Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The End Of The Road


Lister

Recommended Posts

Lister Rising Star

Everything is crashing in on me. I have not recived my results yet from my blood test probably sometime today. But wether they come back negitive or positive its not the end, the doctor still wants to do a colonoscopy no matter what because he thinks i may have 1 of three things. 1.chrons 2.spastic colon 3.ulceritive whatever. I have a family history of colon cancer- 2 members have died from it. So im scared that its going to come up chrons pushing the inevitable future closer to me. As it is i feel like i am dead but this is just getting to close to the real thing now. I meen im 20 i should have a future to look forward too but it seems like this may be getten to the end already. and then he still wants to probably do a endoscopy afterwards and they have me sheduled already for food alergy testing. God im so scared as to whats wrong with me i just want to be normal again this stress and the thoughts of death or cancer are making me sick and so depressed i can barely show any emotion anymore. And to top it all off the bills are starting to poor in from all the visits and man are they getting high up there. I have no health insurance and i work a minimum wage job that pays me 8.10 a hour where the max hours they will give me is 38 a week. It used to be plenty to get by but already my bills are

Doctor visit's

189.00

X-rays

59.00

x-rays/upper gi

475.00

Catscan

586.00

ER visit

386.00

i meen i cant even amagine beeing able to pay that off, so even if i dont die i meen my life is pretty much ruined and i dont even see a future for me, im never going to get that all paid off and start school again, I cant take it anymore not at all, im so frustrated i am literaly saying what i am typing because thats how mad and confused and scared i am. I have tried to keep my cool infact i have even had a couple of good days in between all the bad ones but now i cant get the tears to stop pooring and i cant get myself to calm down, im just lucky i dont have a weapon in this house or i probably wouldnt even be typing all of this. I am going to have to sell everything i own to cover these bills and i meen everything since i dont really own much. My computer is going to have to be one of the first to go since i can probably still get around 800 for it, then my tv then my ps2 then my movies, and then after that all i have left is a bed and a recliner that i got from a antice stoor, why does god torcher the poor and keep giving to the rich. I have to scrape money up to even keep myself fed. i have managed to make 20 dollers last me for 2 weeks of food that i can eat- trust me that was not easy and alot of meals i had to skip, including tonight as i have ran out of money. sorry im ranting its just this is probably the only thing keeping me from having a complete breakdown, and i cant even try to go to sleep because as i posted in a earlyer thread, everytime i get close to sleep i get this incredibly head rush feeling and then i cant breath and jump out of bed gasping for air, this has happend for 3 nights in a row now. alright well since im probably a gonner anyways im gonna step outside for another and probably another and another ciggarete* before you make comments about i dont have money but i have money for cigs, i dont buy them my roommate does- to make up for the fact that he never cleans the house since hes lazy*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Swwet child my advice is to PRAY. You are still alive, there is still breath in you, still thoughts in your heart and in your head....things sound incredibly difficult, and they are. But there is always, always hope, just ask me.

Can you get any kind of assistance or disability insurance? You sound very sick. Can you talk to the medical administration office and set up payment plans? Your main goal should be to get healthy now, other things can fall into place after that.

But, the best advice I can give anyone is to pray....God is near and wants to help. And - - sometimes we have to be flat on our backs to look.....UP.

I will pray for you also.

Hang on and KEEP hanging on.

Lister Rising Star

i i i i just want answers, but my doctor does not seem to be giving them to me fast enough. I really think something is wrong with me other then celiac disease * i have been gluten free for 3 weeks now with basically no improvements besides for my acne* and i am still having all of my problems. Everyday without answers something could be secretly getting worse inside of me and i dont even know. I just want a long life so i can grow up more have kids raise a good family become old retire and then and only then think about dieing. I have never thought....

AHGHHH SAEIOhtsord tiopehr oiho ershgaoh hsjpihstjpihserjstr hjpo] jhip. that is frustration as the phone just rang and my blood test came back negative :( im even more upset now then i was * was it a false negitive* or is there really something really truly wrong with me. I asked the doctor if it could have been a mistake and he said not with how bad my symptoms are if i had celiac it would have definatly showed up so i asked how my levels where and he responded with perfect nothing was elevated nothing was abnormal= does this meen im not acually celiac does this meen i have put myself thru all this crap with the food for no reason, im so upset right now i keep crying so hard i have to hit the floor as im wrighting this. He said hes going to set me up with a gi specialist but it could take a long time- first off IM POOR I CANT AFFORD THIS poop and second of i need answers and i need them now its been a fricking month now with nothing but bulcrap left and right and im not getting better, and if its something seriuse they need to hurry up and take care of it. I feel like i have been forsakin by everything i trust or belive in......... i guess its time for me to leave this community seeing as its negiative maybe i will come back or maybe i will respond i dont know i really dont know what to do should i eat gluten or not i meen it did not seem to make a difffrence at alll but make me more depressed then i already was. i dont even know what to type anymore im going to go smoke my last 5 cigs right now i think, i m shaking so bad with fear and anger im about tob reak something and i dont want it to be anythign expenive seeing as i have ot sell everything soon

Lister Rising Star

so even though my test came back negitve my doctor still wants me to avoid gluten as if i have celiac WTF make up your fricking mind doctor. why is he having me still avoid it i dont get it, tests came back negitive- hes not helping me figure anything out or do any more tests himself - instead sending me to a specialist but for some reason i am still to avoid gluten

Mango04 Enthusiast

Hang in there. Based on your symptoms, you could very well have a gluten intolerance. Your doctor was right to suggest that. You could have a gluten intolerance but not neccessarily celiac disease. It sometimes takes people several months to feel better on a gluten-free diet, so don't give up. You've been really proactive and have learned a lot about this really quickly, so you should be able to deal with it. If any symptoms have cleared up on a gluten-free diet, you should consider remaining gluten-free.

Lister Rising Star

so if im just gluten itollerent does this meen that i can have gluten in very little modaration? like some day i will be able to enjoy a krispy kreme donut ( never had one always wanted one) or am i still on this diet for the rest of my life? not that i mind i meen its not as hard as i originaly thought i have found things to replace things i crave and its all good, but i meen does this meen i dont have to obsess over CC issuse? like can i risk a bag of kettle chips?? man ijust hope its a spastic colon(ibs) with gluten intolerance, but im so scarded its going to show chrons or cancer when i finally do get my colonoscopy done. i dont know how to keep myself from worrying besides smoking my MJ but the stuff that i have been getting lately (im on medical for back pain) is way to strong even for me like i can barly handle the high without panicing ( not sure why, i usaly smoke 3 or 4 bowls but 2 hits is doing me in lately- so much for medical beeing less potenet shesh) anyways im going back to another ciggarete its keeping me from having what i would call a panic attack (self induced)

VydorScope Proficient
I have no health insurance and i work a minimum wage job that pays me 8.10 a hour where the max hours they will give me is 38 a week.

Lister, you should consider looking for better work. Can you lift boxes? UPS from what I understand pays more then that for ppl to load thier trucks. I am sure there are other jobs out there in that price range too. I hope I do not sound harsh, but if you can find better work, suddenly everything will start looking better. Aslo ever doc and hosptial we have evern dealt with let us set up a payment plan. Call and ask for one. That will relaive some of the pressure for now. You have plenty of options still.

If you think food is an issue, do the eliimination diet. Wont cost you anything and will tell you more then test the docs can run. You can trun this around, just stop thinking about the problems and start thinking about the options you have.

And dont leave here yet... lots of good medical advice here for you! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Hi Lister -

First of all, big {{{HUGS}}} to you. Second... DON'T LEAVE. Having negative test results doesn't prove that you don't have gluten intolerance. I don't have celiac. All my tests, including my biopsy came back normal. But just read my signature and you can see how badly gluten effects me. It may be that you just have to take the leap yourself and go gluten free for a while. That is really the ONLY way you will be able to tell if any of your problems are gluten-related. There are also people on here who react to casein (dairy) almost the same as gluten.

Don't sell your stuff, especially not your computer. You're going through a rough time, and you're not feeling well. Sometimes the communities we find on the computer is our only access to people who understand. I know what it's like to feel desperate and alone, and having my computer really helped me. If nothing else, just to distract me from the pain and hopelessness.

Talk to the billing people in the offices that have the bills and get on a payment plan. They do stuff like that all the time.

The way you feel makes total sense to me. Both my parents died of cancer, and it just feels like a monster is in the closet waiting to jump out at me at any minute. So I can completely relate.

It sounds like your sleep thing may be an anxiety attack. A lot of the symptoms of anxiety are actually physical. So you can have an anxiety attack without being worried about a darn thing. It's very odd. The head rush, breathless. Feeling like you've gone straight from drifting off to sleep to 100 mph in two seconds, like someone flipped a switch. It's like waking up on a roller coaster. I found out after going gluten free that all of my nighttime anxiety attacks and nightmares were gluten- related. Now, when I get glutened I dread going to sleep (trying...) because it's a horrible experience. I'd rather go through all my other symptoms x3 rather than go through one night of that. {Shudder...}

On this board, there are several of us who have more of the neurological and psychological symptoms along with the digestive and stomach symptoms. Of those of us who have had genetics done, we seem to come back as DQ1, which isn't celiac (meaning no villi damage and no positive blood tests). But when we go gluten-free, there is definite improvement. So don't feel like you have to have positive tests to be accepted on this board.

So my advice is to go gluten-free and just see what happens.

I hope you feel better soon.

Nancy

Lister Rising Star

Also can gluten intolerancy cause damage as if i had celiac. I have subsarean folds "scalloping- very minimul in my small instine-the reason i got tested for celiac. also can it cause other symptoms of celiac including the brain fog(this was a big one for me, though i can admit it has become less of a burden and less often now-after beeing gluten free for 3 weeks) and i have all sorts of wierd stomic pains and gurgles and poping noises and i have mucusy stools and random bouts of diareah and constipation. I meen i know IBS can cause some of these "cross my fingers that is is ibs" but ibs does not explain the brain fog. also after going gluten free my acne has gotten tremedusly better why would this happen unless i was celiac. I really think it was a false negative but my doctor says he is 100% positive its not well i guess on the plus side there is really only 3 things left to test for before ruling it as ibs

colon cancer- o god please dont let it be this- it runs in my family so im really worried- i had a hemocult card done, is this 100% accurent in testing for colon cancer??

Chrons- still o god please dont let it be, since this leads to colon cancer

Ulcerative colitis- i dought it just because i really dont match hardly any of the symptoms

------------ once these are tested for if they all come back negative then its ibs

i have already been tested for

Diverticulitis-catscan for it + xrays-nothing found

bunch of diffrent blood work-nothing found

i had a upper gi done- only thing found was subsarean folds in small intestine(scalloping)-minimul damage, if this is not from celiac then what is it from

celiac blood panel- negative with no raised levels perfectly normal results

parasite fecal test-inconclusive-have not had a good stool to give sample yet-fighting with the C

bacteria fecal test- inconclusive-have not had a good stool to give sample yet-fight with C

---------------------

am i missing anything that should be tested for

aikiducky Apprentice

It could be that it hits you harder now that you are gluten free. The same thing happened to me and alcohol, after going gluten free I could hardly drink anything because the effect was so big. So see if you can smoke a bit less. You might feel less panicky in general that way.

The gluten free diet HAS had effect, you know it! We keep telling you, in the beginning it's a roller coaster, you get ups and downs. It's normal, you're not dying. And staying gluten free is your best way to AVOID colon cancer!

The money will sort itself out somehow. Ask if you can pay the medical bills spread over a longer period of time. Have a good talk with your doctor too, make sure he understands that you can't have any unnecessary testing, just the ones he thinks are absolutely necessary.

I think your doctor is absolutely 100% spot on about you needing to stay gluten free. And, no, you can't cheat even if you are gluten intolerant instead of celiac. Cheating just makes you feel sick all over again.

Pauliina

Lister Rising Star

unfortunatly its hard to find another job, i never graduated from highschool i dropped out after getting kicked out of my house on my 18th birthday (great presant). and have not got my GED yet so its hard to find jobs that will exept me even though im incredibly smart and a hard worker. as for payment plans im already planning on that but i have 4 seperte places billing me for my tests, my family doctors office, the radioligy lab, the hospital, and now soon the GI specialist, so its still going to be a battle to get things going. oh and nantzie i have already been gluten free for 3 weeks now, any clue as to when the axiety/ problems would start clearing up if it is from gluten??

when i was talking about cheating i was not talking about anytime soon i was saying like in a couple of months could i go out to redrobin and just eat instead of having to talk to the manager, or atleast eat products like kettle chips that are supposedly gluten free but have CC issuses or will it really bring back everything instantly?

im so sad to read that you lost both of your parents to cancer, wow that is awful. when i said family its like one of my aunts and my great greant grandpa so its not completly amediant family. Wow im so sorry

---edit oh i am complety dairy free as well (since i have had lactose problems since i was a child i figured i should avoid it until i am fully healed)

Nantzie Collaborator

Thanks, it's been a rough road, but I'm doing okay. I think having cancer in your family is just hard, especially when you're having problems related to the type of cancer; like colon cancer in your family. It always feels like it's lurking out there.

As far as the anxiety not improving after going gluten-free, I'd guess that either your body is still healing or you may be eating something else that may be causing problems. Have you started eating more of something (like maybe soy or eggs or ?) that could be an additional culprit? I know that for a while there, soy was giving me real problems. You may also need to change your personal care products like shampoo, lotion, etc. A lot of that stuff has either wheat or oats in it. I had to give up some wonderful conditioner because it was making me react. (Aussie Deeep) There was no stated gluten in it, and the company said that they didn't add any gluten to it, but they didn't know what the suppliers of the ingredients had going on. I was kind of a basket case for those few weeks, anxiety, the whole 9 yards. But my hair looked SOOO PRETTY. (I'm such a girl sometimes... :lol: ) After I stopped using it and felt 100% better, I realized how important making sure your personal care products are gluten-free. For me, I react to it just like I do cross-contamination. It's messed up.

Nancy

Lister Rising Star

yep i already did that, everything is gluten free that i use for everything

eKatherine Apprentice

Your anxiety is not necessarily food-related, or maybe not entirely food related. It could just be that a major factor is that you need answers, and not getting them is putting you into a place you're not comfortable in.

The fact is that there are many things for which we have no answers. If they run the next test and it is negative, would you still go for more tests? The doctors will keep running tests until there are no more to run, and then they may repeat the tests you already had run, just as if you had health insurance and money was not an issue.

I think you're going about this right. Hang in there.

lovegrov Collaborator

I wish I had a magic answer. I don't. Please hang in there because for the vast majority of folks, better days are coming. You're just 20. Your life is not ruined.

Do you have family that can help you get through this? You might also see if there are some social services folks who can give you some advice on dealing with the medical needs and bills.

richard

aikiducky Apprentice

Even if you're gluten intolerant it means completely gluten free, even after a few months. Sorry. :(

I seriously think that what you're smoking might have a big part in your anxiety. Going gluten free will change your body chemistry, you need to find out what your new level of tolerance is.

When I've been glutened by just a little bit of cc, I often feel depressed for three whole weeks afterwards. And that's after being gluten free for almost two years and in general feeling completely healed! So it's no wonder if you still feel crummy.

Pauliina

Guest nini

hang in there... I agree with your Dr. that you should continue with the gluten-free diet, as a lot of your problems may very well be gluten related, but the only way to determine this would be through diet. Give it time too. There is a def. withdrawal period that can get worse at about 3 weeks or so into it. I can totally relate to the feelings of helplessness. After losing my job in March, I have been trying to put on a brave face and busting my butt to try to bring in money and build my clientele, but I'm exhausted and emotionally drained and on the verge of losing my house, and I lost my health insurance today. Not a good thing for a celiac you know. I'm very scared and embarrassed that I need to apply for assistance, but what else can I do? My husband lost his job in Nov. and has been trying to find something else and the only thing he was able to find was in a Pizza place... big step down from Manager of a UPS store. Hubby threatened to cut off internet and sell computers too, and I said it's not an option. IF I am going to make a go of my business, I need this. And my cell phone... very very scared right now...

I was trying to boost YOU up, and I end up spilling my guts... sorry.

aikiducky Apprentice

Nini, both me and my husband are self-employed, I sooo know where youre coming from! We're able to survive for two reasons besically, one, we rent a house dirt cheap and two, we don't have any kids to take care of.

I do wish you luck with building up your business!

Pauliina

Guest Robbin

Hi Lister :) I know exactly the kind of panic attacks you are having. Life really stinks sometimes, I know, but you need to calm down and look at each problem individually. 1)-Dr. Bills-call each dr. and lab, ask for billing and work out a plan to pay a little a month. I worked in billing for awhile when my hubby was out of work and the place I worked for didn't send to collection or attorneys if the patient paid at least $5.00 a month. 2) Do not sell your computer-you may be able to make money with it--my teenage son saves his meager alllowance, goes to the thrift store and buys used video games for dirt cheap (first researches what is selling good) and sells them for like triple on ebay. 3) I am gluten intolerant and it was undiagnosed for so long it caused me some bad problems, so it is something to take serious. Brain fog is a biggie. It took me about a month and a half before the panic attacks/hot flashes to go away. The stuff is working its way out of your system, so it is kinda like withdrawal from a drug. 4) I don't know where you live, but in our state there are medicaid programs that you can get to help with medical bills. 5) Many doctors are diagnosing patients on DIETARY RESPONSE ALONE. DON'T LET THIS GUY RUIN YOU WITH ALOT OF BILLS. 6) Just let it all go to God. Just say, I can't handle this mess, I can't keep worrying, I give it all to You to take care of and I trust You. This type of letting go and praying REALLY WORKS WONDERS. Also, warm baths, long walks around a park, drinking hot , sweet herbal tea, these things are what I did in my "horrible panic days". You will be ok. We are all praying for you.

VydorScope Proficient

Lister, it might be "realy hard" to find a better job, but you should look. I think you can probably find better pay then that if you put you mind to it an look. Esply since you work around gluten constantly, you can never be truly gluten-free while you have that job.

TCA Contributor

I just want you to know that you can stop panicking about the dr. bills. By law they cannot for you to pay those immediately. As long as you are paying something, even $5 a month, you should be ok. I"m not saying you should pay as little as possible, just that you can pay what you can every month and be ok. I know because my father's insurace was dropped when I was 14. He had just started his own company and was on a probabation period with the insurance when he had a massive heart attack. he lost the insurance and had 5 more heart attacks without any. The bills were hundreds of thousands of dollars, which he is still paying on when he can.

Also - talk to the billing dept. Some places have some types of charity clauses where they will write off some medical expenses if you qualify. This stuff is the easy stuff. It's just money. I've been without a dime and God always pulls us through. Keep your head up and know that you can make it. You just have to set your head to do it.

I also want to tell you about my 1 year old daughter. She amazes me every day. She has a congenital heart defect and had open heart surgery at 9 days old. She will have another surgery in August and many more to follow. She has celiac and a dairy and egg allergy. She almost lost her leg when her femoral artery collapsed during a heart catheterization. She cannot yet walk, crawl or even sit alone for very long. She has a sliding hiatul hernia, severe constipation because of the 13 meds she is on, a feeding tube, eczema, and a terrible choking and gagging problem that is yet to be diagnosed. She has severe wretching episodes about 15+ times a day. She spends about 5-10 hours a week in dr. offices or having tests done. I tell you all of this because she is my inspiration. What does she do every time I look at her? She SMILES. The biggest smile you've ever seen. It starts at her lips and spread down to her fingers and toes. I don't know anyone who goes through the pain that she does on a daily basis, yet she smiles constantly. :D I think we all could learn a lot from her.

I hope you feel better soon. Try to look at the bright side of things. You have doctors looking for answers. I will pray for you and hope that you too can find peace in prayer.

judy05 Apprentice
Everything is crashing in on me. I have not recived my results yet from my blood test probably sometime today. But wether they come back negitive or positive its not the end, the doctor still wants to do a colonoscopy no matter what because he thinks i may have 1 of three things. 1.chrons 2.spastic colon 3.ulceritive whatever. I have a family history of colon cancer- 2 members have died from it. So im scared that its going to come up chrons pushing the inevitable future closer to me. As it is i feel like i am dead but this is just getting to close to the real thing now. I meen im 20 i should have a future to look forward too but it seems like this may be getten to the end already. and then he still wants to probably do a endoscopy afterwards and they have me sheduled already for food alergy testing. God im so scared as to whats wrong with me i just want to be normal again this stress and the thoughts of death or cancer are making me sick and so depressed i can barely show any emotion anymore. And to top it all off the bills are starting to poor in from all the visits and man are they getting high up there. I have no health insurance and i work a minimum wage job that pays me 8.10 a hour where the max hours they will give me is 38 a week. It used to be plenty to get by but already my bills are

Doctor visit's

189.00

X-rays

59.00

x-rays/upper gi

475.00

Hi List

Catscan

586.00

ER visit

386.00

i meen i cant even amagine beeing able to pay that off, so even if i dont die i meen my life is pretty much ruined and i dont even see a future for me, im never going to get that all paid off and start school again, I cant take it anymore not at all, im so frustrated i am literaly saying what i am typing because thats how mad and confused and scared i am. I have tried to keep my cool infact i have even had a couple of good days in between all the bad ones but now i cant get the tears to stop pooring and i cant get myself to calm down, im just lucky i dont have a weapon in this house or i probably wouldnt even be typing all of this. I am going to have to sell everything i own to cover these bills and i meen everything since i dont really own much. My computer is going to have to be one of the first to go since i can probably still get around 800 for it, then my tv then my ps2 then my movies, and then after that all i have left is a bed and a recliner that i got from a antice stoor, why does god torcher the poor and keep giving to the rich. I have to scrape money up to even keep myself fed. i have managed to make 20 dollers last me for 2 weeks of food that i can eat- trust me that was not easy and alot of meals i had to skip, including tonight as i have ran out of money. sorry im ranting its just this is probably the only thing keeping me from having a complete breakdown, and i cant even try to go to sleep because as i posted in a earlyer thread, everytime i get close to sleep i get this incredibly head rush feeling and then i cant breath and jump out of bed gasping for air, this has happend for 3 nights in a row now. alright well since im probably a gonner anyways im gonna step outside for another and probably another and another ciggarete* before you make comments about i dont have money but i have money for cigs, i dont buy them my roommate does- to make up for the fact that he never cleans the house since hes lazy*

You need to see the doctor to get medication for anxiety. Don't start selling your possessions, you are under stress and not thinking clearly. The medical bills can wait. I don't know if you are religious but a lot of churches will assist people who need help, especially if you need food. My husband said when he was a young boy and very poor his mother would leave a note at the Catholic Church, asked for specific items of food and the next day they went to pick up the food. I know that the Prebyterian Church also does this because my sister-in-law is in charge of the program. Right now you need to eat very simply, chicken, potatoes, applesauce(Mott's) and bananas. Try to stay away from fast foods. The fact that you are smoking is contributing to your stress.Try to concentrate on getting well, just because people in your family have cancer or chrons doesn't mean you have it. You are only 20 and have your whole life ahead of you. If I were you I would write to your creditors and explain your situation, my son had to do this once and the hospital referred him to an agency who paid the bill for him. I'm sorry but I don't know the specifics but there is help out there. Let the doctor do the test and find out for sure what is wrong and then you can better deal with it. Please keep coming to this board, you will receive a lot of support, in a few months when you are feeling better I'm sure you will be helping other "newbies". Just remember we have all "been there" in one way or another or we wouldn't be here. Feel free to e-mail me if you need help. I will pray for you!

Lister Rising Star

im not even upset right now infact i was having a good afternoon, but after it hit 8 my head started to spin now im basically not aware as to where i am and am completly out of it *sober also* and i know i did not get glutened today for a. my stomic would be bugging me and b. i have only aten a banana for breakfast and my left over dinner for lunch and i snacked on some rice chips for dinner- im broke my gluten-free got me some rice chips so there my dinner tonight and my lunch tomorrow. Could the fact that i have not aten cause my head problems im having right now-also feels like my chest is going to cave in

also i had another question

Gluten intolerance- can this cause physical damage (im looking for a explanation about the small subsarean folds in my small intestine (scalping))

and so whats the diffrence between gluten intolrency and celiac- since it produces the same symptoms-hurts your body- and starts to heal when you elimanate gluten?? so whats the diffriance besides genes

and what one is worse intolerance or celiac?

im scared to go to sleep i dont want to have those crazy breathing problems again they really scare me- like i almost ran myself up to the hospital last night, and when i say ran i meen that litaraly since i dont have a car

Guest nini

in my opinion and from what I've read, Celiac and Gluten Intolerance are the same thing, IF the biopsy does not confirm villous atrophy that doesn't mean it's not there or that it's not coming. The folds that were seen can absolutely be caused by this. IBS is not a definitive DX it is a collection of symptoms and basically means "I don't know what's making you sick" Chrons, and Colitis are also SYMPTOMS not diagnosis on their own. Dr.s are treating the symptoms and not looking at the underlying cause which 10 times out of 10 is highly related to diet.

Lister Rising Star

well i meen after a colonoscopy they will know what it is right?? so your saying IBS is Bs and its always something else?? im really confused now, so why do they even bother calling something gluten intolrance compaird to celiac.

the doctor did not say i have ibs well he did but that was before he even considerd celiac, then he changed his mind and wanted to do the blood work- so after it coming back negative he still does not want to rule it as IBS he wants to be positive its nothing else first so a colonoscopy will be done, if nothing is found then do i have true IBS or does this just meen that they cant figure it out so lets just tell me i have something???

about eatching chicken whoever posted that, i cant :( the grocery stores around here only cary bagged chickens and tyson chicken- im like 100% sure i cant have any of those :(

Im having food allergy blood test on wensday-does this show everything a elimantion diet would??

as for cutting out sertain foods for now im already avoiding Gluten, Milk/lactose, and soy for the main part unless its hidden soy but otherwise i have cut it out since i dont think it agrees with me to much

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
×
×
  • Create New...