Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

penguin Community Regular

Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
Tika is autistic, so she's mostly interested in hunting for lizards and staring intently at people to get what she wants...

Um, off topic? I am so consistently off topic that I"m sure to be voted off the cult farm....

I can't help but be off topic today, lol. I had a dog named Teaka! We spelled it differently obviously. Neat name! :D

dlp252 Apprentice
I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Haven't really had that kind of pain, but have had the kind where it feels like a really horrible sun burn when the skin is just lightly touched or even when clothing brushes against it...there's never any redness or rash or any other outward sign of anything amiss...the spots tend to differ from time to time.

I fell about a month ago and the bruising is gone, but my leg still hurts like it is bruised even with very light pressure...is that close to the pain you are feeling?

I had a massage on Saturday and thought I was going to die. Its a deep tissue massage and I always have her use heavy pressure and it's usually not a problem, but almost every spot she touched...even with lighter pressure on my feet hurt like crazy.

AndreaB Contributor
Rachel-

thanks for the support- perhaps we should be the cheerleaders on our island either that or we could hire Mr Clark to stop by once a weekend to come give us all motivational talks!!

Miamia

Andrea-

not that I dont support your role as mayor but I feel you would be very well suited in a motherly role.

I think you should be the motherly mayor - or something to that extent - we can fool with the official title.

Miamia

Miamia,

You can only be cheerleader if it doesn't take away from chef duties. :D You were one of our chefs weren't you...or is my memory failing me. :lol: Did you guys know that msg has been linked with autism? That's in Excitotoxins...from our discussion about 70-80 pages ago. :P

Motherly mayor....we can go with that. :P

dlp252 Apprentice
Rachel- I don't know if you ever said what your OMG moment was yesterday, maybe I missed it?

I feel like I am missing other things, I apologize if I left anything out.

Yes, I must have missed it too, unless it was the follow-up on the C.Diff thing...Rachel? :D

penguin Community Regular
I fell about a month ago and the bruising is gone, but my leg still hurts like it is bruised even with very light pressure...is that close to the pain you are feeling?

I had a massage on Saturday and thought I was going to die. Its a deep tissue massage and I always have her use heavy pressure and it's usually not a problem, but almost every spot she touched...even with lighter pressure on my feet hurt like crazy.

That sounds pretty close. I can't tolerate anything more than a gentle backrub. Even a light massage on my shoulders HURTS LIKE HELL!! Not just during it, which could be tight muscles, but for a good 2-3 minutes after the touching ceases.

jerseyangel Proficient
Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:

Interesting you should say scratching your back. My husband (trying to be nice) will come up behind me in the kitchen or something and rub my shoulders/scratch my back. These are things he loves, but I can't stand it--it hurts, and I just figured I'm just more sensitive. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
My goodness we have so many now here at Rachelville, how great, who was the cosmetologist? I really need her today :lol:

Nikki, Nikki, where are you?

jerseyangel Proficient
Guess what? My son, daughter-in-law and my baby grandbaby Ana, are flying in tonight at midnight... can't wait to hold Ana again... they will be here for good now, they moved back home to sunny Florida!!

Celia--you must be over the moon!! Will they be living close by in Florida? I hope someday to have grandchildren--my sons don't seem to be in any sort of hurry, though :D

penguin Community Regular

I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I've been doing that a lot. Like, I'll intend to write "the dog chased the cat out of the house" and I'll end up writing "the dog chased the cat out of the credit card"

Man, this brainfog is so deep that no amount of red bull will save me now :rolleyes:

DingoGirl Enthusiast
I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I've been doing that a lot. Like, I'll intend to write "the dog chased the cat out of the house" and I'll end up writing "the dog chased the cat out of the credit card"

Man, this brainfog is so deep that no amount of red bull will save me now :rolleyes:

No, they're Malapropisms, and actually quite charming....sign of higher intelligence.... :lol:

dlp252 Apprentice
That sounds pretty close. I can't tolerate anything more than a gentle backrub. Even a light massage on my shoulders HURTS LIKE HELL!! Not just during it, which could be tight muscles, but for a good 2-3 minutes after the touching ceases.

Wow, fortunately for me it doesn't happen very often, but I can think of two other times recently where I was nearly in tears and in one case felt kind of nauseated. Did you notice it happening when you were gluten-free? I'm wondering if maybe it will get better once you're off the challenge.

Guess what? My son, daughter-in-law and my baby grandbaby Ana, are flying in tonight at midnight... can't wait to hold Ana again... they will be here for good now, they moved back home to sunny Florida!!

How exciting!!!!!

AndreaB Contributor
my gosh, your husband vacuuming.....how fantastic...be sure and post that on the why we don't need men thread...... :lol: Around here I don't look forward so much to the sound of the pitter-patter of little feet, but the sound of a man doing things for me (sawing limbs off trees, mowing the lawn, opening jars :lol: )

Celia and I must be doubly blessed. My hubby works hard all day and comes home and helps with whatever needs to be done. I just told him last night that I only eat 2 meals a day during the week but since he's home on the weekend I eat 3 because he takes such good care of me. :wub: He's always asking what I want for breakfast and if I don't know or don't feel like it, he figures something out. He also does laundry and vacuums on the weekends as well as doing the dishes that don't go in the dishwasher. And he let's me have most of the computer time so I can keep up with Rachelville. :P

Not to say the Celia and I are the only ones double blessed.....just no one else has written about it. :)

jerseyangel Proficient

Ms Penguin, Just kind of goes with the territory! I managed to gluten myself (CC) right before we went away --a week and a half ago--and I'm still doing stupid things! Yesterday, I took a load of clothes out of the dryer, folded them and turned the drier back on--completely empty. A while later, I thought--what's that noise? It was the dryer running :ph34r:

Green12 Enthusiast
Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:

When I am reacting to foods (not just wheat, but dairy and processed packaged foods/lots of grains does it for me too) and I amass a lot of swelling (rapid weight gain) I have this type of pain. It's like it hurts to be touched or to wear clothes, to even lay down because the weight of my body on myself hurts, if that makes sense?

It goes away for me when I lose the massive swelling and my body weight normalizes, it takes a while and it only goes down if I take out all the offending foods.

I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I do that all the time, brain fog or nor brain fog. I think I am a dyslexic typer, always inverting letters.

I frankly prefer "relevations" to revelations. Here in the land of Rachelville, we make all the rules, and we have our own words and language, relevations must go at the top of the list :lol:

Ms Penguin, Just kind of goes with the territory! I managed to gluten myself (CC) right before we went away --a week and a half ago--and I'm still doing stupid things! Yesterday, I took a load of clothes out of the dryer, folded them and turned the drier back on--completely empty. A while later, I thought--what's that noise? It was the dryer running :ph34r:

:lol: Patti

Celia, I'm so excited for you, having your kids and grandbaby so close to you again!! I love having my family so close.

AndreaB Contributor

Celia,

That is so exciting! You will have so much fun with your grandbaby......will we still see you on here? :unsure: I know we will and I'm happy for you. :D

Chelsea,

It sounds like your gluten challenge could be the culprit. You still have a month left? I meant to comment on the weight watchers pages ago but forgot. :blink: I would think the weight wouldn't be too hard to lose once you are back off gluten. I don't know if you've been eating products with a lot of refined sugar, but going off of refined sugar and only eating the sugar that's no so refined will help with weight loss. You still need to watch all sugar intake, it's just the refined stuff that so bad as far as weight.

penguin Community Regular
Chelsea,

It sounds like your gluten challenge could be the culprit. You still have a month left? I meant to comment on the weight watchers pages ago but forgot. :blink: I would think the weight wouldn't be too hard to lose once you are back off gluten. I don't know if you've been eating products with a lot of refined sugar, but going off of refined sugar and only eating the sugar that's no so refined will help with weight loss. You still need to watch all sugar intake, it's just the refined stuff that so bad as far as weight.

I don't think it's the gluten challenge, I've had this going on for years, and being gluten-free did nothing for it. It may have been worse, actually.

I'm thinking the weight won't be too hard to lose when I'm off gluten, especially if I start WW at the same time. Double whammy of eating retraining :)

Green12 Enthusiast
Celia and I must be doubly blessed. My hubby works hard all day and comes home and helps with whatever needs to be done. I just told him last night that I only eat 2 meals a day during the week but since he's home on the weekend I eat 3 because he takes such good care of me. :wub: He's always asking what I want for breakfast and if I don't know or don't feel like it, he figures something out. He also does laundry and vacuums on the weekends as well as doing the dishes that don't go in the dishwasher. And he let's me have most of the computer time so I can keep up with Rachelville. :P

You have a gem of a hubby indeed Andrea :)

jerseyangel Proficient
Patti, you pm'd Lynne, and guess what, made my day to get a call from our friend in Kentucky, this board is amazing.

That's what friends are for, Susan! I knew Lynne would want to know cuz you two are buds ;) I'm sure this is another difficult day for the family--I'm thinking about you all :)

rinne Apprentice

I'm wondering about your OMG moment too Rachel. :)

Relevations, great word, what does it mean? I'm thinking: relev as in important and elevations as in higher places, so relevations is the sharing of an important journey to the uplifted and inspirational community of Rachelville. :) Anyone else?

Celia, how wonderful that you will be able to hold that grandchild more often. I am so happy for you.

penguin Community Regular

Off all topics, even the off-topic ones -

I just got off the phone with our tech guy for our prospect managment software that's showing me how to use this labrynth of a system that's supposed to make my life easier. He's maybe 30, and works with all of the councils nationwide.

Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

Rachel--24 Collaborator
I'm wondering about your OMG moment too Rachel. :)

Ooops. :blink:

There seems to be alot of brainfog going around...I totally forgot. :ph34r:

I'm eating my lunch right now but will get back to this tonight. :)

VydorScope Proficient
Off all topics, even the off-topic ones -

I just got off the phone with our tech guy for our prospect managment software that's showing me how to use this labrynth of a system that's supposed to make my life easier. He's maybe 30, and works with all of the councils nationwide.

Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

Kiddo is usally meant in an endearing way, so probably not, but if it bugs you, ask him to call you ma'am instead :D

nikki-uk Enthusiast
My goodness we have so many now here at Rachelville, how great, who was the cosmetologist? I really need her today

:lo

That's me Celia,I'm here!!

(slight delay due to time zones-I'm in BST-British Summer Time,)

Whatcha fancy?Wash and blow dry?

God knows in this heat (36 celcius) I need something done to my hair!!!

It's frizzing outta control :lol::lol:

Rachel--24 Collaborator
Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

I'm alot older than you and get called "kiddo" all the time...I get called "hun" too. People call me all kinds of things...as long as they are endearing it doesnt bother me one bit.

Oh...one of my co-workers calls me B****....thats just what she calls me and she says it affectionately so it doesnt offend me in the least. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

    2. - trents replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

    3. - trents replied to Karen Chakerian's topic in Coping with Celiac Disease
      1

      Getting rid of the belly bloat

    4. - Karen Chakerian posted a topic in Coping with Celiac Disease
      1

      Getting rid of the belly bloat

    5. - SaiP replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,437
    • Most Online (within 30 mins)
      7,748

    Nikimunny
    Newest Member
    Nikimunny
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
    • trents
      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
    • trents
      Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct?
    • Karen Chakerian
      I’m 70 years old and have RA for 25 years. I’d never had digestive issues or even heard of celiac until 2 months ago.  6 years ago I started having serious diarrhea, dropped what little weight I had,  became very exhausted, developed rapid onset blood pressure and other symptoms. I went to the doctor for an unrelated matter and even with my records he told me they have ‘pills’ for all those things; which I turned down and sought to deal with this with homeopathic remedies.  Mid October 2024 my guts hurt terribly and started to swell. My massage therapist asked about celiac and I started to do research on it. It absolutely fits all the symptoms so I’ve been gluten free since 2 days before Thanksgiving but the huge gut persists. Thankfully the pain and cramps are gone. I look like a 90# pregnant skeleton.  I’m exhausted and looking for some encouragement from the tribe. I have good days and bad. I know living with an autoimmune disease sucks but this is even worse than the RA. 
    • SaiP
      Hi guys. Apologies for the late reply. Many many thanks for the replies. Hi - I am eating both white rice and wholegrain brown rice, due to it being very difficult to just eat brown rice. In regards to histamine foods - I am taking 10mg loratadine to combat this issue, however haven't seen any positive results as of yet. I have noticed if I am on a strict gluten free diet for around 1 week, the insomnia instantly pops up, and I have to eat around half a slice of bread for it to stop. I am trying to lower this amount, however the insomnia is still present. I have searched these forums and the internet but there seem to be no solution to this issue. I thought if I gradually reduce from half a slice and a little less, the issue will be resolved. However this is not the case.
×
×
  • Create New...