with $200.

I wish I could say I got to do something special for my anniversary. All I got to do was study. I spend nearly five hours on the phone with a classmate getting help to get caught up. I am two units behind. :( Now, I have to type all of that in and submit it!

Dear Rachel,

Thank you for the scar scientificness. That was so neat! You never would have equated some of these things to be related. Who would have thought? Behold the many mysteries of life and health! :blink:

I thought the part about certain teeth causing problems in certain areas of the body was really fascinating. I particularly am curious about gallbladder scars. I do not think I ever got hip pain hardly until several years ago, after I got my gallbladder out! Maybe that is the trouble. It can be very hard to deal with sometimes. I thought it was Fibromyalgia, but now I wonder if it is something else.

A lot of cars have the trouble yours has. Sometimes, it is a malfunction in the electronic part of the vehicle. I know some people have had to actually take theirs into one of those diagnostics shops, and they have to locate the wire and disconnect it. They charge pretty good for it, too. All of those places do.

Dear Ami,

Wow, your appointment sure went amazingly well! I had no idea they would do all of that! It appears they are checking every angle. That is great! This team has it together!

That is good your Thyroid seems to be functioning alright. Mine is hyper right now. My doctor said it was fine, but know that cannot be right. She did not do the TSH levels, only the T3 and T4 hormones. The TSH is where it showed up before. There is this piece of Thyroid tissue that swells up every time my Thyroid is overactive, and it is like a little golfball in my neck. I am also having heart palpitations, double vision, and some other things that tend to accompany that.

My hands are always cold it seems. I know mercury tends to cause that. It is one of the most common symptoms. Despite not having any metal amalgams, I have had other forms of exposure to mercury. One of those is vaccines. Eating a lot of fish is another risk factor.

Dear Kat,

Do not worry. You are not nuts. We all have some confusion with tom's posts. Do not hold it against him. He has a manbrain. You know how messed up those are! :lol:;):P

Dear Claire,

You have your mercury treatment soon, right? The LED is scheduled for when? I was wondering because you mentioned it. Didn't you say you have BioSet as well this week? It sounds like you are going to have a full week!

Dear Andrea,

That's right! T is your oldest! I was thinking about Jacqui's kids. Her middle child was having behavioral difficulties. I hope they have straightened out. I have not hear anything about it from her lately. I am sure improvement will come.

The children sound like they did pretty well for the most part. I hope they do not have to repeat any treatments, either. Maybe you will get lucky and be able to afford some more treatments. If only everything was not so expensive. The cost of basics like food makes everything more difficult for people like us.

Dear Carla,

Your avatar looks great, too! That was taken with that groovy new iPhone! It has great quality pics. Have you kept your hair like that, or did you change it? The contrast looks really neat between the two colors!

Yep, I think it is those darn supplements. You take so many! There is nowhere for food to go! Swallowing all of those pills makes you less hungry. That makes plenty of sense to me.

What a bummer that the Witches in "Stardust" were evil. They were selfish, too. There is a shock. Evil is selfish. But, keep in mind what the Good Witch in "The Wizard of Oz" said: "Only bad Witches are ugly!" :lol:

Nikki was a good unisex name for your bird! You never know how to tell with some pets. We never had birds. Guinea pigs, fish, rabbits, dogs, and hamsters are what we primarily had. One thing we found is never to name anything Patches, because it will cause them to die prematurely. Everyone I know who ever named their pet (no matter what it was) that name, it died young from an illness of some sort.

Your van really does sound like an electronic nightmare! Everything seems to be messed up in it! At least it has A/C. That is essential for me. I cannot tolerate heat.

Dear Cruiser Bob,

Hi there! How are you? I can see why you would like to get something done about the pain. Pills are not something I like either. Those things are prescriptions for poison.

ART really is interesting. I think you will want to try it. I have not gotten to yet, but if I can afford to later, I will.

People do try to discredit it. However, I have found people here that have done extraordinarily well with it. ART seems to be an excellent diagnostic tool.

Dear Sherry,

Things go fast around here! I know the no energy feeling. All of those supplements you are taking probably will help.

It takes time to recover. Take it easy when you can, and update when time allows! We will be here!

Dear Everyone,

Thank you so much for my anniversary congratulations! I wish I could say I got to do something special to commemorate the occaision, but I did not. All I did was study. That wore me out, and I still have more work to do. I am determined to pass this Finance course, so I never have to take it again!

Sincerely,

Jin


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CarlaB Enthusiast
Dear Carla,

Your avatar looks great, too! That was taken with that groovy new iPhone! It has great quality pics. Have you kept your hair like that, or did you change it? The contrast looks really neat between the two colors!

I've kept it that color. She dyed it darker than we really wanted it because being so blonde it wouldn't have held the color otherwise, so now that it's been a few weeks, it's lightened up to a really nice reddish/brown shade ... much lighter than the avatar. I really like it. It's almost time for a touch-up, but I think I'm just going to have her touch-up the blonde part ... I like the other color and the roots there don't show because it's close to my own color, just a little redder.

Sherry, it's good to hear from you. I love to hear about what you're doing ... not specifics about the meds, but about the rest.

dlp252 Apprentice

Well, didn't sleep well again last night and today bad D again. I may have to cut back on the chlorella even more. I took 9 total yesterday and that may just be too many. I'm also feeling slightly "disconnected" again and my neck and shoulder were burning (like a sunburn) again. That sounds like metals to me.

Last week when I saw my LLMD, he asked if he could get a report of my BioSET treatments. I just got my copy yesterday...kind of interesting as some things were not exactly as I remembered, lol.

My toxicity levels (originally 7 of 15), nutrient absorption (7 of 15) and drainage (1 of 15) are all now at ZERO (that's good--the lower the number the better)! THe organ most stressed by toxins was the colon.

Under phenolics she listed what I originally tested for and says currently "she has received treatment for food sensitivities and can re-introduce foods into her diet with exception to dairy, gluten products and moldy fruits." Bummer, lol.

Under Summary she lists as issues:

1. Heavy metals: lead and mercury

2. Intestinal dysbiosis: she needs to be monitored for levels of bacteria and yeast

3. Needs blood work on level of Vit. D...D therapy may be in order to combat osteopenia

4. Thyroid: needs to be checked as she was reactive to calcitonin (osteopenia risk), check to see if Free T3 is low, thyroid antibody presence? [NOTE: ART tested the thyroid as the most affected by lyme...my thryoid and antibodies have already been checked and are normal]

5. Urine esentials test recommended to quantify levels of minerals, amino acids etc. (she was reactive to sulfur, chromium, phosphorous and will most likely test low in molybdenum, selenium, chromium and glutathione precursors)

6. Mitochondria disease: needs to be ruled out. She tested outright on the Kreb's cycle panel and needed 2 treatments to overcome blocks in the Kreb's cycle. She may need NADH supplementation. [NOTE: NADH was one of the supplements on the original list of 8 that Dr. S gave me but I never went looking locally for it...he's pretty smart apparently, lol]

And here is the most interesting:

7. Lyme: Borrelia is the only one that came up with my testing signifying a weakened immune resistance against. However, she also tested positive for mycoplasma and sensitivity to insect venom. She was ART testing under Dr. Klinghardt's method and she tested positive to borrelia, babesia, ehrlichia and bartonella. Since she was in a hyper-reactive state immunologicaly speaking at the time, these could be false positives.

What the heck does THAT mean, lol. Could I NOT have lyme after all? Would a hyper-reactive state cause blood testing to be false positive?? :unsure: Or was she just talking about the co-infections...we haven't blood tested those yet. I have some of the symptoms of those co-infections, but the symptoms can also be lots of other things. I've been having the night sweats again lately. And ART doesn't test for sensitization right, it's just looking for stressors.

Apparently I reacted to 40% of the mycoplasmas panel. :(

Get this...the insects I reacted to: ants (see why I like relocating them so much, lol), black widow, mites, honeybee, mosquito, scorpion, stinging insects.

While I've been stung by a bee, it wasn't a honeybee, and I'm pretty sure I've never had an encounter with a scorpion so how could I be sensitized to them. I've seen a scorpion...we had one in our house in Hawaii...but it didn't sting me, lol. Been bitten too many times to recound with mosquitos...the most recent episode in Panama Canal in December...got bitten a BUNCH so I can see how that might turn up and have definitely been bitten by ants. Don't know if I've ever been bitten by a black widow, but I'm suspecting NOT even though we did have them at my dad's house...I never saw one in the house, but they're in the attic there. I think I have them in my condo too (or more accurately outside).

SO there were lots of other stuff on the report, I think mostly all has been treated and desensitized though.

~~~~

Yeah Ami!!!! Sounds like a great appointment!

Sheesh on the scarring, lol. I've had two surgeries (one very huge scar across my abdomen--could that be why I have so many digestive issues, lol), plus lots of sinus problems. :(

Thanks for the info on the massage girl. Shucks...I was hoping she was at HN.

Well, Casey at HN is very good too. He and this other girl are just about equal in my book, lol. :) I'd go to Casey more regularly if my schedule were different. I think he only does massages on Tuesdays and Thursdays before their PT work day begins or on any day after the normal PT work day is done which is too late for me.

Have you ever felt that way about anyone?

Oh, maybe a couple of times, lol.

tom Contributor
You all probably think I am a lunatic now.

"now"???

:lol:

My hands are always cold it seems. I know mercury tends to cause that.

Candida did it to me.

He has a manbrain. You know how messed up those are! :lol:;):P

LOL I've never felt so in the minority . . .

Hey Bob!!! Stick around a while?

Claire!

I said I thought I might get myself back to the Monterey Peninsula by Halloween or whatever?

Looks like I'll be there Saturday!!!! :):)

A buddy who leads a band I was once in plays by Cannery Row Sat night, so my soon-to-be roommate John and I are heading down. AND! John says he has a gazillion hotel 'points' so we'll stay overnight and have Sunday to mess around too. Ohh my gawwwwwwwwwwwd I just realized I should pop down to Nepethe and/or Ventana while there!!! Woohoo! :)

Julie,

That "where we were at beginning of the year" exercise was interesting. But I've since thought of something I should've included. Namely, that besides already gluten-free for 3 yrs, I'd been on the strictest anti-candida diet possible for 18mos (zero cheating, 'treats' or 'tolerables') at that point, yet *still* had so many of those symptoms.

I'm sure we all know the frustration of doing SO much and still remaining sick. Ugh

It can really make someone doubt that they'll EVER get well. :(

Now I'm thrilled . . . every . . . .single . . . .day that I found what I believe is The Final Intolerance in soy, and that eliminating it has made such an incredibly drastic difference.

Green12 Enthusiast

Hello beautiful people :)

It seems like Rachelville has been kind of quiet the last couple days.......

Andrea- I'm so glad the appt went well :) I'm really not sure of the costs for the thermal imaging, I was offered a deeply discounted price at the time because it was a new tool and they were testing it out on patients at the Naturopathic center I went to, again totally kicking myself about that. Fascinating scientificness for sure.

Donna- and the HEINOSITY continues for you :( I am so sorry. Maybe you are just releasing more toxins at once than your body can handle. I hope this passes quickly and things settle down a little for you.

I get the heat and the burning skin frequently, sometimes accompanied by rashes or hives or angioedema and sometimes just by itself, and the acupuncture treatments have really helped with this. No matter the source (infection, stress, estrogen, etc.) Chinese medicine looks at this as toxic heat and having the points that release heat needled balances it all out and releases the heat.

Rachel- thanks for the comments, I agree with Carla that it is good to hear about the improvements as well. Often the focus is all on what is not going right, all the symptoms, and the treatments, and all the scientificness of it all. I think it's good to slow down once and a while and give recognition to all that has been accomplished.

This is the one time I will keep my fingers crossed that you DON'T run into a hottie police officer, only until you get your tags taken care of that is :lol::lol:

Miamia- hope you are doing well :wub: Good luck with your chelation this week and the colonic following, I am really hoping that makes a difference for you.

Patti and Mango- where are you guys hiding? shall we send out the search party? Hope all is well with you both.

Jin- I love that song too, and I am also a fan of a lot of 60s and 70s rock groups even though they are just slightly a little before my time. I have an old soul I think :) Moon Blossom it is. Now everyone else needs a hippie name :lol:

So today I am a little out of sorts, not feeling myself. I haven't been on the black walnut/wormwood for very long and I am wondering if that is the culprit. I am working up really slowly, as per my usual approach since I am so sensitive to things, so I can't even imagine what a full dosage would feel like then!

But it also has been really hot and I have been training for this 5k walk and so it might just be heat exposure??

Hope everyone has a great day!

dlp252 Apprentice

Ha Julie, I can be Rainbow Toes. :lol:

Sorry you're having an off day...sometimes it's just so hard to pin down the why of it. I may have to look more into Chinese medicine.

Andrea, I just remembered that I forgot to comment on the appointment, sounds like it went well, and I'm always so interested in what is found. Traffic heinosity! Yikes!

Rachel--24 Collaborator
7. Lyme: Borrelia is the only one that came up with my testing signifying a weakened immune resistance against. However, she also tested positive for mycoplasma and sensitivity to insect venom. She was ART testing under Dr. Klinghardt's method and she tested positive to borrelia, babesia, ehrlichia and bartonella. Since she was in a hyper-reactive state immunologicaly speaking at the time, these could be false positives.

What the heck does THAT mean, lol. Could I NOT have lyme after all? Would a hyper-reactive state cause blood testing to be false positive?? :unsure: Or was she just talking about the co-infections...we haven't blood tested those yet. I have some of the symptoms of those co-infections, but the symptoms can also be lots of other things. I've been having the night sweats again lately. And ART doesn't test for sensitization right, it's just looking for stressors.

Donna...I think shes just giving a report of her findings...through BioSET.

Yes....when your immune system is very reactive it can react to nearly anything and everything. With BioSET things that show up dont necessarily mean those things are actually the cause of your illness. The immune response can be to things which you've been exposed to in the past that may not actually be causing problems now.

It can also be to things that are indeed THERE....but not necessarily making you sick. You can react to pretty much anything....which is why you take the BioSET results and then you follow-up with bloodwork to see whats really going on.

BioSET cant "officially" diagnose a disease.

So yeah...shes saying that you're very reactive...so these things showing up for you (Lyme) may be false positives.

No....bloodwork cant be a false positive. I didnt get the impression that she was referring to your bloodwork with Dr. S.....I think she is only referring to her own findings. with BioSET.

ART is not involving immune response. It tests the autonomic nervous system and finds the things which are "blocking" or causing imbalance in your body. It locates those things in your body and then it finds which remedies improve that situation.

I think her opinions are only related to the testing that she's done with BioSET.

These are all different types of tests.

She doesnt decide whether or not you have Lyme and she doesnt treat it....she just gives her results to Dr. S and he can make those determinations. He already has because you tested positive through Igenix.

You do have Lyme....I dont know how much its contributing to your symptoms but its there. The positive bloodwork is all you really need. ART and the BioSET are basically saying the same thing your bloodwork says.

I think with the insect stuff you're obviously very sensitive to bug bites. I never had any of that come up for me.....not even once (that I can recall).

For you it was something that showed up throughout all of your testing. So yeah....I'm thinking you need to not get bit by bugs. :P

I dont think if you react to black widow or scorpion that it means you've been bit before. It just means that when you were tested your body did not like it. Maybe there is something in the venom of these insects that your body doesnt like.

Maybe different insects have some of the same stuff in their venom? :unsure:

I dunno.....but I just think the results being very consistent with bug bite issues...seems to indicate that your body reacts to bug bites. Even with as sensitive as I am to all the foods and environmental things....my body didnt respond that way to the bug venoms.

Personally....I do NOT like bugs. Maybe my body doesnt get too bothered by the venoms of these little guys though. Although I do think my body wouldnt really like getting bit by a black widow!

HECK NO....that would be a heinosity!! :o


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Rachel--24 Collaborator

Ok...sooo...I'm having alot of difficulty concentrating right now.

It was hard for me to type up that last post....

Yeah...my attention span is not too long right now...major fogginess.

You guys wont BELIEVE what I did to cause this!! :blink:

:ph34r::ph34r::ph34r::ph34r:

CarlaB Enthusiast
Ok...sooo...I'm having alot of difficulty concentrating right now.

It was hard for me to type up that last post....

Yeah...my attention span is not too long right now...major fogginess.

You guys wont BELIEVE what I did to cause this!! :blink:

:ph34r::ph34r::ph34r::ph34r:

Yeah, we would ... you are the Rachel of Racheling!!! Fess up!

dlp252 Apprentice
For you it was something that showed up throughout all of your testing. So yeah....I'm thinking you need to not get bit by bugs.

...

Personally....I do NOT like bugs. Maybe my body doesnt get too bothered by the venoms of these little guys though. Although I do think my body wouldnt really like getting bit by a black widow!

HECK NO....that would be a heinosity!! :o

Yeah, I hate bugs too! Thanks for the post...I think I actually really knew the answer, but think I was misreading that one part about the ART. It just sounded like she was saying that the ART testing was showing false positives. The one thing I keep forgetting is that BioSET is just looking for sensitivities, not antibodies...blood tests are looking for antibodies.

That also explains the bug bites...what I was thinking was that I would have had to be bitten to have the antibodies, but not so with sensitivities...I tend to think of them as the same thing and they aren't really. They are similar but not the same.

And I'm still disconnected slightly so I probably worded that all wrong, lol.

You guys wont BELIEVE what I did to cause this!! :blink:

I don't know, while we might find it hard, I bet we will believe it, lol! So, do tell, lol. If you tell, I'll tell what I had on Saturday that was so stupid, lol.

AndreaB Contributor
Well, didn't sleep well again last night and today bad D again. I may have to cut back on the chlorella even more. I took 9 total yesterday and that may just be too many. I'm also feeling slightly "disconnected" again and my neck and shoulder were burning (like a sunburn) again. That sounds like metals to me.

I'm sorry Donna. I'm ready for you to settle into some better sleep patterns. :(

That was a very interesting report from BioSET.

So today I am a little out of sorts, not feeling myself. I haven't been on the black walnut/wormwood for very long and I am wondering if that is the culprit. I am working up really slowly, as per my usual approach since I am so sensitive to things, so I can't even imagine what a full dosage would feel like then!

But it also has been really hot and I have been training for this 5k walk and so it might just be heat exposure??

Julie,

I hope it's not the black walnut/wormwood.

The heat could really be affecting you though too.

You guys wont BELIEVE what I did to cause this!! :blink:

As Carla said.....FESS UP! We'll believe it but may not understand why you did.

I don't know, while we might find it hard, I bet we will believe it, lol! So, do tell, lol. If you tell, I'll tell what I had on Saturday that was so stupid, lol.

This could be the reason for feeling so awful on Sunday huh. :rolleyes:

Rachel--24 Collaborator

Andrea.....how is T doing today??

I cant imagine a small child staying on the Chi machine. :unsure:

I was actually thinking about that last Friday as I was getting all shook up. :P

As Carla said.....FESS UP! We'll believe it but may not understand why you did.

I'm still pretty out of it and totally wiped out. I'll spill the beans later when I have a little more energy. :mellow:

That was a very interesting report from BioSET.

Yeah...I'm gonna see Anna later today (if I can stay awake ^_^ )....I'm gonna request a summary of my testing/treatments. I want one too! :P

CarlaB Enthusiast
I'm still pretty out of it and totally wiped out. I'll spill the beans later when I have a little more energy. :mellow:

You didn't drink a beer, did you? :o

AndreaB Contributor
Andrea.....how is T doing today??

I cant imagine a small child staying on the Chi machine. :unsure:

I was actually thinking about that last Friday as I was getting all shook up. :P

T is doing good. The pain diminished during her sleep. I'm hoping we don't have to repeat this, but I won't be surprised if we do. :(

S is funny with the Chi machine. I'm always having to put his legs back on the "shaker". I stay by him and reassure him that everything is ok. The first time he had treatment he didn't clear and hadn't had the Chi done. I know that's not necessarily the reason why though because T didn't clear her treatment before this.

I hope you feel better real soon. :unsure: Doesn't sound like you are in a fun spot right now.

Green12 Enthusiast

Yes Rachel, FESS UP!!!! I am sooo curious to hear :lol:

If you tell, I'll tell what I had on Saturday that was so stupid, lol.

Donna, Bumblebar? Or since I've been gone did you get over your little obsession?? :lol: I found a new treat that I occasionally have and they don't make me sick- Lara Bars in the Key Lime Pie and Chocolate Mint flavors, YUMMO!!! So good :D hard to believe these little bars of goodness are made of only fruit and nuts, tastes like candy.

I like Rainbow Toes for you, excellent hippie name :lol:

Ditto on the bugs, I am not a fan of the creepy crawly.

OMG, the other day when I was out training for my walk I was coming up my drive way and a little snake popped out of the grass and slithered down the driveway to the street!!!! Made me jump a mile high. It looked like a gardner snake (I guess, I don't really know snakes actually) but it struck me odd that it was raising its head at me and hissing :blink: , not typical for a harmless snake you would think.

So the thing on the bugs coming up like the scorpian, thanks for the explanation Rachel. That is how I understand it to be too, very similar to how the bioscan works. Things might come up that I've never eaten in my entire life, or touched, or been around etc., it's indicating a sensitivity.

Thanks Andrea, I am feeling more myself this afternoon. I am wondering if it was the heat, and exercising in the heat. I think too I need to tighten up on my diet a little, I have made some not so great choices and when I do that I tend to get a little "off".

Tom, I'm glad you have noticed a lot of improvements, especially after eliminating soy.

Green12 Enthusiast

Andrea,

I meant to mention about the Coconut Bliss. I forgot to check out the website, I just looked in my stores and no such luck, which didn't surprise me. I just took a look at the website and they only sell in OR, WA, and CA in limited locations- they are a very small company.

I got an idea though, I've been meaning to get an ice cream machine for some time now like Rachel got and make my own "ice cream" with coconut milk as the base. I can experiment using agave syrup as the sweetner and all the other goddies/mix ins that their flavors have. Sounds like fun!

CarlaB Enthusiast

I can't BELIEVE I didn't think of that! I CAN have dairy, I CAN have agave ... why didn't I think of an ice cream maker???? Duh! Then I would have NO trouble keeping my weight up! I'm going to drag my herxing butt out of bed tomorrow and go buy one! :P

dlp252 Apprentice
This could be the reason for feeling so awful on Sunday huh.

Well, not the reason why, but it sure didn't help! Okay, I'll fess up, I had a Starbuck's Sugar-free vanilla soy latte...venti!! Everything in that little phrase is a problem food for me. Having said that, I'm still pretty sure it's the chlorella kicking my butt, but that latte sure didn't help and on top of that I had more cookies. These were a different kind with better ingredients, but it still wasn't smart. So, all that, together with the new and much stronger chlorella and the deep, deep tissue massage and the 15 minute (way too long) epsom salt soak, really did me in. Anyway, most of that stuff that I ate would just cause gastric upset, but I had the disconnected head thing too, which I think is metals in my case...that and the burning skin, so I'm thinking it was a combo heinosity thing that happened. :lol: I'm learning my lesson slowly but surely though.

And, I've been convicted with that report I got...one of the things highlighted on there was horrible sugar metabolism. :( All sugars. :ph34r:

Yeah...I'm gonna see Anna later today (if I can stay awake ^_^ )....I'm gonna request a summary of my testing/treatments. I want one too!

It's kind of neat...I wasn't expecting a copy...just thought she'd send it to Dr. S. Dr. S will be very happy to see yours I'm sure. I see her on Thursday. :P

Donna, Bumblebar? Or since I've been gone did you get over your little obsession??

Oh Yikes on the snake! I HATE snakes! Not so much the snake but I hate slithery things--if it would just be still I wouldn't mind much, lol.

Over my Bumblebars....never! :lol: I have one in my cabinet...just for emergencies. However, now knowing that it will make me sick kind of dampens the enthusiasm a bit. :P I also like Lara Bars, but haven't had the key lime flavor.

I meant to mention about the Coconut Bliss. I forgot to check out the website, I just looked in my stores and no such luck, which didn't surprise me. I just took a look at the website and they only sell in OR, WA, and CA in limited locations- they are a very small company.

I went to the coconut bliss website and checked to see if there were stores in my area...there's a store not far from where I work in Palo Alto, and I've been considering walking over there one of these days to check it out. I seem to do okay with small amounts of coconut milk, but don't know if I could have much of it often.

Green12 Enthusiast
I can't BELIEVE I didn't think of that! I CAN have dairy, I CAN have agave ... why didn't I think of an ice cream maker???? Duh! Then I would have NO trouble keeping my weight up! I'm going to drag my herxing butt out of bed tomorrow and go buy one! :P

I'm glad I could be of help planting that little idea in your head, just call me the idea fairy :lol:

It sounds like it would be great for you, you can put in the coconut milk, agave, and some of the other things you can eat for flavor, high nutrition, high calorie. OMG...I think you are on to something! I'm sure it will help keep your weight on.

I remember Rachel talking about how easy the machine was to operate, and all her talk of eating ice cream- remember WE ALL wanted to go out and buy one :lol::lol:

Donna! A Starbucks :ph34r: Well we all have our moments you know. Just don't beat yourself up about it, put it behind you and get back on track, like you said a lesson slowly learned :lol:

AndreaB Contributor

Yes Donna.......it's hard to stay away from everything you have to at times.......Tom's the exception here. :ph34r:

We'll be on a very limited diet most of next week as we will eat what the children can eat.....better get my chocolate fix in this weekend. :ph34r:

CarlaB Enthusiast

Julie, I'll have to try the coconut milk for the ice cream, too. I get too much dairy as it is trying to get calories and fat.

I have a latte every day! :P A decaf, grande, organic latte ... but it's all stuff I can have. I also have fresh, organic whipped cream on top of berries every day. Dairy is a significant source of my calories! So, coconut milk in the ice cream would be a great idea.

Morgan made some fudge for me today ... the kind with coconut oil, agave, cacao beans, almond butter, vanilla, and salt.

So, she's had this summer of trying to take off the freshman 15 and has this mom who she sometimes has to feed who is eating concentrated calories trying to keep her weight up! Poor Morgan! She's 2 pounds from her goal ... and she did it healthy -- working out, eating right, lots of fruit.

Donna, I hope you're feeling better, soon. You do know that Starbuck's soy is vanilla flavored already, don't you? Doesn't that make one fewer bad thing for you leaving out the vanilla? ;) But, the soy has sugar. We'll just blame it on the chlorella ... and the cookies ... it couldn't have been the latte.

CarlaB Enthusiast
Tom's the exception here. :ph34r:

Yeah, nit-wit spice never gets in trouble!! :lol:

Mtndog Collaborator

Hello lovely ladies and lads!!!!! I haven't been here in ages- mostly because i am SO tired I don't even go online much these days.

The reason I pooped in is to say something to all of you. I want to thank you all for the information about diet, Lyme mercury, metals and everything. If it weren't for you guys I don't know what would have happened. I am incredibly grateful to all of you because at least now I know what my battle is.

I just had an appt yesterday in NYC with a neuro- Lyme specialist in NYC (one of the founders of ILADS!) and basically I happen to be the hostess to to four co-infections along with the Lyme. I've got Bratty Babesia, Bad Boy bartonella, icky erlichiosis and mean mycoplasma. So he added two more Lyme meds and he also said it's very clear that I have subclinical hypothyroid (under-active) so he gave me Armour and I also have adrenal burnout so he gave me a booster for my adrenal gland.

He said I probably could have worked one more year before I just burnt my body out and became one of those chronically ill people who just wander around in a fog on 10,000 medications and not knowing what was wrong with me.

Also I found out that my doc here is giving up his practice so this will be my new doc. I really, really like him- old school, good sense of humor and he REALLY listened. I came home feeling more hopeful (and exhausted) than before. And thinking of you guys and how incredibly grateful I am to all of you for EVERYTHING :wub: :wub: :wub: :wub: :wub: :wub:

Oh yeah- he bet me a donut it was bartonella and not celiac!!!!!!!!!!!! At any rate, I'll try to pop in on the days that I'm actually awake but I'm very very sleepy!

Annaem Enthusiast

I have been told that now that im a celiac i need to reduce my corn intake because so many of our gluten-free products contain corn and that many celiacs develop a corn allergy because it makes up soooo much of our diet. Rice is one of the least allergenic foods, so try to stick to rice products. But a corn allergy is different than a corn intolerance.... If this does exist it may be corn gluten that you are intolerant too. Because i believe corn also contains a similar protein. Many people i know were able to overcome their corn allergy by eliminating it from their diet and then reintroducing it a year later. This was the case for my sister. Definetely speak to your gastroenterolgist if a corn intolerance exists and what you can do about it. Then speak to an allergist if its a corn allergy.

Green12 Enthusiast

Hi Bev!

I have been thinking about you, wondering how you've been. I recently came back after ages and ages of an absence too, It's good to see you :)

I am so glad to hear you are getting answers and finding yourself FINALLY on the right path to wellness, that is such great news!

I do hope you will keep us posted :)

Carla, I meant to type milk/cream for your ice cream but I guess I am so fixated on coconut milk :huh: , if you don't have an issue with dairy then go for it. BUT, coconut milk would make a good "ice cream" as well :)

I would love to have that recipe for the fudge Morgan made, if you wouldn't mind posting it or pm it to me, thanks!!!

Tell Morgan hello :)

That was so weird, we were moved to the Gab section for a couple minutes there, I was all discombobulated :blink:

Um, if anyone is active on MySpace, I just had another fabulous visit from the idea fairy about starting a group that is lacking there- there are tons of celiac groups but nothing to do with cooking gluten (or other allergens) free. I kind of need a partner in crime to bounce things off of, so if anyone is interested pm me. If this is a conflict of interest to post here, let me know mods and I will delete this

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    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
    • trents
      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
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