Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto-immune Diseases

BRUMI1968

Recommended Posts

pixiegirl Enthusiast
pixiegirl
Posted

I have Celiac, eosinophilic gastroenteritis and a ton of food allergies. I was not diagnosed with Celiac until I was in my mid 40's but had GI problems for a good 10 + years prior, so that may have contributed to my other problems.

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
Anyone else with other autoimmune diseases? I have ITP (Idiopathic Thrombocytopenia Purpura), though I'm currently untreated and just fine. It is when the spleen decides to kill off all your platelets until you bleed to death. Great!

Now I'm thinking having Celiac all my life might've contributed to getting ITP.

Yep! I have autoimmune hepatitis, Hashimoto's Thyroiditis, asthma, psoriasis, and rheumatoid arthritis. I'm being tested for celiac disease at the moment (I'm HLA DQ8). I also have a severe case of fibromyalgia that has put me in a wheelchair as of the beginning of September....there's some controversy as to whether or not fibro is an autoimmune disease.

Good luck to you!

JoAnn

1grnthmb Newbie
1grnthmb
Posted

I also have other auto immune diseases. Ankylosing Spondylitiis and Rheumatoid Arthritis along with many other health problems some of which are considered severe.

Mark

Live2BWell Enthusiast
Live2BWell
Posted

Another auto-immuner here (at the risk of sounding... complainish - autoimmune diseases suck!)

I have Hashimotos Thyroiditis, Celiac Disease, Fibromyalgia.. I also have type II diabetes ;)

mushroom Proficient
mushroom
Posted

Celiac, rheumatoid arthritis, psoriasis.

  • 2 years later...
JenniLu Newbie
JenniLu
Posted

Hello, I just wanted to let you know that when I was a child (4 or 5) I got Henoch-Schonlein Purpura. It came shortly after I had pneumonia and had it for about 6 weeks. I am 22 now but I still remember how terrible it felt when I was young, so I can sympathize with your daughter. Since it was so rare, especially then, doctors barely knew anything about it and I don't think my kidneys were ever even mentioned. I hope your daughter recovered well and has no long-term damage as a result. Anyway, I have tested mildly positive for Celiac in the recent past and I'm just wondering if there could be some link to this "allergic purpura" as a sign of what is to come in the future. I hope your daughter doesn't get Celiac D., like I did, but it would be smart for her to be tested for it. If you have any questions please feel free to email me at boysenberry_14@yahoo.com and I will do my best to help if I can.

Sincerely, Meghan Ganstine

My son had HSP when he was 14. A long drawn out episode. Prednisone didn't work, so he took injections of methotrexate. At the time he had to deal with painful intermittent stomachaches from the HSP and the metho. The HSP went into remission 14 months after the first onset. Off the meds, he had 3 good months followed by 3 more months of illness/weight loss before being diagnosed with celiac. I wonder if the damage the HSP / metho did to his gut contributed to the onset of the celiac. Of course, the doctors are not aware of any connections betweend his HSP and his celiac.

Juls Newbie
Juls
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

Is your RA sero-negative like mine? After I developed the psoriasis my diagnosis was changed to psoriatic arthritis.

  • 6 years later...
celiacmomcedarpark Newbie
celiacmomcedarpark
Posted
On 5/22/2006 at 5:30 PM, AndreaB said:

No one in our family is Celiac that I know of. I am allergic and having my family tested by enterolab for wheat/milk/soy/egg/yeast.

 

I am curious as to whether anyone here has had a child with Henoch-Schonlein Purpura. They don't know much about it (medical profession). My daughter just got over it and still needs to see a kidney specialist for a few months. She was going through a lot for the 2 1/2 months she had it. Very painful. My older two children have always had a very mild eczema on their cheeks. One of the reasons I'm getting them tested by enterolab. The gal there recommended the stool test over the allergy test. She used to work for an allergist. At least it goes over 4 of the main allergens.

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Jmg Mentor
Jmg
Posted
7 hours ago, celiacmomcedarpark said:

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

Posterboy Mentor
Posterboy
Posted
5 hours ago, Jmg said:

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

celiaccomcedarpark,

Let me add my welcome to jmg's.

Activity on the thread triggers the renewal of the thread.

I just wanted to add this new research on eczema in babies.

tI has been tied to the nutrient status of the mother. . .  so it possible you would need to be checked

for Celiac or NCGS yourself.

Open Original Shared Link

We don't think about disease being inherited traditionally through vitamins in this genetic age but research is finding more and more research ever day is acknowledging the role stress plays in a celiac diagnosis.  Who now's we might find it is more a 50/50 relationship than previously thought someday.

They are even studying the possibility of a vaccine for Celiac disease someday.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

and that B-Vitamins can help/are beneficial for those who have received a celiac diagnosis.

https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html

I hope this is helpful as Jmg said for the next reader that comes along and finds this new research you have posted.

I am certain you are not the only one who has noticed this connection between hsp and celiac disease and who might/benefit can help from it.  And who knows who you might could help by sharing.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,255
    • Most Online (within 30 mins)
      7,748
    MAGaby
    Newest Member
    MAGaby
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

      By Heather Hill · Posted

      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
×
×
  • Create New...