Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Elimination Diet

mart

Recommended Posts

mart Contributor
mart
Posted

Does anyone know how long is long enough for a casein elimination diet. Tried it on my son for 3 days. Day 1 he was better, but since Day 2, he still has stomachaches. If he's still gonna have the stomachache, should I just put him back on milk? Getting desperate! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

takes me a week to get over the casein symptoms. it'll take him longer than that to get used to the change in food.

Mango04 Enthusiast
Mango04
Posted

It might take at least 2-3 weeks until you see a change in your son's symptoms. Don't put him back on milk. Keep him CF for at least one month.

I reintroduced casein (via raw goat cheese) several months ago and it took me several weeks to get over the symptoms. I just don't think it leaves the body in a couple days.

One month CF is not as hard as it sounds. (heck, I've been doing it for over ten years! - minus that week I ate goat cheese) It's worth it to find out if this is the problem.

Good luck! I hope he feels better soon.

Felidae Enthusiast
Felidae
Posted

I would say try it for at least two weeks to one month. I keep trying to re-introduce cheese about every two months, but so far I have been unsuccessful. I guess I have to accept that I will probably never be able to eat dairy. You do get used to it, but you have to be a little creative.

elisabet Contributor
elisabet
Posted

For my son it took 6 weeks.The first 5 weeks thins were up and down.now every thing is just fine.Hope you can continue at least in 6 weeks,my son is just so different now.

elisabet

TCA Contributor
TCA
Posted

I just started eliminating milk and eggs from my diet last week for my daughter and haven't seen much change yet except for her eczema getting a little better. I don't have her asking for it, though, so it's much easier on me.

have you tried to distract your son with df treats? I don't think I could make it without strawberry real fruit bars by breyers, enjoy life snickerdoodles, and the Cravings place brownies. I'm sure you've tried this, just trying to help.......

I'll be thinking of you and hope it gets better quickly if that is his issue.... Immediate results make things so much easier.

elisabet Contributor
elisabet
Posted
I just started eliminating milk and eggs from my diet last week for my daughter and haven't seen much change yet except for her eczema getting a little better. I don't have her asking for it, though, so it's much easier on me.

have you tried to distract your son with df treats? I don't think I could make it without strawberry real fruit bars by breyers, enjoy life snickerdoodles, and the Cravings place brownies. I'm sure you've tried this, just trying to help.......

I'll be thinking of you and hope it gets better quickly if that is his issue.... Immediate results make things so much easier.

Hi,

Please be strong.We eliminated all diary.no milk no cheese ....and it gets better.My son is 13 years old so it was easy to explain.if you reduce sugar it helps a lot too.

my son had eczema and sinus problems for more than 10 years ,he could not sleep properly and was tired in the morning ,he was among the short children in his class,now he sleeps well,his eczema is gone and he is among the tallest.It is so funny that they make us believe if we do not give milk to our children they will not grow.after eliminating gluten and casein in his diet ,his life is really different.

your daughter is lucky that you come to this point while she is so young.

good luck elisabet

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,999
    • Most Online (within 30 mins)
      7,748
    Maryam Goli
    Newest Member
    Maryam Goli
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Vaccines

      By knitty kitty · Posted

      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      Increasing symptoms after going gluten free

      By knitty kitty · Posted

      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
    • knitty kitty
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By knitty kitty · Posted

      Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines.  Be sure to read the comments below the article. Have you been checked for nutritional deficiencies?  Low iron can affect antibody production, causing false negatives on antibody testing.  Do you currently struggle with low iron?   Low Vitamin D can cause amenorrhea, cessation of menstrual periods.   Correcting nutritional deficiencies is a big part of Celiac disease.  We don't absorb well the eight essential B vitamins and other vitamins and minerals like calcium, resulting in osteopenia, hair loss, infertility, and neurological symptoms.  Unfortunately, doctors are not given much training in nutritional deficiencies and don't recognize the connection with the malabsorption of Celiac disease. We get very frustrated here with doctors ordering us to put a harmful substance in our bodies in order for them to say "that makes you sick".   Duh, we know that already. Do try to increase your consumption of gluten for at least two weeks before retesting.  Eat the chewy kinds of breads.  Cookies and cakes don't have as much gluten in them as those chewy artisan breads and thick pizza crusts. I admire your tenacity at continuing the gluten challenge.  Do keep us posted on your progress.  We'll continue to support you on your journey to diagnosis and recovery.
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I would continue with your gluten challenge for another 2-3 weeks with the increased intake of gluten as outlined above.  You now say if you were confirmed to have celiac disease you would be even more strict about avoiding cross-contamination whereas in your first post you said, "Previously for many years 10+ I have been on a strict gluten free diet." Those statements seem to contradict one another. The celiac community as a whole understands that to be "on a strict gluten free diet" necessarily involves significant attention to cross-contamination. If you have not been strict with regard to CC up to now, it is difficult to say how that may have compromised your recovery and contributed to ongoing symptoms. Yet, even a significant reduction that falls short of gluten free can yield negative test results.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thanks for your response! Yes, you’re correct that many of my symptoms improved when I went gluten-free, but issues like bone loss, infertility, hair loss, etc., seem to be the ones that haven’t responded. I’ve been on the gluten challenge for almost 7 weeks now, and I’m wondering how long I should continue it before testing again and making a final decision. I understand the benefits of eating gluten-free long-term, but I’m unsure how much longer to stick with the challenge to avoid another false negative celiac blood test.   What I would do differently if the test were confirmed positive is I’d receive a small amount of government help with gluten-free foods as a confirmed celiac. Doctors would be able to rule out further exhaustive testing. I’d also become even more strict about avoiding cross-contamination (for example, when eating at someone’s house, they may say something is safe, but it could have been cross-contaminated with gluten, or when going out to restaurants, they might say it’s fine, but it really isn’t). So, I would be extremely strict with cross-contamination if I were 100% confirmed as celiac, even though I’ve tried to be over the years but still seem to get sick.   Any advice on how long is typically recommended to continue the gluten challenge to avoid a false negative on the celiac blood test would be greatly appreciated!
×
×
  • Create New...