Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Small Capsule Endoscopy


odcdinah

Recommended Posts

odcdinah Contributor

Has anyone had a small capsule endoscopy? What is it like?

Thanks! Dinah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mmaccartney Explorer

I had that done last year. By far it was the coolest test.

Basically you swallow a large pill sized camera with lights and all, kinda space age! then you put on a vest with wires and recording equipment. The wires are attached to your abdomen, kinda like an ekg. Then you go on about your day! At the end of the day you return to the doctor, they take the recording device and send you on your way. The camera just comes out and gets flushed.

What your doctor gets are thousands and thousands of pictures of your digestive tract. The entire tract!! It shows all the areas that endoscopy and colonoscopy cannot get to without surgery!

Make sure your insurance will cover it before you have it done, at ~$1000.00 it is an expensive test!!!

My doctor told the insurance company he was trying to rule out chrons disease (which was the truth at the time) and that gave them the justification to cover the costs of the testing.

odcdinah Contributor

Great! Thanks very much for the info!

]

I

NicoleAJ Enthusiast

I also had a capsule endoscopy done. My insurance covered mine because I had already had a few colonoscopies and an upper endoscopy and they just couldn't get to the parts that they wanted to see most with these tests. My insurance covered it for this reason--as a last resort. The only thing that I didn't like about it is that my doctor only kept the pack on for 5 hours or so, so they didn't get to see my entire digestive system (leading to inconclusive results). In addition, if you go through an Xray or strong metal detector while its in your system, the capsule could burn your innards--so don't plan Xrays or flights for the day or so after your procedure.

jennyj Collaborator

I too had one done. I was nervous before hand but it was fine. I never knew when it was gone. It was really helpful to the docs.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
×
×
  • Create New...