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Finding Money For Endoscopy Test

oaktownboy

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oaktownboy Newbie
oaktownboy
Posted

my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

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mmaccartney Explorer
mmaccartney
Posted
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Why won't they cover it??? If a doctor that is part of their "plan" deems it as medically necesarry, aren't they required to cover it?? (Mine did, but I still had to cough up 20% of the cost as I have an 80/20 plan....)

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Call, complain and B**** like heck. Then write a letter stating that, should there be a significant problem that worsens because they won't cover the necessary testing your doctor requested, you will hold them responsible and will report it to all the news statios and your newpaper. That should do it. Trust me.

floridanative Community Regular
floridanative
Posted

tiredofdoctors is right. Raise total cain until someone gets a grip and lets you have the test. I have come to find out that there is not much worse in our culture than insurance companies. They are the driving force behind all the bad medicine we are all experiencing - from everything to sinus infections to Celiac disease being misdiagnosed.

For my biopsy I was told I had a $250 co-pay but then I switched docs to have the test. New doc says I only have a reg. specialist co-pay. Both my insurance company and the hospital where I had the test say I don't have to pay anything upon arrival, and I only have the $35 co-pay to the doc. This did not seem right so I called my insurance company again and they said since I'm now having the test in the hospital, I had no co-pay. So now three months later I get a bill for $250 co-pay. Oh and of course I have already paid the doc $35 and I had to have the test at 1 pm when I felt like jerking my iv out to drink it and was starving. All this to save $250.....which of course I didn't save and apparently, this way I'm paying $285 when you include the doc's co-pay. How people who own insurance companies sleep at night - I'll never know!!!!!!!!!!!!!!!! :angry:

cultureslayer Rookie
cultureslayer
Posted

IF it's just to confirm the diagnosis, I've skipped it. I work in a medical field and I don't trust doctors. They give me enough crap when I'm awake, no way they are putting me under for anything less than major surgery.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

As far as being put to sleep, they didn't give me enough "juice" -- I was awake for the endoscopy and the colonscopy -- including polyp removal. I kept moaning to try to tell them that I could feel it -- they saw me watching it on the television screen :huh:

When it was over, I quoted exactly what the doctor said. The one nurse looked at the other and said, "She wasn't out NEARLY as much as we thought she was." DUH . . . . Didn't the sounds I made each time he cut give them a hint????? <_<

cultureslayer Rookie
cultureslayer
Posted

Yeah, I am one of those people that require an exceptional amount of anesthesia (my body processes it quickly obviously). I could definitely see that happening to me.

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tiredofdoctors Enthusiast
tiredofdoctors
Posted

That was the THIRD time it has happened to me. One time, it was when I was medically paralyzed, and I couldn't move anything to tell them that I was AWAKE! Yuck. I really didn't like that too much.

cultureslayer Rookie
cultureslayer
Posted

Ugh. I always tell them (even when I'm going in for a filling) that I'm hard to anesthetize and will take more than they think I should. It's also hard to get Drs to take me seriously when I complain of any pain because I don't take motrin. It takes about 1.5 to 2x the max suggested dose to do anything worth taking a pill for, and at that point I start to feel strange. Otherwise it just takes the edge off of light soreness.

CMCM Rising Star
CMCM
Posted
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Is there a particular reason for an endoscopy, other than wanting "to know for sure"??? Why not just handle it yourself by going thru Enterolab....get the full panel gluten sensitivity test for $369 and you'll find out if you have antibody reactions going on, malabsorption, casein sensitivity, and a gene test is thrown in as well. Together with the knowledge you get from this easy to do test, you can then follow the diet for awhile to see how you do. Ultimately, the treatment for this is the diet and the doctors, after spending a ton of your money on all this often-vague and inaccurate testing, will just tell you to go on a gluten free diet and that's that. They're rarely any help in that part of things. For myself, I saw no reason whatsoever to support an inept and clueless medical system with lots of my hard earned $$$.....far more than the $369 I spent at Enterolab, that's for sure. I learned what I wanted to know very easily and cheaply. If you read this board thoroughly, you will find a LOT of people who went the traditional clueless doctor route and spent a LOT of money, time and continued suffering, only to eventually in desperation go to Enterolab to get their answers. By the way, you can bet $$ that your doctor will know nothing about Enterolab. Doctors aren't very cutting edge in most cases. If they haven't personally had experience with a condition, then in their minds it might not exist. Go to www.enterolab.com and do some reading....lots of information there about their testing and ideas about celiac disease.

oaktownboy Newbie
oaktownboy
Posted
  • Author

i have been on the gluten free diet for a couple months now and i keep getting worse and worse. my intestinal problems continue..i have no hope left..that's why i need the test..

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    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
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