Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Convinced It's Dh


krisb

Recommended Posts

krisb Contributor

After reading all the posts on DH I am totaly convinced that this is what I have. First of all it all cleared up when I went gluten free. My elbows have never looked so good. It's amazing how much they cleared up. Sometimes I get a little flare up but it isn't anything like it used to be. I used to get it on my toes, and fingers too. I just read a post about someone getting it on there belly. I used to get it there also. The allergist had once looked at it and said it was psorisis. The last time I went to the Dermatologist she suggested it was DH but didn't do a biopsy. Is it worth trying to get a biopsy now? I read that if they don't take it right you can get wrong results. I'm sure that the next time I get a little flare up it will take too long to get into the Dr. to do a biopsy.

All I know is, I see major results on gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

How long after you accidentally eat gluten does it take for the rash to come back. If you really want a diagnosis you could plan on making a doctor's appt. and eat gluten the proper time before so that they erupt. I was just reading that to take a biopsy for G H that the biopsy should not come from the actual eruption, but from an area right next to a eruption. Good Luck.

jljeje Newbie
After reading all the posts on DH I am totaly convinced that this is what I have. First of all it all cleared up when I went gluten free. My elbows have never looked so good. It's amazing how much they cleared up. Sometimes I get a little flare up but it isn't anything like it used to be. I used to get it on my toes, and fingers too. I just read a post about someone getting it on there belly. I used to get it there also. The allergist had once looked at it and said it was psorisis. The last time I went to the Dermatologist she suggested it was DH but didn't do a biopsy. Is it worth trying to get a biopsy now? I read that if they don't take it right you can get wrong results. I'm sure that the next time I get a little flare up it will take too long to get into the Dr. to do a biopsy.

All I know is, I see major results on gluten free.

Hi, just read your reply to my post and then found yours. It's kind of interesting that neither of our dermatologists did a skin biopsy, but diagnosed us with dh. Apparently, my rash was not in the right stage at the time. After being gluten free about 4 months ( and feeling so much better skinwise & all over), I'm back on gluten so I can have the biopsy, but sure am not feeling well. It's only been 2 weeks so far & am wondering how long it will take to get blisters again. I decided that I wanted to be 100% sure of the dx, but may second guess myself if this takes several more weeks. Since your small children are already diagnosed, I can see where you would hestiate to do the biopsy. In my case, my only daughter is grown with small children, and I can see some of my symptoms cropping up both in my daughter and my grandchildren. Also, both of my parents have had many of the gastric (not skin) symptoms, but diagnosed with other ailments.....So, I would really like to know for sure. Thanks for your post & wish me luck. jljeje

Pegster Apprentice

I understand why you want to know for sure. I had seen pictures of dh blisters and thought it looked like what I had, but couldn't imagine that I was intolerant to gluten of all things. I never would have commited to the gluten-free diet without the firm diagnosis which I received from the skin biopsy. Too bad you have to go back on gluten if it makes you feel bad.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,298
    • Most Online (within 30 mins)
      7,748

    Paula Hearne
    Newest Member
    Paula Hearne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe you picked up a little intestinal virus? Maybe some ingredient in the gluten free processed foods you've been consuming is causing this. In order to simulate the texture that wheat provides, a lot of gluten free products contain ingredients that may cause digestive distress. Xanthan gum and similar polysaccharides are among the chief offenders.
    • Wheatwacked
      Welcome @Ems10, Isn't is wonderful how a simple change helps. Gluten free eating is not a punishment.  It does take attention to details when buying processed foods.  
    • Gunni
      Hey Talia4, I still try to stay on the lower end of carb intake but things are way easier for me these days. It really looks like a digestive issue at the core in my case   As supplements with meals I'm now taking 3-4x 650mg betaine hcl without pepsin (to handle larger doses) 1-2x Doctor's Best digestive enzymes   And daily Share Pommelozzini. This has helped my digestion immensely with carbs and fats. I'm way more tolerant of larger meals and things are a lot easier. Happy to hear any progress or findings on your end as well though!  
    • Ems10
      Hi. So for a month or two I had been experiencing extreme pain around my left rib going right up to underneath my breast, I went to hospital and the GP many times and one day it just came across my mind maybe I’m celiac/ gluten intolerant (celiac runs in my family)! I instantly stopped consuming anything with gluten (tbh everything I was eating was full of it) and the day I stopped having gluten the pain instantly disappeared, the next day I had a GP appointment about the pain & I informed him it just stopped instantly and explained why I believe I’m intolerant! I’m waiting on test results as of now, however I have still had absolutely no pain whatsoever today I’ve started to have diarrhea which I haven’t had in at least two months, I was severely constipated whilst consuming gluten! Just wondering would this be a symptom of gluten withdrawal? I’ve done a grocery shop from the “free from” gluten section, I’ve been very careful as I’m terrified the pain will start again! 
    • trents
      I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
×
×
  • Create New...