Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Recommendation Of A Doctor In Nw Chicago Area


SamRent

Recommended Posts

SamRent Newbie

My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest greengirl
My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03

We live in Plainfield and I've just made an appointment for my daughter (11 yrs.) with Dr. Gokhale at University of Chicago. They have a pediatric and adult Celiac research program. We haven't met the doctor yet and the first appointment I could get was July 18th, but I know U of C is a top of the line institution.

Dr. Gokhale actually has an office in Palos Heights, which is a little closer for us - from Woodfield it might be just as easy to get to the U of C campus. Below is the link for the doctor's profile:

Open Original Shared Link

Let me know if you pursue this or if you find success with another doctor! It's always good to compare notes with someone local!

Christine

jenvan Collaborator

Good idea Christine--I was also going to recommend U of C celiac disease center. I'm sure it would be worth the drive--even as just an initial visit.

hlm34 Apprentice

There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Guest greengirl
There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Dr. Gokhale works with Dr. Guandalini. I made the appointment with her for my daughter because it was a longer wait for Guandalini. I'm hoping that since she's in the same department, she will also be very good.

What doctor do you see at U of C, and are you happy with him/her? I'd like to make an appointment for myself, as well. I was given the name of Dr. Carol Semrad.

Christine

FinsUp Rookie

My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

mouse Enthusiast

This is kind of an off shoot of the U of C, but New Grist beer was developed by one of the brewers after his father was diagnosed with Celiac at the U of C. When you talk to one of the owners of Lakefront Brewery they have nothing but praise for the U of C.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest greengirl
My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

Thanks for that information! I think I will cancel the appointment with Gokhale and make one with Guandalini, instead. The nurse would definitely be the one to know. It won't hurt to wait for an appointment since we don't really need a diagnosis -my daughter's enterolab results were very high and she's responded well to the Gluten-free Casein-free diet. Plus the Gokhale appointment falls smack dab in the middle of my husband's vacation time in mid-July!

Do you know anything about the adult celiac doctors at U of C? When I called I was given the name Carol Semrad, but I don't know anything about her.

Christine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bernade posted a topic in Related Issues & Disorders
      0

      Our bodies functions differently

    2. - Bernade replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs
      5

      My 16yr daughter was recently diagnosed

    3. - Bernade replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs
      5

      My 16yr daughter was recently diagnosed

    4. - knitty kitty replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs
      5

      My 16yr daughter was recently diagnosed

    5. - JuggaloDad replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs
      5

      My 16yr daughter was recently diagnosed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,189
    • Most Online (within 30 mins)
      7,748

    Kellik
    Newest Member
    Kellik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bernade
      Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues???
    • Bernade
      My daughter was diagnosed with autoimmune disease and has been gluten free for over 8 years it has been very challenging but it has been a wonderful experience and we together have learned a lot now we cook meals together go to places that are gluten friendly and honestly it’s is a lot easier than you think… everyone has there own journeys for sure never feel alone or down life has wonderful things that come along for more then we expect.💖
    • Bernade
      Honestly My daughter has been gluten free for more then 8 years I never understood it,she has a thyroid issue and gluten knocks her down awful 😞 so being a parent I’ve understood what it means. Now I have celiac disease and I tell you it has been very challenging but I have felt so so much more comfortable eating gluten free and understanding all the effects it can have. 
    • knitty kitty
      Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain.  Gluten in the brain can be attacked by tTg 6 antibodies.  This inflammation can cause ataxia.  TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and Parkinson's.  Serum Antibody tests for Celiac Disease check  for tTg 2 antibodies.  TTg 3 antibodies are found in Dermatitis Herpetiformis.   THC can dislodge gluten from the opioid receptors in the brain and body, taking gluten's place on the opioid receptor.  THC is then easier to remove from the opioid receptors than gluten.  THC is being used medically in opioid addiction cessation.  THC has other benefits such as calming mast cells so they don't release histamine.  Histamine release from mast cells causes inflammation and is part of the autoimmune reaction in Celiac.   Thiamine Vitamin B 1 is instrumental in brain and nerve health.  Opioid and THC use can deplete thiamine stores.  Malabsorption due to Celiac Disease can prevent those stores being replenished.   Early Thiamine deficiency disorder symptoms includes eating disorders such anorexia and bulimia.  Ataxia is improved with Thiamine.  Anxiety and depression are also improved with Thiamine.  Thiamine helps stop mast cells from degranulating and releasing histamine.  Gastroparesis and Gastrointestinal BeriBeri are improved with Thiamine.  Thiamine with Pyridoxine and Cobalamine have analgesic properties.  Thiamine in the form Benfotiamine promotes gastrointestinal health.  The form of Thiamine called TTFD (tetrahydrofurfuryl disulfide) helps immensely with the ataxia and neurological symptoms. Doctors undervalue the benefits of supplementation with essential nutrients in Celiac Disease.  Correction of nutritional deficiencies quickly in Celiac is important to health and recovery.  Most blood tests for vitamin deficiencies are not accurate.  None the less, discuss supplementing with doctors and nutritionists.   Do look into a low histamine Paleo Diet like the Autoimmune Protocol Diet developed by a Celiac, Dr. Sarah Ballentyne, shown to promote intestinal healing.  This is the diet that really improved my health along with supplementing the essential vitamins and minerals.   After struggling with Gastrointestinal BeriBeri, Ataxia and eating disorders myself, TTFD has made a world of difference.  My blog has more information.  I'm happy to share what I've learned on my journey.
    • JuggaloDad
      Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust  .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks
×
×
  • Create New...