Omg...i Might Be On To Something

[tom]

Going casein-free has crossed my mind. The thing is, I ate a milk chocolate bar and was fine! It has lactose, but probably not enough to hurt me. My pumpkin pie pukies must have been involved with the lactose content crossing the threshold of safety for my gut.

I've probably said this before, but I truly believe that anything w/ a 'threshold' for symptoms, is also most likely hampering one's health even when the amount ingested is under the 'threshold'.

I didn't have a single good day for yrs, tho already gluten-free for 3.5+ yrs, until I stopped ALL the 'tolerables' and 'threshold' foods.

Still, it would not hurt to go without it completely for ten days or so, then add cheese or something back in.

Ehhhh make it 14 days.

It wasn't until day12 I was sure that soy had been keeping my health down.

P.S. LMAO @ the poem!!

[Green12]

Hi my peep Rachel, good to see you as well. Are you enjoying your vacation?

Great poem Jin.

A couple additional thoughts to add on dairy, it increases mucus production and inflammation in the body which creates an environment for all the beasties to thrive in.

Also celiacs, or anyone with a damaged intestinal lining, is unable to digest dairy/casein.

I notice a HUGE difference when I am off dairy, less mucus, less inflammation, my periods are smoother (dairy caused a lot of blood stagnation for me and clotting).

I'm going to steal from Carla , I feel about 15%. I'm so tired, so exhausted, stressed.......... where might the emoticon be that represents this???

Ami, I'm really sorry you are having to go through all of this

[AndreaB]

I do crush the garlic, with the side of a big knife, then chop it.

I don't know if Mitch has taken the garlic the last two days but he chewed it the first day and just chopped it the second day........I didn't know you were supposed to crush it.

I just made hummus with fresh garlic cloves........nummy. The children love it!

Okay, so maybe a little bit of this too, lol. I was going to have a little bit of decaf coffee this morning and I picked up a splenda (I know, I know) packet, which I intended to open and put in about half...what I did instead was throw the whole packet in the cup...WITHOUT OPENING IT...just threw the paper packet right in the coffee.

My mom always said I could never go along with the rest of the group...just always gotta be doing my own thing.

I call it "being my own person"....she calls it "being difficult".

If it were me I'd say the same thing "being my own person"......but it I was the parent I'd say you were "being difficult"!

I've also been staring at this gluten-free coffee cake mix that I've had stored in the freezer for like 2 years now.

Does this stuff last that long in the freezer??

Its got sugar in it though...

It should be ok if it's been in the freezer the whole time. If I were you I'd try to wait on that though. You don't want to irritate your system with a chelation coming up. I'd think you'd want as much of an all systems go with this to get the most metals out. I know, it may not make much of a difference, but it might!

When I'm off dairy those things dont bother me as much. This year I turned on the heater in my house without much of a problem....whereas last year I couldnt handle the heater at all. I was even reacting to my car heater. Thats when I was eating tons of ice cream.

Good news about the heater.

I am so ready for this to be over.

Hugs and Ami. I don't blame you for wanting it over......I would too.

I'm going to steal from Carla , I feel about 15%. I'm so tired, so exhausted, stressed.......... where might the emoticon be that represents this???

I'm beginning to like this % thing. Makes it easier to "see" how everyone is feeling.

and hugs to you too Julie..........hope you can get that percentage up soon.

[Rachel--24]

Ami,

I'm sorry you're still going through this.

I hope its over for you soon and that in 3 months everything is better and ready for you to try again.

[confusedks]

I have a funny story...I went to the library today to get a book called Helo by Socrates for online school. I asked the librarian, she called a friend...no such luck.

I just got home and I looked and it's called Meno!!!!!!! LOL! Talk about brain fog! I could have sworn it was Helo!!!! LOL!

Now, a random question...does anyone get D from almonds?

Kassandra

[Rachel--24]

Now, a random question...does anyone get D from almonds?

I get all sorts of problems from almonds (and other nuts) but D is not one of them. I very rarely get D from anything....I'm more on the C end. My body just would rather hold onto everything toxic I suppose.

[ShadowSwallow]

Again, just responding to what stuck in my teflon-esque brain.

Julie,

Major hugs, , and lots of prayers for you as you're going through this. I'm so sorry.

Kassandra,

I get some mild D from cashews and it usually has that color . But that's only when I approach Racheling them. Also, that "you may be a lymie" list was hilarious! I tried to share it with my family, but they didn't really get it, my naturopath was in stitches over the ones I could remember, though!

Everyone,

Well, Rachel, you were right. I saw the Naturopath again today (actually Mom's appointment but we had some other things to work out) and I told her that I thought I might have some metal problems although they weren't showing up, so she tested me for general toxicity and it definitely came up. We tested several products and it looks like I'll be joining the Humaworm club, but with nearly half of the herbs taken out. I also test to do chlorella, a type of charcoal, Vit C with it. We also got into another disagreement about antibiotics and lyme, but at that point I was almost completely out of it. Mom's put her foot down and said that I have to try everything natural before we'll even consider doing abx. All I can think of is what a waste it will be, and how much time I'll lose with college looming up on me in a little over a year and a half. I really don't want to do anything without consulting the LLMD, I'm pretty sure I'm going to put my food down about that. The main nurse there worked with a lot of alternative things, I need to dig up her phone number sometime.

Andrea,

What's the brand of the chlorella you're taking? The only type the naturopath had in her store contained some other things as well. Obviously the one you take is gluten-free, soy-free, etc?

[confusedks]

Birdy,

I am sorry you and your mom are at a disagreement about treatment (does that make sense?). I get it! It is really frustrating, I know.

Rachel,

Thanks...I don't think its the almonds, I think it's just my silly GI tract and the stupid GI dr. is WRONG!!! My D has almost gotten worse since starting these stupid abx!

Everyone,

Does anyone have any ideas on how to get rid of this terrible neck pain?! I am dying over here.... I have done epsome salt baths, pain killers, hot packs, cold packs...to no avail.

Kassandra

[CarlaB]

I'm going to steal from Carla , I feel about 15%. I'm so tired, so exhausted, stressed.......... where might the emoticon be that represents this???

I'm sorry you're feeling so bad. Try to get some rest! Stress is REALLY bad! It has been the trigger for activating my Lyme all four times I've been sick from it.

I have a funny story...I went to the library today to get a book called Helo by Socrates for online school. I asked the librarian, she called a friend...no such luck.

I just got home and I looked and it's called Meno!!!!!!! LOL! Talk about brain fog! I could have sworn it was Helo!!!! LOL!

IMHO, I think the librarian should have knows the book anyway .... I mean, shouldn't a list of Socrates' books come up on her computer? Helo, Meno .... I mean, makes sense to me! If she knew about Socrates, she would have said, "Do you mean Meno?"

Birdy, just be patient until you see the LLMD. I had the same attitude about myself and I got on abx right away. See what the LLMD tells your mom. You might not have to put up a fight.

[confusedks]

LOL! She said that there were too many books from Socrates to look through! LOL!!! I will hopefully go back tomorrow. I am having a hard time not overdoing things.

I get about 2 hours of productive time and today I did 3 things...I guess that was 2 too many things..sigh. I am paying for it BIG time! I feel terrible again. Maybe I'll stop talking about how I feel...lol. It's always pretty negative.

Kassandra

[confusedks]

Okay...MAJOR rant/moan/complaining/venting ahead:

SO...the newest drama amongst the stupid doctors!!! :angry::angry: My mom called the Hematologist (Dr. C) today to set up the PICC line so we could start iron IV's next monday because I will be done with the abx on Sat. morning. He said that he wants to see the labs Dr. D (the STUPID GI Dr.) has been taking every week! WHAT THE H%^^&*?!!! She hasn't taken any blood from me!! He said that he never actually talked to the Dr., he talked to her stupid nurse. The nurse told him that it would take about 3 weeks from the time the abx were done until I saw him for more iron IV's. He said only if they took blood every week and I saw Dr. D every week to make sure things were okay. Then it would be okay with him.

Well, my mom called the STUPID nurse who talked to Dr. C and said all of this nonsense, and she said that Dr. D wants to wait at LEAST a week inbetween the IV's and the abx. Well, that's better than 2-3 weeks, but WTF??!!! She doesn't get that she's not following me at all. My numbers are probably dropping as we speak, she is so STUPID!! And we found out the two doctor's never actually talked! She needs to get off her high horse and put her ego to the side and talk to Dr. C himself, not have her nurse do it FOR HER!!! OMG! I am so angry about all of this! Can you tell with all the exclamation points? LOL!

Sorry, this is just SO frustrating...I can't even believe it. My hematologist is so PISSED OFF I can't even begin to tell you! It's ridiculous!

Kassandra :angry::angry::angry::angry:

[AndreaB]

What's the brand of the chlorella you're taking? The only type the naturopath had in her store contained some other things as well. Obviously the one you take is gluten-free, soy-free, etc?

We are taking King Chlorella with Russian Immune Support by Allergy Research Group/Nutricology. You can get it at holisticphysician.com for a good price. That's who we order it from because he offers it less than Dr. E can. I assume he orders big supplies since he can offer stuff online.

Hang in there with the LLMD.........He/she will know what's best as far as treatment protocol. Does the LLMD use both abx and herbal protocol?

Welcome to the humaworm club.........we aren't on that one yet......thinking about ordering it for hubby though.

Does anyone have any ideas on how to get rid of this terrible neck pain?! I am dying over here.... I have done epsome salt baths, pain killers, hot packs, cold packs...to no avail.

I'm sorry. I don't know what would help.

I get about 2 hours of productive time and today I did 3 things...I guess that was 2 too many things..sigh. I am paying for it BIG time! I feel terrible again. Maybe I'll stop talking about how I feel...lol. It's always pretty negative.

Don't worry about your posts.....they are fine. We are here as your online family and will be whether you're feeling terrible or wonderful!

Okay...MAJOR rant/moan/complaining/venting ahead:

Unbelievable!!!!!!

Why praytell does she want a week between abx and IV iron? She obviously needs an attitude adjustment.

So I assume this means you'll have to wait til the 10th before you can start IV iron?

[confusedks]

Andrea,

I think we may have to wait until at least the 10th! This is all so ridiculous! It's a REALLY good thing I am NOT talking to these doctors because I think they would fire me as a patient! I wouldn't put up with her stupidity. My mom is unfortunately in the legal industry and hears attorneys fight all day long, so she doesn't ever want any "upset." That is only a disadvantage to me and my health because it's as if it's okay for the dr's to be mean, but we can't tell them what we think is important???!!! Ugh!

Off to take my epsom salt bath (I have started taking them nightly...with candles.... ) They help calm my boiling blood after days like today!

Kassandra

P.S. Did anyone see the thread on LN about "bucky" the pillow thing you can microwave? I made one today out of rice...it's my new best friend! I can even talk to it...and it will love me unconditionally!

[AndreaB]

Off to take my epsom salt bath (I have started taking them nightly...with candles.... ) They help calm my boiling blood after days like today!

P.S. Did anyone see the thread on LN about "bucky" the pillow thing you can microwave? I made one today out of rice...it's my new best friend! I can even talk to it...and it will love me unconditionally!

Those both sound good. Have a good night and I hope you get some sleep. I'm heading that direction.

[mftnchn]

Kassandra,

Neck pain/shoulder pain: I know, I have been there. Bucky, your new best friend is great. If I get chilled (it is cold here in the winter) my pain gets a lot worse because I tense up.

Of course the anger doesn't help that, so after you express it well, then do some deep breathing and relaxation, maybe music, and try to focus on picturing those muscles release.

Here's something that has helped me a lot, taught to me by a physical therapist who does some alternative treatment but I can't remember what it is called. Anyway...

You need two tennis balls, and put them into a sock, like a sports sock. Lay on your back, with a small towel rolled up behind your neck for support. Put the balls just below the bones base of your head (with the towel between the tennis balls and your shoulders, I hope that makes sense) You should feel the pressure on those muscles right at the base of your skull. Just lay there for awhile to help those muscles release.

Take out one of the balls. Put it under your upper back on the inside of your shoulder blade. Lay back down on top of that. It might feel quite tender, --then you know you are in the right spot!! just try to relax on it and just let it press in. It is sort of like acupressure. Then move the ball down or up along your shoulder blade and repeat. I usually do it in three or four spots along the shoulder blade. Then switch and do the other side. You can bend your knees and actually roll yourself around on the ball. You can also cross your arms on your chest which moves your shoulder blades into another position and actually allows more access. You can lift your arms up with elbows bent. Whatever gets the ball onto the tender pressure points.

I typically do the shoulder blades first, then the two balls at the neck last.

I have no idea if this will work for you given your back issues, but it might. I usually lay on the floor on the carpet. You can try it on the bed but it might not be strong enough.

This doesn't stop the reaction, but it does give some relief. Sometimes at night what I was so in pain I couldn't sleep I would get up and do this, and it would ease it enough I could go back to sleep.

The only other thing to suggest is what I have already said, ecoffee, and not the pink kind! I have had that pretty much relieve the pain for awhile, sometimes several hours.

[mftnchn]

Kassandra, this problem with the doctor is really ridiculous. Here's my idea: I think you should write a formal letter, saying that your doctors need to coordinate their treatment and that because they are not doing so, even though they are aware of one another's contact information and of the issues at stake, your health is suffering.

Simply state that if appropriate direct contact and a joint plan does not occur by such and such a date, you will be submitting a complaint to the state medical board.

You can do this yourself, with or without your Mom I would think, but I think your Mom's signature would help. Maybe if you prepare it, do it, and ask if she would also sign this letter and make it a joint letter, perhaps she will.

The letter should be brief, polite and state your bottom line (next course of action.)

Doctors do NOT want to be investigated by the state medical board. They do not want letters of complaint on record there either. I would think it might help your cause. The board has the authority to suspend licensure or put them on probation.

Now maybe this wouldn't result in either, but it would communicate that you are not willing to be disrespected and neglected in this treatment process.

[mftnchn]

I think I am doing 75-90% these days, a dip to 50-60 on the first day of the pineapple diet.

[NoGluGirl]

Dear Kassandra,

Going casein-free is a possible thing. The worst that happens is I do not feel better! Besides, there are some gluten-free, soy-free, casein-free chocolate chips. Erring on the side of caution is best. I will do anything to avoid another reaction like that! Thank you for the link, it is interesting.

You know, I have heard a common trigger for migraines is cheese. There are a number of reasons for that, but my doctor had mentioned dairy probably was an issue for me due to the respiratory trouble I always had when I was young. I will wait at least two weeks before adding it back.

A month could not hurt, though. Soy is a concern as well, so I may cut it out and stick with just fruits, vegetables, nuts, and meat.

Did I tell you about the dream I had the other week? I had a dream that I was told by a doctor I was sensitive to soy and casein. My subconscious is obviously trying to tell me something. I do not think anyone has ever died from a lack of soy. If they have, it was probably a menopausal woman with horrible hotflashes! I cannot have a lot of soy anyway, because my estrogen levels seem to high. I begin hotflashing.

I get the shoulder and neck pain as well. It is not fun to deal with. I thought originally that it was due to the time I spent on the computer. Now I know it could be Lyme. The stiffness often bothers my jaw and causes pain, and aggravates my lymph nodes. The migraines did not really become much of an issue until after my bottom wisdom teeth came in.

Doctors are so stupid! What I really hate is, they do not try all that hard to communicate with other physicians that could help you. WTH? These morons expect us to believe every single thing they say because they went and graduated from Med School? Let's just say, most doctors I have seen probably graduated with a D-. Meanwhile, this iron IV situation should be a no-brainer. Paging Dr. Wee Todd Did!

I know how hard it was to sign your name on the school papers to leave school. I cried when I had to sign. I had always been known as the smart girl. After being out of school, I sort of had an identity crisis. However, getting my diploma was worth the hard work I put into it. Also, I actually upgraded by going to an Illinios school, on top of being better prepared for college!

That was so funny about Socrates! You would think the librarian would have been more well-versed in Meno considering the profession. Of course, just because you work in a library, does not mean you like reading. I have done some silly things at times. Mostly, I will go into a room and then try to figure out what I went in there for. I am like "Crap! I know I went in here for some reason!"

Bucky sounds wonderful! I want one! Maybe I will get one of those Fukuoku things. They are $20, and little massagers. I do not know how good they are, but they may help the migraines. The tooth pain might benefit from it.

Dear Nyxie63,

I had no idea that licorice tea could help adrenals! I do not know if mine are bad or not. No testing has been done as of late. I have no insurance. I will be sure to try that test with the flashlight.

That might give me an idea.

It still appears the barley impacted you. Not in a good way, either. I would avoid it. Gluten can give you nasty issues. I think you are doing a good thing avoiding it.

Thank you for the lab info! I will keep those places in mind. They sound very good. I wish I had money and better health so I could work. If business picked up, I would not have to worry about it. My company has had a hard time getting off the ground.

Dear Andrea,

I hope Mitch gets the Humaworm soon! That could really help with his metal issues. Worms hold onto Mercury like crazy. They can absorb a lot, yet do not seem to react badly to it. Perhaps we should be studying that?

The Enjoy Life Chocolate Chips you get are soy, gluten, and casein-free aren't they? I might see if they sell them in town. Ordering on the web can get expensive with shipping. Our area is actually the second most expensive postage area! Even the mail people do not want to come here unless they have to! How sad is that?

I am nervous, because I go to the dentist this morning at 10:30am. I hope that I do alright. It is unlikely I will get any sleep before I go. I was hoping to go to The Salon Professional Academy as well, but do not know if I will have the energy. Maybe I will get to do that tomorrow.

Dear Rachel,

Good point on the racheling! Still, I like sweet potatoes as well. They are quite tasty! One day, you will be able to eat a ton of them without trouble! My father always puts a ton of marshmallows on his.

Odd you should mention marshmallows! I have been eating them as well! They are low in fat, and taste so good! Here is something funny about marshmallows. My best friend called them snowman tirds! I had never heard them being called that until she said it one day.

That coffee cake does sound great! Like Andrea said, it may be alright since it has been in the refrigerator. Unfortunately for me, many things have yeast, which I also cannot have. There is a cake I am saving for my birthday. I am determined to recreate that bakery icing!

It is true! Without you, none of us might ever have come to know each other! Do you realize I have been on this thread for over a year? I can hardly believe it! Somedays, if I did not have you guys, I would be so hopeless. You guys are the only ones who understand what I am dealing with.

Actually, you are not alone! I am not doing Humaworm, either! My body probably could not take it right now. Things are too crazy in my body at this point. Plus, I do not know how well I am doing with excretion for starters. I do not want to stir things up and redistribute them and make matters worse.

I will try and find a link to the gnome shirt. They are really adorable! Since I am Wiccan, that has a lot of meaning to me! The peeps shirt is also in a catalog I got a while back. Speaking of peeps, if you want to see something hilarious, go to www.peepresearch.com and view hilarious scientificness. RiceGuy sent me the link originally.

I have heard more and more bad things about dairy. It is pretty frightening. You have to wonder if we ever really were supposed to have it in the first place. Grain is the same way. No history of obesity or heart disease existed until grain began being cultivated. Dairy is bad for the yeast I have anyway.

Gosh, could you imagine what pink sparkling e-coffee poo would look like? Probably a lot like those pink sparkling glittery bat tirds from Rachelville's bats! Bongo ran into the wall again, by the way! You know, my favorite bat? The militant geese have been attacking Auxigro left and right, and refuse for them to contaminate our town!

I am so glad you enjoyed my poem! It is so funny how things just strike us at times. The thought comes, and you know you need to write it down. Only Lymies could laugh about this stuff! On the cool side, we have so many inside jokes! Can you imagine how confused people would be if we were out discussing this in front of other people?

I have always been someone that does their own thing, too. I never followed the crowd. I am me, and that is it. My mother probably refers to it as being difficult as well! You know what they say, though. Well behaved women rarely make history!

Dear Carla,

I may finally get the testing done. My mother is going in with me to get this going at my next appointment. No more waiting for health! If I can get the blood drawn (which must be done on a Monday or Tuesday if I recall correctly), I may get answers by the New Year! Or, at least, soon after.

So, it was the EDTA that got rid of the metals. I am glad they helped. Metals are bad to have in your system. They cause such a heavy toxic burden. All of the detox you do really eased some of this process, I am sure.

I see no reason you should avoid dairy if it does not bother you any. Why deprive yourself? I say, enjoy your ice cream and take a bite for me! I hope that dairy and soy are not an issue, but they very well could be. There is no point in waiting to find out. I need to be sure I am avoiding them completely for at least a couple of weeks.

I am not sure what happened with the Flagyl last year. Ever since, I have felt crummy a lot again.

It might have been a herx while taking it, but after I went off of it, I felt better. Still, the G.I. issues were nearly as bad as before going gluten-free. This is so frustrating! I waited on the amoxy to give my system a break in case of a herx.

Dear Ami,

I am sorry this had to happen, especially on Thanksgiving. The cramping and bleeding must have been awful! It is understandable you just want the bad stuff to end. We are there for you anytime you need us to be! HUGS! Susie (covsooze) has experienced this as well. She lost a baby back in July.

It is wise to wait a while. A few months seems like forever when you want a child. If you like, when you are ready, I could do a spell for you and your husband. I will not do it unless you ask, because Wicca has rules. We are not allowed to hurt or manipulate anyone. Do not worry, I only help people when they want me to.

Dear Julie,

Marilu Henner was talking about how bad dairy is for people. She says they should never eat it.

Mucus production is increased when you consume it, and that is why if you have a sinus infection or cold, you should never have so much as a pat of butter until it is over. * Warning: tom should not read this part, as it is about female issues! I wonder if that is why my menstrual blood is so dark and appears stagnant. I thought maybe it was the yeast, but when you said what you did about dairy, that is making me believe it is a good possibility.

I can bet I have Leaky-Gut. I did not know that casein and soy damage the intestinal lining as well until I read about it later. Maybe one day, my system will be alright. Going yeast and gluten-free was hard enough, but then add casein and soy to the list, and things really get complicated. Corn and rice are concerns as well, since they have made up so much of my diet for the past year.

Okay, tom. It is safe now! I am glad you enjoyed my silly poem. For some reason, The Cat in the Hat was stuck in my brain. You know how that goes! I just had to write it down!

That is awful you have felt so bad. I do alright somedays. Others, I am lucky to get anything done. Hopefully, that will change. You just never know how you will feel moment to moment. Have you thought about doing yoga?

Dear tom,

I am so happy you liked my poem! It took a small amount of time to write, but I did not want to make it too long. Too long is not good. Feel free to copy it and post it on the Silly Thread for Bev and the others! Now that Christmas is coming, maybe I will post my pal Chris and my "Twelve Drug-Dealing Days of Christmas" song we made up in high school.

Have you ordered the Humaworm yet? Or, are you still considering it? I am scared of what could come out of my system. The psyllium would definately not work for me. They would have to take that out.

Fourteen days it is! A month might not be a bad idea, like Kassandra said. Before I do this, I might treat myself to some Chinese first. Since I have not had any in more than a year, I owe myself that much. The rangoon is the only thing that has any dairy. There is cream cheese in it.

Dear Birdy,

My parents and I butt heads all of the time about diagnostics, treatment, and options. Most of the time, they make it sound like I am just lazy and do not want to work. Yeah, I really have the life of a princess doing their dishes, their laundry, hearing them complain about how the house is, and being glutened periodically because they are just plain selfish and lazy. My mother goes on about "Well, even people with Cancer work!" The only reason I have not killed these people is because all I would inherit is debt.

These types of situations are difficult to find common ground on. As the person needing treatment, you do deserve to have say. I allowed my parents for years to tell me what to do with my body. I ended up nearly being killed by all of the procedures and pills I had to try. Just because you are a teenager does not give others the right to do whatever they choose to your body. You know what you can and cannot handle.

Metals may be a problem for you. A lot of people have issues with them. I am hoping your naturopath begins seeing more of how you feel about things. People who are not ill do not get it. You can talk until you are blue in the face, but it does no good.

Dear Donna,

Not even sparkling pink e-coffee? I suppose I can understand that. It would be like sticking Barbie up your rear. "Hi! I am Barbie! Allow me to irrigate your bowels!" Something just seems so wrong about this. Anyway, I am glad you liked the poem. Now, don't you feel special?

Do know when you will get the results for your saliva and urine tests? They seem to take at least two weeks. That is a long time! I will be anxious to hear if your melotonin is better. I think if one of those is messed up, they all probably are. When one is out of whack, the rest follow suit.

Another cruise in March would be nice! Maybe you will get to go. You get a good amount of vacation days. That is wonderful! Most employers do not offer that.

I am still laughing about the Splenda packet! I do things similar to that. Are you ever in middle of something, and then you are like "What am I doing?" That reminds me of that new car commercial.

You know, the one where they are singing Duh in the tune of "Carol of the Bells?" For some reason, when I see it, I think of doctors.

Were the parasite pics on the site for Humaworm or the Natura? Regardless, I doubt I would want to see that! The whole idea is icky. I am not a fan of parasite pics. Now, I am into microbiology, but there are some places I do not want to venture.

Dear Mia,

Pumpkin pie pukies are not fun! I want no more of them! Trying to find substitutes for dairy and soy is kind of tough when these things are involved. Maybe RiceGuy will have some ideas. Coconut cream and milk might work.

I had a feeling you would get the Humaworm, too! If it helps you get rid of some toxins, it is a good idea. Do you still have amoebas? Or, did Gus finally leave? Did he have friends, cousins or children?

Dear Sherry,

I think my doctor was talking about a test for Borrelia that you had. She mentioned a new technique being used in a place down in Florida. This may not be what she meant, I do not know. At the time she heard of it, the method was experimental. I hope you find the information so we can see it.

Your test results will be interesting to see once you are able to find them. I know you did not have the Western Blots from IgeniX. Protein bands that are specific to Lyme are the focus with that test. Did you have blood drawn and analyzed as well? I would love to know more about the lab and the tests you had.

Thank you for the information on skin brushing. I am going to try it. This should be helpful. Plus, it is a good way to exfoliate. I will remember to brush toward the heart, before my shower with a natural brush gently.

I am glad your pineapple diet is helping so much! Seeds tend to make me cramp. My colon is very fussy about those. Nuts are alright in moderate amounts. Fat has to be restricted. Meanwhile, I am thinking that the Six-Week Body Makeover might be a great thing to try.

I might try that tennis ball thing. Fibromyalgia really messes up my body. There are days you ache so bad all over, you just want to roll up in a ball and not move. Stretching helps. Rolling my spine helps, and I need to start doing that again.

Sincerely,

Jin

[CarlaB]

Jin, no ice cream because of the sugar .. but I do enjoy my lattes!!!

Everyone,

Does anyone have any ideas on how to get rid of this terrible neck pain?! I am dying over here.... I have done epsome salt baths, pain killers, hot packs, cold packs...to no avail.

Kassandra

How about a chiropractor? Massage? Chiropractic care have always helped me in that regard.

Okay...MAJOR rant/moan/complaining/venting ahead:

Kassandra :angry::angry::angry::angry:

I'm sorry, Kassandra. I had to laugh even at this .... not because it's funny, but because it's so pathetic. I can't wait till you're done with these guys and seeing an LLMD who can direct your care.

I think I am doing 75-90% these days, a dip to 50-60 on the first day of the pineapple diet.

GREAT!!

[miamia]

this is random but remember i told you i was starting msm for detox- well my doc really stressed it yesturday adn i just was re reading the mercola protocol and found this . I know garlic can be too potent for alot of people so i figured i would post this

5. Start Garlic or MSM

It would be wise to start on garlic regularly to enhance sulfur stores. Use the food, rather than the supplement garlic. Try to get in three cloves per day, but decrease the dose if your odor becomes socially offensive.

Again, as indicated in the chlorella section above, children will have proportionately lower doses.

MSM is a form of sulfur which will help your body to remove the mercury. The initial dose is one capsule twice a day. Increase by one capsule a day until you are at three capsules twice a day. If you have root canals and are chronically sick you may want to increase to five capsules three times a day.

[miamia]

this is random but remember i told you i was starting msm for detox- well my doc really stressed it yesturday adn i just was re reading the mercola protocol and found this . I know garlic can be too potent for alot of people so i figured i would post this

5. Start Garlic or MSM

It would be wise to start on garlic regularly to enhance sulfur stores. Use the food, rather than the supplement garlic. Try to get in three cloves per day, but decrease the dose if your odor becomes socially offensive.

Again, as indicated in the chlorella section above, children will have proportionately lower doses.

MSM is a form of sulfur which will help your body to remove the mercury. The initial dose is one capsule twice a day. Increase by one capsule a day until you are at three capsules twice a day. If you have root canals and are chronically sick you may want to increase to five capsules three times a day.

[dlp252]

Sorry, I forgot to look for the neurotransmitter info, lol.

We also got into another disagreement about antibiotics and lyme, but at that point I was almost completely out of it. Mom's put her foot down and said that I have to try everything natural before we'll even consider doing abx. All I can think of is what a waste it will be, and how much time I'll lose with college looming up on me in a little over a year and a half. I really don't want to do anything without consulting the LLMD, I'm pretty sure I'm going to put my food down about that. The main nurse there worked with a lot of alternative things, I need to dig up her phone number sometime.

I'm sorry about the disagreement. Just wanted to say that even if you only get to go the herbal route first, it isn't necessarily a bad thing. I haven't done antibiotics yet at all, just herbal stuff, and I DO actually feel better than I did last year. Of course, I'm also doing other things to support my body functions and systems, so maybe that's what's helping.

Now, I also should say that my situation may be slightly different than most because I was so sick starting in about 2002...I was on continuous rounds of antibiotics for sinus infections (didn't have any idea about lyme back then). Even though that antibiotic is not usually used for lyme treatment, I do think it may have knocked it back a bit.

Does anyone have any ideas on how to get rid of this terrible neck pain?! I am dying over here.... I have done epsome salt baths, pain killers, hot packs, cold packs...to no avail.

Oh those doctors!!!! Sheesh! You really need ONE doctor who can coordinate the whole thing! It's so very nice to have doctors that actually talk or communicate in some way with each other.

About the neck...I've not found ANYTHING that takes the pain away completely. On a scale of 0-10, on my best day the pain is around a 3 or 4. The thing that has helped the most is seeing my chiropractor in conjunction with physical therapy. They are having me do stretches and range of motion exercises daily, and that helps keep things loose. I also put heat on it before I do the stretches. I'm also doing a kind of home traction.

Did anyone see the thread on LN about "bucky" the pillow thing you can microwave? I made one today out of rice...it's my new best friend! I can even talk to it...and it will love me unconditionally!

I haven't seen that thread yet, but I LOVE my microwavable bags. I have several and I use them all, lol.

Do know when you will get the results for your saliva and urine tests? They seem to take at least two weeks. That is a long time! I will be anxious to hear if your melotonin is better. I think if one of those is messed up, they all probably are. When one is out of whack, the rest follow suit.

Yeah, probably about two weeks, although the last ones from this lab came in a lot sooner than that I think, but with all the holiday backlog, I'm trying not to expect it, lol. Yeah, my melatonin was off on both of the tests I've taken so far. I'm pretty sure I'll have to take supplementation forever, lol.

I am still laughing about the Splenda packet! I do things similar to that. Are you ever in middle of something, and then you are like "What am I doing?" That reminds me of that new car commercial.

You know, the one where they are singing Duh in the tune of "Carol of the Bells?" For some reason, when I see it, I think of doctors.

OMGosh, I love that commercial, lol. Yeah, I've that that "what am I doing" moment many times. What am I doing, where am I, what the heck, who am I.... the list goes on and on.

Were the parasite pics on the site for Humaworm or the Natura? Regardless, I doubt I would want to see that! The whole idea is icky. I am not a fan of parasite pics. Now, I am into microbiology, but there are some places I do not want to venture.

The Natura site...and I think it was just gunk, not even worms. REally scarey stuff, lol. Did I mention YUK!

MSM is a form of sulfur which will help your body to remove the mercury. The initial dose is one capsule twice a day. Increase by one capsule a day until you are at three capsules twice a day. If you have root canals and are chronically sick you may want to increase to five capsules three times a day.

Thanks for the info Mia! I have root canals...my old (retired) allergist wanted me to take msm. I may still have some somewhere, lol. I never really took it for long because I had the powder form and it tasted bad.

[aprilh]

Hi Kassandra,

Some things that help me when My neck is stiff/sore is sauna (sweating) and massage. The sweating action in the sauna really help get those toxins out. I have tried to mimic this by taking hot baths but I just don't get the same result in the amount of sweat produced.

I start out walking on the treadmill or another machine for about 5-20 minutes just to get my blood moving then I go into the sauna. I started out at 5 minutes at a time and now I can tolerate up to 15 to 20 minutes. Then when I get home I try and rinse off or at least wipe myself down to get the toxins off my skin.

Massage is another way to get those toxin stores moving and hopefully moved out!

I do see the chiropractor but I have noticed it doesn't seem to help the stiff neck - which is why I think its due to something else - like toxins.

Hope this helps!

April

[AndreaB]

I think I am doing 75-90% these days, a dip to 50-60 on the first day of the pineapple diet.

That's great to hear!

The Enjoy Life Chocolate Chips you get are soy, gluten, and casein-free aren't they? I might see if they sell them in town. Ordering on the web can get expensive with shipping. Our area is actually the second most expensive postage area! Even the mail people do not want to come here unless they have to! How sad is that?

Yep, Enjoy Life would be safe. We also found some chocolate bars Whole Foods Brand that are safe......although they are processed in the same facility type thing.

It would be wise to start on garlic regularly to enhance sulfur stores. Use the food, rather than the supplement garlic. Try to get in three cloves per day, but decrease the dose if your odor becomes socially offensive.

That's alot of garlic! I can't imagine 5 cloves.

[AndreaB]

Jin,

I forgot.....

Hope your appointment is productive this morning and that you do get to have the blood draw for Igenex real soon. Was that next week? Have you got the paperwork from them?