Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Die Off Symptoms

terps19

Recommended Posts

terps19 Contributor
terps19
Posted

When you start on the GFDF diet is there a peroid that you experience die off symptoms from the gluten and casien trying to exit the body? For the past two days I have had a headache, stomach discomfort, and nausea and I hope it is just from the gluten and casien exiting my body. ANyone else have this happen as well?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lister Rising Star
Lister
Posted

in my opinon yes, i still dont feel right and its been 3 weeks now, Also there is atleast what seems to be die off of bactera that gets passed as well, judging by the black specks that are in a abondence, you will probably notice everytime u go to the bathroom you feel alot better for a bit, im just now starting to have some normel days where i feeel almost like myself again

mommida Enthusiast
mommida
Posted

There are some articles that explain wheat has an opiate type affect on certain persons. Opium is addictive, and these persons will suffer withdrawal symptoms when they go gluten free and/or casein free.

L.

dionnek Enthusiast
dionnek
Posted

I have been gluten-free for 10 days now and have started getter annoying headaches for the past 3 or 4 days. I've attributed this to gluten withdrawal :P

Lisa Mentor
Lisa
Posted

Your body needs to adjust. It all depends on how bad the intestinal damage is/was. Even though you may be gluten free and dairy free, you insides are still damaged and it will take some time to heal itself.

For headaches, I take aleve, and for stomach upset, it take zantec 75 or 150 when the bloating and gas gets bad.

Healing will take quite sometime depending on your damage, sometimes up to a years time.

Healing is a slow process and it will not happen over night. Be patient with your self and take every day as it comes. Make sure that you check your soaps and shampoos and facial creams that they are not gluten.

Just remember, that it took a long time for the damage to occure, it will take some time for the healing process to happen. I was dx in August and I try my best to be gluten free and at home is a non issue, socially it is very hard for me.

Good luck to you and please always feel free to ask away. We have all been there and one's experience is anothers knowledge.

Lisa

terps19 Contributor
terps19
Posted
  • Author

Well I am glad that people are experiencing die off symptoms. It makes me feel a bit better. There is no significant damage done to my intestines so I hope healing does not take years at it does for some. On average at what point do you start to feel better? One month point, 2 months, 6 months? Just so I can get an idea of what I am getting myself into.

jerseyangel Proficient
jerseyangel
Posted

Hi Terps--I didn't feel well at all when I first went gluten-free. I had been sick for years, and for the first 3 months gluten-free I felt tired, foggy, stomach issues--pretty much like a wet dishrag! Around the 4th month, I seemed to turn a corner. I'm almost at the 1 year point, and having worked through my additional intolerances, am just now feeling a lot better. It does take time--don't get discouraged! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


terps19 Contributor
terps19
Posted
  • Author

How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

jerseyangel Proficient
jerseyangel
Posted
How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

I found them through trial and error. I did my own version (after seeking advice from my allergist) of an elimination diet. It took me about 6 months. I did look into having blood testing done for the intolerances, but in the end deceided not to.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748
    Kerischultz
    Newest Member
    Kerischultz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      Thank you! 
    • trents
      Years of testing - no real answers

      By trents · Posted

      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      Celiac Disease and Mild Chronic Gastritis

      By Scott Adams · Posted

      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Testing for celiac

      By Scott Adams · Posted

      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
×
×
  • Create New...