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Doc Called Enterolab "quackery"


Jocelyn357

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ladyx Newbie

There still is alot of ignorance out there about celiac and I believe that a lot of old school doctors are more intested in giving you meds and hoping you will come back to see them again soon. I think that if celiac and other posible food intolerances were diagnosed a lot more doctors and drug companies would be out of business....I know my medical problems were big bucks for a lot of years. My suggestion is to call around to gi's in your area and find one that has a celiac support group...go to a meeting and ask about there doctors...if they had a good experience. Educate yourself... I got lucky...my sons pediactric gi is know as the celiac doctor around the children's hospital...he makes sure he even knows were the gean came from that gave it to your child. If you have a friend who works at a lab at the hospital or maybe some you know who works anywhere in the hospital could ask what gi they know that sends a lot of people for celiac tests...at my hospital the lab would tell you Dr. Devoid 100% of the time. He is a younger doctor too and seems to not be so quick to give easy diagnosis. My pediatrican got lazy when I was trying to figure out what was wrong with my son and told me if he throws up agian take him to the emergancy room. What kind of help is that....if I had not been so determined to find out what was wrong...we would all still be sick and I probably would be dead...I had one foot in the grave and one on a banana peel when I was finally diagnosed and I had seen several gi doctors who said I had wouldn't you know it IBS. Avoiding dairy as well as gluten is a really good idea...I have been lactose intlorant since I was a kid...I can now eat dairy but had to wait for my stomach and intestines to heal before I found out I could have dairy again....if you want to speed up the healing process...get a gallon of 100% aloe juice...drink 4oz twice a day till it's gone...then try dairy agian if you are feeling better....your insides are torn up if you really have celiac. And if you have IBS as the doctor says...aloe works great for that too. My friend has stomach ulsers and gi problems she has been fighting for over 6 months....she was throwing up blood and getting hospitalized for low iorn...her doctor told her not to take the aloe I suggested and only to take the meds...he prescribed. She ended up in the hospital for two days because of a massive bleed in her stomach...she gave up on the meds that weren't working and started to take aloe vera in capsel form. Last time I saw her she thanked me. She said it was the only thing that makes it where she can eat without pain and gas. I also met another lady at the portrait studio where I use to work who husband and her were diagnosed with celiac and use aloe every day....and it has done wonders for them...this of course is not medical advice (because a doctor would tell you to take meds so the drug company would give them more free stuff) This is just four people I know who have had their intestines healed by aloe vera juice (ps. the stuff tastes horrible so mix with some juice and hold your nose when you drink it) Make sure you find a new doctor...I used my family doctor to find the right gi for my son...my pediatrican didn't even send me to a gi...the best thing to do is get referals by other doctors...ask your basic care physician if he knows what gi in your area has the most knowledge about celiac diease and then ask for a referal...don't give up till you find someone who really wants to find out what is wrong. I have also noticed that some people who have celiac can't handle corn, eggs, or soy so you might try just eating some basic fruits and veges and (if your not a vegetarian like me) some plain meats slowly adding one new food at a time to see what bothers you. maybe one new food every 3 days or so to see if corn or eggs or soy are bothering you as well. Hope my little bit of experince will help you in some small way.


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    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
    • trents
      Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got annual CMP screenings as part of my benefits. The liver enzymes were continually elevated and creeping up every year, though they were never super high. My primary care doc had no clue. I got really worried as your liver is pretty important. I finally made an appointment with a GI doc myself and the first thing he did was test me for celiac disease. I was positive. That was in about 1996. After going on a gluten-free diet for three months the liver enzymes were back in normal range. Another lab that had gotten out of whack that has not returned to normal is albumin/total protein which are always a little on the low side. I don't know what that's about, if it's related to the liver or something else like leaky gut syndrome. But my doctors don't seem to be worried about it. One thing to realize is that celiac disease can onset at any stage of life. There is a genetic component but there is also an epigenetic component. That is, the genetic component is not deterministic. It only provides the potential. There needs also to be some health or environmental stressor to activate the latent gene potential. About 40% of the population have the genetic potential to develop celiac disease but only about 1% actually do.
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