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Omg...i Might Be On To Something


Rachel--24

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mftnchn Explorer

Kassandra, can you handle complex carbs versus simple carbs like sugars? Fatigue can come from taking high simple carbs, not sure if it is blood sugar related or allergy or candida or many other things.

You could check out the glycemic indexes that are now used for diabetics.


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miamia Rookie
I had my 4th LED Friday....it was for Candida, Aspergillus, Hanta virus and Coxsackie.

I woke up yesterday feeling REALLY good. I dont know if it had anything to do with the treatment or what...I just feel alot better in my head area. :)

I had a long session on Friday....Scott and his friend were ahead of me and I was the last patient so she took her time with me.

She tested various things....making sure I still dont have a problem with sulfa, etc. She never tells me what shes testing so that I dont subconsiously lower or increase my resistance while shes testing. She tested one vial and was like "Woah!".

I knew my body was totally weak to it so I was like "What is that??" :unsure:

It was mercury....she said I must have a huge mercury burden. Now that I've been detoxing some of the other things the mercury is showing up even stronger...its at the root of everything. Since I havent been treated for it yet the other stuff is hung up in the areas where the mercury load is high.

I said "Doesnt everyone coming through here have mercury as a big factor?" She said yeah...they do...along with alot of other things....but the mercury is a bigger issue for me it seems.

Everyone is looking forward to seeing what happens with my treatment next week....Scott is really curious about how I'm gonna do with that treatment.

After this last LED she put me on a liver support cuz she said my blood is pretty toxic...she can see it from the color of my skin and my veins. She said its from the hypercoagulation and from my liver needing support. She also started me on caprylic acid for the yeast.

She tested me on those and had to try a couple things to get the right supplement for liver support.

After she found one that tested well she taught me a method of self-testing. We did the "O-Ring" test. So we practiced with stuff that we knew my body didnt like and stuff that my body responded well to.

This was the second method I've learned cuz the Dr. taught me another way to self-test at my first appt. I'm always practicing with just about everything at home. :lol:

I'm doing really well with taking all of my supplements. I counted yesterday and I'm now taking 25 things!! :o

They're all lined up on the counter so I dont forget about any of them. :)

I have 3 on hold right now....Cumanda, Noni and NDF.

The truelly amazing thing is that I'm taking all this stuff and NOT getting reactions!! :D

My bm's are totally great now...2-3 times a day. :)

I had some burning on my skin and in my mouth a couple times this week....along with some brainfog. I felt like something was moving metals around....I'm taking alot of stuff now so things have got to be shifting. I address those symptoms as if its mercury getting mobilized...just to be safe.

I told the girl on Friday and she said I'm really in tune with my body cuz thats most likely whats going on. As we treat...things will shift and some mercury is gonna be on the move. Also...she said the glutathione I'm now taking could be causing it. I'm pretty sure the glutathione is one of the things really contributing to that.

Overall...I feel like all the supplements are helping me and I'm feeling stronger. :)

So after my last LED I'll see the Dr. again....get retested for everything to see where I stand. She said I'll be starting oral chelation (DMSA). I'll be tested for that....and also cysteine, lipoic acid, etc....and he'll determine the protocol for that when he does the testing.

I asked her about a challenge test and she said he usually does that later on down the road since the results of the test dont change how he's gonna treat me.....and right now we know I'm toxic from mercury regardless....so its expensive and not necessary at this point.

I told her I still wanna get the test just to get a baseline...so I know where I'm at starting out....or how well I'm getting rid of it. So she said they can do that for me if I want.

I feel much more ready for this now than ever before. I feel like my body is doing alot better now and accepting alot more things. My organs are getting the support they need and the testing gives me alot of confidence. I can see that even though I'm not "better"....my body is utilizing the things I'm giving it...to some extent at least. :)

I'm finally graduating to the chelation stage. :D I think the LED treatments and everything this Dr. is doing is definately helping move things along.

Dr. S. is gonna be really impressed next time I see him. He was totally right to hold off on the chelation until I was in a better place and with a good foundation. There is no way I could've just started that type of treatment without doing all these other things first. I would have gotten really sick and I'm glad he could see that I wasnt ready.

I still dont know that I'll breeze through it but I feel confidant that they'll be doing everything to make sure it goes smoothly and that all the bases are covered. Treating the hypercoagulation is important for this too....since thick blood which isnt circulating as efficiently will hinder the removal of toxins.

Hypercoagulation causes a build-up of toxins.

Getting the candida under control also goes a long way in helping the body to excrete the metals. I'm doing really well on my diet (no sugar cravings) and I'm taking the caprylic acid as well as my GSE....plus my "green" probiotics. :)

I havent lost any weight so far!! YAY! :D

Next week when she does the mercury LED they may be adding in Nystatin to my LED treatment. He wants me to get detoxed from that since I was on it for awhile and its a drug.

Thats why they wanted me to find out which antibiotics I was prescribed. I asked the Dr. about it when I saw him Monday....he said that anything "toxic" is gonna get hung up in certain areas and abx do get caught up in those areas.

I told him that originally I had the swelling and imflammation in my sinuses...especially above my eyes. I didnt notice significant swelling in my jaw area until about a year later....and it was during a round of antibiotics. So yeah...the abx contributed to weakening my immune system and allowing for my situation to get worse...and I dont know if the abx got detoxed or hung up with other toxins. <_<

So thats my update. Things seem to me moving along pretty well. I told the girl..."So...I should be eating alot more foods in about 6 months?" I was hoping she'd answer that it would be sooner than that.

She said "Oh yeah...definately...it shouldnt take 6 months though...it'll be much sooner than that."

YAY!!! :D

Rachel

i ahve not finished catching up but i wanted to post before i forgot my comments and questions-

one- I am happy you took a break, but..........I am HAPPIER that your back!!!

Thanks for the earlier info on the hy. stuff I think i am going to look into that more.

YOu sound really good. I am so happy for you.

What do you think has caused the change in your bowels? I am really curuious because as you know i ahve a lot of problems in this area?

What is the "green" probiotic you are taking?

miamia Rookie
Yes, I've gotten their chicken. It's very good. I've just found some that's produced in Northern Oregon and I go to a farmers market to get it. It's about $5-7 less than US Wellness and they are raised on pasture and in communities of 200 or less which is what chickens like.

Sorry about your eye socket. That sounds painful. :(

I'm thinking once you get on top of things that you'll be able to eat more without stressing your adrenals.

I went shopping yesterday with T to stock up on food we can start eating today. We are going off of our diet a couple hours early. The older two have lost about 5 pounds this week. For a child, that's not good. T was so happy yesterday during the trip thinking of all she could start eating again. She's been highly emotional lately (even more than normal) so we're hoping that we are starting to get somewhere with these treatments. T and M have a list of dinners they want now that we'll be able to eat more again. I certainly hope that if we have to go through more foods treatments that the list of foods to avoid won't be so long.

Andrea-

yeah for more food!! an dI am so glad to hear you feel there is improvement!! I am always amazed at your strength- you really get my vote for mommy of the year( although my mom is pretty amazing!!)

dlp252 Apprentice
Its just that this week I feel like I am pushing myself all the time to just stay at it--there's always this nagging "I'd sure love to go veg out" feeling, plus the nausea, bloating, and diarrhea

Could have been written by me... :P

dlp252, Who are these doctors? Where could I find some in my area?

...

I have thought about candida, but I am struggling with the sugar cravings!!! I know that is par for the course, but...UGH! I'm also afraid to start a anti-candida diet because school is starting and the last time I did it I was tired for days on end. So I don't want to start that now.

...

I am 17 and don't drink, smoke, etc. I do exercise, but it only makes me more tired! I have not been tested for H Pylori, but I will talk to my doctor about that. I think I may have a stomach ulcer, because my pH levels are really high! I need to check into that.

They have a specialized clinic here in the SF Bay Area. I don't think they are associated with any other doctors in other cities, altough I think they're planning to open another clinic in this area. They are a group of doctors: an internist, a nutritionist, chiropractor and physical therapist. They work as a team on each patient to get to the bottom of why they aren't well and to treat--they discuss my case every week. :P

They suspected adrenals in me, but that was a no-brainer really. It sounds like your adrenals are stressed too. I used to be able to do some pretty intense cardio, but I can't anymore...adrenals were a direct issue in that regard. Anyway, they are what I call "integrated". They practice "regular" medicine, but do more thorough testing than regular doctors usually do and have some "alternative" ideas. I had H-Pylori back in November of last year...it does sound like you might have that too especially if you suspect an ulcer.

Another "doctor" who is part of my team is the lady who I see for BioSET. That's the electrodermal muscle testing, and so far it's been pretty accurate. That's how I found out about all the food intolerances.

Another doctor who is part of my team is my LLMD, who tested me for a BUNCH of stuff other than lyme. That's how I found out about the mold toxicity, the essential elements deficiencies, metals and of course the lyme.

I still see all these doctors regularly and each is aware of the others and what they are doing, which is so refreshing, lol.

CarlaB Enthusiast

Kassandra, I don't get that reaction from oil of oregano ... but it can kill off bacteria so it could cause that theoretically. You might try taking it regularly for a while and see if it helps. Google bacterial dysbiosis ... you will see many/most of your symptoms. Oh, the oil of oregano also can kill off yeast ... maybe you just need to start off more slowly. Also, take good probiotics.

I don't have time for a long post now, so I want to send you to the Lyme Disease thread for your questions about Lyme testing .... sorry ... or else I can answer later.

Hi to everyone!

AndreaB Contributor
Have a good week everybody.

Glad you are feeling a little better today.....hope it continues. Have a good trip and we'll see you next time you're able to get on.

Mia, Thanks for the sweet comment.

Last night S had tomato.....don't know how that went yet. T had almond butter with no problems. Both T and S have had banana this morning. Hopefully this trend will continue and we won't have any real delayed reactions.

NoGluGirl Contributor

Dear Donna,

I bet my adrenals are shot, too. :( The sugar I eat does not help. I am not eating as much of it as I was. I am getting better about it. There are a lot of things that stress the adrenals. Adrenal Gland Burnout often needs repaired by avoiding caffeine, sugar, refined carbs, and transfats.

Dear Mia,

How are you doing? The hypercoagulation is probably something we all have. Lyme and other chronic illness often is related to it. This always seems to be present in people like us. :( That explains why we all feel so tired and so slow.

I have actually been kind of constipated the past two days. That is so odd. Normally, I have to go several times. Knowing my luck, tomorrow when I need to go to the doctor, I will get the runs! :angry: That is what always seems to happen.

Dear Kassandra,

Adrenals could be part of my trouble, too. Avoid transfats, sugar and refined carbs, and caffeine, and it should help. I am working on it, but like you, sugar is hard to give up. I crave it too much. The yeast probably is responsible. I got very sick before when I tried to go low-carb.

The low blood pressure could be caused by Lyme, its co-infections, or a bunch of other things. I have upped my salt intake some, and it does help a bit. It is frightening feeling like you are going to faint so much. I know how that is. NMH is certainly a good possibility, and neurologists diagnose it with a tilt test.

Gallbladder disease is somewhat elusive. That can be a lot trouble. Symptoms can also be similar to an ulcer or bacterial dysbiosis. However, with the gallbladder, there are some things that could easily help you recognize it. For some odd reason, gingerroot aggravates it instead of alleviating the indigestion caused by gallbladder trouble. Get some gingerroot capsules, and see if it helps or hurts you.

Another thing just occurred to me. Do you take the Prilosec with food? If not, that can make you terribly queasy. They say you can take it with or without food, but that is not true. My father found out from somewhere some time ago that taking it on an empty stomach can make you nauseated. After I began taking it with food, I felt a little better. I also take mine twice a day, not all at once. It seems to work better for me that way, instead of taking two capsules at once.

The ulcer and bacterial dysbiosis are also something to look into. I know that the symptoms of gallbladder disease can mimic ulcers. At least if you can rule that out, then you can find what the cause of the misery is. I believe you are like me, it is not just one thing. It is likely a number of issues.

Dear Carla,

I am really pale. It is awful. I cannot seem to tan! Lately, I could sit in the sun for a while, and the rays would be very high, but it makes no difference. :( I wish I could get some Tan Perfect, but even if I had the money, I do not know if it is gluten-free!

I bet I have the bacterial imbalance as well. The likelihood is pretty good for me. The yeast adds a large burden to my system. That always tips the scale out of your favor. Were you getting stomach cramps in your colon from the dysbiosis?

I was wondering something about Lyme. Did you say before the rash does not have to be a bullseye? Ten years ago, I had a rash around my waist. I thought it was poison oak at the time, but now I am thinking maybe it was not. What do you think? Could that have been the Lyme rash?

Dear Andrea,

I hope T and M continue tolerating bananas! It is good to hear they were doing well earlier. Did S do okay with the tomatoes? T did good with the almond butter, which is a good sign! :) We are all keeping our fingers crossed for you!

Dear Sherry,

It is great the Allegra helped! My allergies were not alleviated by any of those meds. Nothing has ever really helped me much. I have no idea why. I have a lot of allergies that are difficult to avoid, like dust, dustmites, dog hair, pollen, and mold. They are all over the place!

I hope your GI symptoms improve. I know what it is like to have nausea. It is miserable. That is the hardest thing for me to deal with between all of my symptoms. Fatigue is not easy to handle all the time, either. The wanting to be lazy when you have to work is a pain to deal with! Meanwhile, enjoy your trip!

Dear tom,

That is a nice new avatar! :) Have you ever been inside the Basilica? It sure is beautiful on the outside. This place is like a grand cathedral! We have some amazingly painted churches here, but have not gone in them since we always attended a U.C.C. when I was growing up.

Dear Everyone,

Well, I am nervous about tomorrow. I got get my shot, and have to talk to my doctor about what to do next. I worry she will not take me seriously on this Lyme testing issue. I hope she does not want me to get a root canal in that tooth! I cannot really wait long on it, due to it being in such bad shape. Wish me luck!

In other news, I got a fedora on the way! :P HSN was having some big clearance, and it just so happened I was looking around on the site, and they had one for only $13.11 on sale! :) It is black and has glitter! I cannot wait until it gets here. My hat will be here the 13th or maybe a bit sooner or later.

Here is another funny note for you. The other day, my grandparents came over for Dad's birthday. His birthday is tomorrow, and they came a little early. Naturally, after a few minutes, we all sat down on the sofas to visit. Dart smelled Cookie, their dog on Grandpa. Dart then proceeded to hump my poor Grandpa! :o I got him by his harness, and then my mother noticed what he was doing! :rolleyes:

Sincerely,

Jin


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confusedks Enthusiast

Thanks for responses. My concern is that because insurance never covers anything I seem to need, I don't know which test to run first?! I think an ulcer is a possibility, but I don't think we can have endoscopies, etc. It costs too much. I also just went to the allergist and found out that I'm allergic to a few things, but it didn't really give us the answers we were looking for. :unsure: Anyone have any suggestions about which tests to run first? Also, how do I present these ideas to my doctor without him thinking I'm crazy!??? Doctors tend to think we're all making this stuff up...but why the hell would I make this stuff up? Who would want to feel like crap?? Ugh!

The prilosec I take at night without a FULL stomach, but a semi full stomach, so it's not empty at all. I take two pills at once because otherwise I wake up at night with terrible nausea that I described previously. Last night I woke up with nausea, even thought I took some prilosec, but I was able to turn back over and go back to sleep...I guess that's improvement?

Ugh,

Kassandra

confusedks Enthusiast

Sorry to post again, but I just looked up adrenal fatigue and I have SO MANY symptoms. I guess the question is, I have symptoms to so many of these things...but how do I know which one I have? Candida, adrenal fatigue, bacterial dysbiosis,

H Pylori, etc.

Kassandra

NoGluGirl Contributor

Dear Kassandra,

Well, there is a good possibility you have them all. That is the thing. Also, you went to summer camp. You may have been bitten by a tick and did not know. If you contracted Lyme, that might explain a lot of this.

I am in a similar predicament. I think the smartest thing is to write down all of the possibilities, then decide which is the most important and act on it first. That is what I am doing. I also made a list of small things I can start doing now to improve my health. Every little bit helps.

I wish I could tell you how to deal with doctors. It is nearly impossible. They often assume we are all insane regardless. You could have a freakin' 2 X 4 stuck in your skull and say you believe it is the cause of your headache, and they would find some reason to make you sound nuts. :rolleyes: I see my doctor tomorrow, and I am nervous about bringing up IgeniX and the Lyme testing again. I am just tired of waiting on them to get off their butt and stop twiddling their thumbs. This is a deadly disease, and I sort of do not want to die. For some reason, they do not understand that, and have no sense of urgency whatsoever.

Sincerely,

Jin

confusedks Enthusiast

NoGluGirl,

This is so hard because I talked to my mom about it today and she freaked out at me! :ph34r: She told me that I'm addicted to doctors!!! OMG...........that's so FAR from the truth. I'm not liking feeling like CRAP! So, IF doctors can help me, then I'll keep going until I figure something out! And she is telling me that she is so exhausted and she feels the same way I feel, but then she tells me she is taking something really strong to make her sleep! I would be tired too...but I'm not taking ANYTHING and I'm waking up fatigued!!! HELP!!!!!! I'm going crazy in my own home!! :( Sorry, I just needed to vent. It's the last thing I need to deal with when I'm really tired...a crazy mother!

Kassandra

dlp252 Apprentice

Oh Andrea, LOVE the avatar!!!

Well, I am nervous about tomorrow. I got get my shot, and have to talk to my doctor about what to do next. I worry she will not take me seriously on this Lyme testing issue. I hope she does not want me to get a root canal in that tooth! I cannot really wait long on it, due to it being in such bad shape. Wish me luck!

In other news, I got a fedora on the way! :P HSN was having some big clearance, and it just so happened I was looking around on the site, and they had one for only $13.11 on sale! :) It is black and has glitter! I cannot wait until it gets here. My hat will be here the 13th or maybe a bit sooner or later.

Good luck with the doctor today! Great bargain on the fedora. I LOVE bargains, lol. I just bought a top at Macy's for $2.38. Yes, that is correct, lol, $2.38. It was old merchandise (wonder by whose definition because it certainly looked just exactly like the other top I bought for $14.00....) that wasn't supposed to be out on the floor, and they were having a sale, and well, I got it for $2.38. :P

Thanks for responses. My concern is that because insurance never covers anything I seem to need, I don't know which test to run first?! I think an ulcer is a possibility, but I don't think we can have endoscopies, etc. It costs too much. I also just went to the allergist and found out that I'm allergic to a few things, but it didn't really give us the answers we were looking for. Anyone have any suggestions about which tests to run first? Also, how do I present these ideas to my doctor without him thinking I'm crazy!??? Doctors tend to think we're all making this stuff up...but why the hell would I make this stuff up? Who would want to feel like crap?? Ugh!

Sorry to post again, but I just looked up adrenal fatigue and I have SO MANY symptoms. I guess the question is, I have symptoms to so many of these things...but how do I know which one I have? Candida, adrenal fatigue, bacterial dysbiosis,

H Pylori, etc.

It is so hard to figure it all out when the symptoms fit so many different things. I don't think my "regular" doctor would have checked for all these things...she did check thyroid, but only would run the basic that most doctors run, which doesn't catch many of us on the fringe.

Well they tested my adrenals by saliva test. I think most "traditional" doctors wouldn't run that kind of test though, although not positive they wouldn't since I'd never approached any other doctors about it. I think Adrenal Fatigue can be a condition by itself at times, but usually it's a by-product of something else. In my case, pretty sure it's the combo of lyme, mold toxicity, etc.

What helped though is taking burdens off the body...each burden you can take off will help the adrenals recover. I was told to avoid stress, eat right (what is right for you with foods you tolerate, but avoid caffeine, sugar, etc.), get enough rest and sleep, don't overdo exercise, but do get some exercise. Coincidentally, those are all the things my lyme doc told me that would help with the mold toxicity and lyme.

The H. Pylori wasn't found by my GI doc during the endoscopy, it was found by the HN doctors, I think through a stool test (I say I think because I took so many tests around that time...I know definitely adrenals were saliva, and I think H.Pylori was from the stool testing). Many doctors would argue that that isn't the best way to test, but they found it, and treated it and I did see a decrease in the acidy feeling in my esophagus and stomach.

Well, there is a good possibility you have them all. That is the thing. Also, you went to summer camp. You may have been bitten by a tick and did not know. If you contracted Lyme, that might explain a lot of this.

So true

CarlaB Enthusiast
I bet I have the bacterial imbalance as well. The likelihood is pretty good for me. The yeast adds a large burden to my system. That always tips the scale out of your favor. Were you getting stomach cramps in your colon from the dysbiosis?

I was wondering something about Lyme. Did you say before the rash does not have to be a bullseye? Ten years ago, I had a rash around my waist. I thought it was poison oak at the time, but now I am thinking maybe it was not. What do you think? Could that have been the Lyme rash?

No, not in my colon, it was more like the middle of my belly.

I had rashes recently (before diagnosis) ... usually it was on my scalp and the areas near my scalp. With my sensitivity to gluten, I thought it might be DH because it was blistery. Chronic Lyme can cause rashes ... I'm not talking about the rash with the tick bite.

I don't know what that rash of yours could have been.

Thanks for responses. My concern is that because insurance never covers anything I seem to need, I don't know which test to run first?! I think an ulcer is a possibility, but I don't think we can have endoscopies, etc. It costs too much. I also just went to the allergist and found out that I'm allergic to a few things, but it didn't really give us the answers we were looking for. :unsure: Anyone have any suggestions about which tests to run first? Also, how do I present these ideas to my doctor without him thinking I'm crazy!??? Doctors tend to think we're all making this stuff up...but why the hell would I make this stuff up? Who would want to feel like crap?? Ugh!

Sorry to post again, but I just looked up adrenal fatigue and I have SO MANY symptoms. I guess the question is, I have symptoms to so many of these things...but how do I know which one I have? Candida, adrenal fatigue, bacterial dysbiosis,

H Pylori, etc.

Kassandra

Kassandra, adrenal fatigue goes hand in hand with chronic illness, so you do most likely have it. Candida is the same way. Bacterial dysbiosis is also an upset in the balance of your symptoms.

I am wondering, with the oregano oil causing symptoms, it's obviously doing something. How about trying to take the oregano oil at night since it causes you to sleep, and then it can do whatever it's doing? Then when it's not causing so many symptoms, add it in the morning as well? If it's candida or bacterial dysbiosis, this will help.

Also cut out sugar, and once you get used to that and your body adjusts, cut out other simple carbs ... eat more protein. This is good for either bacterial dysbiosis or candida.

None of this will hurt you ... so if it makes you better, you don't have to deal with the irritation of your mom not understanding. Whatever it is, it will take time to get better.

I think you should also add probiotics. Check out Theralac ... Google it ... see if your mom will buy it for you.

If this starts making your feel worse, you know you are getting to the problem ... keep at it, but move more slowly if you have to. If it makes you feel better, that's even better. If you feel nothing at all with these changes, then approach your mom for more testing.

When were your diagnosed with celiac disease? You just might not have been able to get your system back in balance with "only" a gluten-free diet. It may need a little more "kick" than that.

Truthfully, doing this is not second to being checked out by a doctor. You've had so much checked out already, if you were my daughter, I'd have you doing these things before we went back to more docs.

Mango04 Enthusiast
Hello again everybody,

I don;t know if anyone has any experience with this, but all of you are so knowledgeable so I thought I'd give it a shot. I am absolutely exhausted and have no idea why.

Kassandra

Hey Kassandra - I just wanted to pop in and make a suggestion (maybe this has been suggested already - haven't caught up with all the posts yet). Anyway, sorry if I have you confused with someone else, but did I read on another thread that you take Yasmin? Yasmin makes me fatigued and drastically lowers my blood pressure. When I'm on it I always feel a bit dizzy and disoriented and I black out a little whenever I stand up. I might totally be thinking of someone else...but if I'm not and you are taking Yasmin I just wanted to throw that out there as something that might be contributing to your symptoms. It's probably not the sole cause but it could definitely be making things worse. :(

Hi to everyone else :) Hope everyone had a good weekend. I'll have to catch up with some more of the info here :)

tabasco32 Apprentice

Hi everyone it's me

still alive

have been cheating lately on my diet.. chocolate candy bars and banananas. I need to stop.

candida out of control. I feel drunk and lately my brain has been in control. How it everyone? miss you guys. I am not taking the dmsa but tell my family that I am. Any better toxic binders than charcoal or chlorella? I don't feel to good. Guts feel swishy and making noises.

How are you doing Rachel? Hope detox is treating you well.

Have been tasting chlorine lately and burning inside. Must be from my mom washing the towels from the pool we have that people use. :angry:

Ok by everyone

lisa

CarlaB Enthusiast

Lisa, it's good to hear from you!

Quit cheating!!! :)

I take Cholestyramine for binding toxins ... it also can cause constipation though. It's by prescription. I think chlorella is probably best for you with the metals problem.

I hope you're being honest with your doctor about the chelators ... you really need that help to get better. At some point, you will want to take them.

I am taking Oil of Oregano and it helps a LOT with the gurgling belly. Be careful if you try it, start out slowly as it kills yeast, bacteria and other parasites.

tabasco32 Apprentice

How much should I take of oil of oregano?

I can not tolerate chlorella and I dont want to take the dmsa because I still have fillings in my mouth. I don't know what to do.

CarlaB Enthusiast

All the oil of oregano I saw were different potencies, so had different directions. I ended up buying Wild Oats brand because it was stronger, only needed 4 drops vs. 30 in the other brand I looked at.

If I were you, though, I would start out VERY slowly to see how it reacts. I don't have candida problems and the oregano can kill off candida. You don't want to herx too badly from the candida die-off.

But, for me, if my stomach is upset, I take the oregano ... I take it every morning and evening, but take it also when my stomach is upset. It's been a miracle herb for me.

It is smart to not take the DMSA until all the fillings are out. When will you have that done? Are you getting stronger?

If you can't take the Chlorella, keep taking the charcoal. The Cholestyramine is good, but requires a prescription.

Hopefully Rachel will pop in today ... she's really the mercury expert around here!

AndreaB Contributor
Did S do okay with the tomatoes?

Tomatoes still appear to be a no go.

Lisa,

I don't know what to suggest. As Carla said, Rachel is more knowledgeable about mercury. Keep up with the charcoal and don't cheat on your diet. Your body needs all the strength it can get and not have to worry about fighting more because of the foods that aren't good right now.

Donna, thanks. :)

I've been knee deep in playing computer games. We have the ART/ASYRA tomorrow and I'm also planning on having my root canal pulled. It's my first appointment with the dentist but they said they should be able to do it after the exam to determine what needs to be done and how much it will cost (for next year's removal).

tom Contributor
Dear tom,

That is a nice new avatar! :) Have you ever been inside the Basilica? It sure is beautiful on the outside. This place is like a grand cathedral!

Oops Basilica av gone!

I do very much like its look and have been inside multiple times. It doesn't seem as big from inside, tho it is grand.

My fav is one in SF but I can't remember the name right now. I know how to get there!! Up Columbus then park by that triangle park - and you'd see the spires and towers well before u get there. :)

In other news, I got a fedora on the way! :P HSN was having some big clearance, and it just so happened I was looking around on the site, and they had one for only $13.11 on sale! :) It is black and has glitter! I cannot wait until it gets here. My hat will be here the 13th or maybe a bit sooner or later.

Woohoo I'm a BIG fan of a bargain! In that Willow Glen part of SJ I like so much, there's a thrift store where I got a great silk shirt and an even better patagonia "organic" cotton shirt for a combined $9!!

(No idea why they think organic matters in textiles :huh::rolleyes: )

Annnnnnnd some news. Meant to post something about this when it happened. "Had lunch" (he ate, I didn't) w/ a guy I trained when he was fresh out of college and after much catching up, we got down to business. They (the place I last worked) do have some openings now, so I asked "if I were physically ready to do the 8-10 hr days, is one of those positions at my level?". And he kinda half-winked and said something like "we'll *make* one".

Seems the kid got some clout over 10yrs.

BUT!!!! I wasn't sure whether that was more exciting than that I tested a few corn tortilla chips and didn't get dizzy from the 1st bite!! Woohoo maybe corn will be doable already!

Then, yesterday, I thought I was going to have coffee w/ my 'king of crazy stupid conversation' friend Tony, and his neighbor, just to talk about the neighbor's start-up company, which deals w/ security for mobile devices like my sidekick and all the rest.

Ended up w/ a 2nd job offer and I don't even *want* a job yet! Gotta get better!

At least it would start as part-time, so I may be able to do it next month, once I'm there and moved in. :)

CARLA! I have no idea why I never saw or heard a Bass Flute before, but my second day in SJ my old drummer played in a small group where one woman played bass flute on a couple songs. Wow! What a tone!

Jin, Jin, Jin . . . .. . . I saw that bit about LA being "healthier than Bay Area"!! Oh . . . . . My . . . . . God, that's so wrong!!

1st, the *REAL* LA isn't hollywood. Watch the movie 'Colors'. :scared:

2nd, the Hollywood/Beverly Hills ppl only want to *appear* healthy. Implants have gone so far down there, even MEN get pec and butt implants!! :rolleyes:

Summed up by Ricardo Montalban, glitzy LA thinks "its better to LOOK good than Feel good". <_<

Bay Area FAR healthier than smogville silicone-implanted skin-deep-shallow El Lay! :P:lol:

Donna! I check the cookie aisle every time I'm at WhF! rofl

Phew enough typing.

Hope everyone's doing well. I don't think I can really catch up this time. Too much packing and pc work to do seeing if I can do what the start-up guy needs done.

covsooze Enthusiast

Hi everyone

Well it looks like I killed another computer....

After my July miscarriage, I was on iron, but had to stop as I was getting really bad hives (this is a brand that I've taken before and been fine). Then I took other supplements that I've been fine with beofre and more hives. They are all free of the things I'm not eating right now. Anyway, I compared all the jars, and the common link seems to be magnesium stearate. I looked up magnesium stearate allergy on Google and it seems it can cause hives, but the second link it sent me to downloaded a nasty virus onto DH's laptop and so that's now out of action till he gets the virus software from work...

The odd thing is though, that my thyroxine tablets, which I take everyday, also contain magnesium stearate, so what I'm trying to work out is whether it's taking a certain amount of it that causes me problems. If I do get hives with a lot of it, but not with a little, is it still OK for me to have magnesium stearate, or should I cut it out all together? If it's the latter, that's going to be a problem, as it's in most tablets....

Anyway, I'm doing OK with the diet. Having quite bad reflux, maybe that's herxing? Drinking hot water which seems to help with that - maybe something you could try Kassandra?

On and when I had the h pylori test (which was negative) I think it was a breath test.

Jin - you sound so like me! I have the whole low blood pressure problem. But doctors don't see it as an issue. When I was in hospital with the miscarriage, I passed out lying down and had a fit, because my bp went scarily low :o

I reckon adrenal fatigue is an issue with me. Although I feel I'm have some herxing, I also feel more energetic already on this diet, which is basically anti-candida and eliminating the high scorers off my intolerance testing (potatoes, yeast, carrots, cucumber etc). I am convinced it's the lack of potatoes that's making me feel better :o

oops, sorry to have waffled on. I'm on my work PC, not sure if I'll have a computer at home this evening!

Susie x

ami27 Apprentice

Hi all,

I have been feeling so bad lately. It seems like everything I eat makes me feel bad. I'll wake up feeling ok, but as the day progresses I feel worse. It has been a little over 2 weeks since I went to the new doctor and had all those tests done. One of which was the provoked urine challenge. The day after I had this done I actually felt better. The tension in my neck was almost gone and I seemed to have more energy. But, it only lasted for a couple of days. Then I was back to my normal, fatigued, no energy self. My neck is so tense and hurts all the time. My hands go numb during the night. I am having headaches all the time. I used to never get them, but now it's an everyday occurrence. I'm also having serious brain fog. It seems like things just all the sudden have gotten this bad. It started in June. Prior to that I really thought I was doing better with the gluten free diet. I go Tuesday the 11th to have the amalgams removed. After that I will go to the doctor to see what the results of all the testing was. I am so ready to feel better or at least have a plan to get to feeling better. I'm to the point of not having a clue what to eat. I just feel crappy all the time. But, I have to carry on...I have 2 young boys that have soccer practice, soccer games, homework, etc. I also have to cook for the family and keep my house in some kind of cleanly order. I also have a job that requires me to think and that is just soooo difficult for me these days. I'm having a really hard time concentrating on anything. It's like I just want to do nothing or things that require very little thought :huh: I've seriously considered taking short term disability to see if I can get my health back on track. I'm hoping the doctor will have a good plan of action when I see him Tuesday.

Ami

tom Contributor
. . . I passed out lying down and had a fit, because my bp went scarily low :o

I think "fit" in UK = "seizure" in US, right?

Yikes!

oops, sorry to have waffled on.

Hehehehe looks like "waffled" = "rambled"?

Good word!

(Your regret is quite unfounded btw)

tom Contributor
I have been feeling so bad lately. It seems like everything I eat makes me feel bad.

Hi Ami,

I've been out of town so I guess I'll have to read back some to catch up on a lot things here - no use in you retyping the answers to all my Qs.

So sorry you're feeling so badly.

There was a long time for me that I'd use the misnomer phrase "allergic to digestion" because I hadn't yet figured out all the foods beyond gluten that were doing me in.

I'd also expand the phrase to "allergic to digestion & exertion" when so often some minor physical activity would get me dizzy & nauseous & barely-able-to-move exhausted.

It all came down to other food intolerances - many of them the 'temporary (so they say) acquired thru leaky-gut' kind.

It took me too long to figure them all out, but it looks like you're on the right track to make the process faster.

Good luck!!

ami27 Apprentice

Hi Tom,

Your misnomer phrases would definitely fit into my dialogue lately. It seems that I can't eat much or exert much energy without adverse effects. It's so very frustrating. I guess from reading your posts soy was a big one for you. I thought gluten was the answer for me, but unfortunately it was just one piece to the puzzle. Luckily though because of that I found this site and began exploring other avenues of healing. Which led me to the team of doctors I'm seeing now. I went for initial testing and I'm just being impatient wanting to go back to see what the results are. They did some electro dermal testing which revealed many foods I need to avoid. I already felt like avoiding gluten and corn was limiting enough. So basically I can eat beef, chicken, broccoli, lettuce, cauliflower, celery, onion, artichoke, asparagus, spinach, squash and that's about it. I'm supposed to avoid all sugar so that cuts fruit out for now too. I guess I'm just whiney today and feeling sorry for myself. Hoping to be better and not so whiney soon B)

Ami

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    • julie falco
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    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
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    • trents
      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
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