Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Week Test


Lister

Recommended Posts

Lister Rising Star

So my doctor has desided to put me on a gluten free diet for 1 week to see how my body reacts to it, if its a positive reaction then he is going to want to do a followup for blood work, he acually knows what he is talking about and knows that i would have to go back onto gluten prior to the test, My consern is if i do acually have CC will going back to eating gluten give me a risk of permanet damage or death? i have herd of people saying that they will die if they have gluten even though i dont think i am near that bad even though i guess i really dont know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, this is the problem with your doctor's thinking:

If you have been off gluten for any length of time (that is more than a couple of weeks) your villi may have healed by now. For your blood test (and especially for a biopsy) to come out positive for celiac disease, you may have to be back on gluten for up to a year.

So, eating gluten again is a valuable tool, because if you react badly you know you can't handle it. It is not likely that it will kill you to do that, only if you keep eating gluten after you start reacting you could get really ill.

Go ahead and try purposely eating something containing gluten (like bread, or pasta, you might as well eat something you really like ;) ) and see how that makes you feel. If you get ill (and you won't necessarily get diarrhea, I don't any more, but I get a lot of other bad problems), you know that gluten is a definite problem. No bloodwork needed.

If you REALLY have constant CC, your bloodwork would show that NOW. Apparently, your doctor is not very knowledgable on celiac disease after all. And if you purposely eat gluten, then the bloodwork wouldn't give you the answer to the CC question any more.

So, he should do the bloodwork without a gluten challenge. If you test negative for celiac disease, that means that you don't have constant cross contamination, and need to look elsewhere for your problems (as in other intolerances).

ravenwoodglass Mentor
So my doctor has desided to put me on a gluten free diet for 1 week to see how my body reacts to it, if its a positive reaction then he is going to want to do a followup for blood work, he acually knows what he is talking about and knows that i would have to go back onto gluten prior to the test, My consern is if i do acually have CC will going back to eating gluten give me a risk of permanet damage or death? i have herd of people saying that they will die if they have gluten even though i dont think i am near that bad even though i guess i really dont know.

Have him do the blood test first and then try the diet for at least a month. One week is not enough time for many of us to see a difference for diagnostic purposes. And yes if you have celiac and continue to eat gluten it can result in some really nasty stuff. Get the blood test and then try the diet, he wants to do this backwards.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,794
    • Most Online (within 30 mins)
      7,748

    MarciO
    Newest Member
    MarciO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...