Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7 Month Very Sensitive To All Wheat

Rilith

Recommended Posts

Rilith Newbie
Rilith
Posted

Hiya, I'm a newbie to this site. I am from the UK.

I have 2 boys aged 7 & 4 and a 7 month old little Girl called Holly. Holly was born with Downs and has some complex heart defects. We have also recently found out that she is very very sensitive to gluten.

She has symptoms of diarrhoea, bloating, runny nose, thick mucus that sticks to her chest making her cough, and failure to thrive. Good thing is she is tube fed her milk feeds ATM but I am having a nightmare time with weaning.

She is eating basic root veg and fresh fruit (not a bad diet really..LOL) but I just don't know what to give her fo her breakfasts.

We are just waiting to see her Paed to find out if they will test her for Coeliacs, once it is confirmed I will be able to get bread and pasta from the NHS.

What do you give your little ones for breakfast???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tony'sMom Rookie
Tony'sMom
Posted

Have you tried baby rice cereal? My little ones were always able to tolerate that. My 9 month old also enjoys eating yogurt and scrambled egg yolks. You may want to ask your ped about the egg yolks, different doctors say different things. Applesauce is a big hit here also.

I hope that helps a bit.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Welcome to the board! You'll find many of us who have children with various issues--my oldest has Asperger's and heart problems.

You mention trouble with weaning--are you weaning her from the tube-feeding, or from the breast? If she's only 7 months old, is there a reason to wean?

Lucas' mum Newbie
Lucas' mum
Posted

Hi there, I am also new to the board and in the uk. My son Lucas (9 months) has been showing signs of celiacs for a while and as there is a family genetic history we are now on a gluten free trial (which is going very well). We have used the following breakfast ideas, hope they help.

Hipp organic breakfast cereals are almost all gluten free. Also their pots of fruit purees work well for breakfasts.

Mashed baked banana and avocado with yoghurt (we are dairy free too at the moments so its soya yoghurt).

Gluten free toast fingers

and for a big breakfast... beans, scrambled egg and ham strips.

Hope that helps a bit

Paula x :D

TCA Contributor
TCA
Posted

My daughter just turned 1 and is also gluten intolerant. She has had one open heart surgery for pulmonary atresia and the 2nd is planned for August. She has a G-tube and we have unsuccessfully tried EVERYTHING under the sun to supplement my breast milk with to give her more calories. The most recent was formula called Compleat Pediatric which she proceeded to projectile vomit, as she has everything else. The only thing that works for her is a mixtures of Gerber Chicken, Gerber Prunes, and pureed avocado mixed in with the breast milk (I'm pumping and will continue for a while) and giving through her feeding tubes. She is now taking a few bottles a day of about 1.5 oz. Since she can't have the typical starter foods, we've become very imaginative. we're finding she does better with foods that she can control and not with things on a spoon. She's not eating, but chewing on things. I've found that she will at least taste Cheetos Puffs, Fritos Corn chips, Rice crackers, and meringue cookies. Anything on a spoon makes her gag uncontrollably. It's really pitiful. I hope your baby doesn't have as many issues, but it does sound that they have some in common. I do hope you find some good solutions soon.

I also have found a medical journal paper linking celiac to down's and heart defects. We both already know about the link between heart defects and downs. Let me know if you're interested....

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Anything on a spoon makes her gag uncontrollably.

My oldest son (the one who had open heart surgery) gagged on all kinds of things, too, including rice cereal (unless it was very soupy with breast milk). What did work (when he was well over a year) was soups--miso soup, chicken broth (real, not canned), and eventually I made soup with beans, ground meat, all kinds of vegies, and rice. When he was about a year old, he liked hummous, which I thought was very nutritious. I was amazed he didn't gag on it when he did gag on rice cereal (I did water it down a bit), and myhusband thought it was very funny to have a baby with garlic breath!

Bless you for pumping for your baby--I know how tough it is to pump! Hang in there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,815
    • Most Online (within 30 mins)
      7,748
    lbksunyoga
    Newest Member
    lbksunyoga
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Scott Adams · Posted

      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      Gluten free/ non dairy , low calorie pudding

      By Scott Adams · Posted

      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      Royal Caribbean Only, Please

      By DebJ14 · Posted

      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...