Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before Symptoms Go Away?

Sandi*

Recommended Posts

Sandi* Apprentice
Sandi*
Posted

Hi everyone,

a week ago I had my blood tests and an endoscopy done - all negative. I was suspecting gluten sensitivity before so I tested going gluten-free for about 2 weeks. It seemed to work fine but I had to go back on gluten for the tests and I got worse again within 3 days.

Now I've been gluten-free for a couple of days again but it seems like the symptoms aren't going away as fast as they did last time. I suffer from constipation, cramps and bad bloating. Is it normal that it takes longer the second time to get better?

My doc also suspects that I'm sensitive to fructose - today I started a fructose/sugar free diet for about a week and then I test out different sources of sugar to see what botheres me. Is there anyone here who's also sensitive to fructose? Do you have to avoid everything that contains sugar or just high fructose corn syrup?

And my last question - if I can't have fructose, can I have sugar-free candy sweetened with sugar alcohols?

Thanks a lot, I know I have lots of questions but I'm still new to all this and I'm confused.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I have a reaction to any sweetner that is artifical.... My brother- in - law was a diabetic and his doc told him it was better to use a bit of sugar than use an artifical sweetner...This comes from a highly respected doctor..

can't help with the other part of your ???

mamaw

marciab Enthusiast
marciab
Posted

Hi,

It takes me a least 2 weeks to get my stomach back to normal once it gets completely torn up. The last time was from Niferex, an iron supplement. But, my experience with wheat the last time took me minimun 2 weeks to get over. I went from constipation, cramps, bloating, and pain for about a week to "D" for about 3 days. Then just gas and cramping for a few days.

Don't know about the fructose. But, I am relatively new to all this too.

Good luck .. Marcia

jaten Enthusiast
jaten
Posted

I've found that I have trouble with high fructose corn syrup. I found, after completely avoiding it for awhile, I can now tolerate traces of it, (like in ketchup), but still try to avoid it completely as much as possible. I also just don't tolerate any kind of sugary sweet anything very well. Honey seems to be easier for me to tolerate than anything else. No tests, nothing official for me...just a very definite pattern that I recognized.

Sandi* Apprentice
Sandi*
Posted
  • Author

Thanks for your responses :) . However, I'm a bit confused now. If it takes awhile for the symptoms to go away, how about the other way? I mean, for the fructose I have to watch which foods bother me. So is it possible that for example I eat an apple but don't get sick until 3 days later? That way it's hard to determine what made me sick :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,524
    • Most Online (within 30 mins)
      7,748
    Rob71
    Newest Member
    Rob71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Lynnard
      Waiting on biopsy results but wanted opinion on bloodwork

      By Lynnard · Posted

      Thank you! Eating out/take out has been half of my meals for a while so you are correct that this will be my biggest challenge. This has been a journey and I appreciate your help!
    • trents
      Waiting on biopsy results but wanted opinion on bloodwork

      By trents · Posted

      "Bonus points". I like that analogy!  At this point, the following article might be helpful: Eating out will be the biggest challenge and will present the most threat to avoiding gluten since you don't have control over how food is prepared and handled back in the restaurant kitchen. Become comfortable with asking questions of restaurant staff and requesting that your food be cooked in clean pots/pans/surfaces that haven't been used for gluten containing foods since last washed. In time, you will become more comfortable with taking control in these situations and learn to be appropriately assertive. One thing that will take time for you to get a handle on is how sensitive you are to minor amounts of gluten such as you might get in cross contamination scenarios. Each of us is different in that sense and there is no substitute for personal experience. When in doubt, however, avoid foods that you feel may be significantly cross contaminated. Better safe than sorry. In time, you will develop a sixth sense about these things.
    • Lynnard
      Waiting on biopsy results but wanted opinion on bloodwork

      By Lynnard · Posted

      Thank you!  Yes - labs are above but Deamidated Gliadin was super high, tTG was a weak positive and Immunoglobulin A was way below normal which gives "bonus points" to the positive tests because it can also cause false negative results.  This information confirms my thinking and I really appreciate your feedback!!!  
    • trents
      Waiting on biopsy results but wanted opinion on bloodwork

      By trents · Posted

      By far, the most likely cause of villous atrophy in the Marsh 3 range is celiac disease but there are other possible causes. Did you also have positive antibody tests? My guess is that when you see your physician he/she will declare you to have celiac disease. Of course, the ultimate proof of the pudding will be if you experience definite improvement in symptoms after going gluten free which, since you have now completed testing, you should begin to do.  
    • Lynnard
      Waiting on biopsy results but wanted opinion on bloodwork

      By Lynnard · Posted

      Hi again - I received the biopsy results but haven't had follow up appointment with Dr. yet.  Wondering if you could comment on this: "Duodenum, random, Biopsy (Cold Forceps): MILD VILLOUS BLUNTING WITH PROMINENT INTRAEPITHELIAL LYMPHOCYTES, CONSISTENT WITH SPRUE (MARSH TYPE 3A). See Comment. Negative for Infectious Organisms, Dysplasia or Malignancy. COMMENT: While characteristic, the histologic findings are not diagnostic for gluten-sensitive enteropathy / celiac disease. A number of additional entities can enter into the differential diagnosis of celiac disease based on the histologic features, including tropical sprue, bacterial overgrowth / stasis, unclassified sprue, specific food allergies, many drugs including NSAIDs, olmesartan and immune checkpoint inhibitors, and a wide range of autoimmune diseases including adult-onset autoimmune enteropathy, diabetes, thyroiditis, lupus and multiple sclerosis and occasionally common variable immune deficiency. History of drug take, celiac serologies, HLA-DQ status and response to a gluten-free diet might be a key for a definitive diagnosis" They say "consistent with Sprue (Marsh Type 3A)" and then comment that the findings are not diagnostic for celiac disease.  I thought Marsh type 3 was conclusive (and I know that 3A is the best outcome as it relates to intestinal damage). Is this just normal caveat language or am I missing something?  I had appt scheduled for tomorrow but Dr. is sick and now rescheduled to over a week from now.  Appreciate any insight you can offer in the mean time.  Thanks!!
×
×
  • Create New...