Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks To All The Soy Posters!


codetalker

Recommended Posts

codetalker Contributor

I would like to extend my heart-felt thanks and appreciation to all the soy-intolerant posters on this board. You have provided me an invaluable service. It has become apparent that I have developed an acute soy intolerance. Without all of your posts, I would not have been able to figure out what has been happening.

A couple of years ago, I started having reflux problems. It took awhile but I finally got serious about it and got it under control via strict diet and other changes. The past several months though, something has been wrong. Certain symptoms were coming back and for no logical reason. Other symptoms, like the heartburn were conspicuously absent. I could not drink any type of tea, even chamomile. The little dab of mayo I put in my salads had to go. The same for tuna salad: no mayo. Each time, I just assumed it was reflux-related.

I had those palpitations behind my breastbone, tightness in my throat and difficulty swallowing, shortness of breath for no apparent reason (even though I swim a mile several times a week) and upper body weakness. I even lost 15 lbs.

The first three weeks in March it got worse than ever. I was forced to conclude I had botched the reflux remedies and had some sort of throat cancer.

Despite the fact that this will sound stupid, the last week in March was the annual SCUBA trip my friends and I go on. This year we went to Belize. Once I left on the trip, things showed a marked improvement. By the end of the week, all the symptoms were gone.

I came back home and the symptoms immediately returned. I concluded it had to be one of three things: 1) stress, 2) a contaminant in my house 3) something I was eating.

Fortunately, there was a flurry of soy postings that caught my attention. As a shot-in-the-dark, I eliminated the obvious soy sources: soy burgers, soy milk, soy protein powder and things got a lot better (yes, I know, too much soy in my diet; I was trying to avoid fatty meat which aggravated my reflux). Then, I started finding other things.

The mayo I was using is made with soybean oil. The chamomile tea I was drinking has soy lecithin. My calcium supplement has soy as well. Sunday and today have been bad again. Saturday, I picked up a lot of gluten-free cookies to satisfy my sweet-tooth and maybe gain back some weight. It turns out they all have soy lecithin. Sometimes, you just can’t win.

Nonetheless, the evidence is just too undeniable now. So, all you soy intolerant posters, raise up your hand, reach over your shoulder and pat yourself on the back. Good job!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

if you are dairy intolerant and can't use whey protein powder, you can get rice protein powder if you still need that particular item. :-)

Ursa Major Collaborator

Codetalker, I am glad you figured it out, finding what you're intolerant to can be soooooooooo tricky!

jerseyangel Proficient

Hi Codetalker--so glad you got to the bottom of it!! :D

marciab Enthusiast

Congrats. I have soy allergy / sensitivity too and it took me forever to figure it out and eliminate it. Even my meal replacement that I depended on when I couldn't digest anything else had soy lecithin in it. BTW, did you know that newspaper ink is made from soy?

I'm hoping I will be able to add other foods back into my diet now that I have gotten rid of the soy.

Good luck ... marcia

kabowman Explorer

Watch out for all veggie oils, soy, no more fast food (if you even did that), soy. And, I found out that I cannot have any commercial broth - I suspect soy but could be something else. Many gluten-free mixes have soy instead, etc. Soy is worse than gluten to avoid.

Glad it is working and you found out what the problem was!

ms-sillyak-screwed Enthusiast

Ursula -- Your SOY posts are working. Don't stop. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
codetalker Contributor
Watch out for all veggie oils, soy, no more fast food (if you even did that), soy. And, I found out that I cannot have any commercial broth - I suspect soy but could be something else. Many gluten-free mixes have soy instead, etc. Soy is worse than gluten to avoid.

Glad it is working and you found out what the problem was!

I think I just experienced the truth of this first-hand. I started adding things back in to my diet and just had a major relapse (soy, not gluten). The ingredient lists on products apparently are of no use. Either that or it's the veggie oils you mentioned. I'll eliminate those and see how I fare.

Thanks!

ms-sillyak-screwed Enthusiast

They hide the name(s) they use for soy.

They can call it "protein", or "veggie broth", "lecithin" they will confuse you with these below...

Other names for soy

Edamame

Miso

Mono-diglyceride

Natto

Okara

Soya, soja, soybean, soyabeans

Soy protein (isolate/concentrate), vegetable protein

Tempeh

Textured soy flour (TSF), textured soy protein (TSP), textured vegetable protein (TVP)

Tofu (soybean curds)

Yuba

Possible sources of soy

Note: Avoid all food and products that contain soy in the ingredient list, e.g., soy cheese.

Baby formulas

Baked goods and baking mixes, e.g., breads, cookies, cake mixes, doughnuts, pancakes

Bean sprouts

Beverage mixes, e.g., hot chocolate, lemonade

Bread crumbs, cereals, crackers

Breaded foods, chili, pastas, stews, taco filling, tamales

Canned tuna/minced hams

Chewing gum

Cooking spray, margarine, vegetable shortening, vegetable oil

Cross contamination, e.g., containers, utensils

Diet drinks, imitation milk

Dressings, gravies, marinades

Frozen desserts

Hydrolyzed plant protein (HPP), hydrolyzed soy protein (HSP), hydrolyzed vegetable protein (HVP)

Lecithin

Monosodium glutamate (MSG) (may contain hydrolyzed protein)

Natural flavours, e.g., listed in ingredient lists may be soy derivatives

Processed and prepared meats, e.g., beef, deli, pork, poultry

Sauces, e.g., soy, shoyu, tamari, teriyaki, Worcestershire

Seafood-based products, fish

Seasoning, spices

Snack foods, e.g., candy, chocolate, energy bars, fudge, popcorn, potato chips

Soups, broths, soup mixes/stock

Spreads, dips, mayonnaise, peanut butter

Vegetarian dishes

Non-food sources of soy

Cosmetics, soaps

Craft materials

Glycerine

Milk substitutes for young animals

Pet food

Vitamins

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,880
    • Most Online (within 30 mins)
      7,748

    schussb
    Newest Member
    schussb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • gregoryC
      Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat?  These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts.  In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options.  The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.   
    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
×
×
  • Create New...