Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very New Member

Patty55

Recommended Posts

Patty55 Rookie
Patty55
Posted

Hello to everyone from whom I have learned so much in the past few days and thank you! Since going to Mexico 2 1/2 months ago I have been sick and sicker, finally hospitalized. CT of pelvis showed a lot of inflammations from pylorus to jejunum and I was given a probable diagnosis of Crohn's. Went home feeling weak on a low fiber diet. Started going online to different sites and forums. Spent a week with the Crohn's group (who REALLY have it bad) and did not feel this was the same. Then saw a 2nd Primary who has more on the ball & said why didn't they test for Celiac's or GB? So I just had the panel drawn & spent a day reading posts from people who have been driven to near insanity with the same strange symptoms I had. Since I had felt better on the low fiber diet but didn't realize I was avoiding wheat, it hit me after thinking it was ok to eat a sandwich with multigrained bread! All the weakness, malaise and pains were back again! I am so greatful to have read how much time it might or might not take to feel better! I don't care if the panel comes back negative now. I only know how immediately (well, within 12 hrs) I felt like my old self. I am hoping to schedule an endoscopy & colonoscopy with biopsies anyway, and will be trying to get a better fix on a gluten-free lifestyle. Thanks again! --Patty

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

welcome to the board, ask any question that may come up, no question is too silly or stupid, as we've all been there!

jenvan Collaborator
jenvan
Posted

Patty-

Welcome ! We are glad you're here. Please let us know when you get the final diagnosis. Also--if you have Crohn's (you can have both Crohn's and Celiac too), you should definitely read up on the SCD-Specific Carbohydrate diet. If its something you want to pursue at some point, there are quite a few here on the diet. It is a diet that restricts gluten in addition to most carbs--carbs that take the body longer to break down, thereby encouraging bacterial growth and balance upset in the gut. Below are some links to sites that explain the diet: Open Original Shared Link, Open Original Shared Link, Open Original Shared Link I like posting the amazon site for the book b/c there are about 160 reviews you can read--most of them all 4 stars and people who have experienced great improvement, healing or remission from Crohn's, Colitis, IBD...and Celiacs who have had improvement that made too slow of progress or incomplete recovery on the gluten free diet alone. If you have Celiac, the time for improvement really varies person to person--some feel better immediately, others it takes some months. Either way, the gluten free diet is totally doable...and if you have any questions or issues, you can ask away here.

jaten Enthusiast
jaten
Posted

Welcome! Sounds like whether you have Celiac or not, you're certainly gluten-intolerant. Whatever your tests reveal, welcome to this board and to the gluten-free life.

evie Rookie
evie
Posted

[ :rolleyes:

Welcome to a very helpful board!! I have been here less than a month but have learned so much that has made my bad days easier!! do not be too surprised if your biopsy does not show celiac but many of us are getting better on the gluten free diet. this is a very caring and helpful group, scott included. My blood tests showed a gluten problem 3 months ago and improvement has been slow for me. My dr. diagnosed me as "presumed celiac" until I go on gluten again and have another biopsy. Not sure i want to do that???

you came to the RIGHT place.. Again welcome newcomer!! evie :)

tarnalberry Community Regular
tarnalberry
Posted

welcome to the board!

mouse Enthusiast
mouse
Posted

Welcome to the board. I was gluten-free for over a year when I finally joined. I learned more here then the 300 plus hours of research that I had done prior to joining. This is a very helpful forum and ask away with any questions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Patty55 Rookie
Patty55
Posted
  • Author

Thank you so much the welcomes and I WILL be asking questions. Fortunately, you've answered some already before I thought of them! I went out and bought my first loaf of brown rice bread (as a life without sandwiches sounds messy) and pasta today. I feel like I have a new pet!

A little disappointed to learn that a biopsy, too, can be inconclusive for celiac, but I can figure no other reason to be having a pretty calm stomach, NO headaches or weakness in just two days. Can you tell me if a blood test for gluten is different from a celiac panel? Thanks also for the SDC diet and the Amazon sites! I can't believe anyone wouldn't need a book but have cut and pasted many recipes and shopping advice from this site already. :rolleyes:

Thanks again everyone!

Patty

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,692
    • Most Online (within 30 mins)
      7,748
    NICODE
    Newest Member
    NICODE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Not sure if this is Celiac or just a gluten-free intolerance

      By knitty kitty · Posted

      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
×
×
  • Create New...