Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do When You Get Glutened?


coco-loco

Recommended Posts

coco-loco Rookie

Hey, don't this'll be as fun as my other topic!

I've managed to eat some gluten (yet again!) within the last 48 hours. I've had minimal D but quite a lot of gas/bloating/funny noises in my tummy and I'm brain-fogged and down.

I was wondering if any of you know of any helpful action to take rather than just waiting to get over it? I've taken vitamins, echinacea, acidophilus and aloe vera juice (as I do every day) but they don't seem a huge help. Sometimes, when I get really bad D I want to take Imodium but I would have thought that would just keep the gluten in my system longer, potentially doing more damage. Right now, I'd love a dose of colonic irrigation- I've never tried it, but I've started dreaming about it! I wondered if anyone knew of any preparation which helps when you get glutened, and which is a bit more practical in the short term than a colonic!

Thanks for sharing x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
penguin Community Regular

I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

Also a healthy dose of my bentyl and some tylenol help the tummy. I would say immodium is fine.

cgilsing Enthusiast

I wish I had better advice for this one.....I generally end up just suffering through it, but I know some people swear by anything with ginger.....if you get D immodium will help.......and there has been discussion about nuleve for cramping. Hope you feel better soon!

coco-loco Rookie

Thank you both! I wasn't sure red bull was gluten-free, I'll try some. I might mention those drugs to my doctor when I next see him.

I've heard a lot about ginger. That's an old Indian remedy for an upset stomach. I'll have a go. :)

GreySaber Apprentice

I carry cards of immodium in my wallet.

There is a solution which I call the "Roto rooter" technique.

Basically, you eat WAY TOO DAMN MUCH FIBER, and keep eating it. It's like.... ramming a toilet plunger through a garden hose. pushes everything before it. A very large bowl of brown rice seems to work.

odcdinah Contributor

So the fiber helps you combat the glutening effect?

]

cgilsing Enthusiast

I've tried fiber before and it didn't do anything for me once I already had C. A Dr. told me that fiber can actually have the opposite affect if you are already C too......I would procede with caution.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

echinacea, if you've been glutened, may not be a good idea, since you are boosting you're immune system, but it's an immune response gone awry that's the problem.

coco-loco Rookie
echinacea, if you've been glutened, may not be a good idea, since you are boosting you're immune system, but it's an immune response gone awry that's the problem.

Ooooh! Good point!! Think I'll try fibre as suggested.

ms-sillyak-screwed Enthusiast
I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

Also a healthy dose of my bentyl and some tylenol help the tummy. I would say immodium is fine.

NUTRITION FACTS & INGREDIENTS

Red Bull Energy Drink

Ingredients: carbonated water, sucrose, glucose, sodium citrate, taurine, glucuronolactone, caffeine, inositol, niacin, D-pantothenol, pyridoxine HCL, vitamin B12, artificial flavours, colors

Nutrition Facts: Serving Size: 8.3 fl. oz Servings per Container: 1 Amount per serving: Calories: 110 Total Fat: 0g Sodium: 200mg Protein: 0g Total Carbohydrates: 28g Sugars: 27g

Red Bull Sugar Free

Ingredients: carbonated water, sodium citrate, taurine, glucuronolactone, caffeine, acesulfame k, aspartame, inositol, xanthan gum, niacinamide, calcium pantothenate, pyridoxine hcl, vitamin b12, artificial flavors, colors

Nutrition Facts: serving size 1 can; calories 10; fat 0g; sodium 200mg; total carb 3g; sugars og; protein less than 1g; niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50%

RED BULL WILL MAKE ME VIOLENTLY SICK. I SEE WHY!

I've heard a lot about ginger. That's an old Indian remedy for an upset stomach. I'll have a go. :)

GINGER MAKES THINGS WORSE FOR ME.

SIMPLE IS BETTER IN MY CASE. I POP A COUPLE IMMODIUM PILLS OR LIQUID, AND THEN I DRINK A BOTTLE OF PEDILYTE. PEDILYTE IS THE SAFEST WAY TO REPLACE YOUR LOST ELECTROLYTES LOST FROM STEATORRHEA-DIARRHEA. A SMART DOCTOR WILL TELL YOU THAT. IT HAS HELPED ME MORE THEN ANYTHING! TRY IT -- YOU'LL SEE...

coco-loco Rookie

Ms Sillyak: What's pedilyte? I had to google it. Is it something to do with infants, something meant to help babies? (I'm in Britain- never heard of it). Thanks for the advice, though. It's very welcome! X

ms-sillyak-screwed Enthusiast
Ms Sillyak: What's pedilyte? I had to google it. Is it something to do with infants, something meant to help babies? (I'm in Britain- never heard of it). Thanks for the advice, though. It's very welcome! X

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

This stuff is a life saver for me. If I'm laying on the bathroon floor after a seizure and steatorrhea diarrhea that has me weak and frail I drink this stuff. It's like a miracle treatment. I keep a bottle un-opened under my bathrrom sink, so I can get to it easy from the floor. When I feel like I'm shaky, or weak or like I have no blood in my veins, this perfoms miracles for me.

Yes, it's for babies. Some other companies make it in the health-food stores, but they have additive I don't want. The one I drink is the un-flavored one (clear). This is better at replacing electrolytes, more so then gatorade or sports drinks. It's expensive $4 or $5 a bottle. But it really really works. TRY IT!

coco-loco Rookie

Thank you! I'll see if I can get hold of some. Take care. X :)

Guest nini

I got glutened yesterday and today I was craving bread... so I made gluten free pantry muffins (added banana's for potassium) and then for lunch had brown rice and steamed broccoli... I've been drinking a ton of water... the "D" seems to have stopped but now I am all crampy and bloated and freakin ITCHY!!! at first I couldn't see a rash but now I've got a visible bumpy rash all over my body...

GreySaber Apprentice

Actually the idea of the heavy fiber to is push everything out of your intestines as quickly as possible. Something like a couple of bowls of brown rice will do that. It won't clean the blood, but the sooner it's out of your intestines the better.

Matilda Enthusiast

..

Alexandra Newbie

A mom whose blog I read posted the following recipe for homemade Pedialyte. She and her DH came up with this by reading labels (and maybe the internet), to save money -- because what pedialyte actually is, is cheap if you mix it yourself. Obviously this might or might not be worth fooling with (and I'm not sure if it would keep unrefrigerated forever), but FWIW (the below is almost verbatim from her blog) --

---------

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

----------

Your mileage may vary!

-- Alexandra

Guest BERNESES

it depends on what your symptoms are- for me, it's usually nausea, vomiting, headaches, constipation and mood swings. I take Tylenol for the headaches, this stuff called Ipecachuana for the nausea (i used to take Phenergan but it was WAY too constipating). I may also take a little extra anxiety medicine and if I get really "stopped" up i take this stuff called CleanseMore by a company called Lame Advertisement.

I also make ssure I eat- rice, gluten-free toast, something mellow. I don't feel like eating but I feel worse if I don't.

it depends on what your symptoms are- for me, it's usually nausea, vomiting, headaches, constipation and mood swings. I take Tylenol for the headaches, this stuff called Ipecachuana for the nausea (i used to take Phenergan but it was WAY too constipating). I may also take a little extra anxiety medicine and if I get really "stopped" up i take this stuff called CleanseMore by a company called Lame Advertisement.

I also make ssure I eat- rice, gluten-free toast, something mellow. I don't feel like eating but I feel worse if I don't.

Matilda Enthusiast

..

Guest BERNESES

It's a homeopathic remedy made by a company called Boiron and I know that ipecac induces vomiting but this does the opposite for me. And the good thing is it doesn't constipate me or make me even more tired like the phenergan did.

eKatherine Rookie
A mom whose blog I read posted the following recipe for homemade Pedialyte. She and her DH came up with this by reading labels (and maybe the internet), to save money -- because what pedialyte actually is, is cheap if you mix it yourself. Obviously this might or might not be worth fooling with (and I'm not sure if it would keep unrefrigerated forever), but FWIW (the below is almost verbatim from her blog) --

---------

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

----------

Your mileage may vary!

-- Alexandra

Speaking of mileage varying...

The original research from which pedialyte later was developed was intended to produce a recipe for Oral Rehydration Therapy that mothers in the third world could make themselves to use to save the lives of their children with severe diarrhea. They found that any sort of sugar or soluble starch would work, with a lot of leeway on the proportions. I have never purchased the product. I have made my own from 1/2 teaspoon salt, 1 tablespoon sugar, and 1 quart of water.

whitball Explorer

When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad. Saturday, I had what I thought was a gluten free "Coco Loco" bar, and I was a mess. I was so desperate for a remedy, I took a Darvocet. In about 8 hours, I was in good enough shape to get out of bed. I'm not sure if this is for everyone, but it helped me.

GreySaber Apprentice
When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad. Saturday, I had what I thought was a gluten free "Coco Loco" bar, and I was a mess. I was so desperate for a remedy, I took a Darvocet. In about 8 hours, I was in good enough shape to get out of bed. I'm not sure if this is for everyone, but it helped me.

I hear stories like this, and I wonder if celiac is what I have. I get mild-medium intestial discomfort, and about 30 very distinct kinds of bad poo. I can describe, (But won't) atleast 10 kinds of bad poo off the top of my head. And I think I have it bad, and then someone comes along with symptoms so far in excess of mine that it makes me ponder if it's the same illiness.

Even so, I hate my poo.

ms-sillyak-screwed Enthusiast
I always drink a red bull at the first sign of glutening (I'm having one now!). The caffene brings the energy up to a halfway decent level, and all the b-vitamins help the brainfog. Immediatley after glutening, it's my best weapon. I'm sure the niacin does something good, too. I have problems taking regular vitamins, so it really works for me.

I looked at the vitmins in RED BULL and I was suprised. -- niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50% -- I know when I get a B-12 shot, it has folic acid and pantothenic acid too. The pantothenic acid makes a big difference for me. Like ChelsE said the caffene lifts her energy.

I can see how it works. I'm just hypersenstive and am extremely limited and cautious about the natural flavor and natural ingredents, they hide so much there that makes us sick and we don't know it until later.

I carry cards of immodium in my wallet.

I do the same thing - along with an anti colon-spazm pills.

This isn't a repair stategy, but something I considered doing today to try to prevent someone scattering pizza and doughnut crumbs around the kitchen with gay abandon - I seriously considered asking my DH to look in the toilet before I flushed it. I didn't do it. But ... I really feel like saying "Look!!! See how abnormal this is!!! How do you think I feel with that coming out of my bottom???"

Matilda -- Honestly I like the way you think. I think we should show them -- I know I feel the same way!

It's called steatorrhea diarrhea: fat in the feces which are frothy and foul smelling and floating; a symptom of disorders of fat metabolism and malabsorption syndrome. Foul-smelling loose bulky pale stool... People who don't have this have no-idea what we go through!

Basics: Mix --

one level teaspoon of salt

eight level teaspoons of sugar

one liter of clean drinking water

Among its medically useful ingredients, Pedialyte also contains sodium citrate, one of the components of citric acid, and potassium. If your child can keep food down without vomiting you can supplement your homebrew with some mashed banana at mealtimes; if not, you can add 1/2 c. orange juice to the homemade solution.

We found that adding

3 tablespoons of Splenda

1 packet unsweetened Kool-Aid, fruit punch flavor

...improved the flavor's drinkability, as seen from a toddler's perspective.

Sounds good -- but watch out for words like natural ingredients or natural flavors. They are allowed to trick us using those words they hide. Kool-Aid is is no no for me. And Spenda triggers my migraines... But your recipe for homemade Pedialyte looks safe. Thanx

Also one other thing I don't know if any of you follow that school of thought. DISTILED WATER ONLY. I noticed a big difference only drinking distilled water instead of spring water. It has too many minerals our sick bodies don't need to process. Other people have said they feel better with distilled too.

When I get glutened, I suffer severe abdominal pain. I'm doubled over, in bed and usually end up just sobbing because it hurts so bad.

I know your pain...

I hear stories like this, and I wonder if celiac is what I have. I get mild-medium intestial discomfort, and about 30 very distinct kinds of bad poo. I can describe, (But won't) atleast 10 kinds of bad poo off the top of my head......

Even so, I hate my poo.

People have no idea what it's like and we all have varing degrees over time...

Life with ste·a·tor·rhe·a!

penguin Community Regular
I looked at the vitmins in RED BULL and I was suprised. -- niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50% -- I know when I get a B-12 shot, it has folic acid and pantothenic acid too. The pantothenic acid makes a big difference for me. Like ChelsE said the caffene lifts her energy.

I can see how it works. I'm just hypersenstive and am extremely limited and cautious about the natural flavor and natural ingredents, they hide so much there that makes us sick and we don't know it until later.

With all of your other intolerances, I would definitely try to figure out what is in the natural flavors. I can tell you with certainty that Red Bull is gluten-free, but I don't know about everything else.

One crisis at a time, for me anyway!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,144
    • Most Online (within 30 mins)
      7,748

    Nicole zake
    Newest Member
    Nicole zake
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Brianne03
      My daughter was recently diagnosed with Celiac; my results are questionable and I have an appointment scheduled to see a GI doctor to further discuss. I have so many odd, ongoing symptoms that could possibly be gluten related, although who really knows!! I am considering going gluten-free whether a Celiac diagnosis is confirmed or not, just to see if there are any improvements with my dermatitis, mouth sores, aching and chronically cold hands, tingling in hands and feet, random joint pains, etc.  What are the advantages vs. disadvantages of having an official Celiac diagnosis? For instance, will it affect life insurance policies, medical insurance rates? What have you personally experienced with or without an official diagnosis? I'm almost afraid there will be more hinderances and hardships if an official diagnosis is given, but maybe I am way off base and missing the positives altogether. We are located in the US. Thank you!
    • MHavoc
      Thank you all for the reply posts.  Yes, the constipation has abated.  I am not sure whether its due to having changed to a gluten-free diet or not, but I do think that there is a reasonable correlation.  I know that I will get over this eventually, but I am finding it hard not to lament missing all of my favorite foods that contain gluten.  Certainly, my health comes first... I guess I never realized how many things contain some element of wheat.  My sister has been living with celiac disease for most of her life, so I have someone who will share her favorite recipes. The next step for me will be my appointment with a Gastroenterologist for the Celiac Team... I hope everyone has a safe and wonderful Thanksgiving!
    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
×
×
  • Create New...