Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-eaters Annonymous

MallysMama

By MallysMama
in Coping with Celiac Disease

Recommended Posts

tarnalberry Community Regular
tarnalberry
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

Hot pastrami w/ extra peppers.... mmmm yeah, that was my fave! WAY better than any Subway sandwhich. :-) I eventually moved on to my favorite sandwhich being a homemade vegetarian sandwhich, but without the whole wheat bread (a particular variety) and cheese... it ain't the same... it just ain' t the same. Ah well, there's more to life than sandwhiches. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

Rachel -- it IS a good thing you've never had a Krispy Kreme -- the craving for it is AWFUL. When they come off the conveyor, right after they've been glazed, then they box them up hot for you . . . Holy mackerel -- there's nothing better! Once you eat them, you're hooked . . . . :lol:

penguin Community Regular
penguin
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

Ooooooh...I forgot about Togo's

The turkey avocado was my favorite, too :(

Guest nini
Guest nini
Posted

Krispy Kreme... it's an evil evil addiction... My parents used to take me and my sister up to Krispy Kreme when the HOT DONUTS light was on and OMG! Fresh off the conveyor hot and sticky! Crap. I really miss them

now I'm also craving those biscuits and cinnamon rolls that come in a can and you just pop em out of the can, into a pan and bake... oh man... why can't someone make a good gluten-free version of those???

JenAnderson Rookie
JenAnderson
Posted

I agree with Lollie and Nini--Croissants, and bagels, and OMG Krispy Kreme!! I'm the only one in the house currently on a gluten free diet and when I don't cook breakfast, my husband gets doughnuts...And I hide in the bedroom with a clothespin on my nose. <_< I also miss Subway and Quizno's...

My favorite day would be filled with Manicotti, Alfredo, Subs, Pizza, and Krispy Kreme doughnuts. If I could have one day where I could eat whatever I wanted, it would be an awesome day filled with every no-no I can think of.

cgilsing Enthusiast
cgilsing
Posted
I'd give a pinky toe for a McDonald's double cheeseburger...

I never even liked them that much! :rolleyes:

There was talk a little while ago about making me do a gluten challenge......I REALLY don't want to do that....but the first thing that popped into my mind was a big greasy Whopper! If I ate it for my first meal, I could enjoy it before everything fell apart! B)

schuyler Apprentice
schuyler
Posted

I'd give anything for flour tortilla's, the corn ones just don't measure up. Right now, I'm really craving spinach ravioli and homemade chocolate chip cookies, oh I'm so hungry! I was never a fan of bread before, but after tasting all of the gluten-free premade stuff, I really starting to appreciate how good the gluten filled stuff really was!

Danielle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

The turkey avocado from Togo's was my favorite too. mmmmm

I've also never had a Krispy Kreme. Never ever. A few months ago I at a Nutrlicious Bakery gluten-free/vegan donut. haha just doesn't sound the same does it?

tarnalberry Community Regular
tarnalberry
Posted

I never liked Krispy Kreme. They opened one near my college when I was a junior, and a bunch of friends and I went out there, and I'm sitting in the back seat holding the fresh donuts, and they're all scarfing them down, and I tried one of them, and said... "ugh... it's like sugared grease". They all said "more for us!". :-P

CeliaCruz Rookie
CeliaCruz
Posted

My local deli has started selling peanut butter and jelly sandwiches. They literally make them up in the morning and then place them in the glass display case right next to the corn muffins, black and white cookies etc. I have never had THAT much of a problem abstaining from gluten. When I gluten myself it's usually accidental or forgetfullness -- not a temptation issue. But these sandwiches....on white bread. It's all I can do to keep from licking the glass.

StrongerToday Enthusiast
StrongerToday
Posted

There's this little Itallian hole in the wall place by me, the owner is straight from Italy - his accent alone is worth going ;) .... but oh, I so miss the Gnocchi Sorrento with extra garlicy bread. (drooling!)

The Jimmy Johns turkey avacado sam'which. McDonalds.

Sigh....

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
There's this little Itallian hole in the wall place by me, the owner is straight from Italy - his accent alone is worth going ;) .... but oh, I so miss the Gnocchi Sorrento with extra garlicy bread. (drooling!)

Sigh....

I miss Italian food and my family! Never liked Krispy Kreme donuts hard-like-rock. Yuck! Give me a cannolli and capuccino anyday! Just not today... :lol:

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Cannolli -- forgot about that -- mmmmmmm....... Also, if you have Pannera Bread -- they used to make, only in the summer time, Peanut Butter & Banana bagels. Man, they were good! It was like eating bread, nuts and candy with cream cheese -- what a bonus! I miss California Kitchen's Thai Chicken Pizza. We used to get those in (they sell them now at Kroger), and just the smell of them in the oven . . . it was great!

I used to make homemade yeast rolls from my grandmother's (and her mother's, and her mother's) recipe. They were like the ones you get in the restaurants, only better. Yum . . . . Okay, gotta stop talking about this . . . I've been very stringent for -- I don't know anymore -- but it has to be at least 8 months -- so I'm not going to tempt myself. Going to get some Annie Chun's pseudo-ramen noodles!

francelajoie Explorer
francelajoie
Posted
I never liked Krispy Kreme. They opened one near my college when I was a junior, and a bunch of friends and I went out there, and I'm sitting in the back seat holding the fresh donuts, and they're all scarfing them down, and I tried one of them, and said... "ugh... it's like sugared grease". They all said "more for us!". :-P

I'm with ya there. I moved to the States last year and always wanted to try them cause it's all everybody could talk about. Well, was I ever disappointed. It's was so disgusting. I had one bite and that was it. Thought I had swallowed raw sugar glazed dough. So heavy.

CMCM Rising Star
CMCM
Posted

I actually don't seem to be having uncontrollable cravings at this point in time. But distilling things down to my top favorites, it would be 1) The fabulous bear claws from a local bakery...to die for! 2) Krispy Kreme plain glazed donuts (sigh) 2) cake donuts with either chocolate or maple frosting 3) pizza (smelling it is torture).

Most other things I'm OK living without. Before going on this diet I had really eliminated most bad stuff from my diet because I felt so bad, so as a result, I didn't have any big withdrawal from anything. Even though I love all the stuff mentioned above, there was always a big price to pay for eating it, so that tempered my cravings quite a bit! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,874
    • Most Online (within 30 mins)
      7,748
    LeeD
    Newest Member
    LeeD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...