Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New Here, A Question?


GreySaber

Recommended Posts

GreySaber Apprentice

I just got here, and I'm rather overwhelmed by the amount of information.

My primary question is "Why is every topic pinned?" I was under the impression from other forums that a pinned topic stays at the top of the topic list, but if that's so then the first 5 pages of topics on some of these forums would be static, and that seems odd. Is that the case?

Secondly, there are so many individual forums here that I would like to ask if they could be subdivided? If you go to this forum (Which is completely unrelated to this one, just look at the divisions of forums) you'll see it's divided up by type. I would love to see that here, since it would make it much easier to approach without being baffled by size and number of things to click on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Greysaber! Welcome to the board!

Regarding the "pinning of threads", when someone posts a new thread, it will be at the end of the category listing until a moderator reads it, approves of it and then pins it. Once it is pinned, it goes to the top of the list in that particular category. So the most recent posts (or more specifically, the ones with the most recent movement i.e. a reply) will always be at the top and go down from there.

In regards to sub-categories, that would be up to Scott to respond to that.

Why don't you tell us a bit about yourself?

Welcome!

Karen

GreySaber Apprentice
Why don't you tell us a bit about yourself?

Karen

Well, I'm not sure the technical forum is the best place for a hello, but alright.

I'm 28, and I was dianosed as a wheat allergy as a child. It seemed to 'go away' around puberty, came back with a vengence but took me too long to recognise it. I'm not sure if I'm a celiac or just allergic to wheat and 'maybe' a few other things.

My primary symptom is extreamly unpredictable bowel movements, rangeing from good to horrid. My main problem is that I still have this even though I am 'pretty sure' I'm eating gluten free, and I don't know why. that I'm allergic to wheat is beyond question, so I need to find out what the remaining problem is. My only other really obvious symptom is a cramp just to the right of the center of my upper back. This only happens if I eat wheat though, whereas the diarrhea or other loose stools seem somewhat unpredictable. (That is to say I get it if I eat wheat... pretty much every time, but I still get it 'sometimes' when I don't. It's driving me nuts to figure out why.)

Outside of fixing this problem, my passions are historic knightly swordsmanship (Speicifically the lineage set down by Master Liechtenauer in the 1300s,) Science fiction, and lamenting my lack of donuts.

nikki-uk Enthusiast
lamenting my lack of donuts.

LOL!Ah donuts,I miss em! :lol:

You probably know this already,but if you think you might be a coeliac you need to also avoid barley,rye and oats as well as wheat.

Welcometo the board BTW! :)

tiffjake Enthusiast
Science fiction, and lamenting my lack of donuts.

LOL! What kind of SciFi? I am a nerd, LOL. Sorry to hear about your returning symptoms. I hope you can find some good info on this board. I go straight to the "view new posts" when I am on here because of the mass amount of info. Then, if I am looking for something spesific, I go to the "search" mode and look it up that way. There IS a lot on this board, but I think that is a good thing. I get most of my info from people who have been there, done that. Anyway, nice to meet you! TiffJake

GreySaber Apprentice
LOL! What kind of SciFi? I am a nerd, LOL.

The good kind. You know what I mean, the ones where they take things seriously, and don't dress all the bad guys up in what they pulled out of the Tandy Leather company's dumpster, or make the good guy's outfits out of dirt bike gear that doesn't fit. ;) Or get 'snuck up on from behind' by mindless zombies, 50 times in a row in the same movie.

As to the other grains, yes I avoid those other grains as well. And now I'm avoiding MSG, and suspicious vinegar, and a number of other things I learned about from this place. One thing that seems odd is that I’m told here, and on Hormel’s site that Hormel’s hot chili is suppose to be safe, but it seems to give me a reaction.

I want to run a search on how long it takes before symptoms go away, (IE, should this be over night, or do I have to wait six months?) I'm not talking about healing the vili, I know that can take a long time, but how long before I have reliable solidity in the stool?

VydorScope Proficient

A comment on pinning, on most forums they only pin topics that are very special and need to always be on top. Usally answers to common questions, or the like.

From what I cna tell here the moderators use it as a form of intermoderator communitication. If mod sees it pin'd they know that another moderator already adressed it. This removes the ablity for real pin'd topics, but works for what they want ti for, so gues that makes it a good plan :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Welcome to group Greysaber. Remember to be truly wheat/gluten-free you need to make sure all skin and hair care products don't have those substances in them also. Gluten hides in cracks and holes and lives in peoples minds. Because it lives in our minds, wehave brain fog. It also hides in many places you would not suspect it of being.

Jnkmnky Collaborator

Kinnikinnick has good donuts. :)

mamaw Community Regular

Welcome, you will learn and get tons of info from this group....

celiac specialities has to die for glazed donuts, as close to the real thing as you can get.

mamaw

GreySaber Apprentice
Welcome to group Greysaber. Remember to be truly wheat/gluten-free you need to make sure all skin and hair care products don't have those substances in them also. Gluten hides in cracks and holes and lives in peoples minds. Because it lives in our minds, wehave brain fog. It also hides in many places you would not suspect it of being.

ARGGGG!!!! <repeated and rather vicious swearing edited out> It's in my SHAMPOOO!!!!

OK, that Shampoo is in the trash....but how can it get from my head to my intestines? Bloodstream sure, but intestines in particular?

kabowman Explorer

I personally don't worry about my shampoo because it isn't dripping into my mouth and I wash my hands after - however, I do watch for it in my lotions because I put my fingers in my mouth to "occasionnaly" trim my nails if I am away from clippers or file and the skin around my nails gets hard and I tend to bite those off - I know, gross but true.

However, maybe someone else here can let you know why to avoid the shampoo and soap. Anything that goes on my lips though, I watch like food.

Which vinegars bother you?

VydorScope Proficient
I personally don't worry about my shampoo because it isn't dripping into my mouth and I wash my hands after - however, I do watch for it in my lotions because I put my fingers in my mouth to "occasionnaly" trim my nails if I am away from clippers or file and the skin around my nails gets hard and I tend to bite those off - I know, gross but true.

However, maybe someone else here can let you know why to avoid the shampoo and soap. Anything that goes on my lips though, I watch like food.

Which vinegars bother you?

Ever touch your hair durring the day, at all? Do you wash your hands right after it? Theirs a risk that you can transfer the shampoo to you hands (YES some stays in your hair no matter how well you rinse) and then to what ever you eat.

kabowman Explorer

Good to know - I had not thought of that.

I also use pliable paste, then wax, then hairspray (I have very fine hair and it takes that to make it work). I will have to check those too...thanks.

I have already checked all makeup so that is safe, now to beauty!!!!

GreySaber Apprentice

OK, I bought new shampoo. Is Ivory soap safe? It says "99%" or 100% soap on it, but what's in soap?

I got a bar of dial just in case.

mommida Enthusiast

Welcome to the board!

You need to give yourself time to heal. During that healing time there are some very common ingredients that can cause the "D" or other stomach upset. This has lead to a list of suspicious ingredients to watch out for. Annatto is one such ingredient. You may be lactose intolerate while you are healing. Vanilla or distilled vinegar causes a lot of confusion too. Even gluten grain base should be safe, because of the distillation process, but many people have reactions to these products. These products are questioned at least once a week on this board. Keep a food journal - you could be sensitive to other things not just gluten. Cross contamination is a MAJOR issue. ( You can be glutened by kissing :wub: )

L.

tiffjake Enthusiast
I want to run a search on how long it takes before symptoms go away, (IE, should this be over night, or do I have to wait six months?) I'm not talking about healing the vili, I know that can take a long time, but how long before I have reliable solidity in the stool?

I know for me, it was 24-36 hours.....I have a pretty reactive stomach. If I eat something with gluten in it, I am sick within 45 min or less....and when I am better, it is pretty fast for me.

  • 3 weeks later...
junie20002 Newbie

Hi everyone new here I am having troulbe posting an error keeps coming up telling me that I do not have permission to enter a topic is this a norm? <_<

Lisa Mentor

GS:

Here are a few thing to get you started and not worry about gluten:

Dove Shampoo

Dove Soap

Lubriderm Lotion

Lipsticks - Burts Bee's

Kitchen Staples:

Hienz - Ketchup

La Choy - Soy Sauce

Vlasic - Pickles

Tabasco - Hot Sauce

Most of Paul Newmans - Salad Dressings

McCormacks Seasoning - will list wheat, oats, barley, rye

Kraft Products - will list the same.

Sweet Baby Ray's BBQ Sauce - my favorite

This is my favorites list. I am sure that other will post. The summer season is comming and fresh is always the best. Hope this will help and ALWAYS feel free to ask away.

Lisa

Kaycee Collaborator
GS:

Here are a few thing to get you started and not worry about gluten:

Dove Shampoo

Dove Soap

Lubriderm Lotion

Lipsticks - Burts Bee's

Kitchen Staples:

Hienz - Ketchup

La Choy - Soy Sauce

Vlasic - Pickles

Tabasco - Hot Sauce

Most of Paul Newmans - Salad Dressings

McCormacks Seasoning - will list wheat, oats, barley, rye

Kraft Products - will list the same.

Sweet Baby Ray's BBQ Sauce - my favorite

This is my favorites list. I am sure that other will post. The summer season is comming and fresh is always the best. Hope this will help and ALWAYS feel free to ask away.

Lisa

Shampoos

mmm

Well I went gluten free at the beginning of the year, and was doing well, my symptoms were going, even ones I did not associate with gluten, but I still had a pimply like spots in my hair. I thought as all my other complaints were going, why did I still have pimply spots in my hair. They seemed to be getting worse, not better.

Then one day in the shower I looked at the shampoo bottle and lo and behold, it had flour it. I was horrified. It was a kind of eureka moment, and I felt I figured out why the spots were still there. So out goes the shampoo, and I now use one without the flour and my head is spot free. How's that? But nobody else seems to have complained about the spots in the hair.

Cathy

  • 2 weeks later...
amyc Newbie

Hi GreySaber,

I am also new here. Just diagnosed 4 days ago, and just registered at Celiac.com 4 minutes ago! Anyway, I am by no means an expert. But I just thought I would pass along what my doc told me. He said that until my gut heals, I will have the same reactions to dairy and soy that I did to gluten. (And I am finding that soy lecithin is in everything!)

Amy

lindalee Enthusiast
Hi GreySaber,

I am also new here. Just diagnosed 4 days ago, and just registered at Celiac.com 4 minutes ago! Anyway, I am by no means an expert. But I just thought I would pass along what my doc told me. He said that until my gut heals, I will have the same reactions to dairy and soy that I did to gluten. (And I am finding that soy lecithin is in everything!)

Amy

Amy, I'm new and I was just thinking today about going off soy and milk and tonight I read your message. I wonder how long it will take for the ole gut to heal? I was taking vitamins with gluten. Did he put you on any special vitamins? LindaLee

MACleod Newbie

I am new here and was just wondering if there is a section where people with wheat allergys could discuss related issues. I know that Celiac and wheat allergy are very similar but aren't there some things that can be gluten free but not wheat free? Sorry if this is a dumb question. Thanks in advance for your help!

  • 2 weeks later...
MACleod Newbie

Thanks for the responses yall! :rolleyes:

AndreaB Contributor
I am new here and was just wondering if there is a section where people with wheat allergys could discuss related issues. I know that Celiac and wheat allergy are very similar but aren't there some things that can be gluten free but not wheat free? Sorry if this is a dumb question. Thanks in advance for your help!

If it is gluten free it doesn't have any wheat. Something can be wheat free but not neccesarily gluten free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,551
    • Most Online (within 30 mins)
      7,748

    Mantooth
    Newest Member
    Mantooth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Ichthus is the Greek word (using English letters) for fish. The letters in the actual Greek word form an acronym that come from the first letters in the Greek words for "Jesus", "God's Son," "Savior".   Now, back to your family's denial of your celiac disease, I think you can relate to this:  
    • Mantooth
      Thanks for the kind words. It's hard to convince my doctor to investigate further because of a negative blood test and he only tested me for one marker. 🙃 I've come to the point where I need to take this into my own hands because the doctors are infuriating and it's not going anywhere. I've been gluten free for a week and feeling better but I was still consuming dairy and I think that's what's backing me up. Next week no dairy introduced. 
    • nanny marley
      Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊
    • nanny marley
      I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help  gives me faith I'm on the right track 
    • nanny marley
      Yes I have the fish symbol on my car and my ring 🙏 and yes I've been going for years to the docters but I got that feed up ov having to avoid eating out or even visiting people threw aniexty of needing the toilet or of gas or sickness I did some research of my own and I did the elimination diet and what a difference I've had my family think I'm nuts at times saying it's in my head it won't help until they now are doing it too because my daughter's are facing the same issues it's made me feel so ill at times it's so crazy how food can do this to you one night I was up 6 times to the point I had nothing left in my body I didn't go to the toilet for days after and I felt sick has a dog I'm so glad I found this forum I feel a little more human already 😄
×
×
  • Create New...