Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suddenly Bad Headaches! Anyone Else?

mick66

By mick66
in Related Issues & Disorders

Recommended Posts

mick66 Newbie
mick66
Posted

Hi everyone,

went to ent a couple weeks ago cause of sudden severe headaches, dizziness(vertigo), loss of balance, sensitivity to light, sound, buzzing in my ear.(these are still bothering me today) She did some balance testing and a hearing test( which I'm not sure I did so well) She did not tell me the results, but had to turn up the sound and had to be repeated. Also have blurry, double vision can't read much and no memory. I ask someone a ? they answer less than 5 min. later I ask again ( not realizing, is this the brain fog or something else like stroke?

I can't remember the last time I had a headache, they don't run in my family. She suggested I see a ent neurologist, which I did. He told me to get an MRI of my brain and then come back to see him about the

results.

He did ask me about my symptoms and family history, which I told him. He asked if i had fallen or banged m,y head and did mention stroke or tumor in my brain. He used another word for the tumor, but i looked it up.

I am very nervous about this as my grandmother had many mini strokes (TIA's) and then a few regular

strokes ( she was in her 60's, I'm 40) as well as a couple of heart attacks.

Anyone had these problems?

Are these symptoms or diagnoses related to celiac disease? Or is it just my bad luck? Please help, Mick66

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


laurelfla Enthusiast
laurelfla
Posted

please keep us posted!! my sister (diagnosed with Celiac in September or so) is having these same exact symptoms, plus numbness in her feet. her idiot of a doctor scared us all to death when he told her he liked to start from the worst case scenario and work backwards; he told her it might be MS, so they did an MRI and found out she has a healthy brain. the symptoms are still, there, though, and she's not sure what to pursue next.

a friend of hers said that she had a friend who had the same exact symptoms and it turned out to be polyps in her sinuses and she had surgery to correct it. (?) not out of the question, i guess, but i think we've all grown used to these friends who tell us they have friends who have exactly what we have! :P

anything you find out would be helpful. i hope you feel better soon!!

mick66 Newbie
mick66
Posted
  • Author
please keep us posted!! my sister (diagnosed with Celiac in September or so) is having these same exact symptoms, plus numbness in her feet. her idiot of a doctor scared us all to death when he told her he liked to start from the worst case scenario and work backwards; he told her it might be MS, so they did an MRI and found out she has a healthy brain. the symptoms are still, there, though, and she's not sure what to pursue next.

a friend of hers said that she had a friend who had the same exact symptoms and it turned out to be polyps in her sinuses and she had surgery to correct it. (?) not out of the question, i guess, but i think we've all grown used to these friends who tell us they have friends who have exactly what we have! :P

anything you find out would be helpful. i hope you feel better soon!!

Laurelfla,

I go for my MRI of the brain Tues., so when the results come back I will post on the board. You guys are so nice on this board and what a quick response, I am impressed, thank you! I hope your sister's symptoms go away, I would rather have all the D and itching and cramps compared to these other symptoms from the brain that I am experiencing right now and have been for a few weeks now.

Keep me posted on your sister's health, I wish her luck and all my best-I know what she must be going through, why do they get you worked up about the worst scenerios? Afraid of law suits for not mentioning!?

Mick66

Rachel--24 Collaborator
Rachel--24
Posted

I had all these symptoms (except vertigo). I had all kinds of tests...including an MRI on my brain. Everything came back normal. The symptoms mostly go away when I eliminate processed foods but come back if I start to eat processed stuff again. I'm thinking its msg causing the symptoms for me.

2kids4me Contributor
2kids4me
Posted

after several visits to the doctor, for neurologic symptoms... headaches, fatigue, sudden numbness on one side of the face and scalp, drooling on one side, dizziness, dropping things, stumbling, tingling extremities, forgetfulness, klutzy... you name it.. it was initailly blamed on my diabetes.

The GP gave me a B12 shot - ALL the symptoms went away. I now take B12 injections once a month.

B12 deficiency can occur from poor absorbtion (gut damage) or from pernicious anemia because the parietal cells in the stomach that absorb the vitmain have been destroyed by the immune system.

The blood work did not show really low levels but I did respond to the B12...just like people who have neg biopsies or tests yet respond wonderful to the gluten-free diet.

B12 injectioncannot hurt you if given and you dont have the problem, but not getting it when you are depleted WILL cause problems. Oral B12 doesnt work becasue the parietal cells have to be normal.

The symptoms of MS are similar to B 12 deficiency because B12 is required for normal functioning at the neuromuscular junctions

mamaw Community Regular
mamaw
Posted

MY DAUGHTER SOUNDS JUST LIKE THE FIRST POSTER!!!!!!!!!!!

iT REALLY MAKES LIFE DIFFICULT...

jennyj Collaborator
jennyj
Posted

I have developed a headache that occurs everyday at about 1:30 pm. This just started a week ago the same time I stopped taking Asacol(doctors order to stop). I don't have any other symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lapetit8 Explorer
lapetit8
Posted

In what region of your head is the headache?

  • 2 months later...
laurelfla Enthusiast
laurelfla
Posted

mick66, i was away from the board for a while this summer but was just wondering if you are feeling better. my sister is feeling the same, i think -- my parents are upset because she seems to be refusing to go to the dr. about it. she has had a couple of headaches recently and also sees things ("floaters" is what i think they are called, not sure). also her feet are still numb. i will mention the B12 to her and also the processed foods thing. thanks to all of you for posting your ideas!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. julie falco
      - julie falco posted a topic in Coping with Celiac Disease
      0

      NEED TO READ ALL LABELS (FRONT & BACK)

      BRAND NAME: NOT BURGER PLANT-BASED PATTIES A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics. The label says down below that it is processed in a facility that also processes "WHEAT". I tried to put this...
    2. jimmydee
      - jimmydee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think a UTI caused by Aspirin, made me a Celiac

      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination. ANYWAYS...
    3. knitty kitty
      - knitty kitty replied to Karen Chakerian's topic in Coping with Celiac Disease
      2

      Getting rid of the belly bloat

      Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? ...
    4. knitty kitty
      - knitty kitty replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

      @SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential...
    5. trents
      - trents replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,454
    • Most Online (within 30 mins)
      7,748
    Lydis
    Newest Member
    Lydis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • julie falco
      NEED TO READ ALL LABELS (FRONT & BACK)

      By julie falco · Posted

      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      I think a UTI caused by Aspirin, made me a Celiac

      By jimmydee · Posted

      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Getting rid of the belly bloat

      By knitty kitty · Posted

      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
      Dangerously underweight, Perfect gluten free and insomnia

      By knitty kitty · Posted

      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
    • trents
      Dangerously underweight, Perfect gluten free and insomnia

      By trents · Posted

      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
×
×
  • Create New...