Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Guidelines For Gastroenterologists

mmaccartney

By mmaccartney
in Doctors

Recommended Posts

mmaccartney Explorer
mmaccartney
Posted

I saw my GI doc yesterday, who at first didn't know much about celiac, but has been doing some research and educating himself. I give him some credit, he is now testing many more people for celiac after my mystery case! He mentioned 15 people last week he tested whereas before me he rarely tested anyone!!!

Anyhow, he gave me info on a guidline published by the World Gastroenterology Organisation.

Open Original Shared Link

Click on the "Practice Guidelines" in the left menu bar, and then the Celiac link will be listed in the table to the right!

The Celiac Guidlines are available in several languages. There is even what they call "Graded evidence" that links to Meta-analyses, Systematic reviews, Practice guidelines, Clinical Trials, and other useful reading.

This should be considered a legitimate source for GI docs. Perhaps some information to print and take to those ones out there that still think Celiac is extermely rare, and that we don't actually have it!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

That's really good. I have gotten to the point that I take information that I have printed from the internet (all valid research) and hand them to my doctors. They ask me if that's for them, and I say "yes". I highlight areas that I want them to read, and I point it out to them -- and have them read it while I'm there. At least, that way, for a small moment in time they're thinking about it! It's to the point that one of my neuro docs has gotten Peter Green's book! He has started testing for Celiac in his ataxia patients -- he has caught it early in two different ones, and they are much more functional than I am . . . one doesn't even have to walk with a walker! Thanks for the heads up . . . . Lynne

JenAnderson Rookie
JenAnderson
Posted

I have read several posts where people have referred to Green's book, and I was wondering what the title is. The only books I have read have been by Jax Peters Lowell.

jerseyangel Proficient
jerseyangel
Posted
I have read several posts where people have referred to Green's book, and I was wondering what the title is. The only books I have read have been by Jax Peters Lowell.

It's called--"Celiac Disease--A Hidden Epidemic". It's by Peter H.R. Green, MD and Rory Jones. :)

mamaw Community Regular
mamaw
Posted

Isn't it a shame that these doctors make millions and we have to provide them the correct info about celiac's!!!! Something doesn't seem right here...... Maybe they should pay us with a free visit for the great info we provide to them......I agree alot are brain dead when it comes to celiac's. Most of all this is really sad.......

mamaw

mmaccartney Explorer
mmaccartney
Posted
  • Author
Isn't it a shame that these doctors make millions and we have to provide them the correct info about celiac's!!!! Something doesn't seem right here...... Maybe they should pay us with a free visit for the great info we provide to them......I agree alot are brain dead when it comes to celiac's. Most of all this is really sad.......

I do agree, but I do feel good that at least this doc is more aware now, and is now screening more people for Celiac then he used to. He has ALOT of patients, so the impact will be there!

I'll be curious when I see him again in August how many people he has had come up positive!

jerseyangel Proficient
jerseyangel
Posted
Isn't it a shame that these doctors make millions and we have to provide them the correct info about celiac's!!!! Something doesn't seem right here...... Maybe they should pay us with a free visit for the great info we provide to them......I agree alot are brain dead when it comes to celiac's. Most of all this is really sad.......

mamaw

mamaw--You said a mouthful there! It's a darn shame :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


corinne Apprentice
corinne
Posted

Finally, something to show my doc. I actually have collagenous colitis. My mother is celiac. In spite of many people with collagenous colitis responding to a gluten free diet, my doc insists that collagenous colitis is not related to celiac and that anti-diarrheal meds or steroids are the best treatment. This article clearly states that collagenous colitis is related to celiac disease.

elye Community Regular
elye
Posted

How's this for scary...we all know the connection between various autoimmune disorders, particulary type one diabetes and celiac disease. My wonderful endocrinologist who I have had for twenty-five years looked quite puzzled last summer when I told him my GP had run the blood work for celiac because my iron was low, and that it came back positive so I was going for the endoscope. He asked if I had any "real" symptoms of gluten intolerance, like bloating, abdomonal pain, diarrhea. When I said no, he scoffed, "well, you do not have it then. It is a very rare condition, and if you have been feeling well, then it just doesn't make sense". HA! And this is a DIABETES specialist, who has never known the connection between celiac and diabetes!! (fifteen percent of all type ones also have celiac disease, or will). Unbelievable....

So, I visit him next month and will take him a copy of Dangerous Grains. WAKE UP, DOCS! AND ESPECIALLY ALL YOU SPECIALISTS!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,224
    • Most Online (within 30 mins)
      7,748
    Mary Boyle
    Newest Member
    Mary Boyle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten free vitamins

      By trents · Posted

      Yes, I have concerns about the calcium supplementation as well. Sounds like a good idea on the surface if you are trying to address bone density issues but when overdone it can have the opposite effect. Calcium supplementation increases gut PH (i.e., lowers gut acidity) which can interfere with vitamin and mineral (including calcium itself) absorption. Often, bone demineralization is not due to lack of calcium intake but to low gut acidity. This is why you will often see calcium supplement products paired with vitamin C (ascorbic acid). Drinking OJ or tomato juice along with the calcium supplement can help with this as they are acidic juices. Calcium supplementation can also contribute to plaque arterial buildup I believe. I think it might be best to focus on rich natural sources of calcium.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      In that case if you answer "no" does that mean the chef doesn't have to be as diligent?  If you ask for "pork free" do they ask if it is an allergy too? How's this for an answer: "I get violently sick if I eat wheat, barley or rye"?
    • Wheatwacked
      Gluten free vitamins

      By Wheatwacked · Posted

      I order my vitamins from Pipingrock.com. They also make Cream of Rice.  Clearly marked gluten free. Right next to the Cream of Wheat. Stoneyfield Whole Milk Yogurt will help repoputate your gut bacteria.  It has lactase so is ok for lactose intolerance. 6 ounces has 210 mg calcium. For magnesium I get the 10 ounce bottle of liquid Magnesium Citrate at the supermarket or drugstore ($3).  One or two ounces of it  in a glass of water.  Add ice and sugar if you like.  I like the Cherry or Grape best. Instead try: Cream of Rice, Cheese and Good Thins (rice crackers), scrambled eggs and gluten free toast. Do you need Calcium supplement?  Calcium from supplements can cause hypercalcemia, a condition that can lead to serious health complications.  Vitamin D increases calcium absorption.  Monitor 25)(OH)D vitamin D plasma and  parathyroid hormone (PTH).    
    • trents
      Gluten free vitamins

      By trents · Posted

      The forms that vitamin and mineral supplements come in can be important. Bioavailability (i.e., how well they are absorbed) is often sacrificed for the sake of cost and shelf life. The vitamin or mineral you are targeting is always chemically combined with other elements to make them into a dispensable form (such as a powder, liquid or a pill) and to give them some chemical stability for shelf life.
    • llisa
      Gluten free vitamins

      By llisa · Posted

      Thank you so much! I will look for that.
×
×
  • Create New...