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What Kind Of Dr.?

Sis

By Sis
in Related Issues & Disorders

Recommended Posts

Sis Rookie
Sis
Posted

I have been following the messages posted on Endo and Endo of the small bowel and have noticed that I am having similar symptoms and that these symptoms are happening pretty much right before I start a period. I've read where the diagnosis is usually made through Laparscopic surgery. I had Laparscopic surgery back in November which was performed by a GI Surgeon. My question is would a GI Surgeon be likely to find Endo on the small bowel or would I need a GYN Dr. ?

Any info. or advice would be greatly appreciated!

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jams Explorer
jams
Posted

I am not sure if the GI would be the one. I went to my GYN because it is directly related to the menstrual cycle.

Good Luck!

Sis Rookie
Sis
Posted
  • Author

Do you have Bowel Endometiosis? If so, what kind of symptoms do you have? I was diagnsed with Celiac Disease back in October and I know the symptoms I suffer from when I get glutened, but I have had a lot of other weird symptoms that neither my GI Dr. nor I can figure out. We don't think it is another intolerence or allergy because the abdominal pain that I get is so severe. I have had several CT scans that have shown persistent Intussuseption of the small bowel(where the intestines telescope into itself). The Laparscopic surgery that I had was to try and find a reason for my intestines to be doing this. My Dr. says that there is almost always a lead point like a tumor/mass, lymph node or something but nothing was found. I am just concerned about whether a GI surgeon would have detected any bowel endometriosis or not. I had no idea that there was such a thing until I read these posts.

Deej Newbie
Deej
Posted

The surgeon who operated on me (hysterectomy, bilateral oopherectomy) found endo on the bowel. I was a mess. He "excised" what he could (how he did this, heaven only knows) but I worry, on my bad days that it's still there.

I don't know what to suggest as I'm more or less in the same boat.

Sis Rookie
Sis
Posted
  • Author

Thanks for the reply. I am not sure what I am going to do next. I just seem to be in pain most of the time. I guess I need to try and let the Dr. do his job. I just keep praying for him to find out what is going on in addition to the Celiac.

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  • Posts

    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
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