Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Recommendation Of A Doctor In Nw Chicago Area

SamRent

By SamRent
in Doctors

Recommended Posts

SamRent Newbie
SamRent
Posted

My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest greengirl
Guest greengirl
Posted
My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03

We live in Plainfield and I've just made an appointment for my daughter (11 yrs.) with Dr. Gokhale at University of Chicago. They have a pediatric and adult Celiac research program. We haven't met the doctor yet and the first appointment I could get was July 18th, but I know U of C is a top of the line institution.

Dr. Gokhale actually has an office in Palos Heights, which is a little closer for us - from Woodfield it might be just as easy to get to the U of C campus. Below is the link for the doctor's profile:

Open Original Shared Link

Let me know if you pursue this or if you find success with another doctor! It's always good to compare notes with someone local!

Christine

jenvan Collaborator
jenvan
Posted

Good idea Christine--I was also going to recommend U of C celiac disease center. I'm sure it would be worth the drive--even as just an initial visit.

hlm34 Apprentice
hlm34
Posted

There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Guest greengirl
Guest greengirl
Posted
There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Dr. Gokhale works with Dr. Guandalini. I made the appointment with her for my daughter because it was a longer wait for Guandalini. I'm hoping that since she's in the same department, she will also be very good.

What doctor do you see at U of C, and are you happy with him/her? I'd like to make an appointment for myself, as well. I was given the name of Dr. Carol Semrad.

Christine

FinsUp Rookie
FinsUp
Posted

My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

mouse Enthusiast
mouse
Posted

This is kind of an off shoot of the U of C, but New Grist beer was developed by one of the brewers after his father was diagnosed with Celiac at the U of C. When you talk to one of the owners of Lakefront Brewery they have nothing but praise for the U of C.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest greengirl
Guest greengirl
Posted
My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

Thanks for that information! I think I will cancel the appointment with Gokhale and make one with Guandalini, instead. The nurse would definitely be the one to know. It won't hurt to wait for an appointment since we don't really need a diagnosis -my daughter's enterolab results were very high and she's responded well to the Gluten-free Casein-free diet. Plus the Gokhale appointment falls smack dab in the middle of my husband's vacation time in mid-July!

Do you know anything about the adult celiac doctors at U of C? When I called I was given the name Carol Semrad, but I don't know anything about her.

Christine

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,750
    • Most Online (within 30 mins)
      7,748
    Ajustice
    Newest Member
    Ajustice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      High blood test numbers - with scales. Any advice?

      By Scott Adams · Posted

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
×
×
  • Create New...