Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

High Cortisol?

gymnastjlf

Recommended Posts

gymnastjlf Enthusiast
gymnastjlf
Posted

Hey everyone,

I was wondering if anyone else has had an abnormally high cortisol level on blood work? Mine was high prior to diagnosis of celiac (August 2005), and as of this week, it's STILL too high! I feel 100x better than I did in August, my only concerns now are that I haven't put any weight back on, I'm still drinking entirely too much water (the endocrinologist wants me to get a CT scan of my tummy to see if that shows anything:-(), and some minor complaints with gas. I've had my thyroid checked and the blood work's come back normal for that. Any ideas/stories to share?

Thanks:-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodiC Apprentice
JodiC
Posted

Did he test for Cushing's syndrome?

gymnastjlf Enthusiast
gymnastjlf
Posted
  • Author
Did he test for Cushing's syndrome?

What test(s) would have tested for Cushing's? I know my endo had spoken about it, but I don't have the most obvious symptom-- weight gain. But now looking on WebMD, I do have some of the other symptoms...

# Weight gain-- NO

# Skin changes.

- These include thin, fragile skin that bruises easily (yes); slow-healing wounds (yes); wide, purplish stretch marks on the body (striae) (NO); acne (yes); or a ruddy complexion (yes)

# Changes in mental state. Irritability, anxiety, inability to sleep (insomnia), or feelings of sadness or depression may develop. (a little)

# Muscle and bone weakness. Symptoms may include backache; broken bones, especially the ribs and spine (caused by osteoporosis); or loss of muscle tone and strength. Weakness of the muscles in the arms and legs may make it difficult to rise from a chair or climb stairs. (a little, much better since I've been gluten-free though)

# Sex hormone changes. Menstrual irregularity (yes), facial hair growth in women, erection problems (erectile dysfunction), or loss of sex drive may occur.

# High blood pressure and diabetes. High blood pressure (hypertension) and diabetes may not be diagnosed until you have a checkup. (I've got low BP!)

The blood work I've had:

- Glucose, BUN, CREAT, NA, K, CL, CO2, CA, Cortisol, DHEA Sulfate, FSH, Free T4, Homocysteine, LH, Urine osmolality, Prolactin, Testosterone, TSH, Urinalysis, Vitamin B12 serum, ACTH, Arginine Vasopressin, Osmolality serum.

mamaw Community Regular
mamaw
Posted

I agree check for Cushings disease.

  • 1 month later...
JodiC Apprentice
JodiC
Posted

Cortisol is the test for Cushings. It involves both blood and 24 hour urine tests.

gymnastjlf Enthusiast
gymnastjlf
Posted
  • Author

My endocrinologist called me back the other day. Based on the results of the 24 hour urine test, MRI (brain), and CT scan (abdomen), she doesn't see any obvious signs of Cushing's. She did, however, send all my test results and what not to I believe the National Institute of Health in MD to see if they have any ideas. So I guess I'm just a medical mystery, haha.

If anything's ever figured out, I'll let you know!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,381
    • Most Online (within 30 mins)
      7,748
    Terri Constable
    Newest Member
    Terri Constable
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
×
×
  • Create New...