Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

rinne Apprentice
I leave you guys alone for a little while and I come back to find I have not only been voted Queen and Greeter of Rachelville, but somehow I am listed as the Governor as well, how did this happen?

I'm a little embarassed about the Queen thing, everyone has been so kind with their comments, but in real life I am so far from queen material, it's a little hysterical! As long as I don't have to be a stuffy queen, or a look down my nose at the common people queen, if I can be a queen who is able to wear jeans or capri pants, and tank tops and running shoes, flip flops, or go barefoot (no gas station bathrooms of course), and just be my laid back self and hang with the townsfolk, then I will accept the crown. I'm not sure if this is the kind of queen you want

:lol::lol::lol:

Careful now, if you leave us alone too long you may find you are Empress of Rachelville. :P

(aprilh @ Jul 20 2006, 05:26 PM)

Has anyone ever noticed a correlation between meat from animals that eat grains? I was just wondering because when I went wheat free, I would only eat grass fed cow. Cows are not supposed to gorge on grains like the cow owners think. Their bodies are meant to eat grass, therefore producing a much healthier piece of meat that has much higher omega 3-6-9.

I didn't know if I was being anal or not!

Hi and welcome.

I notice a difference. I bought some organic beef, actually raised by a friend, and noticed a kind of heaviness or sluggishness in my body when I ate it, it didn't feel quite right. I called and asked him and although the cattle graze on grass they are finished on grain. For those of you who don't know, excuse my assuming that some don't, it means that the last stage before slaughter is grain feed to fatten them. I then bought some bison meat which I am assuming was entirely grass fed because I did not have the same reaction. I was wondering about this too because I have been eating mostly a vegetarian diet for some time but couldn't continue to with the Celiac. I can't handle dairy either. :(

Thanks for asking how I am Celia. I am struggling some, I've had more back pain which is the Ankylosing Spondylitis and it is wearing me down. I'm spending more time horizontal with an ice pack than I would like to be. Today was a fun day though, it was our organic food co-op day and there are always lots of moms and little ones that are so adorable.

Julie, right now, I don't care if I ever eat gluten again, it has caused me so much pain that my imaginary world is a place where I am safe from gluten not a place I can eat it but maybe down the road I will think differently. I don't miss gluten, I miss the feeling of being normal and in Rachelville I am normal right now. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Fiddle-Faddle Community Regular
Geez...celiac and lupus, wouldn't that be fun! <_<

Could be rosacea, though (hope for rosacea!)--my rheumatologist says that if your nose is pink, too, it's more likely to be rosacea, which I've got. I also get these tiny white pimply-looking things near my nose, and red pimply looking things under my chin that itch--he says that's part of the rosacea. And people used to comment on my lovely skin :( . (Not any more...) However--I swear Mederma works o the pimple things.

Sorry to be so many hours behind here--I still have about 7 more pages to read...

Rachel--24 Collaborator
Enjoy your ice cream Rachel. Gosh Rachelvile is a magical place...you're eating ice cream! I still can't believe it.

Mango....it truelly is magical. I cant believe it myself. There is more shocking news...I'm drinking milk now too. :o Also...I'm eating corn tortillas and corn chips! :o I also had Mango sorbet (I thought of you when I bought it). It was good....but not nearly as good as the ice cream! I bought cream cheese and butter but havent gotten to those yet. Can you believe this....I feel really good!!! :D

I dunno whats gonna happen but I think I might be onto something! :o

Either that or the effects just havent hit me yet and all next week I'll be crying in bed cuz I cant eat ice cream anymore. But there are no tears in Rachelville and everything works out and we can all have ice cream and not get sick! Mango....you can still avoid ice cream but if I start seeing anti-milk flyers hanging on the restroom walls....I'll know where they came from! :lol::lol:

DingoGirl Enthusiast

the dingo girls would like you to note that they are now cohabitating with the auxigro-detecting protective geese. all is now completely harmonious and secure in Rachelvile, and we may find peaceful rest this evening for sure.

:):):)

Fiddle-Faddle Community Regular

Wait a moment--if Julie is Queen, then we don't NEED a King. Maybe a Crown Prince (don't all good fairy tales have a Prince?), but definitely not a King. No offense, guys, but look what happens to the world when men have political power. If women were in charge, we'd never have the mess you see in the Middle East!

So, as music teacher, I need to know what the National Anthem for Rachelville is going to be. Do we play "God Save The Queen?" Or do we vote for favorite songs? How about "I'm a Believer" by--the Monkees? :D

Green12 Enthusiast
the dingo girls would like you to note that they are now cohabitating with the auxigro-detecting protective geese. all is now completely harmonious and secure in Rachelvile, and we may find peaceful rest this evening for sure.

:):):)

Our geese!!! With our dingos!!!

This absolutely cracks me up :lol:

jerseyangel Proficient
Wait a moment--if Julie is Queen, then we don't NEED a King. Maybe a Crown Prince (don't all good fairy tales have a Prince?), but definitely not a King. No offense, guys, but look what happens to the world when men have political power. If women were in charge, we'd never have the mess you see in the Middle East!

So, as music teacher, I need to know what the National Anthem for Rachelville is going to be. Do we play "God Save The Queen?" Or do we vote for favorite songs? How about "I'm a Believer" by--the Monkees? :D

I like "I'm A Believer"--very suitable! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Julie--oh, I mean, Your Majesty--you're back :D

jerseyangel Proficient

I know--still spooky :ph34r:

Green12 Enthusiast
I'm drinking milk now too. :o Also...I'm eating corn tortillas and corn chips! :o I also had Mango sorbet (I thought of you when I bought it). It was good....but not nearly as good as the ice cream! I bought cream cheese and butter but havent gotten to those yet. Can you believe this....I feel really good!!! :D

Holy cow! That is a miracle Rachel. I'm crossing my fingers that everything will continue to go well with the addition of these new and yummy foods :)

Rachel--24 Collaborator
Mango....it truelly is magical. I cant believe it myself. There is more shocking news...I'm drinking milk now too. :o Also...I'm eating corn tortillas and corn chips! :o I also had Mango sorbet (I thought of you when I bought it). It was good....but not nearly as good as the ice cream! I bought cream cheese and butter but havent gotten to those yet. Can you believe this....I feel really good!!! :D

I dunno whats gonna happen but I think I might be onto something! :o

Either that or the effects just havent hit me yet and all next week I'll be crying in bed cuz I cant eat ice cream anymore. But there are no tears in Rachelville and everything works out and we can all have ice cream and not get sick! Mango....you can still avoid ice cream but if I start seeing anti-milk flyers hanging on the restroom walls....I'll know where they came from! :lol::lol:

Julie, we can eat what we want in Rachelville....except gluten of course. Rachelville is a dedicated gluten free cult farm. We do not allow any gluten...and our cows do not eat grains. :D

Since we have all of this organically grown, Auxigro free produce and everything here is as pure as it gets...we can safely eat what we want and not get sick! There are no chemicals, no nasty additives and because its so pure here we will all heal very quickly. We have our very own gluten-free chefs and bakers... they know what our preferences are and we never have to worry about cc. In Rachelville we eat freely and without consequence.

We are all safe as long as the geese do their part to protect our farm from the Auxigro and other contaminants. ;)

OH....I saw a whole other thread about Rachelville today!! :o

NO WAY could I possibly keep up with 2 threads at once... :blink:...my head is already spinning half the time just trying to catch up with this one!

Anyways in the other thread it said that the grocery stores are primarily gluten-free and the gluten foods are hard to find and go bad quickly!! LOL... :lol: Also it said that the clerks give the gluten eating folks weird looks when they ask where the gluteney foods are located. LMAO!!

That made me laugh! But really...Rachelville is a farm....a cult farm...but a farm nonetheless. We dont have grocery stores....do we?? :unsure:

Certainly we dont have gluteney foods anywhere...thats for sure. Anyone who visits Rachelville has to eat as we do. If we cant eat gluten....you cant either...thats the rule. :P

EDIT:

Ummm....dont ask me why I "quoted" myself in this post cuz I have no freakin clue. Maybe all the ice cream has frozen my brain. :blink:

Green12 Enthusiast
Julie--oh, I mean, Your Majesty--you're back :D

How did I go from being a Walmart Greeter type to Queen? :blink:

Rachel--24 Collaborator
How did I go from being a Walmart Greeter type to Queen? :blink:

Cuz I said...and I'm the President. :P

Green12 Enthusiast
EDIT:

Ummm....dont ask me why I "quoted" myself in this post cuz I have no freakin clue. Maybe all the ice cream has frozen my brain. :blink:

:lol::lol: I was wondering about that :lol::lol:

It must be the brain freeze, yes, in Rachelville there isn't brain fog, but brain freeze rather, because one of our major food groups is a wide variety of ice creams and sorbets.

jerseyangel Proficient
How did I go from being a Walmart Greeter type to Queen? :blink:

The slipper fit...your vest turned into a velvet cape....and the sunglasses that were holding your hair back turned into a tiarria....it's the magic of Rachelville :D

Rachel--24 Collaborator

I vote for "I'm a Believer"!

That seems perfect for us. :D

It must be the brain freeze, yes, in Rachelville there isn't brain fog, but brain freeze rather, because one of our major food groups is a wide variety of ice creams and sorbets.

LMAO!!

OMG...I seriously cant stop laughing tonite!!! :lol::lol::lol::lol:

Guest Robbin

rinne-I am so glad you had a good day at the co-op. I hope you have a good restful evening. That is a hard condition to deal with and on top of celiac. You have my prayers my friend.

Rachel! Wow! what a difference!! I hope you can have dairy-gives me some hope. Were you dx casein intolerant by enterolab? (I apologize if you mentioned this)

Chelsea-I was thinking the same thing as Alison, sounds a lot like rosacea, also could be the gluten though--I had rashes and hot red cheeks a lot. The rashes itched like a %$#@! though--do your rashes itch?

Susan-there was probably a correlation between the wine drinking and the Robert thing. He probably caused the desire to drink more, don't ya think?

Also, I think I am being confused with someone else--I think I still have a lot of my misery, lol. :blink::):P:o (forgot the emoticons, sorry)

Piccard--CONGRATULATIONS!! :):):):)

Julie-A great queen is a queen of the common people--like Princess Di :) You will be so fine!!

Vincent-I think you would be a great minister of space and general orneriness. :D:D:D:D

April---Welcome to our little world!!!

Andrea--You are so together and organized--you go girlfriend!!

Celia--OH, the joy of a baby!! I love baby toes!!! Lucky girl you!

Patti-Do you know where Poland springs is bottled? I am curious since we have many springs here and I am wondering which is better. Zack loves Dannon, but I am thinking maybe he would be better off with something else, since the kid still has a few problems off and on.

MiaMia-Any time I eat turkey I have problems. I wonder if it is because they pump them full of hormones or something to make the breasts so big and to get more of the light meat? I love it though. Maybe I can find an organic fresh turkey to try. Dh had a wild turkey flap out in front of his car on the way to work one day. I told him he should have hit it and brought the road kill home for dinner <_< I hope you feel better soon.

Also, if dh is with cissie's hubby in Ga, can I have ONE date with that cop? Pretty please!! Just a date :D Just dinner and some slow dancing to some J. Rivers' song :) Which song, Susan?!! :rolleyes:

Fiddle-Faddle Community Regular

I hope this works:

Open Original Shared Link

Green12 Enthusiast
Thanks for asking how I am Celia. I am struggling some, I've had more back pain which is the Ankylosing Spondylitis and it is wearing me down. I'm spending more time horizontal with an ice pack than I would like to be. Today was a fun day though, it was our organic food co-op day and there are always lots of moms and little ones that are so adorable.

rinne!!! I totally missed this. I am so sorry to hear you are struggling with so much back pain. I do hope the ice packs are helping and that you feel better soon :):) Glad you had a fun day!

Guest Robbin
:D I clicked and got the Monkees, but hey, that is ok, too :D
Green12 Enthusiast
Also, if dh is with cissie's hubby in Ga, can I have ONE date with that cop? Pretty please!! Just a date :D Just dinner and some slow dancing to some J. Rivers' song :) Which song, Susan?!! :rolleyes:

Absolutely Robbin, that's what I brought him along for Anyone can borrow him! :lol::lol: But, I think JR might be banned from R-ville, Susan?

And I vote for I'm A Believer as well, love the song, but how fitting the "Monkees", we need monkeys on our cult farm for sure. :lol:

Mango04 Enthusiast
Mango....you can still avoid ice cream but if I start seeing anti-milk flyers hanging on the restroom walls....I'll know where they came from! :lol::lol:

:ph34r::ph34r::ph34r:

Did I admitt to that? :P I must be nuts. No wonder why I'm drawn to the gluten-free cult farm. :lol: I guess the flyers can come down for now, but if you have even one minor reaction to the dairy, they're going right back up! :lol: You won't react though. Here in Rachelville you can eat all the ice cream you want...but I'll stick to my unlimited amounts of mango sorbet :D:D

Fiddle-Faddle Community Regular
:D I clicked and got the Monkees, but hey, that is ok, too :D

"I'm a believer" is one of the Monkees' greatest hits! It's the 5th one down, I think.

Green12 Enthusiast
Fiddle Faddle... that's classic :lol:

Soooo flipping tired... love you all... night :)

Nighty night Celia!

I'm signing off too, have a good evening everyone. :lol:

Camille'sBigSister Newbie

PICARD - Congratulations to you and your wife!!! :rolleyes:

JULIE - Thank you for your kind words. For my part, I'm so glad I found you all!!! I feel so comfortable among you, as if I've found long-lost friends!!! :):):)

To answer your question about the state of our health in Rachelville: You can bet your tiara we are all well here! We can eat and drink anything and everything our hearts and tummies desire. We have fought the good fight, and we have won! If I may quote Alfred, Lord Tennyson,

One equal temper of heroic hearts,

Made weak by time and fate, but strong in will

To strive, to seek, to find, and not to yield.

CHELSEA - Did the phenergan help? Were you able to get some sleep?

ANDREA - Amazing! Don't know how you do it, but I'm in awe! :o:o:o

SUSAN - Oh yes, tell the girls there are oodles of squirrels. Hey, that rhymes! The squirrels are actually quite fond of dingo dogs, and they do SO enjoy playing "Catch Me if You Can!" Jolly good fun for all, you see! :D:D:D

DINGO DUTIES:

To guard The Miraculous, Protective, Auxigro-Detecting Geese.

To assist said geese in the performance of their duty to herd the grass-filled cows and to prevent their straying from Rachelville.

To assume the above-stated herding and stray-preventing duty of said geese when said geese are on Gluten and Auxigro seek-and-destroy mission(s). B)B)B)

CELIA - Give that baby some sugar for me! :):):)

Cissie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...