Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There An Iron Supp That Is Gently On The Stomach ?


marciab

Recommended Posts

marciab Enthusiast

Hi,

I am anemic (hemo 9.9) and in need of an iron supplement. Perimenapause - fun, huh ?

My doc prescribed Niferex, but it made my stomach bloat and gave me tons of gas. I took them for 6 days before giving up on them. It's been 7 days since I took the last one and my stomach is still hurting. He ordered an iron iv for me back in Feb, but won't this time because he said there could be side effects. Evidently someone recently had a problem with this.

I am gluten, soy, dairy, corn, and egg sensitive. But, my stomach is easily offended if I don't watch what I eat. Garlic and onions are out too. And meats just sit on my stomach.

I was hoping one of you would know of a supplement that really is easy on the stomach. I am eating raisins, molasses, spinach, and almonds, but haven't brought myself to buy a steak yet. I've been to the meat counter twice now, but they are just gross looking now that I have been a vegan for 10 months.

Any suggestions would be appreciated. Thanks Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Slow Fe is definitely the most gentle I've used. I took iron for years b/c I finally had an iron infusion to correct the problem. Go here to view product: Open Original Shared Link

Canadian Karen Community Regular

I always found taking liquid iron was easiest for me to absorb and easiest on my stomach.....

marciab Enthusiast

Jen,

Thanks for our reply. Here is the inactive ingredient list for Slow Fe -

Inactive Ingredients: Cetostearyl Alcohol, FD&C Blue 2 Aluminum Lake, Hydroxypropyl Methylcellulose, Lactose, Magnesium Stearate, Polysorbate 80, Talc, Titanium Dioxide, Yellow Iron Oxide

I am having problems with dyes, red for sure and maybe others. And I am pretty sure lactose is a problem too. Lactose is usually from cows milk, right ? I haven't tried goat milk yet.

I hate to spend anymore money on meds/supplements that I can't use. The Niferex was $22. It has red dye, so that could have been the problem.

Karen,

Thanks for replying. What kind of liquid iron do you take ? I didn't realize there was one. I was considering asking my doctor for whatever iron they give babies. I am assuming it is the least offensive. I even eyed the formula with iron today.

Any other ideas on foods ? I may have to give in and go buy a Maverick Ranch steak at Publix. Boy how things have changed over the last few months. I used to love steak.

Thanks again ... Marcia

CarlaB Enthusiast

I used to take Solgar gentle iron. It's made to be easy on stomachs. I do not know if it's gluten-free as I took it before I went gluten-free. I also don't know about the dyes. But it was easy on my tummy!

jenvan Collaborator

Marcia-

:( Sorry that won't work for you. Leafy greens are rich in iron too. However, my iron was so low that iron-rich foods were not enough. If you continue to have trouble with supplements or your iron continues to decrease, you may want to meet with a hematologist and discuss an infusion.

marciab Enthusiast

Carla,

Thanks for the reply. I will look into Solgar and see if it is a good candidate for me. These food allergies are driving me nuts !! I appear to be allergic to salt now. Actually kinda already knew, just didn't want to give it up. Now, my lips are swelling everytime I eat it though. If they would JUST swell evenly I wouldn't care. : )

Thanks Jen,

I hope it doesn't get that far. I had a Lupron shot yesterday in order to try to control the bleeding. This whole experience has been frightening. I've been going through this this time since Feb. I did this once in 2005 and thought it was a fluke. Not any more though ...

I am hoping I can absorb enough iron through my foods that I don't have to get an infusion. Is that the same as a tranfusion ? My GYN keeps telling me I have to be careful we don't let things get that far. I am wondering if he sees a hysterectomy in my near future.

Today I am going to buy that steak and eat it. Yech !!!

My daughter graduates today from high school !!!! Yeah !!!!

Thanks for being here and being so helpful ... I could not have done all this without you ... Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

It sounds like it would be frightening Marcia! An infusion is similar to a transfusion in procedure, but the iron is synthetic--it does not come from another person. It was an easy and pretty painless procedure. Your doctor puts you on an iron iv and you sit as the iron goes into your body--takes several hours....but in bad situations its a godsend. My iron levels have stayed normal since, and it has been over a year since the procedure. I may have to have another though, we'll see... So, hopefully things will get better for you soon! But just in case you need one, the infusion is really easy.

aaascr Apprentice

www.florahealth.com - has a gluten free liquid iron

supplement - they sell it in Whole Foods or

it 's available online as well. Hasn't bothered

me yet, just started on it about a month ago.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,998
    • Most Online (within 30 mins)
      7,748

    Maryam Goli
    Newest Member
    Maryam Goli
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
    • knitty kitty
      Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines.  Be sure to read the comments below the article. Have you been checked for nutritional deficiencies?  Low iron can affect antibody production, causing false negatives on antibody testing.  Do you currently struggle with low iron?   Low Vitamin D can cause amenorrhea, cessation of menstrual periods.   Correcting nutritional deficiencies is a big part of Celiac disease.  We don't absorb well the eight essential B vitamins and other vitamins and minerals like calcium, resulting in osteopenia, hair loss, infertility, and neurological symptoms.  Unfortunately, doctors are not given much training in nutritional deficiencies and don't recognize the connection with the malabsorption of Celiac disease. We get very frustrated here with doctors ordering us to put a harmful substance in our bodies in order for them to say "that makes you sick".   Duh, we know that already. Do try to increase your consumption of gluten for at least two weeks before retesting.  Eat the chewy kinds of breads.  Cookies and cakes don't have as much gluten in them as those chewy artisan breads and thick pizza crusts. I admire your tenacity at continuing the gluten challenge.  Do keep us posted on your progress.  We'll continue to support you on your journey to diagnosis and recovery.
    • trents
      I would continue with your gluten challenge for another 2-3 weeks with the increased intake of gluten as outlined above.  You now say if you were confirmed to have celiac disease you would be even more strict about avoiding cross-contamination whereas in your first post you said, "Previously for many years 10+ I have been on a strict gluten free diet." Those statements seem to contradict one another. The celiac community as a whole understands that to be "on a strict gluten free diet" necessarily involves significant attention to cross-contamination. If you have not been strict with regard to CC up to now, it is difficult to say how that may have compromised your recovery and contributed to ongoing symptoms. Yet, even a significant reduction that falls short of gluten free can yield negative test results.
    • WildFlower1
      Thanks for your response! Yes, you’re correct that many of my symptoms improved when I went gluten-free, but issues like bone loss, infertility, hair loss, etc., seem to be the ones that haven’t responded. I’ve been on the gluten challenge for almost 7 weeks now, and I’m wondering how long I should continue it before testing again and making a final decision. I understand the benefits of eating gluten-free long-term, but I’m unsure how much longer to stick with the challenge to avoid another false negative celiac blood test.   What I would do differently if the test were confirmed positive is I’d receive a small amount of government help with gluten-free foods as a confirmed celiac. Doctors would be able to rule out further exhaustive testing. I’d also become even more strict about avoiding cross-contamination (for example, when eating at someone’s house, they may say something is safe, but it could have been cross-contaminated with gluten, or when going out to restaurants, they might say it’s fine, but it really isn’t). So, I would be extremely strict with cross-contamination if I were 100% confirmed as celiac, even though I’ve tried to be over the years but still seem to get sick.   Any advice on how long is typically recommended to continue the gluten challenge to avoid a false negative on the celiac blood test would be greatly appreciated!
×
×
  • Create New...