Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid


manja

Recommended Posts

manja Apprentice

Hi everyone,

Have been reading about some people changing the dose of their thyroid medication from one day to the next and back to what it was before. I have Hashimoto disease and was just put on Levoxyl again. I am interested in finding out why you would do that.

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beelzebubble Contributor

from what i understand, that usually happens when someone needs more than one dose, but less than the next step up. as in, i'm slightly hypothyroid on .137 mg but hyper on .150. the doctor would then have you alternate to keep your levels optimal. that's what happened to me. i suppose there could be other reasons too.

2kids4me Contributor

We did that for about a year with my daughter when she was younger - one dose was too low and the next was too high - we alternated and it worked out great. Her levels were just right.

ladyx Newbie
We did that for about a year with my daughter when she was younger - one dose was too low and the next was too high - we alternated and it worked out great. Her levels were just right.

My dad has hyperthyroid pretty bad...they burned out half of his...he alternated for awhile until he figured out the right combination of vitamins to keep him in check and then weined himself off the meds now he is fine as long as he takes his vitamins everyday...in fact he has put on about 15-20lbs and is looking a little chunky these days. My parents are both nurses so don't try weining yourself of meds without medical supervision of course.

2kids4me Contributor

We can never wean her off her meds. She has no function left - completely hypothyroid. She needs the hormone to grow and have normal menstrual cycles.

Yes once HYPERthyroid tissue has been removed or has been treated with radioactive isotopes then it may not require meds. Also adults may be able to experiment. Children should not.

ladyx Newbie
We can never wean her off her meds. She has no function left - completely hypothyroid. She needs the hormone to grow and have normal menstrual cycles.

Yes once HYPERthyroid tissue has been removed or has been treated with radioactive isotopes then it may not require meds. Also adults may be able to experiment. Children should not.

I wasn't suggesting you experiment...I am sorry if you thought I was. I was just tring to suggest different reasons why people alterantate meds.

2kids4me Contributor

No problem, I just wanted to clarify that in some types of thyroid conditions (esp in children) - you cant wean them off or use vitamins. I am not as familiar with the hyperthyroid forms and post radiation treatment where that could be an option. I guess with the cyberworld where some might cling to the hope of getting off meds, I like to be clear about the whys and why nots. (at least with my kids).

Sometimes I develop verbal diarrhea and I "over explain" :rolleyes:

Wonder if verbal diarrhea is a symptom of accidental gluten? LOL :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,371
    • Most Online (within 30 mins)
      7,748

    Joanne Walko
    Newest Member
    Joanne Walko
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, the TTG-IGG was positive but not the TTG-IGA.
    • Scott Adams
      For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot.  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.
    • Scott Adams
      This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well.  If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
    • Scott Adams
      Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...