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The Test Numbers- Do They Go Up With Increased Gluten Exposure?

Sagesmama

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Sagesmama Rookie
Sagesmama
Posted

My daughter (10 ms) was tested because of unexplained diarreah and weight loss. My son and I have both been diagnosed so we got her tested as well but her test results show that the full panel were all negative- totally normal range. BUT my daughter has had very limited exposure to glutens so my question is- do the numbers go up the more exposure there is or are the numbers what they are- gluten or no gluten.... does that make sense?

We've already decided that she's going gluten-free, despite the negative test results but I was just curious. If we had decided not to limit her gluten intake- would those numbers increase if she had Celiac?

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Guhlia Rising Star
Guhlia
Posted

At ten months it is entirely possible that the test results were wrong. My pediatrician wouldn't even test my daughter until she was eating solid foods for a full year. You could always get the gene test to make sure that your daughter carries the Celiac genes and use that as your temporary diagnosis until she's old enough to eat enough gluten to cause a positive result. However, if she has an issue with gluten, you may just want to use her dietary response as her diagnosis, especially since Celiac runs in the family. Better safe than sorry, right?

Sagesmama Rookie
Sagesmama
Posted
  • Author

Definitely... that's what I was thinking too- the gluten-free diet will be the tell tale sign that gluten was causing those symptoms.

At ten months it is entirely possible that the test results were wrong. My pediatrician wouldn't even test my daughter until she was eating solid foods for a full year. You could always get the gene test to make sure that your daughter carries the Celiac genes and use that as your temporary diagnosis until she's old enough to eat enough gluten to cause a positive result. However, if she has an issue with gluten, you may just want to use her dietary response as her diagnosis, especially since Celiac runs in the family. Better safe than sorry, right?
Guhlia Rising Star
Guhlia
Posted

That being said though, you may end up needing the actual doctor's diagnosis for school issues when she's of age. I know some parents have had a hard time with teachers being appropriately cautious w/o a doctor's note. Your doctor may be willing to give her a diagnosis of gluten intolerant w/ just the positive dietary response. You'll want to discuss this with him/her before the situation arises. Good luck!

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      I would continue with your gluten challenge for another 2-3 weeks with the increased intake of gluten as outlined above.  You now say if you were confirmed to have celiac disease you would be even more strict about avoiding cross-contamination whereas in your first post you said, "Previously for many years 10+ I have been on a strict gluten free diet." Those statements seem to contradict one another. The celiac community as a whole understands that to be "on a strict gluten free diet" necessarily involves significant attention to cross-contamination. If you have not been strict with regard to CC up to now, it is difficult to say how that may have compromised your recovery and contributed to ongoing symptoms. Yet, even a significant reduction that falls short of gluten free can yield negative test results.
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