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Doc Called Enterolab "quackery"


Jocelyn357

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ladyx Newbie

There still is alot of ignorance out there about celiac and I believe that a lot of old school doctors are more intested in giving you meds and hoping you will come back to see them again soon. I think that if celiac and other posible food intolerances were diagnosed a lot more doctors and drug companies would be out of business....I know my medical problems were big bucks for a lot of years. My suggestion is to call around to gi's in your area and find one that has a celiac support group...go to a meeting and ask about there doctors...if they had a good experience. Educate yourself... I got lucky...my sons pediactric gi is know as the celiac doctor around the children's hospital...he makes sure he even knows were the gean came from that gave it to your child. If you have a friend who works at a lab at the hospital or maybe some you know who works anywhere in the hospital could ask what gi they know that sends a lot of people for celiac tests...at my hospital the lab would tell you Dr. Devoid 100% of the time. He is a younger doctor too and seems to not be so quick to give easy diagnosis. My pediatrican got lazy when I was trying to figure out what was wrong with my son and told me if he throws up agian take him to the emergancy room. What kind of help is that....if I had not been so determined to find out what was wrong...we would all still be sick and I probably would be dead...I had one foot in the grave and one on a banana peel when I was finally diagnosed and I had seen several gi doctors who said I had wouldn't you know it IBS. Avoiding dairy as well as gluten is a really good idea...I have been lactose intlorant since I was a kid...I can now eat dairy but had to wait for my stomach and intestines to heal before I found out I could have dairy again....if you want to speed up the healing process...get a gallon of 100% aloe juice...drink 4oz twice a day till it's gone...then try dairy agian if you are feeling better....your insides are torn up if you really have celiac. And if you have IBS as the doctor says...aloe works great for that too. My friend has stomach ulsers and gi problems she has been fighting for over 6 months....she was throwing up blood and getting hospitalized for low iorn...her doctor told her not to take the aloe I suggested and only to take the meds...he prescribed. She ended up in the hospital for two days because of a massive bleed in her stomach...she gave up on the meds that weren't working and started to take aloe vera in capsel form. Last time I saw her she thanked me. She said it was the only thing that makes it where she can eat without pain and gas. I also met another lady at the portrait studio where I use to work who husband and her were diagnosed with celiac and use aloe every day....and it has done wonders for them...this of course is not medical advice (because a doctor would tell you to take meds so the drug company would give them more free stuff) This is just four people I know who have had their intestines healed by aloe vera juice (ps. the stuff tastes horrible so mix with some juice and hold your nose when you drink it) Make sure you find a new doctor...I used my family doctor to find the right gi for my son...my pediatrican didn't even send me to a gi...the best thing to do is get referals by other doctors...ask your basic care physician if he knows what gi in your area has the most knowledge about celiac diease and then ask for a referal...don't give up till you find someone who really wants to find out what is wrong. I have also noticed that some people who have celiac can't handle corn, eggs, or soy so you might try just eating some basic fruits and veges and (if your not a vegetarian like me) some plain meats slowly adding one new food at a time to see what bothers you. maybe one new food every 3 days or so to see if corn or eggs or soy are bothering you as well. Hope my little bit of experince will help you in some small way.


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    • trents
      @Ann13, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
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