Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Everyone Feel Sick Right Away?


gointribal

Recommended Posts

gointribal Enthusiast

After being glutened does anyone else find that they don't feel or get sick right away? I tend to get bloated and have gas within 30 mins but I don't have the serious D that seems to affect everyone else. I usually feel really sick about 4 to 8 hours later and then its just down hill. However I still don't the D, I get blurred vision, bloating, chills, gas, sleepy, hurting all over, wanna throw up but don't and I feel like I should be having D but I'm not. Sorry to get graphic but when I try to go to the bathroom all have is gas but my butt feels like its going to blow up! I know everyone is different but is this like anyone else? A little help!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

You're right--everyone is different. Some people get symptoms right away--others get them a day or more later. I get symptoms after about 2 hours. I begin to get cramping, gas, and then D. It will go on for 5 days to a week--with nausea, stomach pain, feeling depressed and anxious, foggy thinking, fatigue, etc. At the beginning, my symptoms lasted longer--now, they're more predictable and don't persist as long.

flagbabyds Collaborator

I never get sick right away. It is usually the next day, or even the day after that. Reaction times can vary greatly.

amybeth Enthusiast

Yep - we're all different. I generally react within an hour, but the D comes and goes...then (lucky me) I get the bloating.....

sometimes I get blurry vision, sometimes long, dull headaches...seems to vary.

Lisa Mentor

I have been doing my best to be gluten free since August.

When I was highly symptomatic, it would take me about 30 minutes to release my lunch totally indigested, with the most horrible acid that my body could produce. I was basically home bound for two months until I got the hang of the diet. After that I ventured out a bit with the help of immodium.

Now 8 months later, if I get glutened it may take about 24 hours to feel the effects.

Celiac is a disease that takes time, research on your part, time and research on your part.

This is the best source that you can have and there are no dumb questions here. We have all been there and because of this site, we are better.

Keep in touch

Carriefaith Enthusiast

Every time I get contaminated I seen to have a slightly different reaction. I typically notice the brain fog within a few hours. My other symptoms don't usually start until 12 to 72 hours and then they may continue for up to 1-2 weeks. Some of your symptoms seem similar to mine. I usually feel like I am coming down with the flu since I can get dizzy, achy, nauseated, clammy, ect. But the rash and hives that I usually get confirms that I've eaten wheat/gluten.

Rusla Enthusiast

If I have been glutened which is an immediate injested amount of any quantity, I know within five minutes. If it is do to other glutenings and not directly eaten but injested through crubms etc. It can take an hour or two, but the dh can show up within a half hour.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice

My reaction times tend to vary. I usually notice that something isn't right within the hour (not necessarly feeling bad, just not "right"). Sometimes the full reaction happens within one hour and sometimes it takes up to 48 hours to start. Basically it starts with bloating, then comes the severe cramping and "D", followed by nausea, vomiting, and dizziness. I pretty much get all of the flu symptoms, just more severe. My reactions tend to last between 2-10 days, it all seems to depend on what and how much I consumed.

Danielle

Rusla Enthusiast

If mine is due to makeup then it can take hours or even a day depending on the makeup.

Felidae Enthusiast

I reacted about 10 hours after glutening, first with D, nausea, vomiting, and brain fog over many many more hours.

Laura Apprentice

I've had two different kinds of reactions. Well, I should start by saying that when I was first dx'ed, I didn't have noticeable reactions, and I've actually gotten more sensitive. Or just learned better to hear what my body is saying. Then for about a year or two, if a tiny tiny bit trickled into my diet, I didn't notice gastro symptoms, but I had hemorrhoid flareup and emotional reactions, from depression to panic attacks, for a couple of weeks. By now, 3.5 years down the road, the D starts maybe 3 hours later. But what's nice is that since that started as a symptom for me, I've actually had a lot less of the long-lasting reactions. Sucks to have to make a run for the bathroom in a store or train or whatever, but it's kind of worth it not to be having panic attacks, you know?

whitball Explorer

Before I was diagnosed I did not have the effects that I have now. Just today I was glutened from a "gluten free" lunch at a conference. I felt like a match was tossed down my throat. I usuallly feel bloated and a few hours later I get the "trots" One lesson learned today: Do not eat anything at a conference but the food that you bring from home.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.