Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Tell Others When Eating Out?


cultureslayer

Recommended Posts

cultureslayer Rookie

Since there's not enough hours in the day, it's common to discuss projects over lunch. Since my doctor won't say: Yes, you definitely have celiac (positive IgG AGA but the rest were negative), I haven't really told anyone unless asked. So when you're eating out with someone that doesn't know you have celiac, do you warn them a few days ahead of time (so you can pick a restaurant and call to find out what your options are), before you order, or when they ask why you're just having a salad and seem militant about the no croutons part?

Sometimes I'll go riding for a day with some friends and we'll stop at some random hole in the wall restaurant when everyone gets hungry (no chance to call ahead) so that's pretty obvious. Just fill the tank bag with a back up lunch, but when I have the opportunity to call ahead I'm not sure if it's worth the effort (since some places just don't understand anyway).

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

For me, it usually depends on the situation.

If there's room/time to negotiate a place, I'll state it upfront, so that I can ask that we look for a thai place or a sushi place or something like that, so I can maximize my chances of finding something safe to eat. In a case like that, I'll say something like "I've got food intolerances that make eating out rather challenging, can we look for *this type* of food, as it'll make it much more likely I'll be able to find something that won't make me sick?" If they ask more detail, I'll be direct, but focused, saying "I'm gluten intolerant, so I can't have wheat, barely, rye, or oats. That particular type of cuisine tends to have dishes that don't use flour, or soy sauce (like Chinese food would), or breading, and so on. They'll likely have a rice dish or a salad or a grilled meat that I can have." Additional questions can be answered as they come up, again, directly, but in a focused manner.

If there isn't much option, and there's, say, just that one last restaurant for the next 60 miles on the stretch of freeway you're on, then I'll talk to the waitperson, asking he/she take my order last, after I've had a good chance to review the menu, and talk to them discreetly about ordering. After that, I'll usually get a few questions, and again, I answer directly, and in a focused manner - answering the question honestly, without rambling, but without embelishing. I'll get the "What happens if you eat a little bit of it?" question, and I'll answer honestly, but focusedly, "It causes an auto-immune reaction that damages my intestines, and additionally, I feel dizzy quickly, then nauseaous and bloated and gassy, and spend far too much time in the bathroom for the rest of the week." (I do generally opt to avoid the words constipation and diahhrea at the lunch table... ;-) ) I find that if I stick to answering questions openly, and politely, but without going on and on about it, they find out what they need/want to know, and I don't have to talk about it for five hours.

mouse Enthusiast

When we go out to dinner with friends and even friends with their friends, I give them a choice of MY restaurants and no one has had a problem with that. If they want pizza we go to a gluten-free pizza place. If they want Chinese we go to PF Changs. Same with Italian or whatever. I control where we eat. Either they want our company or they don't. I know that sounds harsh, but I do not care to get sick. Really everyone has been great about it. And the food has always been great so no complaints in that department.

cultureslayer Rookie

I refuse to make my problem someone else's (a.k.a. demand that I pick the place) but it does sound like trying to pick ahead of time can't hurt.

When out on the motorcycle the whole point is to find some empty twisty roads in the middle of nowhere, so I'm just going to bring my own food rather than risk problems (drowsiness is not good at 60mph, trust me).

tiredofdoctors Enthusiast

I usually just make the best of the situation. If there's a restaurant close that I know is gluten-informed, I'll suggest that. If not, I just ask for a salad, but I sound like Sally on "When Harry Met Sally"! :lol: I say, I'd like a bed of greens, including spinach. Do you have hard boiled eggs? That would be nice. Do you have cucumbers? Are they marinated in anything? No? Oh, that would be nice. Do you have tomatoes? I'd like those. Do you have Bacon? Is it real or is it imitation? Imitation, oh no thanks. (or Real -- GREAT!) and on, and on . . . then when they ask me what kind of dressing, I say, Oh , I'll just use salt & pepper.

I have always been one of these -- order off the menu, pick your side dishes, don't ask for anything special. This ordering thing is a totally new experience! If I tell the waiter up front what the problem is, though, they're pretty nice. It works! :P

StrongerToday Enthusiast

I'd either plan my own "picnic" or when in doubt i look for a place where I can get eggs and bacon.

NicoleAJ Enthusiast

All of my friends already know and are accomodating--so much so that if they bring along people I'm unfamiliar with often they'll inform their friend rather than waiting for me to do it. But for work related things, I usually don't make a big deal about things in advance. I'll make suggestions, but if we end up at an iffy place, I just explain my problem to the waiter and then I'll handle the people at the table. I try to get a read on what would be acceptable in that circumstance--if it's a professional conference where I don't know anyone, I'll usually try to answer the humorously by saying, "yeah, I've got one of the trendiest diseases around--definitely a low-carb lifestyle." If they ask what it does to me and I'm totally unfamiliar with them, I don't even want to mention GI issues, so I'll just say with a completely straight face, something totally innocuous like, "Well, Bob, my arm just spontaneously falls off, and it's usually my left one, so since you're on my left-hand side, you may want to watch out," and then they give you a look of confusion/amusement, and I've diverted their attention enough to say, "it's just unpleasant." If sarcasm doesn't seem an appropriate response to the "what does it do to you?" question, then I'll just say that it's temporarily debilitating and can have serious medical consequences for me in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.