Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Tell Others When Eating Out?


cultureslayer

Recommended Posts

cultureslayer Rookie

Since there's not enough hours in the day, it's common to discuss projects over lunch. Since my doctor won't say: Yes, you definitely have celiac (positive IgG AGA but the rest were negative), I haven't really told anyone unless asked. So when you're eating out with someone that doesn't know you have celiac, do you warn them a few days ahead of time (so you can pick a restaurant and call to find out what your options are), before you order, or when they ask why you're just having a salad and seem militant about the no croutons part?

Sometimes I'll go riding for a day with some friends and we'll stop at some random hole in the wall restaurant when everyone gets hungry (no chance to call ahead) so that's pretty obvious. Just fill the tank bag with a back up lunch, but when I have the opportunity to call ahead I'm not sure if it's worth the effort (since some places just don't understand anyway).

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

For me, it usually depends on the situation.

If there's room/time to negotiate a place, I'll state it upfront, so that I can ask that we look for a thai place or a sushi place or something like that, so I can maximize my chances of finding something safe to eat. In a case like that, I'll say something like "I've got food intolerances that make eating out rather challenging, can we look for *this type* of food, as it'll make it much more likely I'll be able to find something that won't make me sick?" If they ask more detail, I'll be direct, but focused, saying "I'm gluten intolerant, so I can't have wheat, barely, rye, or oats. That particular type of cuisine tends to have dishes that don't use flour, or soy sauce (like Chinese food would), or breading, and so on. They'll likely have a rice dish or a salad or a grilled meat that I can have." Additional questions can be answered as they come up, again, directly, but in a focused manner.

If there isn't much option, and there's, say, just that one last restaurant for the next 60 miles on the stretch of freeway you're on, then I'll talk to the waitperson, asking he/she take my order last, after I've had a good chance to review the menu, and talk to them discreetly about ordering. After that, I'll usually get a few questions, and again, I answer directly, and in a focused manner - answering the question honestly, without rambling, but without embelishing. I'll get the "What happens if you eat a little bit of it?" question, and I'll answer honestly, but focusedly, "It causes an auto-immune reaction that damages my intestines, and additionally, I feel dizzy quickly, then nauseaous and bloated and gassy, and spend far too much time in the bathroom for the rest of the week." (I do generally opt to avoid the words constipation and diahhrea at the lunch table... ;-) ) I find that if I stick to answering questions openly, and politely, but without going on and on about it, they find out what they need/want to know, and I don't have to talk about it for five hours.

mouse Enthusiast

When we go out to dinner with friends and even friends with their friends, I give them a choice of MY restaurants and no one has had a problem with that. If they want pizza we go to a gluten-free pizza place. If they want Chinese we go to PF Changs. Same with Italian or whatever. I control where we eat. Either they want our company or they don't. I know that sounds harsh, but I do not care to get sick. Really everyone has been great about it. And the food has always been great so no complaints in that department.

cultureslayer Rookie

I refuse to make my problem someone else's (a.k.a. demand that I pick the place) but it does sound like trying to pick ahead of time can't hurt.

When out on the motorcycle the whole point is to find some empty twisty roads in the middle of nowhere, so I'm just going to bring my own food rather than risk problems (drowsiness is not good at 60mph, trust me).

tiredofdoctors Enthusiast

I usually just make the best of the situation. If there's a restaurant close that I know is gluten-informed, I'll suggest that. If not, I just ask for a salad, but I sound like Sally on "When Harry Met Sally"! :lol: I say, I'd like a bed of greens, including spinach. Do you have hard boiled eggs? That would be nice. Do you have cucumbers? Are they marinated in anything? No? Oh, that would be nice. Do you have tomatoes? I'd like those. Do you have Bacon? Is it real or is it imitation? Imitation, oh no thanks. (or Real -- GREAT!) and on, and on . . . then when they ask me what kind of dressing, I say, Oh , I'll just use salt & pepper.

I have always been one of these -- order off the menu, pick your side dishes, don't ask for anything special. This ordering thing is a totally new experience! If I tell the waiter up front what the problem is, though, they're pretty nice. It works! :P

StrongerToday Enthusiast

I'd either plan my own "picnic" or when in doubt i look for a place where I can get eggs and bacon.

NicoleAJ Enthusiast

All of my friends already know and are accomodating--so much so that if they bring along people I'm unfamiliar with often they'll inform their friend rather than waiting for me to do it. But for work related things, I usually don't make a big deal about things in advance. I'll make suggestions, but if we end up at an iffy place, I just explain my problem to the waiter and then I'll handle the people at the table. I try to get a read on what would be acceptable in that circumstance--if it's a professional conference where I don't know anyone, I'll usually try to answer the humorously by saying, "yeah, I've got one of the trendiest diseases around--definitely a low-carb lifestyle." If they ask what it does to me and I'm totally unfamiliar with them, I don't even want to mention GI issues, so I'll just say with a completely straight face, something totally innocuous like, "Well, Bob, my arm just spontaneously falls off, and it's usually my left one, so since you're on my left-hand side, you may want to watch out," and then they give you a look of confusion/amusement, and I've diverted their attention enough to say, "it's just unpleasant." If sarcasm doesn't seem an appropriate response to the "what does it do to you?" question, then I'll just say that it's temporarily debilitating and can have serious medical consequences for me in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    2. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    4. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    5. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac. (This was the same GP who said Dad didn't have dementia, when months before one of his colleagues suspected it and told me Dad must be diagnosed).  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.