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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator

Kassandra,

Sorry you had such a letdown today. Its so frusterating when you dont get the answers. :(

I had alot of letdowns and dissapointments during the first 3 years....but everything led me to where I'm at now. I'm much better off having had to go through it all and getting frusterated enough to start taking charge of my health. It all worked out for the best. :)

It might be a blessing in disguise that this Dr. is saying you dont need the surgury. I know that you're in alot of pain but what if the pain is caused by something else going on? It might be that alot of your pain is from whatever else you've got going on which hasnt been diagnosed yet. Everything happens for a reason. Just look at it that way for now. :)

I'm really glad you found that online chat support and had the opportunity to talk with someone on the phone. It sounds like it could be really helpful for you. :)


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AndreaB Contributor
It was really good to think there may be some better answers from an LLMD since no "regular" doctor seems to be able to help.

I think you will get much more in the way of answers and possible treatments from an LLMD.

I'm sorry about the disappointing appointment, but try to look ahead to getting some answers. Just do the best you can do, that's all you can do.

Can't believe how the teachers are treating you. :angry: Keep your chin up. I know the stress of what you're going through on the health front and school front is difficult.

I'm glad you were able to find an online support group and that you got to talk to someone.

:wub:

mftnchn Explorer

Quick drive by with update from my appointment with my doc:

He is generally pleased with the progress, and thinks my latest illness this week was from gluten last Friday in that swallow of wheat tea I got by accident. I do have to cut back on my antifungals and abx due to the liver enzymes being elevated. No spirulena--as he is worried about contamination here in China.

I am to make my own probiotic, will try my own rice milk yogurt. Also for gut healing, he is adding NAG (N-ACETYL GLUCOSAMINE) to my regimen, and temporarily also GAMMA ORYZANOL, and GLA Borage Oil.

He'll send B12 shots for me to try as well.

Several things to do when I get to the USA, including rechecking malabsorption via Enterolab, recheck heavy metals.

Constipation: He thinks I have motility issues and spasms, but is pleased I have been able to cut back on the Vit C and magnesium, and that I eliminate before doing ecoffee. He says the elimination issue is key, even if I have to use a laxative.

Finally, my thyroid levels are just right, but he says to watch for any signs of hyperthyroid. He said he has had patients need to cut their thyroid dosage in half once they move mercury.

I'll catch up with you all later!!

Sherry

AndreaB Contributor
Quick drive by with update from my appointment with my doc:

Sherry,

Good news on your doctor consult!

Hope your trip is going well. We'll be hear for whatever updates you have......and of course when you get back from this trip. :D

mftnchn Explorer
Still, I think I'd rather have earthquakes then tornadoes or hurricanes. :ph34r:

I think all of them if strong enough are something I want to avoid! ;) I lived in another place in Asia before 2000, and we had a severe earthquake (7.6) about 25 KM epicenter from where I lived. It was a horrible frightening experience, even though our house didn't sustain significant damage. Things were thrown around. We woke up from a sound sleep, it was like a train roaring right next to us, and we were shaking and bouncing high on our bed. I grabbed my husband and held on, seemed like it went on forever. I don't look at earthquakes the same now!!

CarlaB Enthusiast

We get tornadoes and though they are scary, I don't find them as scary as earthquakes. Earthquakes hit by surprise and disturb your whole frame of reference (the ground!). We lived only a couple miles from the Whittier Falls earthquake back in 1987. I was pregnant with Morgan ..... it was not my first earthquake, but it was the first that bothered me. It was a big part of why we moved ... plus we wanted to be closer to family since we were having kids.

On the other hand, they know when the pressure systems are right for tornadoes and you have a watch/warning. You go to a safe place ... most of the time the damage you see on TV is not from a sturdy building, so if you're not in a sturdy building, you need to move to one. Granted, there are HUGE tornadoes that destroy everything, but most of the time they are doing random damage and few, if any, get hurt.

Hurricanes ... you know they're coming and are forced to leave. We were some of the first ones back on South Padre Island, where my mom lived at the time, after that huge hurricane they had. There was little damage for a category 5 (I think), but it was so eery with the island empty.

Kassandra, I'm glad to hear that the doctor didn't think surgery was necessary. I know you are disappointed that you didn't find out what's causing the problem, but I think it's good that you don't need surgery. That LLMD sounds very promising. :)

Sherry, thanks for the progress report. It sounds like your trip to the US will be a busy one.

I mentioned briefly yesterday that my herx started. I am taking Tindamax during this herx. It's a cyst-buster. I was scared to start it, but the symptoms haven't been that bad. The first couple times I would feel toxic after taking it, like I had been drinking. I started taking chlorella to see what it does for me and if I like it better than cholestyramine. The chlorella seems to make me feel better, it takes away that toxic feeling somewhat.

I have been pretty functional during this herx, but it's caused bad "brain" symptoms probably because I'm now on minocycline, which crosses into the brain ... also from the bart herxing.

Malarone comes in a "sheet" where you punch out the pill through the back ... why is that so hard to describe in words? :lol: ... anyway, there are 15 on a sheet, so I used the last one yesterday on one sheet. I threw the sheet away, then threw the full one away, too! I didn't realize what happened, so called the pharmacy to see if I had refills, they told me I got 30 of them on the 12th ... I looked in the trash, and there they were. :huh: So, my brain is not working that well. ;)

mftnchn Explorer

Carla, that sounds miserable. At the same time, the good news is that the treatment is working and that there will be an end to this. Glad you found the pills before they were gone for good.

Kristina, I just hope you can hang in there and find some answers soon.

Kassandra, I hope this doctor is correct and the spine isn't as bad as you thought, and also as others have said, you can find the source and start to feel better soon. I hope the LLMD works out.

Its sad that teachers have become so cynical that they cannot be understanding with a truly difficult situation. I hope they eat their words; unfortunately, sometimes when people are forced they just do what they have to but don't improve their attitude.

I get to go home the day after tomorrow for a whole week! :D


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AndreaB Contributor
We get tornadoes and though they are scary, I don't find them as scary as earthquakes.

You made some good points. I guess I find them scarier as I've never been through them. The earthquake up here rattled quite a few people and caused quite a bit a damage but I was at home and not much was terribly disturbed. We were about 30 miles from the epicenter. My mom's was about 10 or so.

Good to hear the chlorella is helping you, and that this herx isn't as bad as some of your others. Your cognition will continue to improve, sounds like you've made some strides with the bart already. :)

CarlaB Enthusiast
At the same time, the good news is that the treatment is working and that there will be an end to this.

Your cognition will continue to improve, sounds like you've made some strides with the bart already. :)

Overall it is good news ... I'm obviously getting to the bugs in my brain, and if we didn't get them this way, we'd have to do IV, so it is looking hopeful.

I think the Armour Thyroid is helping a lot, too. :)

Sherry, YAY on spending time at home!

AndreaB Contributor
I get to go home the day after tomorrow for a whole week! :D

Any resting planned? :)

mftnchn Explorer

LOL, what's rest????

Seriously, the last couple of days have been nice. I am enjoying my friend's visit. We went shopping a bit on Wednesday, and last night had a young lady come here and do an hour massage for each of us. I'm going to do that again! It was just about $6 for the hour, and was a nice way to feel spoiled! Besides, it should help with detox.

Also my is a good person to talk through issues with--and I am remembering Rachel's posts about Dr. K---and psychological blocks keeping mercury from moving. So I am also enjoying this as self-care time.

AndreaB Contributor
Also my is a good person to talk through issues with--and I am remembering Rachel's posts about Dr. K---and psychological blocks keeping mercury from moving. So I am also enjoying this as self-care time.

That's sounds good to me. :)

confusedks Enthusiast

I have a question. We made an appt. with a ped. GI because my GI symptoms are so bad. I bloat so badly and it's not food related because it doesn't matter what I eat. I also am so constipated or I get diarrhea. It is never a normal bm. I also am nauseous all the time, pretty severely. Also, I get really bad stomach pains and cramps.

I guess my question is, should we help the appt.? Or should I wait to see the LLMD and see what he says?

Thanks for any ideas.

Kassandra

mftnchn Explorer

I think if you have gone that route before, had the biopsy and everything, and are already gluten-free, I wonder what they can do for you? IBS diagnosis sure won't help. On the other hand, it would be good to rule out anything else going on that is severe.

It's a hard call sometimes.

AndreaB Contributor
I guess my question is, should we help the appt.? Or should I wait to see the LLMD and see what he says?

Personally, I'd head to an LLMD. Is your mom willing to take you to an LLMD? When are you going to do the Igenex test?

mftnchn Explorer

woo hoo! I think eliminating the local ascorbic acid is really paying off! BM much much better today.

AndreaB Contributor
woo hoo! I think eliminating the local ascorbic acid is really paying off! BM much much better today.

That's great! :D

Rachel--24 Collaborator

Well...today is the first day I didnt wear pink and guess what.....today SUCKED.

Yeah....today is the worst day I've had in a long time. :(

I think Julie was right all along about this....pink might be my favorite color from here on out. ;)

Kassandra,

I dont know how much the GI can help. They never really were able to help me...and yeah after all the tesing was done IBS was the answer. :rolleyes:

On the other hand having had the tests (bariums, endoscopy and colonoscopy)....I feel better knowing that everything was looked at.

If I had to choose between the two...GI or LLMD....I wouldnt even think twice...it would be the LLMD for sure.

woo hoo! I think eliminating the local ascorbic acid is really paying off! BM much much better today.

Ditto on the WOO-HOO! :D

Good news Sherry. :)

confusedks Enthusiast

I forgot to update everyone, we got the Igenex test kit in the mail yesterday. We will go on Monday and have the blood drawn. My mom is the one who really wants me to go to the GI because she is worried something else is going on. I am totally willing to see what the LLMD says, but I think at this point we are going to see the GI before the LLMD.

I am getting conflicting info. I got a name of a well established LLMD (well, that's what I have been told...) in northern CA. BUT, I talked to a woman tonite who said that she has been really ill for a long time and due to undx'd Lyme, she developed OCD, Autism, Dyslexia, etc. She said that this has become her life and I am going to have to change my whole lifestyle...AH! :huh: I don't think I am in denial because I think I will get better...? Am I WRONG?? She also said to NEVER put abx in your body..blah blah blah! I guess now I am worried it is a bad idea to do long term abx because I would have to have IV abx (which are REALLY expensive) and a PITA. It would be a PICC Line and it's just A LOT to deal with.

She also gave me the name of another one in Southern CA, and said that this LLMD is really good, but it sounds like she is fairly new and that makes me nervous.

Rachel,

I'm sorry about your bad day. :( I hope tomorrow is better.

Carla,

How did you decide to be ob long term abx? (I know your LLMD said to...but did you have to think about the risks for a long time?) I guess, we are just worried about what it is going to do to me.

Hello to everyone else.

Kassandra

AndreaB Contributor
Well...today is the first day I didnt wear pink and guess what.....today SUCKED.

Hope today is better for you. :)

I am getting conflicting info. I got a name of a well established LLMD (well, that's what I have been told...) in northern CA.

She also gave me the name of another one in Southern CA, and said that this LLMD is really good, but it sounds like she is fairly new and that makes me nervous.

If you're willing to travel to N Cal, what about Rachel and Donna's doctor, or one of them in that office? You know, it might be a good idea to email Scott the better health guy. www.betterhealthguy.com and see who he'd recommend in your area.

Rachel, are you guys considered N Cal or Central Cal?

NoGluGirl Contributor

Dear Carla,

I have pretty much all of the symptoms listed that Kristina has! :o Lyme certainly seems to cause bacterial dysbiosis, too. I bet have both! I was thinking, Dad and I were discussing my teeth being in bad shape. I wonder if maybe my tooth is absessed and the bacteria has traveled down my system into my intestines? :unsure:

If I do have an infection in my tooth, going on antibiotics will only add to the yeast burden. Since oil of oregano can help both, I think I will get me some of the enteric-coated kind. It cannot hurt anything. The worst that happens is it does not do much. I am concerned about my probiotic working properly and gut absorbtion. If my gut is not healing, then taking in nutrients is impossible.

I agree that Kristina is having issues like mine, and bacterial dysbiosis and Lyme are good possibilities. As we have all discussed before, it is not only one thing that makes us ill, but a combination of things. Usually, there is just one thing that become the straw that breaks the camel's back. I think mine was the Flagyl I did last year. :( Sometimes your body just cannot take it anymore!

My Lyme testing is going to happen. I am tired of waiting. My doctor is getting her butt moving. I have had it! I am going to tell her that you guys can interpret the tests, as well as others on LymeNet.

We get a lot of severe weather here. I am not as nervous about it as I am earthquakes, although we are near a fault line.

Have you ever heard of the New Madrid Fault? In 2002, we had a 5.0 on the Richter scale. It literally felt like someone had picked up the house and began shaking it. Our dog sensed it was coming, and she got very upset.

I am sorry to hear about your Malarone maladapted milieu! :lol: Brain fog is something I deal with as well. There are times I go into the other room, and then once I am there, cannot recall why I was there. Bart tends to be very cerebral. I am glad to hear your other new medication is helping and without horrible side-effects! It is good to hear the herx is not as bad this time.

Dear Sherry,

I am glad you figured out why the Vitamin C powder irritated your system. :) Different ingredients can be put in at different times. That is why it is so important that you check. Sources of Vitamin C can be highly reactive in some people. I believe Rachel had mentioned Aspergillus as one common source. If you have fungal issues, that may be why you reacted to it.

The Buffered C powder sounds like a good thing to take. I might get some. It seems relatively inexpensive. I have tolerated it from other sources, though. Cranberry juice is high in it, but the kind I get is bad for Candida, because it is Ocean Spray. You know how everything has corn syrup in it!

Thank goodness your BMs are better now! The ascorbic acid must have been the trouble! At least you found out now. Waiting on that would have made you miserable. You are very in-tune with your body, and that is a great thing!

I am glad you will get to come to the U.S. for a while during the winter! I bet you are looking forward to that! Plus, you are returning home for a week after this trip! Even a short stay back home will be nice, I am sure. Taking a break is a good idea. Try to recharge your batteries a bit.

Your appointment with the physician sounded very productive. That is encouraging! I hope your liver is alright. Those antifungals can be hard on that organ. Antibiotics are very hard on your body, too. A rest from them should be helpful. Meanwhile, keep the updates coming! Progress reports are nice to receive!

Earthquakes are something that we do have, but not as frequently as tornadoes. It is kind of funny, because the last quake we had, I suppose I was in shock. Mom grabbed me and Tasha Bear and pulled us under the kitchen door. I just was standing there and thinking, "Hmm. The house is shaking." :blink::lol: The smaller quake we had earlier that year, I slept through. That is surprising, because I am a very light sleeper for the most part.

I am the same way about the GI doctors. If you already are doing all you can for the Celiac, and have had the other things done already, I do not see a reason to go to another again. This can be a difficult decision to make. With Kassandra's symptoms, so many things are a possible cause. That is why making a decision is so frustrating.

A massage for only $6! That is great! Plus it helps detox! You deserve a little me time! I am going to start doing something for myself, like having a spa day from now on where I do beauty rituals. I neglect myself for others' petty desires. It is time my health comes first! I am glad you also have someone to talk to about emotional things, because it does prevent you from becoming healthy.

Dear Andrea,

Thank you for the antibody explanations! I always wondered what the differences were! No doctor ever explained that to me before! When you ask, the do not always explain it thoroughly. Normally they use a bunch of big words to make it more confusing so that they feel smart.

Tornadoes can be scary. We had an F4 back on November 6, 2005. There was a death total of 19 to 25 people. To this day, some people who disappeared are still missing. Pieces of mobile homes were found as far north as Princeton. Many people are still homeless, and the government has done nothing.

Around here, tornadoes are so common, it is easy for us not to get upset about it. You can always tell the people who from out of town, because they freak out when there is a storm. They cannot believe how relaxed I am about it. Earthquakes make me more nervous, but usually I do not worry about them. All you can do is be as prepared as possible when they occur, because worrying about them does no good.

I agree that an LLMD is what I would choose as well. I do not trust doctors, especially GIs. Too many have failed me. Honestly, some of them, I am surprised they know where to look. The ones I had up at IU could not have done a biopsy, and if they did, were not aware of what to look for with Celiac.

Kassandra is in Los Angeles. That would be a good idea for her to e-mail Scott. He could help her. I am thinking about contacting him myself. I could use all the help I can get. Going to Donna and Rachel's doctor would be wonderful for her.

Dear Patti,

I am glad you got to Pennsylvania safe and sound! Now all you have to do is unpack! For now, maybe you could make a tunnel to walk through of the boxes? The unpacking might take a while. Let us know what your new house is like.

Dear Rachel,

Wow, that was a heck of a quake! We had one like that in 2002. The late 80s were active around here as well. I remember sitting at the kitchen table eating dinner (corn on the cob was what I was nibbling on), when the trimmer hit. Trimmers are not something we have as much as where you live, but we are near a fault line, which makes us very vulnerable.

Come to think of it, there is not much Evansville does not experience. Our town gets the remnants of hurricanes, floods, blizzards and/or snowstorms, earthquakes, and tornadoes! Maybe the town motto should be "If it hasn't happened yet, it will."

Let's just say you have to try and take things with a grain of salt to a point. Preparing for the things you can is essential.

I agree that Kristina could have GI infections. I am sure I have them as well. The problems Kristina has are very similar to mine. Your gut can mess up your entire body when it is out of whack. According to a book I read, parasites are always in Candida patients. It is easy for them to hide in the gut lining once Candida and fecal matter back up on the wall of the intestine.

I know what you mean about the GIs. I was glad to eliminate ulcers, but annoyed that they either told me I was nuts or that it was only IBS. That illness is used as a catch-all. You could have a brain tumor and they would tell you that. IBS is one of those things they use when they have no idea. Mia's anagram for it was perfect!

I am sorry to hear about your sucky day. :( Tomorrow, I would go back to wearing pink! I need more of that in my wardrobe! There are so many great things that are pink! It is like Elle Woods in "Legally Blonde!" Bruiser was so cute in his little outfits!

Dear Kristina,

That allergist is an idiot! How can you not be allergic to any foods and have elevated antibodies? You have gluten intolerance at the very least. Something is raising those numbers. Your roommates may be glutening you by accident. They do not understand the protocol for people who are Celiac. It is not their fault, but I think cc is a good possibility.

Lyme tests are rarely accurate unless they are done by IgeniX. They specialize in doing Western Blots. It is $190 for the basic WBs. If your doctor tested you using the CDC 2-Tier approach, it was a waste of time and money, not to mention blood.

Even my doctor knew more about that than I expected. She is a holistic physician.

Dear Kassandra,

Teachers were actually very compliant for me, it was the school that was the trouble. I am sorry you have to deal with all of this stress. I know what that is like. I have been there, too! It is not a fun place. Having health issues is bad enough, but then the school corporation and others are being unsupportive, further aggravating the situation. Do what you must to get them in line!

Pocahontas was always a favorite of mine! She was an amazing person, too! So, how did the costume party go? Was it fun? Did they give out prizes or anything?

What a bummer about the chiropractor. I was hoping that this doctor would be able to help your back. It is good you do not need surgery. Going through that is not a good thing to do unless it is absolutely necessary. Maybe there are other treatments somewhere. I will poke around and see if I can find anything.

How wonderful that you found an online support group for teens with Lyme! I am so glad! It helps when you have people who understand to talk to. That is what gets me through this. Rachelville is always there for me.

I think the GI might be a good idea. It is better to be safe than sorry. Antibiotics are a problem for many people. I have a yeast overgrowth, so I doubt I will be able to pursue anything except herbs. I really feel that bacterial dysbiosis is a factor with me, because lately I have been getting terrible stomach cramps in my colon. The best thing to do about the LLMDs is to go with your intuition.

If you feel you should see the GI first, I would. Listen to your body. Listen to your inner voice. The inner-self is the intuition, or the subconscious. Do some meditation. This will help you decide.

Dear Mia,

I hate to hear you have felt lousy, too. It could be the new supplement. Just because you test well for it, does not mean you will tolerate it for sure. Donna has had that trouble, too. That particular day it might be fine, but the next day your body rejects it. Hang in there! You will figure something out!

Dear Everyone,

I got my new glasses yesterday afternoon. That was very quick, considering I had my appointment the day before. I expected to have to wait a week. They are stainless steel Gucci frames, and I love them! Even better, I can see!

My headaches are still awful. Last night, I had such a bad one the Promethazine was not helping until I took a sinus pill.

I think I am going to have to get this molar and these wisdom teeth out, despite my worries about Lyme. I really do not know what to do. The overcrowding is really bad, and I probably have an infection on top of that.

Is it just me, or does it feel strange without Donna? She is on the cruise, and we are here. I hope she gets to check in at least. The pictures will be nice. I cannot wait to see them!

Sincerely,

Jin

jerseyangel Proficient

Hi Jin--

Yes, I miss Donna, too. She should be back soon--right? I'm losing track of what day it is lately :lol:

We're settling in ok--thanks for asking. We had 2 loads of stuff taken out of the old house early on (a couple of weeks before we moved), so we're getting ready for the next batch. The kitchen is all set up, so that's good. I got up early this morning and I have a loaf of GFP french bread rising right now.

Your new glasses sound pretty. B) Give them a few days--I hope that your headaches begin to ease up. :(:)

mftnchn Explorer

Patti--wow, you are baking already! That's a good way to settle in I think.

CarlaB Enthusiast

Rachel, sounds like pink is your color, who'da thought??? :lol:

It was just about $6 for the hour
:o :o :o :o That is a MUCH better price than I get here in Ohio!!! :lol:

I guess my question is, should we help the appt.? Or should I wait to see the LLMD and see what he says?

In the end, ALL my GI issues were related to the Lyme .... BUT I did have a colonoscopy and endoscopy ... I was glad to rule out other problems. I think it would depend on the testing you have already had .... is there a relevant test that you still need?

woo hoo! I think eliminating the local ascorbic acid is really paying off! BM much much better today.

Woo hoo!

I am getting conflicting info. I got a name of a well established LLMD (well, that's what I have been told...) in northern CA. BUT, I talked to a woman tonite who said that she has been really ill for a long time and due to undx'd Lyme, she developed OCD, Autism, Dyslexia, etc. She said that this has become her life and I am going to have to change my whole lifestyle...AH! :huh: I don't think I am in denial because I think I will get better...? Am I WRONG?? She also said to NEVER put abx in your body..blah blah blah! I guess now I am worried it is a bad idea to do long term abx because I would have to have IV abx (which are REALLY expensive) and a PITA. It would be a PICC Line and it's just A LOT to deal with.

She also gave me the name of another one in Southern CA, and said that this LLMD is really good.

Carla,

How did you decide to be ob long term abx? (I know your LLMD said to...but did you have to think about the risks for a long time?) I guess, we are just worried about what it is going to do to me.

Kassandra, I have so much to say on this ....

First, you are talking to a woman who has multiple CNS issues from Lyme who is choosing to make lifestyle changes to better live with the issues, not someone who is even considering the possibility of getting better. You are NOT wrong in thinking you can get better. IF you have Lyme, you are WAY ahead of me because you are finding out SO many years earlier than I did that you have it! And I would not take any of her recommendations on doctor as that's not where you want to be.

Lyme IS something that we deal with for the rest of our lives. NOT because we don't get better, rather because we need to STAY better! My LLMD had it ... when I asked him he said he HAD it, past tense. I know he treated with IM Bicillin, so I'm guessing he was a chronic Lymie, not just an acute case.

I also know that when he looked at my supplement list, which was LONG, he said he took more than that. So, he is doing things to stay healthy ... he's a holistic doctor, so I know he's not eating the SAD and expecting to stay healthy. He has a lot of energy and works long hours .... he is healthy!

This is my goal ... to get my immune system strong enough to be able to keep this disease in the background of my life.

As far as going on long-term abx ....

Once I got diagnosed, I read, reread, and reread again the Dr. B. guidelines ... I would suggest that you and your mother read through them ... www.ilads.org.

I was taking almost all the supplements he recommended, I was eating the diet, I was exercising, and I had been doing all that for YEARS. I also took things like garlic, colostrom, astragalus for my immune system. I was still declining. So, for me, I could see that abx were probably the answer.

My doctor is holistic. He prefers herbs and natural treatments. In my online reading I read that he said that if he could cure Lyme without abx he would. At my first visit, he said we would get my bacterial load lowered, then build my own immune system back up, so I knew I wasn't working with someone who was just going to kill the bugs then hope for the best. I could see he was looking at the whole picture.

You really have to look at the risk/benefit. The risk is there, but the risk of not taking abx was greater.

At this point, you do not know whether you would need IV. It's still iffy whether I'll need IV or not and I have clear CNS involvement. If I have to do it, I will.

I am taking three or four times as many supplements as I am prescription meds. Most of my life right now is centered on eating right, exercising, rest, detoxing, etc. So, yeah, it's changing my life, but I'm fighting this with the plan to get better and live again.

I can't make the decision for you, of course, but after seeing my response to abx and my daughter's, if you were my daughter, I would recommend you try the abx. I know that after 10 months of treatment I'm a different person. I did have a rough two months recently, but since we've knocked down the bart, I'm doing great again and have days I don't feel sick at all, just a little lower stamina.

I also know that you will respond better and quicker than I did. I'm SO glad we also made the decision to put Chloe on abx. She will need a lot shorter treatment because we treated her early.

It is critical, though, to detox, eat right, comply with your doctor's recommendations, exercise as you can, etc. It is not like strep throat where you just take the abx and get better. You will also need to do things to stay healthy after treatment so that you don't need long-term abx again.

BTW, prior to Lyme treatment, I was always the one into natural cures ... I knew all about herbs, etc. I have always been of the opinion that abx are way overused and not respected by the doctors overprescribing them .... that abx are needed for some bacterial infections.

I'm happy to tell more if you have more questions. :)

Have you ever heard of the New Madrid Fault?

I have ... of course, I used to live in IN! I think it's one of the biggest faults ..... but hasn't been very active .... lots of potential for a big one though.

We're settling in ok--thanks for asking. We had 2 loads of stuff taken out of the old house early on (a couple of weeks before we moved), so we're getting ready for the next batch. The kitchen is all set up, so that's good. I got up early this morning and I have a loaf of GFP french bread rising right now.

The kitchen is always the most important thing to get set up!

Mine is still empty .... cabinets are installed, but still have some trim to be done. Counters are on order, so we're waiting ...

Have you met any neighbors yet?

jerseyangel Proficient
Patti--wow, you are baking already! That's a good way to settle in I think.

I kinda have no choice :lol: The only bread I tolerate is the GFP. All the rest either have dairy or tapioca <_<

Made the place smell so good, though--like home :D

Mine is still empty .... cabinets are installed, but still have some trim to be done. Counters are on order, so we're waiting ...

Have you met any neighbors yet?

Are they still on schedule? Sounds like they've made some good progress if all the cabinets are in--that means the floor is done, too--right?

Nope, haven't met any neighbors yet--it's pretty spread out though and our "nextdoor neighbors" are at least an acre away. So different than before....nice, though--more elbow room ;)

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