Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Everyone Feel Sick Right Away?

gointribal

Recommended Posts

gointribal Enthusiast
gointribal
Posted

After being glutened does anyone else find that they don't feel or get sick right away? I tend to get bloated and have gas within 30 mins but I don't have the serious D that seems to affect everyone else. I usually feel really sick about 4 to 8 hours later and then its just down hill. However I still don't the D, I get blurred vision, bloating, chills, gas, sleepy, hurting all over, wanna throw up but don't and I feel like I should be having D but I'm not. Sorry to get graphic but when I try to go to the bathroom all have is gas but my butt feels like its going to blow up! I know everyone is different but is this like anyone else? A little help!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

You're right--everyone is different. Some people get symptoms right away--others get them a day or more later. I get symptoms after about 2 hours. I begin to get cramping, gas, and then D. It will go on for 5 days to a week--with nausea, stomach pain, feeling depressed and anxious, foggy thinking, fatigue, etc. At the beginning, my symptoms lasted longer--now, they're more predictable and don't persist as long.

flagbabyds Collaborator
flagbabyds
Posted

I never get sick right away. It is usually the next day, or even the day after that. Reaction times can vary greatly.

amybeth Enthusiast
amybeth
Posted

Yep - we're all different. I generally react within an hour, but the D comes and goes...then (lucky me) I get the bloating.....

sometimes I get blurry vision, sometimes long, dull headaches...seems to vary.

Lisa Mentor
Lisa
Posted

I have been doing my best to be gluten free since August.

When I was highly symptomatic, it would take me about 30 minutes to release my lunch totally indigested, with the most horrible acid that my body could produce. I was basically home bound for two months until I got the hang of the diet. After that I ventured out a bit with the help of immodium.

Now 8 months later, if I get glutened it may take about 24 hours to feel the effects.

Celiac is a disease that takes time, research on your part, time and research on your part.

This is the best source that you can have and there are no dumb questions here. We have all been there and because of this site, we are better.

Keep in touch

Carriefaith Enthusiast
Carriefaith
Posted

Every time I get contaminated I seen to have a slightly different reaction. I typically notice the brain fog within a few hours. My other symptoms don't usually start until 12 to 72 hours and then they may continue for up to 1-2 weeks. Some of your symptoms seem similar to mine. I usually feel like I am coming down with the flu since I can get dizzy, achy, nauseated, clammy, ect. But the rash and hives that I usually get confirms that I've eaten wheat/gluten.

Rusla Enthusiast
Rusla
Posted

If I have been glutened which is an immediate injested amount of any quantity, I know within five minutes. If it is do to other glutenings and not directly eaten but injested through crubms etc. It can take an hour or two, but the dh can show up within a half hour.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


schuyler Apprentice
schuyler
Posted

My reaction times tend to vary. I usually notice that something isn't right within the hour (not necessarly feeling bad, just not "right"). Sometimes the full reaction happens within one hour and sometimes it takes up to 48 hours to start. Basically it starts with bloating, then comes the severe cramping and "D", followed by nausea, vomiting, and dizziness. I pretty much get all of the flu symptoms, just more severe. My reactions tend to last between 2-10 days, it all seems to depend on what and how much I consumed.

Danielle

Rusla Enthusiast
Rusla
Posted

If mine is due to makeup then it can take hours or even a day depending on the makeup.

Felidae Enthusiast
Felidae
Posted

I reacted about 10 hours after glutening, first with D, nausea, vomiting, and brain fog over many many more hours.

Laura Apprentice
Laura
Posted

I've had two different kinds of reactions. Well, I should start by saying that when I was first dx'ed, I didn't have noticeable reactions, and I've actually gotten more sensitive. Or just learned better to hear what my body is saying. Then for about a year or two, if a tiny tiny bit trickled into my diet, I didn't notice gastro symptoms, but I had hemorrhoid flareup and emotional reactions, from depression to panic attacks, for a couple of weeks. By now, 3.5 years down the road, the D starts maybe 3 hours later. But what's nice is that since that started as a symptom for me, I've actually had a lot less of the long-lasting reactions. Sucks to have to make a run for the bathroom in a store or train or whatever, but it's kind of worth it not to be having panic attacks, you know?

whitball Explorer
whitball
Posted

Before I was diagnosed I did not have the effects that I have now. Just today I was glutened from a "gluten free" lunch at a conference. I felt like a match was tossed down my throat. I usuallly feel bloated and a few hours later I get the "trots" One lesson learned today: Do not eat anything at a conference but the food that you bring from home.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748
    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.