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- trents replied to Eldene's topic in Food Intolerance & Leaky Gut22Oats gluten free?
Welcome to the forum, @PA Painter! Are the oats you are using either gluten free or GFCO certified gluten free? It is not well-known but there are certain cultivars of oats that contain gluten. If you are using mainstream food industry oat brands there are two threats: 1. cross contamination from other grains containing gluten in the fields, in... -
- trents replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Recent blood test results check in - TTG- IGA
First, the IGA score of 415 probably refers to what we call "Total IGA" rather than a specific IGA test for celiac disease per se. Physicians should always order this test along with other IGA tests to look for IGA deficiency. Total IGA checks for IGA deficiency. If you are IGA deficient, then other IGA tests will be artificially low and false negatives can... -
- PA Painter replied to Eldene's topic in Food Intolerance & Leaky Gut22Oats gluten free?
I have non celiac sensitivity. I used to eat oatmeal with no problem. It causes a three day nightmare just as if it were wheat now. I seem to be an extremely sensitive case though. -
- thejayland10 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Recent blood test results check in - TTG- IGA
Hello, I was diagnosed around age 10 with Celiac via endoscopy. I have been on a gluten-free diet ever since and have been taking my gluten-free diet way more seriously then I used to for the last 5 years. I only eat out at dedicated gluten-free places or make food at home. I had not had blood work done for celiac since diagnosis and I checked... -
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Welcome to the forum, @PA Painter! Are the oats you are using either gluten free or GFCO certified gluten free? It is not well-known but there are certain cultivars of oats that contain gluten. If you are using mainstream food industry oat brands there are two threats: 1. cross contamination from other grains containing gluten in the fields, in transport, in storage, in processing, etc. and 2. that gluten-containing cultivars of wheat were used. And, yes, sensitivity levels can change over time.
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First, the IGA score of 415 probably refers to what we call "Total IGA" rather than a specific IGA test for celiac disease per se. Physicians should always order this test along with other IGA tests to look for IGA deficiency. Total IGA checks for IGA deficiency. If you are IGA deficient, then other IGA tests will be artificially low and false negatives can result. You didn't included a scale along with the raw test score for the total IGA so I can't say for sure but it looks a little on the high side. Can you post back and include the scale for that? Or, was there a qualitative comment that came with that one like "High"? So, the long and short of this one is that it is not a test for celiac disease per se. A high value for total IGA can indicate other health problems, however and you may want to google that. Your TTG-IGA is barely out of the normal range and likely indicates some hidden gluten contamination in your life. If you eat out, you can expect to get some gluten even when you order the gluten free items from the menu since most eateries don't guard against cross contamination. They cook their gluten free food on the same surfaces and in the same pots and pans as their gluten free food and handle them with the same utensils. It is also possible to be getting some gluten from meds, pills and oral hygiene products. But one thing I don't understand. How can you assume your test values are fluctuating when you don't mention that you have any other lab result score to compare the recent ones to? You were 10 when that was done. How long ago was that. If you haven't been tested since then, what do you have for comparison to say there is fluctuation? This might be helpful: and this:
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By PA Painter · Posted
I have non celiac sensitivity. I used to eat oatmeal with no problem. It causes a three day nightmare just as if it were wheat now. I seem to be an extremely sensitive case though. -
By thejayland10 · Posted
Hello, I was diagnosed around age 10 with Celiac via endoscopy. I have been on a gluten-free diet ever since and have been taking my gluten-free diet way more seriously then I used to for the last 5 years. I only eat out at dedicated gluten-free places or make food at home. I had not had blood work done for celiac since diagnosis and I checked in with a GI doctor as my primary care isn't a specialist. I was very surprised to see my IGA was 415 and my TTG IGA was 16 (Lab said over 15 is positive for antibody). My Endomysial Antibody SCR was negative and all my vitamin levels were normal. I am meeting with a dietician next week but I am a bit stressed with these results now wondering if I have been somehow wearing gluten without knowing or if something else is going on. Is it normal for IGA and TTG IGA to fluctuate like this ? -
Thank you so much! I appreciate it, I was thinking the same thing so I guess it's just waiting for the biopsy results now! Thanks again!
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