Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's First Birthday

TCA

Recommended Posts

TCA Contributor
TCA
Posted

Just wanted to let all of you know that my baby girl had a wonderful gluten free first birthday. Because of her heart surgeries, I made her a gluten free heart shaped cake with pink cream cheese icing. It was delish! She couldn't eat any because of her gagging issues, but she had fun playing in her cupcake. Thanks for all the support over the past few months. She's doing so much better now that we're gluten-free.

We went to a feeding clinic yesterday and her dietician's mother-in-law has celiac disease. It's so awesome to have someone who understands to help us at last! Just had to share my excitement!!! The new dietian has also found something called Compleat Pediatric, which is something we can give her by her feeding tube to increase her caloric intake and put some weight on her before surgery. I hope it works since all the formulas made her sooo sick. This is basically blenderized whole foods like beef and carrots, etc. The only thing she has tolerated so far is breast milk and my supply is falling off.

We also got a call from Vanderbilt today and the next sugery is scheduled for August 15. Please keep her in your prayers.

Gotta go get the little princess into her bed. She's snoozing in her swing at the moment after a long day of partying!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

Happy birthday to your little princess, I'm so glad her party was a success! Yes, I will keep her in my prayers. :D

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

How nice for her to have a good birthday!

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

I'm glad your sweet angel had a wonderful birthday!

August 15th, eh? That's my anniversary! And her and I also share the same birthday! I definitely feel a connection happening here! :P:D

Hugs.

Karen

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Glad to hear she had such a nice birthday! Hope the new food is successful. August 15--I will remember her in my prayers. :)

Link to comment
Share on other sites
Jnkmnky Collaborator
Jnkmnky
Posted

Keeping your family in my prayers! :)

Link to comment
Share on other sites
VydorScope Proficient
VydorScope
Posted
We also got a call from Vanderbilt today and the next sugery is scheduled for August 15. Please keep her in your prayers.

You got it! And dont forget to email me if we can help you out....

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

So happy she had a great birthday and she will have many more to come. Ones where she will be able to eat her gluten-free cake.

Link to comment
Share on other sites
schuyler Apprentice
schuyler
Posted

Your little princess will definately be in my prayers.

Danielle

Link to comment
Share on other sites
nikki-uk Enthusiast
nikki-uk
Posted

Glad she had a good day.

Wishing you all the best for her surgery in the summer :)

Link to comment
Share on other sites
Cheri A Contributor
Cheri A
Posted

Happy Birthday to your sweet girl!! Congrats on finding a dietician who can truly help you!

Link to comment
Share on other sites
TCA Contributor
TCA
  • Author
Posted

Thanks so much. You guys are so sweet. I'm so glad I have all of you to vent <_< and be happy with! :D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,834
    • Most Online (within 30 mins)
      7,748
    D33
    Newest Member
    D33
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Does 101gl mean. I have celiac desease

      By trents · Posted

      Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave is referring to would be helpful. In addition, the ranges and units of measure used by different labs differs from one lab to another. There is no industry standard for these. So, we would need to know the reference ranges for negative vs. positive for that test used by the lab who did the analysis. And was there only that one test ordered by the physician? 
    • Wheatwacked
      Pretty desperate for some guidance

      By Wheatwacked · Posted

      When my son was weaned in 1976 he was diagnosed with Celiac Disease.  My mom said at the time. "you got what you gave." His doctor insisted on Nutramigen as the only hyperallergenic baby formula with full nutrition.  After 6 months he was weaned to gluten free diet.  It seems it still has that status. He has grown strong and well.
    • Wheatwacked
      Does 101gl mean. I have celiac desease

      By Wheatwacked · Posted

      Hi @Marilyn1941, Welcome to the forum. There is not enough info to go on.  What test name? What are the results and the laboratory's normal range they used?  Why were you tested? What kind of symptoms?  Age, sex and country would be helpful but not necessary. 
    • Marilyn1941
      Does 101gl mean. I have celiac desease

      By Marilyn1941 · Posted

      Does a result of 101.gl mean I have celiac desease
    • Jean Shifrin
      Implications of glutening after repairing villi

      By Jean Shifrin · Posted

      Thanks so much for this info! Relieved to know this.
×
×
  • Create New...